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The only medication which seemed to do anything at all was the pentosan, Celebrex and diclofenac cream. It seems like the more I read the more I realized how screwed am I. There are no good disease-modifying drugs, and it doesn't look like everything coming down the pipeline is going to get past phase 3.
Hey Suspect and Vickster, thanks for writing!They did find JSN and tore up cartilage on my last MRI, but the first 3 MRIs looked healthy. If feels like little critters are trying to gnaw their way out of my knee caps, and yes, it's often a hot feeling sensation. There are also random stabs of pain that makes me an insomniac.When I finally got sick of my crappy knees about ten months ago, I went to see an orthopedic surgeon, he recommended physical therapy. When I arrived, my physical therapist had me do a bunch of weighted incline squats (I guess she thought it was tendonitis). When the session was over, I could hardly walk out of the building. That's when things went from annoying to horrible. I didn't know about tissue homeostasis, but it totally makes sense in retrospect. I read a lot of Dr. Dye's work particularly on the merits of resting, and I think doing next to no PT actually helped me more than gentle PT at home every day.I haven't seen a rheumatologist yet. Don't they primarily help patients with rheumatoid arthritis? My only bad joints are my knees (and an ankle I broke twice). Doesn't RA usually start in the hands and feet? Should I get tested for RA or some kind of inflammatory blood markers? I know they recommend a plant-based diet for RA, but I've been vegan for four years, and before that vegetarian. But I haven't felt any different since abstaining from animal products. I'm kinda at a loss here, I never drink or take drugs, and always ate healthy... I don't understand, there's people I know who are in their 50's and still skate or ride 20,000 KMs a year. And here I am going downstairs on my butt.
Oh yeah Suspect, have you had an MRI? I know it took you seven and a half years to get better. Were you riding your bike during recovery? I'm thinking about swapping out 175mm cranks for 165mm and do some really light spinning. It's probably a bad idea though?
Hello Tay!Just thought I’ve give this thread a bump and ask you how you have been doing. My struggles seem similar to yours.
Good grief I’m so sorry to hear about your mishap with the car! Did the driver even stop for you? Any legal action on your part? I sure hope you recover from that. As for your journey to heal your knees in general, good to hear the left one is noticeably better. Oddly, my left one is the better of the two as well. If only my right were the same! I think I’ve still been making progress. It seemed I took a bit of a step forward after I got my customs orthotics, so maybe they are actually helping.Sure is slow going isn’t it! I am still avoiding stairs as much as possible, and bumming my way up and down the ones at home!