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Author Topic: Tunnel Vision  (Read 427 times)

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Offline James NZ

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Tunnel Vision
« on: July 11, 2018, 08:56:51 AM »
Tunnel Vision - Do we all experience it?

When one is experiencing constant knee pain we loose focus of what-else is going on around us. I often find myself searching the web for a silver bullet to fix my knee. It's the first thing I think of in the morning and the last thing I think of at night. It consumes me and my wife can't help but notice.

Through my research I have found a renowned knee specialist, and surgery minimalist, Dr Scott Dye in San Francisco. I can't help but think this guy is the best option I have on earth to properly diagnose and give me a path forward. No, I'm not expecting a silver bullet, just an accurate diagnosis with options to progress to a pain free joint.

The problem - I live in New Zealand. My wife thinks I'm crazy wanting to go and see him without seeing other surgeons in NZ first. My reason is that the surgeon I saw in NZ, the one who gave me surgery, I believe, shouldn't have given me surgery. I feel he pushed me into it for his own benefit and it has left me far worse off. Therefore I cannot trust another until I see Dr Dye in the USA. It is expensive, but to me the cost doesn't matter if I can get my health, fitness and mind set back to where it was.

Is this reasonable? Can others relate to this?

Offline PwordsB

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Re: Tunnel Vision
« Reply #1 on: July 11, 2018, 09:24:45 AM »
Hey.

I haven't spent a minute in the last 2.5 years without thinking or worrying about my knee. My life has turned into s cycle of physiotherapy, rest, ice, and anytime I am not physically working on it, I'm just reading hundreds and hundreds of articles. I've watched hundreds of surgical videos. I spent £600 on a private consultation a week before my free NHS one because I read that the guy was the best (I'm from the UK). So you're not alone. You're not necessarily crazy either. It would be crazy to just sit back and accept it as your life slips further out of reach. People who haven't experienced it tend not to understand. They just see it as a minor thing you're dealing with because they get used to it. Even those closest to you will just adapt to your pain and mostly won't even consider how massively it is hitting you. For us, though, it's constantly refreshing itself and we wake up every day with what still feels like a brand new apocalyptic injury. It doesn't grow old and we need to work on it.

Keep pushing and if you think the trip might help, you have to do it. Don't fall into the trap of just leaving life as it is.
Snowboard injury 21/01/16
Open cartilage graft (Chondrotissue) 29/06/16
Sub-total lateral meniscectomy, LTP cartilage removal 20/01/17
11mm Closing Medial DFO and LTP Microfracture 10/08/18

Offline Brandon123

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Re: Tunnel Vision
« Reply #2 on: July 11, 2018, 11:01:45 AM »
I can relate to all the above, so you're not alone. As already said, I think your reaction is normal. However, an option would be - as a first step - to try to seek out a knee specialist in "your area" that is familiar and onboard with Dr. Dye's principles. If there are none in NZ, maybe check out Australia? You could always go to Dr. Dye later on anyway.
RK sharp pain while running, diagnosis chondromalacia patellae 6/09
RK arthroscopic chondroplasty 9/09
RK rehab, recovery, 90% normal, started running again -> back to square one 5/15
RK diagnosis patellofemoral arthritis + LK diagnosis chondromalacia patellae 8/15 -> conservative treatment

Offline frustrated101

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Re: Tunnel Vision
« Reply #3 on: July 11, 2018, 03:00:06 PM »
I agree with you 100%.  My life has gone from moderately active to spending most of my waking hours on kneeguru and scouring the web for help.  I managed to get both of my knees botched in the same day.  Being unemployed and not being able to work makes it even worse.  My guy did lateral and medial releases to both kneecaps so I'm missing 4 ligaments total.  It's all I think about-before bed and waking up.  Sucks

NZ is far but with Dr Dye being a minimalist that is exactly what you want.  You DO NOT want a guy fixing things that aren't broken, which it seems you can related to.  If you can't find anyone(a super specialist) in NZ, might be worth the trip. 

Wish you luck.




Offline LateralMeniscusIssuesGuy

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Re: Tunnel Vision
« Reply #4 on: July 12, 2018, 09:05:57 AM »
In my experience, there is only so much a surgeon picks up from an in-person consultation, 75% of their assessment will be based on the scans showing the internal situation in your knee.  Even if a visual is required, if you have an open minded consultant, you could send them video and pictures of your knee at angles and through ROM that they ask for, perhaps even a watsapp or video conference.  That way you can have a remote consultation from where you are and just pay the usual fee without the airplane ticket.

Personally I sent my scans and pictures of my knee to 2 consultants who were overseas and got worthwhile feedback from them, just for the consultation costs.  Get in touch with his secretary and see how new-school he is, maybe then its more affordable.

I would add, I have probably been a toned down version of your focus on resolving your joint issues.  Try to not let it take over your married life, you have a duty to her as well as your knee. 

Now you have been under the knife, things have changed, and perhaps whatever was wrong with you initially couldn't have been addressed with mobility or strength work alone, but that doesn't necessarily mean you can't be doing things before a possible second surgery (if that is what is required).  I am not a health care professional, but I usually recommend engaging in an appropriate strength program and perhaps even before that, get their ROM and control in all their healthy joints with stretches such as those on the youtube channel Smashwerx.  Its resolved lots of issues for me and those I know, who thought they needed surgery to cure pains.

