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Author Topic: Elective Amputation  (Read 213 times)

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Offline Doc79316

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Elective Amputation
« on: July 08, 2020, 12:09:23 AM »
Hi everyone,

It's been a long while since I was here so I decided to update.....

On Monday 2nd. March this year I had my left leg amputated above knee. It's not something that is recommended by surgeons but I found a surgeon who had both extensive experience of amputating limbs and also experience of operating on CRPS affected limbs.

I saw him privately in Blackpool a few years ago. In July of 2018 he agreed to amputate when I saw him for the second time. I was eventually listed for surgery in September 2019.

For those considering amputation, please be aware that even once your chosen surgeon has said "yes", it's a long, drawn out process. You will have to have counselling before surgery, and after surgery even if you're able to cope physically (which I've been able to do) the emotional backlash is horrendous. Only now have I realised the psychological impact it has had on me. Thankfully, in the north west the level of support is second to none.

For those in the UK, you are entitled to choose your own consultant-led team. So you can pick your own surgeon and rehab teams. You need to remember though that if your medics are at the other end of the Country, you're going to have some travelling to do!

Anyway, if anyone would like to know more about transfemoral amputation with CRPS, no matter how personal, please feel free to ask.

Laura
« Last Edit: July 08, 2020, 12:33:40 AM by Doc79316 »
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline The KNEEguru

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Re: Elective Amputation
« Reply #1 on: July 08, 2020, 10:26:00 AM »
It's very good of you to offer help and advice after this difficult time you have had yourself.
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Offline Doc79316

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Re: Elective Amputation
« Reply #2 on: July 08, 2020, 03:50:05 PM »
It's the least I can do consider do many people think about it. The first time I saw my surgeon he wouldn't amputate then. But there were things I hadn't considered. Now I would never say I know it all, but I certainly have a view on the whole process.
Of course, I can only say what it has been like for me personally. It may be very different for someone else.
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline Dave33

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Re: Elective Amputation
« Reply #3 on: July 18, 2020, 11:22:14 PM »
Wow, you've certainly been through a lot. Have you found a measure of relief post-amputation?

Offline Doc79316

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Re: Elective Amputation
« Reply #4 on: July 26, 2020, 03:00:01 PM »
Yes. A lot of relief. The CRPS in my left leg was from just below the knee joint so the surgeon had to make sure that anything left of my leg was already above the CRPS level.

I had some phantom sensations immediately after surgery for about three weeks but nothing since and no phantom pain.

I do still have CRPS in my right lower leg but this is negligible compared to what I had in the left and had not changed since it jumped.

Unfortunately I now have an issue with my right knee. I'm having to wait until I've had an MRI scan, ordered a couple of weeks ago but for now, rehab is frustratingly slow as the knee is unstable.

Still, in terms of amputation, for me personally it worked.
Left knee surgery
08/06/02-L/Release
13/08/03-Fulkerson TTT
05/06/05-Stabilisation & Medialisation/Tendon Transfer
13/01/06-Proximal Hamstring Superior Stabilisation
06/03/06-RSD/CRPS diagnosed
20/07/06 + 03/04/07-Excision of scar tissue
29/05/15-Arthroscopy
02/03/20-Left transfemoral amputation

Offline kneegeek2020

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Re: Elective Amputation
« Reply #5 on: July 26, 2020, 08:19:04 PM »
Never heard of amputation for CRPS.   But logically speaking, if you've waited enough time for the crps to resolve amputation seems like your only option.  Glad you shared what you went through, I'm sure it helps others going through CRPS who have lost hope.  Glad everything worked out for you.