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I've watched some of his YouTube videos and was impressed that someone 5 weeks post osteotomy could fully straighten their leg and bend the knee just over 90°. And no Taylor Spacial frame in sight 😊Looks like you're right about Guys, I just copied and pasted what his secretary put on an email to me!!Thanks for all your help, all the best with your hopefully far in the future knee replacement!Hi, I’ve recently had this surgery done at UCLH. If you don’t have private health there’s really no need to pay for this privately. It’s a really significant thing to do so don’t believe a little bit of advertising you see on YouTube. I suggest you see a specialist in complex deformity correction (any limb reconstruction unit) they deal with this routinely and much more complex things. You will have fantastic care and be supported in an MDT environment. You could see either David Goodier or Peter Calder at the Royal National orthopaedic Hospital - they are truly world experts. But I suspect there are limb reconstruction units local to you. Perhaps in Oxford? A frame sounds bad but it does allow for a very accurate correction and minimises the risk of nerve injury and major complications. On the femur they would only use a plate or nail. You can immediately weight bare with a frame. With the double rotational osteotomy you will inevitably change the alignment of your leg. So if you don’t use a frame, you might end up becoming a bit bow legged or knocked kneed. The frame will allow your surgeon to precisely correct all your deformity to the degree. And it should really only be on for 2/3 months max for pure de rotation. You don’t want to end up with a huge bill if there are complications and you’re much better served being in a specialist unit, which is audited and regulated - it’s true some knee surgeons do carry out rotational osteotomies but not routinely.
Quote from: Tuggers1994 on August 05, 2020, 06:28:54 PMI've watched some of his YouTube videos and was impressed that someone 5 weeks post osteotomy could fully straighten their leg and bend the knee just over 90°. And no Taylor Spacial frame in sight 😊Looks like you're right about Guys, I just copied and pasted what his secretary put on an email to me!!Thanks for all your help, all the best with your hopefully far in the future knee replacement!Hi, I’ve recently had this surgery done at UCLH. If you don’t have private health there’s really no need to pay for this privately. It’s a really significant thing to do so don’t believe a little bit of advertising you see on YouTube. I suggest you see a specialist in complex deformity correction (any limb reconstruction unit) they deal with this routinely and much more complex things. You will have fantastic care and be supported in an MDT environment. You could see either David Goodier or Peter Calder at the Royal National orthopaedic Hospital - they are truly world experts. But I suspect there are limb reconstruction units local to you. Perhaps in Oxford? A frame sounds bad but it does allow for a very accurate correction and minimises the risk of nerve injury and major complications. On the femur they would only use a plate or nail. You can immediately weight bare with a frame. With the double rotational osteotomy you will inevitably change the alignment of your leg. So if you don’t use a frame, you might end up becoming a bit bow legged or knocked kneed. The frame will allow your surgeon to precisely correct all your deformity to the degree. And it should really only be on for 2/3 months max for pure de rotation. You don’t want to end up with a huge bill if there are complications and you’re much better served being in a specialist unit, which is audited and regulated - it’s true some knee surgeons do carry out rotational osteotomies but not routinely. Thanks so much for this. I had an appointment at Great Western orthopedics and they referred me to the limb reconstruction unit at Oxford and I have an appointment in about 10 days so we will see how that goes. Hopefully I might finally start getting some answers.I think I have accepted that it will probably involve a frame and to be honest I would rather it was done properly so everything can realign gradually and be tweaked on the way if needed rather than go for a 'quick fix' that ends up causing more problems.I assume you had a frame? If you don't mine me asking... How long were you off work for and how long was it before you were up and about and feeling relatively ok?
I've watched some of his YouTube videos and was impressed that someone 5 weeks post osteotomy could fully straighten their leg and bend the knee just over 90°. And no Taylor Spacial frame in sight 😊Looks like you're right about Guys, I just copied and pasted what his secretary put on an email to me!!Thanks for all your help, all the best with your hopefully far in the future knee replacement!Hi, I’ve recently had this surgery done at UCLH. If you don’t have private health there’s really no need to pay for this privately. It’s a really significant thing to do so don’t believe a little bit of advertising you see on YouTube. I suggest you see a specialist in complex deformity correction (any limb reconstruction unit) they deal with this routinely and much more complex things. You will have fantastic care and be supported in an MDT environment. You could see either David Goodier or Peter Calder at the Royal National orthopaedic Hospital - they are truly world experts. But I suspect there are limb reconstruction units local to you. Perhaps in Oxford? A frame sounds bad but it does allow for a very accurate correction and minimises the risk of nerve injury and major complications. On the femur they would only use a plate or nail. You can immediately weight bare with a frame. With the double rotational osteotomy you will inevitably change the alignment of your leg. So if you don’t use a frame, you might end up becoming a bit bow legged or knocked kneed. The frame will allow your surgeon to precisely correct all your deformity to the degree. And it should really only be on for 2/3 months max for pure de rotation. You don’t want to end up with a huge bill if there are complications and you’re much better served being in a specialist unit, which is audited and regulated - it’s true some knee surgeons do carry out rotational osteotomies but not routinely.
