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Author Topic: My experience with Professor Shetty  (Read 582 times)

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Offline Michalis

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My experience with Professor Shetty
« on: April 03, 2018, 03:09:37 PM »

I visited Professor Shetty around late 2015 and 2016 as i was looking for a biologic treatment for my knee issue.

Following a left knee menisectomy in late 2012 i started developing knee arthritis and i had 3 lesions in my lateral knee joint.

So i was told that Prof Shetty is supposedly into the forefront or cartiladge repair so i visited him in the Alexandra Spire hospital in Kent and asked him specifically for a biological stem cell treatment.

Initially he was kind enough to hint me to go to my GP and request a referral through NHS Choose and book straight to him. He also told me not to mention anything about stem cells to the GP. After that i got referred to him.

I explained my situation to him and I mentioned also that I have been actively working out , lost a lot of weight and going to the gym has made a massive difference in my life.

I told him that I kept squatting in the gym and looking for a solution to mitigate any future knee problems like knee replacement. (Prior to the operation I was squatting 100Kg, Dead-lift 130kg and the numbers were slightly rising)

I was then booked for a scan and on the next appointment I saw Dr Abjishek Vaish to get the results. I was told the success rate of the operation and then I re-iterated to him that working out in the gym has made a massive impact in my life and I would like to continue doing this.

I was then told that even if the procedure fails I don't have anything to lose and I only need to be ďNO HIGH IMPACTĒ for a year which was more than happy to observe in order to get the full benefit.

(It seems that professor Shetty's and colleagues listening skills are completely sub-optimal)

My understanding was that stem cells was going to be put into the joint in order to facilitate healing so even if it fails I wont lose anything.

So I went forward with the operation as everything I heard seemed fine.

 
After the operation I was given some paperwork that explained that the cartilage needs at least 18 months to heal and it might take up to 3 years to reach its full maturation. This was completely unexpected and I should had been told about this detail before the operation. I was all in for 1 year of no high impact but definitely not that.

What i actually got was a scaffold augmentent microfracture . I really didn't opt for any micro-fracture and nothing has been mentioned to me beforehand.

Professor Shetty brought me the consent form to sign just before i go in to the theater which i signed without question as we have only spoken about stem cells.

I am now 19 months post op and i was told that i need a knee replacement. I have constant pain and limping that has affected my body biomechanics horribly and there is bone edema in my knee.

I lost more than 10 kg of muscle mass and that has resulted in back pain.

I never received or encouraged to get any physiotherapy. I was literally left on my own devices after the procedure... No followup whatsoever.. I had to arrange everything myself.

His protocol is called single stage cartilage repair. I doubt that it is really efficient. It seems like a cookie cutter solution. Every person is different and everyone should be assessed as an individual.

It seems that the doctors didn't take into account what I had to say at all. The fact that I was actively exercising before and I wanted to continue doing it after the operation didn't mean anything to them and it felt in deaf ears.
 
In my opinion the doctor should be the one to be explaining all this details beforehand, not the patient finding out after.

I am really disappointed, constantly stressed about what I am going through and angry because I have shown faith in professor Shettyís methods but I was just told ďhalf-truthsĒ about it which in my mind constitute a full lie.

I would just avoid this guy.

There are plenty of other people that they are really transparent on their methods.

So far, after my ordeal i have spoken to 3 stem cell providers in EU, Asia and Cayman Island and they actually explain everything in details.

Remember, the devil is in the details...



 



Offline HobbledGirl

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Re: My experience with Professor Shetty
« Reply #1 on: April 03, 2018, 03:52:49 PM »
Boy, it sounds like their communication with you here was really botched. Itís quite astounding. Iím in the states, so Iím sure things are different here, but I would let the hospital know what happened. I would also talk to your doctors about this and try to figure out why the procedure was switched. Maybe they had a valid reason for it that was just not communicated with you. (Here, if I didnít get a response, Iíd be speaking to a lawyer.) In any case, I would be mad as he**.

Iím sorry you had this happen to you, and appreciate the heads up on what can happen.
« Last Edit: April 03, 2018, 04:15:25 PM by HobbledGirl »
1-4-17 accident on Segway in Madrid.
3-4-17 flight to US w/ full-length plaster splint & crutches I can't use. 😂
6-4-17 surgery for highly comminuted, 1.5 cm depressed Schatzker II TPF.  ORIF: plate, 7 screws, allograft.
29-6-17 WBAT, almost full ROM, -2 mm lateral plateau
16-7-17 Heel met behind

Online Vickster

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Re: My experience with Professor Shetty
« Reply #2 on: April 03, 2018, 04:08:40 PM »
I didnít think anyone was using stem cells without mfx that long ago in the U.K. outside a trial (and even then). Shetty might now use a method similar to Dr Saw which is MFX plus stem cells to promote healing.

