Any Peroneal Nerve recovery stories?

If you feel your knee problem has been successfully managed, let us hear about it. Post the full story with the first post - how it started, what symptoms, what you were told, what examinations and tests, what surgery, what type of rehab.
jwpartee
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Re: Any Peroneal Nerve recovery stories?

Post by jwpartee »

You have been through a lot. I am just on this journey and already exhausted. I will post my story and continue to post it other places. I know I need some encouragement for this evidently long battle. Any words you can give me I would appreciate.
Fraz27
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Re: Any Peroneal Nerve recovery stories?

Post by Fraz27 »

When you read more into peroneal nerve injury it looks pretty grim there is lots of info online a lot not very positive , overall best thing for me was really staying positive believing that nerve would reconnect , i always felt better during and after exercise and would encourage anyone to do as much as they could , my orthotist thought my early use of an ems machine really helped.
July 17 16 months since injury , now fully fit for work only issue i have is i cant lift my big toe i can lift all other toes and forsiflex foot , only notice any difference when barefoot as any footwear provides enough support im not wearing any supports or afo !

Fraz
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Re: Any Peroneal Nerve recovery stories?

Post by Tehvipir »

Hello. Well long story short. On June 24 of this year I had a tibulofibular dislocation, so basically my lower leg popped out. I tore my acl, and had an lcl and hamstring bicep femoris avulsed from my fibula head. And thay of course gave me foot drop to the letter. Well July 6th my ortho fixed my knee injuries and looked at my peroneal nerve and found some of it still attached but it was fanned out and had a big hematoma. My Dr is the university of Oklahoma football's team knee and should doc along with the US snowboarding team so he does great work and worked on heisman winner before they won the heisman. Anyways. When It came to my nerve he was at a loss. He did some looking and asking around and found a hand surgeon who would wanted to see me. Well we went to her yesterday and she suggested a nerve graft of 1 possibly 2 of my seroeal nerves from my calves and graft the peroneal nerve depending on the length ECT. She also recommended a tendon transfer as the nerve will take about 2 years to recover. The issue I have is in a firefighter and this was day off. So to wait 2 years might not he an option. And from the publications I have read the type of stretch Injury i have had a poor prognosis alone. I also now have been reading about tendon transfer and from the recent studies and publications it shows the ability of people to return to even sports with excellent results in college age kids. Even older people have had great results with 12 out of 12 would do it again and all of them can do daily activities with no brace. The movement of the foot is enough to drive with some people being on tip toes and jumping. I'm not looking at getting g back to sports as I'm 34 and have 2 younger kids so just playing with them and getting back to being a firefighter. My job title is a driver so I drive unless me officer is off then I am in charge if the engine. From the results I see I don't see any issues with me getting back to work but I haven't spoke to anyone with the tendon transfer nor know any pt as of now who habe seen it so not sure what to expect or if it's plausible. Any help or suggestions. Btw I'm relatively healthy slightly overweight but I have tons of power in my legs and calves. Blood work I am good with no of 116/75 usually. Don't smoke and drink like 3 times a year. I have no other medical conditions. So anyone have this done and have any idea what to expect? She said that recovery is 3 months for tendon transfer so that would mean all my surfeis and recovery are done about the same time. Within 6 months thanks.
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Re: Any Peroneal Nerve recovery stories?

Post by kim228 »

Fraz27 wrote: When you read more into peroneal nerve injury it looks pretty grim there is lots of info online a lot not very positive , overall best thing for me was really staying positive believing that nerve would reconnect , i always felt better during and after exercise and would encourage anyone to do as much as they could , my orthotist thought my early use of an ems machine really helped.
July 17 16 months since injury , now fully fit for work only issue i have is i cant lift my big toe i can lift all other toes and forsiflex foot , only notice any difference when barefoot as any footwear provides enough support im not wearing any supports or afo !

Fraz
Hi Fraz,

Congratulations on your progress!! Did you regain all dorsiflexion in your foot now? How much can you dorsiflex now?
Fraz27
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Re: Any Peroneal Nerve recovery stories?

Post by Fraz27 »

Hi yes the dorsiflexion has returned to pretty much as it should be , still the big toe lags behind others but a little more movement since last post.
Never had much improvement in the sensation but don't really notice it much now my NHS physio has been great , I go every 3 weeks , golfing and playing tennis without issue , I'm not going to go near a football !
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Re: Any Peroneal Nerve recovery stories?

Post by kim228 »

Fraz27 wrote: Hi yes the dorsiflexion has returned to pretty much as it should be , still the big toe lags behind others but a little more movement since last post.
Never had much improvement in the sensation but don't really notice it much now my NHS physio has been great , I go every 3 weeks , golfing and playing tennis without issue , I'm not going to go near a football !
So happy for you Fraz! Glad that your dorsiflexion has returned to normal. Yeah I would take functional return of the foot than the sensation. I can take a little bit of numbness as long as I can move my ankle.