That sounds sensible - they know what they’re doing, you can tell clinically with torsion but a CT is more accurate. My surgeon used a plate - but a nail is also good as it’s minimally invasive. The nail/frame combo is also a good option. Either way it’s quick healing and I actually think it heals faster with just the frame because you get much more compression. It’s good you don’t need your femurs doing. The recovery will be significantly quicker. There is a risk of compartment syndrome and nerve damage - this is minimised significantly with the frame, and it’s very rare (less than 1%). If they just did the nail then my surgeon released the nerve to reduce the risk. The key is being in a specialist hospital - I don’t think it’s as much as 10% but it is a risk and the frame/nail combo sounds good. I actually requested this but my surgeon didn’t like using nails.
I assume the risk of compartment syndrome increases with the amount they have to rotate the bone but I don't know what the cut off is and how close my left leg is to it, maybe that's why he said 10%. That's a question for my list! He was happy to do my left leg first which although less twisted is the one that gives me most pain. He doesn't like using plates but I guess they're all different! Part of me is thinking I'll go with frames for both legs as I'm not sure about the nail although I do wonder if I'd be able to sleep with a frame and I do like my sleep! It's a shame most of the information online is scientific journals and reports which are not light reading!
Quote from: Tuggers1994 on October 14, 2020, 05:51:26 AMI assume the risk of compartment syndrome increases with the amount they have to rotate the bone but I don't know what the cut off is and how close my left leg is to it, maybe that's why he said 10%. That's a question for my list! He was happy to do my left leg first which although less twisted is the one that gives me most pain. He doesn't like using plates but I guess they're all different! Part of me is thinking I'll go with frames for both legs as I'm not sure about the nail although I do wonder if I'd be able to sleep with a frame and I do like my sleep! It's a shame most of the information online is scientific journals and reports which are not light reading!Hey Tuggers! Have you gone through with your tibia surgeries? How are you doing?Turns out my degrees of torsion are pretty bad and it looks like I'm headed towards surgery.
Quote from: Freya on June 06, 2021, 07:55:10 PMQuote from: Tuggers1994 on October 14, 2020, 05:51:26 AMHey Freya!Everything got held up with Covid but I had my first op on the 26th April so I'm 6 weeks post op now (or is it 7? Can't be bothered to work it out!)They did my right leg in the end as the plan was to do the second one Friday just gone but it got pushed back by a pinsite infection. They were hoping both frames could come off together which might still happen but atm I'm not even sure I'm going to put myself through it again.Despite what posting this in the middle of the night makes it look like sleep hadn't actually been too bad but the pain has been exhausting. The problem tonight is some insect thought I was tasty, or in their way! I've been in a lot of pain over the last 2 weeks which I thought was just normal but seeing how quick it subsided after a few doses of antibiotics made me think a lot of it was probably infection pain and could have been prevented.I went for just the external fixator on my left leg. Happy to answer any questions. I've also found Facebook frames support groups really useful so might be worth having a look.I assume your torsion is giving you pain? If it's not and you can function at an acceptable level I really would think long and hard about 'fixing' it, it's a long road back to some sort of normality! I was in hospital Monday - Friday and then back at work part time, from home, on the Monday after the weekend which was silly in hindsight. Everything was easy in hospital, which was when I promised my manager is be back next week to help her. What I hadn't factored in how much more exhausting daily living would be once I got home! Hospital was level, had a wet room, everything I owned was close at hand and I didn't really have to do anything all day other than get washed and dressed. I was so bored I actually washed my hair for something to do one morning! At home nothing was easy to get to, it's certainly not level or in any way designed with disabled people in mind. I couldn't even get comfy in my own bed to start with and Mum didn't know how to make me comfy in the same way the hospital staff did. I actually wanted to go back to hospital for a few days after I got home!!Well congratulations on finally having this done! But I'm so sorry about the infection, you poor thing I'm glad the antibiotics are helping. You're not taking any pain medication? That insect must be enjoying whatever drug cocktail you're taking lol.You said you went with the external fixator because of the risk of compartment syndrome right? I was surprised my doctor didn't mention this, he wants to do it with internal rods.When do you think you will be able to do the next one?Yeah the recovery seems brutal, which is why I've been avoiding this surgery for the past 2 years. How do you get around? Wheelchair? Crutches? I know your main issue is the tibias but I'm curious about your femoral version, it doesn't need to be corrected?My knees and hips have deteriorated very quickly in the last year, especially since my last round of PT in sep/oct and now I have back pain added to the mix. The only thing that gave me some sort of relief was celebrex. I was finally able to see a specialist 2 weeks ago, I was supposed to see him march of last year, but covid happened.I was so happy to hear back from you, take care of yourself and I hope the infection disappears soon.Also, Moms are the best <3
