Anakinra injection

Adhesions, internal scarring, fat pad syndrome, infrapatellar contracture, patella infera (baja)
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Tomtom67
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Anakinra injection

Post by Tomtom67 »

I am seriously thinking of having an Ankinra injection for my arthrofibrosis, has anyone had this before ? Very little information apart from papers on the internet?
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vickster
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Re: Anakinra injection

Post by vickster »

There are a few posts on the forum about Anakinra if you pop it into the search function

https://www.kneeguru.co.uk/KNEEtalk/ind ... on=search2

Dogfacedgirl has posted on the subject for example
Came off bike onto concrete 9/9/09 (lat meniscus, lat condyle defect)
LK scopes 8/2/10 & 16/12/10
RK scope 5/2/15 (menisectomy, Hoffa’s fat pad trim)
LK scope 10.1.19 medial meniscectomy, trochlea MFX
LK scope 19.4.21 MFX to both condyles & trochlea, patella cartilage shaved, viscoseal, depo-medrone
limpylynn
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Re: Anakinra injection

Post by limpylynn »

Ok so I had the injection today I'll let you know how my recovery goes. Was at a point where nothing vent nothing gained
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DogfacedGirl
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Re: Anakinra injection

Post by DogfacedGirl »

Thanks for posting Tom, everyone will be very interested to hear how anakinra works for you! Have you had AF for long?

Kay
1999 Osteoarthritis both knees, chondroplasty
2004 MACI graft L knee
2005 MACI graft both knees
2007 MACI graft R knee
2007 Patella baja
2011 TKR both knees
2011 arthrofibrosis
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Re: Anakinra injection

Post by limpylynn »

So my accident was January 2018, I then had full ACL reconstruction both meniscus had split and flipped to the back of my knee, I'd also damaged my MCL and LCL.. Operation was in Feb but I couldn't bend or straighten fully so in April I had another operation to clear scar tissue and an MUA this got me back to walking but the arthrofibrosis was hindering return to pain free life.
I'll log my progress here but already today after sleeping I can
Straighten my knee without pain and can now straighten fully there was an 8 degree flex prior to the injection yesterday. I'll continue to log my progress but so far thrilled with the impact.
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DogfacedGirl
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Re: Anakinra injection

Post by DogfacedGirl »

Hi Lynn,
That's fantastic that you've had a good response to anakinra so far!! Your update is extremely valuable to the AF community, I can't thank you enough for posting it!
I hope your knee keeps improving. That was a serious accident :)
Kay
1999 Osteoarthritis both knees, chondroplasty
2004 MACI graft L knee
2005 MACI graft both knees
2007 MACI graft R knee
2007 Patella baja
2011 TKR both knees
2011 arthrofibrosis
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Re: Anakinra injection

Post by Tomtom67 »

Just an update since my Anakinra injection on August 19th 2019. I am now totally pain free day to day, can walk without clunking clicking or locking, no pain what so ever. I can also stand after sleeping or sitting down with just a tiny bit of stiffness but nothing like the stiffness before the injection, where I had to literally push my leg straight.
I am back running 4 miles a day, well jogging and it is almost without pain, I actually think most of the discomfort is in my head now. So I am so pleased I invested in the injection and that I trusted Mr Glynn Evans, he has quite literally changed my life.
Happy to take any questions or offer and help I can. One happy person.
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DogfacedGirl
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Re: Anakinra injection

Post by DogfacedGirl »

Wow, that is really helpful to know, thanks a lot for posting your fantastic outcome!! It seems that Anakinra can be a cure for AF, at least if it is caught early.

Can you tell us how long you had AF for, and how long it is since your last surgery? That would be useful knowledge for others.

Please be careful not to push too hard with running etc, AF can come back if enough inflammation is caused.

Thanks again,

Kay
1999 Osteoarthritis both knees, chondroplasty
2004 MACI graft L knee
2005 MACI graft both knees
2007 MACI graft R knee
2007 Patella baja
2011 TKR both knees
2011 arthrofibrosis
Tomtom67
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Re: Anakinra injection

Post by Tomtom67 »

So my accident was January 2018, I then had full ACL reconstruction both meniscus had split and flipped to the back of my knee, I'd also damaged my MCL and LCL.. Operation was in Feb but I couldn't bend or straighten fully so in April I had another operation to clear scar tissue and an MUA this got me back to walking but the arthrofibrosis was hindering return to pain free life.

So my arthrofibrosis was realitively new started April 2018 ish, and all research in to Anakinra injection points to being successful in mild to moderate arthrobibrosis

I can highly recommend Mr Evans though
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DogfacedGirl
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Re: Anakinra injection

Post by DogfacedGirl »

Thanks again for posting your experience and AF history, I appreciate it!

Kay
1999 Osteoarthritis both knees, chondroplasty
2004 MACI graft L knee
2005 MACI graft both knees
2007 MACI graft R knee
2007 Patella baja
2011 TKR both knees
2011 arthrofibrosis
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Re: Anakinra injection

Post by slink123 »

I had it and it worked for me also.
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DogfacedGirl
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Re: Anakinra injection

Post by DogfacedGirl »

Thanks for posting about anakinra Slink, it seems that it has cured quite a few people!

Kay
1999 Osteoarthritis both knees, chondroplasty
2004 MACI graft L knee
2005 MACI graft both knees
2007 MACI graft R knee
2007 Patella baja
2011 TKR both knees
2011 arthrofibrosis
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Re: Anakinra injection

Post by Roma »

Tomtom67 wrote: Just an update since my Anakinra injection on August 19th 2019. I am now totally pain free day to day, can walk without clunking clicking or locking, no pain what so ever. I can also stand after sleeping or sitting down with just a tiny bit of stiffness but nothing like the stiffness before the injection, where I had to literally push my leg straight.
I am back running 4 miles a day, well jogging and it is almost without pain, I actually think most of the discomfort is in my head now. So I am so pleased I invested in the injection and that I trusted Mr Glynn Evans, he has quite literally changed my life.
Happy to take any questions or offer and help I can. One happy person.
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Re: Anakinra injection

Post by WFD »

I know this is a very old thread, but on the off chance that people are still on the forum from time to time, have those of you who had the Anakinra injections (@tomtom67, @limplylynn) continued to have good results?

Anyone else (@dogfacedgirl) heard any more about it?

Thanks in advance for any information you might have.

I have severe AF and am out of options.
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Re: Anakinra injection

Post by The_KNEEguru »

I am sorry you have had no responses. A previous academic contributor on KNEEguru, Sebastiano Nutarelli, has set up this organisation in Switzerland - https://www.eukafcenter.ch/ and to which I am giving you the link in case their people can give you some insight into the use of Anakinra...
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