Now I can dorsiflex to about the level but I don't have much strength to pull my foot up yet.. it's been about 5 months since the nerve has connected. Hopefully in a next couple of months I have more movement.

Did you do any special exercises to improve the dorsiflexion? I live in a small town and my PT is not very experienced with foot drop.. so I follow and incorporate some of the exercises from this forum. Would love to learn your exercises too..

Thanks,
Kim

Fraz27
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Re: Any Peroneal Nerve recovery stories?

Post by Fraz27 »

Hi Kim I used a green elastic band supplied by physio to pull up the foot and push against it back down when the nerve reconnected I hooked band over end of bed and pulled against it to to strengthen it , also found that cycling was really good I had the cages round the pedals.
Also the ems machine seemed to help and I was taking vitamin b12 daily ( read about it on here )
Always felt better after exercise
Good luck !😊
kim228
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Re: Any Peroneal Nerve recovery stories?

Post by kim228 »

Thank you for describing the exercises Fraz! Glad to hear you were using ems machine too, I'm going to incorporate the elastic band exercise (the one hook over end of bed and pull against it) into daily my routine.. Thanks again, Fraz.
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Re: Any Peroneal Nerve recovery stories?

Post by ff89 »

I'm 5 years after a knee dislocation ACL,PCL,LCL and popliteal artery tear w/ peroneal injury. I want to give people suffering through similar injuries some hope. I was very active before the injury and the thought of having foot drop for the rest of my life scared the shit out of me. Now, I know I will have footdrop for the rest of my life, but I'm ok with that.
My knee is good enough now but I still have footdrop. I regained weak eversion but hardly any dorsiflexion. 5 years ago I thought I would not be able to enjoy any of my previous activities and would have to wear an AFO.
1 year after the injury I returned to work on a forest fire crew and have been logging in the winters. All very physical work that gives even people with normal knees a hard time. The footdrop doesn't slow me down. I am able to hike steep mountains with a backpack and chainsaw day in and day out with a pair of 10 inch tall boots. For day to day if I know I will be doing anything more than walking on pavement I will wear a soft ankle brace and some ankle high hiking shoes.
If anyone wants to talk in detail feel free to message me. I had horrible nerve pain for months after the injury which has gone away now but reading this thread seems to bring back the tingling. I feel for all of you going through this!
Shumster
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Re: Any Peroneal Nerve recovery stories?

Post by Shumster »

Hey ya'll, I haven't posted on here in many years. Some of you might have read some of my stuff. I just wanted to tough in to give an update and offer my contact info if any wants to talk.

It's been about 5 years since my water skiing LCL/PCL/ACL knee dislocation and peroneal nerve damage from compartment syndrome. I never did recover my tib ant, but about 2-3 years ago, I had an Posterior Tibial tendon transfer (game changer) and have been walking around no problem without an AFO.

I can lightly jog, kinda sprint? I have gotten back to downhill skiing and otherwise hardly think about my foot drop. I even hiked the West Coast Trail (75KM backpacking trip in BC Canada). Also hiked for 3 days in the Peruvian Andes!

Anyway, there is much more that I can share but I can't think of it all right now.

If anyone has questions or want to talk feel free to give me a shout at [email protected]

Hope everyone is doing alright, stay positive and things will get better. Maybe not how you expect but things will work out.

Take care,

Shumster
kim228
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Re: Any Peroneal Nerve recovery stories?

Post by kim228 »

I feel like I owe to this thread since I've been recovered from a peroneal nerve injury. I've learned so much from this thread and being able to go for right direction from this thread than from my neurologists or general doctor.. So I thought I would like to share my story hope someone benefitted from my story..

I got my nerve injured about one and half year ago on March 2017. On September 2017, I got a decompression nerve surgery from my doctor podiatrist. As soon as I woke up from the surgery, I was able to move my foot a bit also, being able to feel my foot which is weird. Before I'm not sure where my foot is, after the surgery, even though i could not move much but I was able to feel that my foot was there.. About 3-4 months after surgery, I was able to walk without AFO or any kind of brace. I just wear a light running shoes and about 50% dorsiflexion was back that time. Now after about a year since the surgery, my dorsiflexion is about 90% and I am able to walk, run and dance, wear any kind of shoes, flats, sandals and flip flops. Of course I am doing a lot of balance exercises due to putting more pressure to the other leg, still has some weakness left in my injured foot but it was very minor.

