Hi Jenny,
Have you tried compression stockings (thigh high)? I had similar symptoms and would wake up at night with a leg that felt dead, had numbness, cramps, etc. No massage, stretching, cold, hot, treatments would help calm these... Serendipitously, I discovered that the compression stockings helped! I slept with the ones with less compression (8-12 mm Hg) and during the day I changed to the 15-20 mm Hg. Symptoms went away after several months of this regime. Just make sure that they do not form creases as then the compression increases at the crease zone...
Wish you the best in your recovery,
Bella