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Author Topic: Lateral release made by mistake: is there a way to fix it?  (Read 1350 times)

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Offline Iris123

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Lateral release made by mistake: is there a way to fix it?
« on: July 09, 2021, 06:39:57 AM »
Hello everybody,

I am new, I found this forum by chance surfing the web, I write from Italy, so I apologize if my English is not so good.

I 'm 42 years old and I 'm the victim of a surgical error.
I underwent an arthroscopic operation which was supposed to consist of an ITB release but the surgeon made a mistake that day and, instead of the ITB ,released the external alar ligament or, if you prefer, the lateral patellar femoral ligament. The thing was hidden in the medical record but obviously at the first magnetic resonance I realized the scam.
It's been two years since the surgery and I can't walk anymore because the kneecap swings inward with every single step, creating pain and swelling. I spend my days lying and sitting. I'm desperate.

Now I 'm trying to fix it, I would like to repair the ligament, but unfortunately all the orthopedists consulted in Italy do not practice this operation, in fact some have told me that it is not possible to reattach this ligament as it is impossible to find the right tension, others instead told me who have read about the possibility of doing this surgery but have never done it.

Reading this forum it seemed to me that some people have undergone such surgery so I want to ask you:

can you recommend any surgeons (maybe in Europe, but also outside) who practice this kind of surgery?
How did it go for those who underwent this surgery?
The doctors told me that the risk is to develop external hyperpressure, is that so?
thanks to those who will help me !!

Online vickster

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #1 on: July 09, 2021, 07:56:49 AM »
Sorry to hear of the issues you’re having.

I recall a poster having a repair following a botched lateral release undertaken by this patella specialist surgeon in Denmark. You can arrange a virtual consultation via the link.
https://www.kneeguru.co.uk/KNEEnotes/knee-surgeon/dr-lars-blond?action

He has written this article about lateral release, clearly an area of expertise

https://www.kneeguru.co.uk/KNEEnotes/articles/expert-views/2019/lateral-release-why-bad-reputation

In the list of PF specialist surgeons there’s also this surgeon in Bologna. I don’t know anything about him though but might be worth consulting
https://www.kneeguru.co.uk/KNEEnotes/knee-surgeon/prof-dr-stefano-zaffagnini?action

The whole list is here
https://www.kneeguru.co.uk/KNEEnotes/primers/whos-who-knee-surgery/whos-who-patellofemoral-surgery

Good luck :)
« Last Edit: July 09, 2021, 07:58:55 AM by vickster »
Came off bike onto concrete 9/9/09 (lat meniscus, lat condyle defect)
LK scopes 8/2/10 & 16/12/10
RK scope 5/2/15 (menisectomy, Hoffa’s fat pad trim)
LK scope 10.1.19 medial meniscectomy, trochlea MFX
LK scope 19.4.21 MFX to both condyles & trochlea, patella cartilage shaved, viscoseal, depo-medrone

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #2 on: July 09, 2021, 08:53:22 AM »
Better to forget about orthopedic surgery in Bologna .. bad experience there !!! They ruined me !!!
I asked doctors from Milan but they have no experience with this kind of surgery.
Here on the forum I read about a certain Dr. Teitge in USA, but I suppose he is now retired .. I was hoping to find someone in Europe who could have the same experience in this field.

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #3 on: July 09, 2021, 08:56:34 AM »
Was it that specific surgeon in Bologna? Or that hospital?

Yes, the expert in Europe is Lars Blond in Denmark as I linked.  David Dujour in France has also been mentioned on the forum in the past in relation to PF issues.
I don’t recall any mentions around LR repair specifically, but in the UK, Jonathan Eldridge is recognised in the PF field.