My advice to everyone is definitely get a decompression surgery if you think you have a compressed peroneal nerve. I got my nerve compressed from sitting cross-legged (meditation pose) for quite long time during a camp with cold weather, so blood circulation was cut off and cold temperature made it worse. I thought it was a minor injury and I would get my foot back in no time. However I didn't realize that I injured my nerve and my nerve had been compressed for a long time. Didn't think I was needed a surgery to release a nerve. Time went on and made me worry more and more. Luckily I found this thread and read every single page to understand different types of injuries and why need to have a surgery. I went to 3-4 neurologists, did nerve test, but as my fellow people from this thread said all neurologists said the same thing, if it returns, it returns, if not I had to live with foot drop for the rest of my life. I was depressed, read every post in this thread, screenshoted on my phone, talked with my friend what to do about it.. Fate or not, I went into this podiatrist for getting AFO done but he suggested that I should go to his colleague who took a peroneal nerve surgery training from this famous doctor Dr. Dellon. Perfect! His office was about 2 hours away from my house. I went to foot doctor and scheduled the surgery within 3 weeks and bam I was able to move my foot when I woke up from surgery. So please please please do consider the foot drop surgery (nerve would die if it doesn't come back in after 6-8 months)

Feel free to massage me if you would like any more information. I'm happy to share anything I know. This injury is not an easy one, it's a difficult journey with a lot of support needed. I pray and wish everyone the fastest recovery!!
Last edited by kim228 on Thu Aug 30, 2018 10:43 pm, edited 1 time in total.
Irish_Jon
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Re: Any Peroneal Nerve recovery stories?

Post by Irish_Jon »

Hi guys,

I finally found this site after many months of searching for something positive instead of the multiple doom & gloom articles/studies that I came across.

Basically, 6 months ago I had a horrific rugby accident. My knee had already hyperextended at the exact moment my trailing leg was spun so my knee had no option but to corkscrew itself - resulting in LCL, ACL & PCL tears, posterolateral corner basically torn apart, bicep femoral was destroyed and my tibia displaced and stretched my peroneal nerve resulting in foot drop.

I had surgery pretty quickly exactly a week post injury and then spent 12 weeks on a jack brace that took gravity off my tibia in the hope my PCL would repair itself. The surgery itself was LCL repair using a hamstring graft, recon of my PL-corner and some nerve decompression. The PCL did indeed heal itself, my LCL was a success, I still have a semi paralysed foot with nerve pain and the ACL repair is a consideration for the future.

My main question is….how long will a surgeon wait to perform a MUA? My rehab has been going great however when I first came out of my brace my knee had frozen at 70 degrees, 6 months later and a lot of painful pt sessions later and it is between 90-100 degrees. I myself do not feel I can push any harder as I am very strong and stubborn, my hydrotherapist stopped out sessions for the same reason as she feared I would not stop her going to far and further damaging me. So, at what stage in a MUA still a consideration as my knee is not improving?

Also, I also have just enough power in my foot to wriggle my big toe and I can dorsiflex when my leg is raised and relaxed but not whilst on the ground. I still suffer extreme nerve pain ranging from tingles and shocks, to my foot feeling like it is on fire and going to swell out of my shoe. I can walk short distances using an AFO but after a short while my leg and foot become tired and slap the ground which then sends the shocks through my shin and foot. It is all very exhausting and draining, and I need to rest up to recover for further walks. Is this recovery normal and what can I expect from my nerve damage and regeneration?


Any advice would be greatly appreciated
Last edited by Irish_Jon on Tue Oct 26, 2021 1:27 pm, edited 1 time in total.
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Re: Any Peroneal Nerve recovery stories?

Post by Shane1 »

Hi all,
like many of you I have been looking for hopeful stories of recovery, and this is one of the few useful resources around. I guess its a bit early to give a positive outcome for my circumstances, but perhaps it may help for others to know they are not the only ones to suffer excruciating nerve pain, and it can get better!

4 months ago i came off my mountainbike, not doing anything particularly interesting, but went over the bars. I must have landed on my right leg, which was pushed 4" up into my abdomen. So I shattered my hip - which is now back together, but also damaged my sciatic nerve (which includes the peroneal). That took out all sensory and motor function below my R knee, and the same for my hamstrings. Drs say its 2 years for nerves to grow back (I woudl damage the longest nerve in the body!) but you do reading and the NMJ starts to give up around then, so its all quite terrifying.

After the hip operation, where they took pressure off of the sciatic, it felt like a rod of iron was running down back of leg between bum and knee. 3 sleepness nights in hospital, no drugs worked on the pain. the Prof. reckoned this was a good result, any change was good.

Pain has at times been excruciating. I would sometimes have to take my socks and shoes off, and look at both feet, to convince my brain that nobody was hitting my foot with a hammer, or applying electric shocks. Doing those mental exercises: telling myself that the pain is not real - helped maybe 80% of the time. I got quite good at it, like meditation. I think a big part of this is being able to cope with and push back the pain.