Quote from: Tuggers1994 on October 14, 2020, 05:51:26 AMHey Freya!Everything got held up with Covid but I had my first op on the 26th April so I'm 6 weeks post op now (or is it 7? Can't be bothered to work it out!)They did my right leg in the end as the plan was to do the second one Friday just gone but it got pushed back by a pinsite infection. They were hoping both frames could come off together which might still happen but atm I'm not even sure I'm going to put myself through it again.Despite what posting this in the middle of the night makes it look like sleep hadn't actually been too bad but the pain has been exhausting. The problem tonight is some insect thought I was tasty, or in their way! I've been in a lot of pain over the last 2 weeks which I thought was just normal but seeing how quick it subsided after a few doses of antibiotics made me think a lot of it was probably infection pain and could have been prevented.I went for just the external fixator on my left leg. Happy to answer any questions. I've also found Facebook frames support groups really useful so might be worth having a look.I assume your torsion is giving you pain? If it's not and you can function at an acceptable level I really would think long and hard about 'fixing' it, it's a long road back to some sort of normality! I was in hospital Monday - Friday and then back at work part time, from home, on the Monday after the weekend which was silly in hindsight. Everything was easy in hospital, which was when I promised my manager is be back next week to help her. What I hadn't factored in how much more exhausting daily living would be once I got home! Hospital was level, had a wet room, everything I owned was close at hand and I didn't really have to do anything all day other than get washed and dressed. I was so bored I actually washed my hair for something to do one morning! At home nothing was easy to get to, it's certainly not level or in any way designed with disabled people in mind. I couldn't even get comfy in my own bed to start with and Mum didn't know how to make me comfy in the same way the hospital staff did. I actually wanted to go back to hospital for a few days after I got home!!
I'm down to just paracetamol now which I'll probably stay on for a bit longer as it just ups your baseline pain threshold a bit (so I've been told).I'm working hard on getting to be weight bearing on my right leg so that I'm not completely floored when I have the left leg done, if I do. If I do I think they're thinking towards the end of the month, I'm on antibiotics for 2 weeks so not sure if that affects anything but.my next appointment is on the day antibiotics finish and they were going to see how I'm doing then but he might have pencilled me in anyway. He said it makes no difference to them if I have the second op next month, in 6 months or next year! But I'd rather get it over and done with and get on with life!I'd imagine with a internal rod recovery would be much quicker. I had a week post op with no adjustments then I was adjusting the frame for 3 weeks and it's very tempting to get them to just spin it while I'm out of it and wake up with a straight leg second time round! What worries me a bit with the nail though is they have to mess about with your knee to get it in and chronic knee pain is what I'm trying to get rid of! I mentioned this to the consultant though and he said they use them a lot for tibial fractures but the only people on the internet saying about chronic pain from it are the ones that have issues, you don't hear from all the people that never think about it again which is very true! Another thing that put me off is that if for whatever reason the nail has to come out it's the same process but in reverse. At least with frame once it's off there's no residual metalwork although I guess there's probably more scaring and you've also got pinsite care to do although that's minimal now they've mostly healed. Although if I'd done with the frame and nail option I would have had more scars on this leg, it's just what I do with the other one! I'm on crutches and I got a wheelchair for going out and about in. It's also my personal chair with elevated leg rests! Makes you realise how the world is not designed for disabled people. Not being able to drive is what's really getting to me now but guess with a rod you might be able to much sooner?They can't seem to agree on my femoral version so that's being left as it is. They seem to think it's mainly learned behaviour from permanent compensation - I didn't even realize until one day half way through adjustments I was walking and noticed my foot was pointing in at about 25°! No wonder I fell over it!! Sorry to hear things have deteriorated so quickly for you, sounds like you need to do something sooner rather than later then. I'm under a limb reconstruction consultant which might be why he uses frames as well as nails etc? But I guess they're all different!Let me know what you decide to do &#128522;