Advertisement - Hide this advert





Author Topic: PFPS- results of two specialist visits- Shubin Stein, HSS (NYC) vs Dye (SanFran)  (Read 2438 times)

0 Members and 1 Guest are viewing this topic.

Offline James NZ

  • MINIgeek (20-50 posts)
  • **
  • Posts: 46
  • Liked: 11
Hi, Dr Dye also gave me much the same diagnosis. Although I had surgery 12 months prior to try and rectify the issue. (Another surgeon) This only made me 100 times worse.
I 100% believe in Dyes theory. However it's not easy for me to stay in my EOF. He prescribed me gabapentin and calcitonin after seeing my bone scan. He also did the kenalog injection which didn't do much. This was 6 weeks ago. I spoke again with him last week and he said to keep taking meds and look for EOF.  Anything that's pain free. He said that sometimes the synovitis gets so chronic that it requires a synovectomy to turn it around. However your best bet is to let the knee heal itself. Only time will tell. Wishing you luck.

Offline BusterCatLegs

  • Regular Poster
  • ***
  • Posts: 80
  • Liked: 5
Hey everybody,

Time for a super exciting knee update!!

So let's see- it's been a long time since I've had the burning sensation in my knee. That is pretty much gone. I've been dealing with fat pad pain for months now and that has improved a lot. The severe fat pad pain didn't start until about a month or two into my knee pain. I basically sat on a couch all night with my legs extended straight in front of me and wasn't the same after. Now the pain is very mild in my left knee and on and off in my right. I can sort of sleep with my legs fully extended finally which has been nice. But sometimes it's uncomfortable. It just depends...on what I am not exactly sure.

I am still living a very restricted life with walking only about 1500 steps on active days and way less than 1000 on non active days. Dr. Dye suggested I am active every other day. I started physical therapy this week and I guess that's ok. It's extremely scary, I'm very afraid to ruin my progress. I rode a bike today for 3 minutes and have been doing mostly stretching. The physical therapy is definitely causing some pain in my knees but I guess after being inactive for so long that is to be expected.

I'm sort of at the point of not knowing what to do- I believe I need to move forward with more activity now.

I have been taking tramadol maybe 2 days a week, almost always less than 50 mg in one day. This stuff is super strong and I'm not a big fan of the effects but it does seem to help me manage the pain which helps me manage my anxiety.

So I think it will be interesting to see where this goes over the next month or two. Either things will get a bit better or I'm looking at a major setback possibly. So exciting!

I have tried to put the knees a bit out of my mind as much as possible- I find the whole topic really depressing! Waaaa poor me. Poor us! I'll update again if anything exciting happens.


Offline Strongknees

  • MINIgeek (20-50 posts)
  • **
  • Posts: 21
  • Liked: 3
Thanks for the update.

I saw your PM. I canít reply yet as I havenít reached 20 msg! Can i just spam some other threads!   :D

But, yes letís chat soon!

Offline Strongknees

  • MINIgeek (20-50 posts)
  • **
  • Posts: 21
  • Liked: 3
Thanks for the update.

I saw your PM. I canít reply yet as I havenít reached 20 msg! Can i just spam some other threads!   :D

But, yes letís chat soon!

Sorry for the spam! 20!  ;D

Offline reader278

  • Regular Poster
  • ***
  • Posts: 101
  • Liked: 13
Hi, Dr Dye also gave me much the same diagnosis. Although I had surgery 12 months prior to try and rectify the issue. (Another surgeon) This only made me 100 times worse.
I 100% believe in Dyes theory. However it's not easy for me to stay in my EOF. He prescribed me gabapentin and calcitonin after seeing my bone scan. He also did the kenalog injection which didn't do much. This was 6 weeks ago. I spoke again with him last week and he said to keep taking meds and look for EOF.  Anything that's pain free. He said that sometimes the synovitis gets so chronic that it requires a synovectomy to turn it around. However your best bet is to let the knee heal itself. Only time will tell. Wishing you luck.

Hey James NZ, please keep us updated with your progress. I also saw Dr. Dye but never got the bone scan, am curious if calcitonin helps you!!















support