Dr Teitge is retired as you say
« Last Edit: July 09, 2021, 09:07:54 AM by vickster »
Came off bike onto concrete 9/9/09 (lat meniscus, lat condyle defect)
LK scopes 8/2/10 & 16/12/10
RK scope 5/2/15 (menisectomy, Hoffa’s fat pad trim)
LK scope 10.1.19 medial meniscectomy, trochlea MFX
LK scope 19.4.21 MFX to both condyles & trochlea, patella cartilage shaved, viscoseal, depo-medrone

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #4 on: July 09, 2021, 09:43:47 AM »
Thank you for the links, I found the article very interesting, especially where Dr. Lars explains that it is possible to reconstruct the external alar ligament.In Italy I consulted many doctors and professors, but they all replied that this kind of surgery is not possible by adding that even if an attempt were made it would probably be a failure .. I am very afraid because I would not want to be even worse than that! I am deeply depressed and I do not think I would endure another failure!

However, I would like to try at least to deepen the subject. I wanted to ask you: does the online consultation through the link you sent me have a cost?
moreover, is it possible to do the consultation in writing or is it necessary to make an oral exchange via video? I ask because I have problems with the language ..

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #5 on: July 09, 2021, 10:14:16 AM »
The service is nothing to do with me but I’m sure yes, the doctors are consulting privately so there would be a fee for their time and services.
Best to contact his office and ask for details on cost and how communication can be done. I would assume some sort of face to face meeting would be required at some stage to undertake an examination.

Maybe there’s some sort of reciprocal agreement between the Italian and Danish healthcare systems? Again, best to talk to him

Here is his website which includes his email address
https://www.larsblond.com/
« Last Edit: July 09, 2021, 10:30:25 AM by vickster »
Came off bike onto concrete 9/9/09 (lat meniscus, lat condyle defect)
LK scopes 8/2/10 & 16/12/10
RK scope 5/2/15 (menisectomy, Hoffa’s fat pad trim)
LK scope 10.1.19 medial meniscectomy, trochlea MFX
LK scope 19.4.21 MFX to both condyles & trochlea, patella cartilage shaved, viscoseal, depo-medrone

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #6 on: July 09, 2021, 04:11:47 PM »
Thanks, very kind!
I tried to use the 'search' function to find in this forum the posts of the person operated  by this doctor (as you told me in your first post) but I have not found them. How should I set up the search?
In general I would like to read the posts of those who have reconstructed the lateral patellar femoral ligament.
Secondly ... how can I send private messages to other users?

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #7 on: July 09, 2021, 05:27:04 PM »
You need 20 posts on the forum to be able to PM so you won’t be able to respond to this. You can get your post count up using the Games Room part of the forum. This is to deter spammers from spamming members!
Came off bike onto concrete 9/9/09 (lat meniscus, lat condyle defect)
LK scopes 8/2/10 & 16/12/10
RK scope 5/2/15 (menisectomy, Hoffa’s fat pad trim)
LK scope 10.1.19 medial meniscectomy, trochlea MFX
LK scope 19.4.21 MFX to both condyles & trochlea, patella cartilage shaved, viscoseal, depo-medrone

Offline Bagelsk333

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #8 on: July 11, 2021, 07:50:03 AM »
First, I am so sorry for your pain. I too have been living a nightmare. To make an incredibly long story short, I had a “very simple lateral release” on both sides at the same time in Nov 2019. I have not wakes normally since then. I too have MPS (Medial Patellar Subluxations)or IMPI and now have had a total of 6 surgeries and 3 osteotomies to fix it. To complicate things, I am an athrofibrosis patient, meaning I form a lot of scar tissue. Here is what I can share with you that hopefully might help you and I am praying that it also helps me. Have them look to see if your surgeon not only cut the lateral ligament (lateral retinaculm) but also the tendon that lies underneath it, the vastus lateralis tendon. When this is cut, severe disability can occur. Do you have a dent above your knee cap at all? Can you sit at the edge of your bed and raise your leg from 90 degrees to a straight position? Can you walk forward facing down the stairs? Can you squat? Can you get out of a chair without any assistance including from your own arms? I can not do any of this and I believe it is because of my vastus lateralis tendon being cut. It affects your extensor mechanism which is what you need for all of this. In addition it also can cause patella Baja which I also now have as well as MPS. I am talking with a couple surgeons to see if they could repair this tendon and if they feel like it will help me regain some function. I am curious if you are also experiencing some of the same symptoms? It has taken me almost 2 years of research but I truly believe this is the root of my problems. Maybe this post will help someone else too. Attaching a picture of my “dent”. Praying for us all!