I had 6-8 weeks of very little sleep - I have been on pregabalin throughout - but it gradually got better. Once sleep returned then I could cope with other things, lower pregabalin levels and begin to feel more human.

I can walk now - its exhausting but my endurance is slowly improving. The two things I am doing, are going for a short walk every morning - no matter how tired or sore, just getting out. The other thing I have is an indoor bike. I wear an ortho to brace my ankle, and I ride that to exhaustion (30-60 minutes) 2-3 times a week. It works very well to banish the depression that just comes over some mornings. Having an online record of the average power increasing, is really important to motivaiton.

I still have no motor function below the knee, my hamstrings kindof work, the inside one perhaps was always working and my physio thinks he can see the middle one working higher up (perhaps where its being re-eneverated).

So 4 months later, no sign of motor function below knee. I vaguely feel sometimes like my foot is in a wet sock, and I get some tinglings aroudn the foot and the shin. I'd say that some of the intense painful periods are now feeling more like short, sharp pins and needles. No sensory recovery but I am holding on to the improved fitness on the bike (v important to me!) and the hamstrings coming back on line (maybe).

I am very concerned about supporting nerve growth, even though Drs say nothing can help. I take fish oils as fishy fatty acids can support remyelination. I take Butyrate to try to inhibit muscle atrophy. There is also a lot out there on HGH or Ibutamoren supporting accelerated nerve growth...I won't say what I'm doing but I'm doing everything I can thats safe to support my nerves.

So despite it being too early for me to give anyone advice, I can only say the pain can get better, and doing exercise (for me, intense sessions) has been a gamechanger for sure for my head, and I hope for my leg. You have to do something that makes you feel a bit like the person you were before.

Cheers
Shane


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Re: Any Peroneal Nerve recovery stories?

Post by Arya4745 »

Hi Everyone,

I am aware this is an old thread but there has been so much good content i was hoping to get some information and guidance.

I am a young 33yoM doctor from Sydney training in O&G. 7 weeks ago i was in a freak accident when leaving work. I was struck by a car whilst crossing a pedestrian crossing. As a results i was airlifted to a tertiary hosital. I had a big piece of glass penetrating into the back of my right knee lacerating the lateral head of gastrocnemius muscle and complete laceration of the common peroneal nerve. I was operated on within 12 hours and had end-end anastomosis of the nerve and kept it off tension during recovery.

As a result i have complete peroneal nerve deficit and subsequent foot drop. I am very eager to hear of anyone elses stories of complete laceration of grafting.

I am also very eager to do everything i can to improve axon/ nerve regeneration and prevent atrophy of the dennervated muscles. I have had very limited luck speaking to specialists and digging through research (mostly animal trials) on the internet.

I am rather dissapointed that i cannot find a physiotherapist who is engaged and interested in peripheral nerve injuries. I feel as though every physio and their dog recognises foot drop and purely wants to help me live with it.

Any help would be very much appreciated. I am more than happy for people to message me directly.

I hope eveyone is doing well and on the road to recovery.
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Re: Any Peroneal Nerve recovery stories?

Post by Katinstars »

Hello,

I know there hasn’t been much activity on this forum, but I am still trying to reach out as it’s very difficult for us. We live in France.

My boyfriend had a scooter accident and he is devastated that we will never be able to walk normally for the rest of his life. I know that we need to act quickly to make sure to do the right decisions before the muscle atrophies (so dies out). I am seeking all the possible testimonies to know how to act, as doctors are not always helpful.

The injuries he had on the left leg :
- luxation of the knee
- 4 crossed ligaments thorn
- 1 artery behind the knee that was damaged and repaired un a 7h surgery ; there was a risk of amputation
- his perineal nerve that has been damaged and has left him with a foot drop symptom

I want to seek advice about this last injury : the perineal nerve.

About the nerve problem:
50days after injury, the electromyogram indicated no electrical signal.
It is not sectioned but elongated.
What is an axonotmesis ? It’s when when part of the nerve is damaged. The axons (one of items inside the nerve) and their myelin sheath are damaged in this kind of injury, but the endoneurium, perineurium and epineurium remain intact (the outside part of the nerve).

I am seeking for anyone with :
- testimonials from people who had axonotmesis or neurotmesis without nerve section and who recovered and who share how and what they did
- in the case of neurotmesis without division, how did they identify this? (not easy because we avoid opening a nerve just to see how it is)


Thank you so much in advance.

Kat
Global injury 6 dec. 2023: luxation of the knee, 4 crossed ligaments thorn, 1 artery behind the knee damaged and repaired, perineal nerve damaged + foot drop symptom
Nerve damage: not sectioned but elongated. Grade axonotmesis. electromyogram: no electrical signal

We are looking for anyone who had axonotmesis or neurotmesis without nerve section and who recovered and share how / what they did.
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