Just my 2 pence.
Partial Lateral Meniscectomy (2/3 removed), pristine articular cartilage...2013
Return to impact sport, continual responsive swelling ever since
Mild pain onset..2016
Arthroscopy reveals grade 2/3 articular cartilage damage lateral compartment behind kneecap
What now? Allograft / brace / nothing?

Offline cooperd70

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Re: Tunnel Vision
« Reply #5 on: July 16, 2018, 10:58:50 AM »
I spent £600 on a private consultation a week before my free NHS one because I read that the guy was the best (I'm from the UK).

PwordsB - Just out of interest who in the UK did you see?

Offline PwordsB

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Re: Tunnel Vision
« Reply #6 on: July 16, 2018, 03:59:52 PM »
I spent £600 on a private consultation a week before my free NHS one because I read that the guy was the best (I'm from the UK).

PwordsB - Just out of interest who in the UK did you see?

I travelled to London to see Mr Ian McDermott. My research gave me the impression that he is the best surgeon in the UK for my set of issues.
Snowboard injury 21/01/16
Open cartilage graft (Chondrotissue) 29/06/16
Sub-total lateral meniscectomy, LTP cartilage removal 20/01/17
11mm Closing Medial DFO and LTP Microfracture 10/08/18

Offline Kitkat766

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Re: Tunnel Vision
« Reply #7 on: July 16, 2018, 04:37:41 PM »
If you donít want to go quite so far, I have had a really good experience with Cameron Norsworthy from Victoria, Australia!

After years of knee pain as a child I was eventually diagnosed with Osteochondritis Dissecans and sent to Cameron. I was only 11 years old at the time and everyone had told me that the only option was surgery. Rather than jumping straight in and suggesting surgery we looked at other options first and treatment was 12 months of no impact (which for a kid playing 6 different sports was very difficult!!) I managed to avoid surgery for 6 years although my body still couldnít manage to completely heal the lesion and I ended up having surgery.

Although his manor and professionalism always amazed me. He focused on what I wanted and what I cared about rather than pushing me into surgery. I feel that Cameron Norsworthy cares deeply about his patients and about finding the best option for them. If I have another knee injury, he would definitely be at the top of my list of Orthopedic Surgeons!

Offline James NZ

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Re: Tunnel Vision
« Reply #8 on: July 16, 2018, 06:20:14 PM »
If you donít want to go quite so far, I have had a really good experience with Cameron Norsworthy from Victoria, Australia!

After years of knee pain as a child I was eventually diagnosed with Osteochondritis Dissecans and sent to Cameron. I was only 11 years old at the time and everyone had told me that the only option was surgery. Rather than jumping straight in and suggesting surgery we looked at other options first and treatment was 12 months of no impact (which for a kid playing 6 different sports was very difficult!!) I managed to avoid surgery for 6 years although my body still couldnít manage to completely heal the lesion and I ended up having surgery.

Although his manor and professionalism always amazed me. He focused on what I wanted and what I cared about rather than pushing me into surgery. I feel that Cameron Norsworthy cares deeply about his patients and about finding the best option for them. If I have another knee injury, he would definitely be at the top of my list of Orthopedic Surgeons!

Thanks for your reply.
How is your knee post surgery and what did he do?

Offline Kitkat766

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Re: Tunnel Vision
« Reply #9 on: July 16, 2018, 06:44:31 PM »
Hi James,

My knee has been great! I had a flap of bone about 2cm x 2cm that was causing my knee is lock up every time I sat down or bent it past 90 degrees. With open surgery he inserted 5 biodegrable pins into the medial femoral condyle to stabilise the bone fragment. I was back playing competitive sport within 10 months!

Unfortunately I had a very unlucky compication caused by my body ultimately rejecting one of the pins (which I canít find a single other case on the internet about this happening - suppose Iím just special!) but he fit me in for surgery within 2 days and performed arthroscopic surgery to remove the pin! I was back playing sport in around 5 weeks from memory!

Heís a great surgeon with great people skills too which makes the entire process so much easier! Highly recommend :)

Offline James NZ

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Re: Tunnel Vision
« Reply #10 on: August 03, 2018, 05:55:42 PM »
 I found Dr Dye online and travelled from New Zealand to meet with him in San Francisco. After a botched surgery in New Zealand I couldn't trust anyone until I met with Dr Dye. He was very personable and professional. He has a passion for fixing knees - not just cutting them open. Quite often this means letting the body do the healing. He spent two hours with me and let me record the whole meeting. I felt I left the meeting with a thorough diagnosis and a routine to move forward. He prescribed some medication and we will catch up over the phone in a month. I'm 100% happy with my decision to travel this far to meet with the best knee surgeon in the world.

Offline tensters

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Re: Tunnel Vision
« Reply #11 on: August 03, 2018, 08:41:19 PM »
I found Dr Dye online and travelled from New Zealand to meet with him in San Francisco. After a botched surgery in New Zealand I couldn't trust anyone until I met with Dr Dye. He was very personable and professional. He has a passion for fixing knees - not just cutting them open. Quite often this means letting the body do the healing. He spent two hours with me and let me record the whole meeting. I felt I left the meeting with a thorough diagnosis and a routine to move forward. He prescribed some medication and we will catch up over the phone in a month. I'm 100% happy with my decision to travel this far to meet with the best knee surgeon in the world.

Good for you. That's awesome.
I hope that with his help you are able to get your knee back to a very good state.















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