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #9 on: July 11, 2021, 09:47:40 AM »
Thank you for your answer!

It is good for my heart to talk about my situation because I am deeply depressed and desperate, life no longer makes sense to me.

I underwent a lateral release two years ago AGAINST MY WILL!
Before the operation I had consulted many doctors who had proposed the lateral release to me but I always refused because I knew it had disastrous effects!
Then I met a doctor, considered a great luminary in Italy who gained my trust by telling me 'don't let you touch the external alar ligament because you end up in a tunnel', then he proposed a mini-invasive release of the ITB band and I accepted.
I underwent surgery under sedation, I could not see or hear anything, and on that occasion the surgeon cut my external alar ligament without my consent. They noticed the mistake so they hid what they had done and didn't write it in the medical record !!!!! It was a scam !!

I quickly developed media instability and had to investigate what was done to me by myself because no one wanted to tell me the truth.
I found out from MRI that my external alar ligament was cut. A criminal trial will deal with this !!

Now I come to your question where you ask me if my vastus medialis ligament was cut. My answer is: I don't know! I do not have a true medical record, I have nothing in my hand but an MRI, but there it is written only of the external alar ligament.
Now I ask you: How do you know that this vastus lateralis ligament was cut? It's written in your medical record, did they see it on the MRI?
Coming to your questions about the range of my movements:
I can extend my leg, but I cannot squat, I cannot go down the stairs, I can go up the stairs with pain, but the worst part is that with every step I feel the kneecap swerve inside!

How did you get diagnosed with medial instability? Did they see it with instrumental tests or did they rely on the clinic?

In Italy you cannot find doctors able to repair the lateral patellar femoral ligament, here they only offer you the distal realignment!
Instead I am looking for someone who repairs the ligament, but in Italy there is not, there are only people who say they have read in the literature but have never performed this surgery.

I am looking for someone who is able to repair the ligament because he has already done so and not someone who repairs it by experimenting on me as a guinea pig!

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #10 on: July 11, 2021, 09:52:19 AM »
I forgot..
You asked me a question about a dent above the kneecap, I don't know what you mean by it and I don't see the picture you say you have attached.
In any case I can tell you that there is a gap between the patella and the femur, like a corridor which means that they are detached.

Offline Brandon123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #11 on: July 12, 2021, 07:36:58 PM »
Hi Iris123,

Sorry for your pain and suffering. Please read the story of @frustrated101 (go to Members -> Search for members) on this forum. He was "lateral released" (without consent) and developed all sorts of problems afterwards. He travelled from the U.S. to Dr. Lars Blond in Denmark, who helped him. I'll try to link one of the threads where he has posted about his experience:

https://www.kneeguru.co.uk/KNEEtalk/index.php?topic=76401.msg696636#msg696636

I don't know how he's doing nowadays. But you can try to PM him (after you have 20 posts).

Most importantly, do not give up! I do think your situation can be improved once you find a skilled and knowledgeable patellofemoral expert/surgeon, such as for example Dr. Blond.
RK sharp pain while running, diagnosis chondromalacia patellae 6/09
RK arthroscopic chondroplasty 9/09
RK rehab, recovery, 90% normal, started running again -> back to square one 5/15
RK diagnosis patellofemoral arthritis + LK diagnosis chondromalacia patellae 8/15 -> conservative treatment

