Banner - Hide this banner





Author Topic: appt thursday  (Read 2048 times)

0 Members and 1 Guest are viewing this topic.

Offline allstardiva2005

  • Forum Faithful
  • ****
  • Posts: 321
  • Liked: 1
    • Behind the Jersey
appt thursday
« on: July 15, 2004, 06:24:55 AM »
as many of you may remember, i've been in a lot of pain for the longest time. my ex-surgeon gave up on me, PT wasn't working so I had to drop that when insurance stopped covering it, an MRI prolly won't show much and insurance won't cover it, no meds (aside from vicodin) works, and pain management doctor wants to wait to see what the surgeon does before proceeding. i've been waiting for two months to see my new surgeon for the second time.

last time she didn't think my knee was a surgical problem and that i just had chronic patellar and pes tendonitis and acute pfs. i'm 17 and haven't been able to run for almost a year (it'll be a year in 2 weeks or so). i've been on crutches for the most part since Thanksgiving.

so basically, i'm desperately wishing for the surgeon to agree to perform an exploratory surgery on my knee so we can get to the bottom of this. i've spent the past 6 months listening to surgeons come up w/ any and every possible 'problem' that can be solved w/o surgery and it hasn't worked. so if you could keep me in your prayers for tomorrow's appt b/c if she doesn't have answers- i'm gonna prolly have to go out of state to find someone to fix me. plus i'd love to be off crutches for my senior year and attend homecoming/prom w/o crutches.

thanks a ton
xoxo- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

Offline Heather M.

  • SuperKNEEgeek
  • *****
  • Posts: 4007
  • Liked: 13
    • Check out my photography!
Re: appt thursday
« Reply #1 on: July 15, 2004, 10:30:17 AM »
Given the number of surgeries you've had, has anyone talked to you about scar tissue?  It can happen as the result of multiple procedures, post-op immobilization, or a genetic pre-disposition to forming too much of the stuff.  Scar tissue isn't always a problem, but when the knee joint fills up with it, and when it wraps around nerves, it can cause real problems.  

Anyway, I just thought of scar tissue when I read your signature.  Anytime someone has been struggling for a long time, can't progress in PT, has had surgery or PFS issues, and is given a diagnosis of "tendinitis" I get very suspicious.  Maybe I'm projecting again  :P

That was my first thought--arthrofibrosis.  And while my 'tendinitis' diagnosis was actually technically correct, it missed the underlying cause of the extreme irritation and inflammation of my patellar tendon.  My surgeon was excellent, but arthrofibrosis is such a rare condition that he'd never seen a really bad case of it before.

Where do you live?  I know a couple of really great PFS specialists who deal only with knees, and they are knee gurus without doubt.  To be honest, I never had much success with 'pushing' my OS to do an exploratory...because the fact remained he didn't know  what to do with what he found any more than he was able to diagnose the knee without cutting it open.  That's totally different from my experience with the last Knee Guru I saw--he knew what was wrong with my knee before he ever came into the room, just from looking at the MRI & X-rays and reading a paragraph long blurb.  He did surgery to verify, but was right all along....

Heather
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline allstardiva2005

  • Forum Faithful
  • ****
  • Posts: 321
  • Liked: 1
    • Behind the Jersey
Re: appt thursday
« Reply #2 on: July 15, 2004, 02:27:34 PM »
yeah scar tissue is a possibility too. well i want an exploratory surgery b/c i've already had 2 of them with my previous surgeon and i was right both times and i'm positive that there is something going on in there if someone will just believe me and operate lol.

i'm in michigan and my new surgeon is patricia kolowich (surgeon for the red wings, lions, and tigers)...

xoxo- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

Offline Holly

  • SuperKNEEgeek
  • *****
  • Posts: 658
  • Liked: 0
  • Runs with scissors
Re: appt thursday
« Reply #3 on: July 15, 2004, 06:45:42 PM »
Dear Christy:

I'm with Heather.  I, too, had a problem with continued pain and failure to progress in PT and it turned out to be scar tissue.  Had an MUA/Lysis of adhesions and am now making good progress.  The MUA alone would have done nothing...it was the removal of the scar tissue that did the trick!

No matter what, though, I will keep you in my prayers and hope that this doctor will LISTEN to you and will take a "let's DO SOMETHING" approach to your problem.  I know how frustrated and angry you must be feeling...and at such a young age.  I truly feel for you, sweetie!

Good luck to you.  Here come lots of hugs!

Holly
1998 run over by car;Rt knee lat menisc/med menisc tear, ACL/MCL tear, patella frx, tib frx, femur frx, 4 scopes repr menisc/repr lig/debride pat, open MCL rpr, dbl osteot3/04;MUA,lysis6/04;scope10/04

Offline allstardiva2005

  • Forum Faithful
  • ****
  • Posts: 321
  • Liked: 1
    • Behind the Jersey
Re: appt thursday
« Reply #4 on: July 15, 2004, 10:53:47 PM »
thank you for your encouraging thoughts Heather and Holly. guess what!? my surgeon agreed to performing a SCOPE! yay!! lol. I had a lot of complaints with the medial side of my knee and she said that from your ex-surgeon's operation notes, we can't tell how much meniscus he took out. it may be that he took so much that your medial compartment is in overload and you need an allograft, but hopefully that won't be the case. and if i do need an allograft, it'll be around Christmas.

but i was really excited to find a surgeon who listened to me and is willing to try a scope. she also said the ultrasound results show that my tendonitis really wasn't tendonitis, but tendonosis. and she asked, so if i can just fix the pain deep in your knee and not the front anterior pain- could you live with that? and i said yes. so we agreed on a scope for august 20th.

thanks again guys :)
xoxo- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **

Offline Gab

  • SuperKNEEgeek
  • *****
  • Posts: 608
  • Liked: 1
  • Boston, USA
Re: appt thursday
« Reply #5 on: July 16, 2004, 07:26:08 AM »
Hi Christy, that is some GOOD news!  :D I read about your problems in earlier threads and it sucks to be stuck like that at 17..Doesn't it feel good to be seen by the doctor of several professional teams?? My OS is the head physician of the New England Patriots (2 times SuperBowl champs! ;D), Boston Bruins and New England Revolution. So when he makes a diagnosis, I believe him..

Well hang in there until your scope and try to make the best of what comes to you in the meantime!

Cheers,
Francois
April 14th, 2004: Floor hockey accident, complete ACL tear (left knee).
June 11th, 2004: ACL reconstruction, patellar tendon autograft.
January 21st, 2005: Cyclops Lesion removal

Offline allstardiva2005

  • Forum Faithful
  • ****
  • Posts: 321
  • Liked: 1
    • Behind the Jersey
Re: appt thursday
« Reply #6 on: July 16, 2004, 11:40:31 PM »
yeah its great having a surgeon who operates on multiple pro teams. this lady was like "if the red wings (3 time stanley cup champs in like 8 or 9 years) let her operate on them, then you know you're in good hands"

thanks again for your nice comments!
xoxo- Christy
Medial Meniscus Repair- '00,03
Partial Meniscectomy- '03, '04
ACL Reconstruction- '02
Exploratory Scope- '05
Allograft ACL Revision & Neuroma Excision- '06
Hardware Removal & Bone Filing- '06
Scar Tissue Removel- '07

** Medial meniscus transplant is in the near future... **















support