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #12 on: July 13, 2021, 06:07:29 AM »
Hi, I tried to write a private message to 'frustrated101', but he didn't reply.
The worst thing is that I had rejected all the doctors who had offered me the lateral release because I knew that it does not work, I trusted a professor who told me 'do not let the alar ligament touch you because you end up in a tunnel', instead of the the end he made me end up in that tunnel !!
think that in the medical record I was written that only one adherence has been eliminated: a scam !! actually my ligament was cut !! Obviously now I have a lawyer and I am making a criminal case (the civil case is not enough for me !!)
Now I suffer from medial instability, if only I take two steps the knee swells, I spend my life lying or sitting.
In Italy I consulted a lot of doctors and they all advised me against a repair because no one can know how to re-tension the ligament at the right point and I could find the patella all shifted outwards !!!
I was told to resign myself!
Here on the forum I am reading a lot, but I see mixed opinions on doctors. I've read Smillies' story, which is a story with a happy ending, but not everyone thinks her doctor is that good.
I read the story of 'frustrated' but even here there are those who say that Lars is not that good ..
In short, these conflicting opinions kill my hopes: I don't think I can face another surgical failure.
Life no longer makes sense to me, I am depressed, I have not left the house for a long time, I do not see and hear no one, except my lawyer, I have completely isolated myself from the world.

Offline Brandon123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #13 on: July 13, 2021, 01:02:56 PM »
Hi, I tried to write a private message to 'frustrated101', but he didn't reply.

When you write a message to somebody, they will get a notification to their email. But it can take days or weeks before they see that, so you just have to wait and see if/when 'frustrated101' notices your message.


Here on the forum I am reading a lot, but I see mixed opinions on doctors. I've read Smillies' story, which is a story with a happy ending, but not everyone thinks her doctor is that good.
I read the story of 'frustrated' but even here there are those who say that Lars is not that good ..
In short, these conflicting opinions kill my hopes: I don't think I can face another surgical failure.

I understand your doubts, but would still recommend you - as a first step - to reach out to Lars and see if he can review your case. He is acknowledged as a very skilled patellofemoral surgeon. You can of course also reach out to somebody else on the list Vickster posted. But the important thing is that you reach out to somebody (with a particular interest in the patellofemoral joint). Doing something is better than doing nothing, it is still a small step forward :)


Life no longer makes sense to me, I am depressed, I have not left the house for a long time, I do not see and hear no one, except my lawyer, I have completely isolated myself from the world.

This is completely understandable, and something that many who have suffered debilitating knee injuries can relate to. There is no shame to reach out to mental health professionals in a situation like yours. Many on this forum have done that when struggling with long-term knee problems. You can also find several cases on this forum where anti-depressants have helped people cope with knee problems (you can discuss this further with for example @suspectdevice). The point is that you must take care of your mental health. Long-term debilitating knee problems is just as much a mental challenge as a physical one. I think this guy describes the mental side of knee problems very well:

http://themindfulcaveman.com/my-knee-story-part-2-reflections/

RK sharp pain while running, diagnosis chondromalacia patellae 6/09
RK arthroscopic chondroplasty 9/09
RK rehab, recovery, 90% normal, started running again -> back to square one 5/15
RK diagnosis patellofemoral arthritis + LK diagnosis chondromalacia patellae 8/15 -> conservative treatment

Offline Iris123

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Re: Lateral release made by mistake: is there a way to fix it?
« Reply #14 on: July 13, 2021, 03:45:13 PM »
I understand, I'll wait, maybe sooner or later an answer will come.

For the rest, I am collecting information on different doctors and then selecting those who could help me.

As for the difficulty of living with a knee problem it is true, also because unfortunately the knee stops the whole body and in the end all health worsens.
I give an example. When I was operated on I could no longer walk, so I began to spend all day sitting with my legs on a support, but this led me to sublux my coccyx and this problem became chronic because there is no medical solution! I have seen many doctors also for this problem but there is no one who can solve it, just like the knee.
This meant an additional problem because the knee does not allow me to walk, then the coccyx creates pain when sitting and lying, so I use a pillow with the hole in the chair and in bed: this was also a gift of the knee surgery! Unfortunately I have to live with it.















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