It sounds like you had an AMIC type treatment which has been available for a long time (at least privately).

Donít think the science to successfully heal severe cartilage defects without drilling or some sort of transplant (auto or allograft) is there yet. The patella is especially difficult

Hope you can get some relief
« Last Edit: April 03, 2018, 04:16:31 PM by Vickster »
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline Michalis

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Re: My experience with Professor Shetty
« Reply #3 on: April 03, 2018, 05:13:16 PM »
I didnít think anyone was using stem cells without mfx that long ago in the U.K. outside a trial (and even then). Shetty might now use a method similar to Dr Saw which is MFX plus stem cells to promote healing.

It sounds like you had an AMIC type treatment which has been available for a long time (at least privately).

Donít think the science to successfully heal severe cartilage defects without drilling or some sort of transplant (auto or allograft) is there yet. The patella is especially difficult

Hope you can get some relief

They should had explained everything.. I was ignorant and i went ahead because i liked what i heard, and what i heard was not in detail. However it is not my job to be the doctor or the investigator..

I did sign the paperwork and the paperwork indicated microfracture however that was never mentioned before so i took it in face value we are doing stem cells... I didn't look at the paperwork at all, i was already with the operating gown..

Speaking to regenexx for example they do inject inside the bone but they dont shave off any cartiladge or create any trauma.. It is just an injection.

That is the difference.. I watched the video of my microfracture and they have actually dug a lot in there....

I complained to the hospital and they basically said that i was explained the success rate and thats it..

My life is pretty much hell nowadays.. From limping my right ankles ligaments have become really lose from overcompensation so now i am screwed up big time... It is like a domino effect..




Online Vickster

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Re: My experience with Professor Shetty
« Reply #4 on: April 03, 2018, 05:27:01 PM »
Do you have a knee specialist sports Physio working with you? Have you tried hydrotherapy?

Make sure you do lots of research on stem cells for arthritis before spending lots of money. There are a few (minor) success stories on here. Iíd be sceptical if data from a commercial operation like Regenexx. Look for controlled clinical trial data that mirrors your case.

How did you damage your knee in the first place? Medial or lateral menisectomy? How old are you? Did you consult about meniscus replacement, although unlikely to be an option if generalised arthritis. Have you tried hyaluronic acid injections (available privately in UK)

Good luck
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline Michalis

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Re: My experience with Professor Shetty
« Reply #5 on: April 04, 2018, 09:54:23 AM »
Do you have a knee specialist sports Physio working with you? Have you tried hydrotherapy?

Make sure you do lots of research on stem cells for arthritis before spending lots of money. There are a few (minor) success stories on here. Iíd be sceptical if data from a commercial operation like Regenexx. Look for controlled clinical trial data that mirrors your case.

How did you damage your knee in the first place? Medial or lateral menisectomy? How old are you? Did you consult about meniscus replacement, although unlikely to be an option if generalised arthritis. Have you tried hyaluronic acid injections (available privately in UK)

Good luck

I am almost 40 years old.

I had a torn meniscus from around 2005 and it became a problem around 2011..I damaged it by sitting cross-legged. I saw a doctor at the time and they told me not to worry as i probably had loose ligaments. So i did not know it was a meniscus until 2011.
On paper it was written that i had medial menisectomy, however the scans after showed that most of the lateral aspect of it was taken out. I requested the file for my first arthroscopy and basically it says medial.. so it is inconsistent with the scan.

I am currently seeing a sport therapist. I did saw one last year too but i didnt see any improvement. I haven't tried any hydrotherapy except when i am on a holiday and swimming.

I haven't consulted for meniscal replacement. I saw an NHS doctor and basically they told me i need a knee replacement now at least a unicompartmental for the damaged site.

Around 8 months after my second arthroscopy with Shetty i went back and he actually injected me with HA. I didn't see any improvement at all.

I am currently looking into stem cells and seeing what the options are. They are quite expensive.

Online Vickster

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Re: My experience with Professor Shetty
« Reply #6 on: April 04, 2018, 11:52:54 AM »
Iíd give hydrotherapy a go. Nothing like swimming  :) Get a recommendation from your Physio :) where are you in the U.K.?

If considering a unicompartmental replacement, the Oxford group are experts. Osteotomy could be another alternative if only one compartment damaged and the bones are now misaligned due to the missing meniscus and damaged bones (Adrian Wilson U.K. expert, he might now be doing some stuff with stemcells it at least PRP). Both major surgeries. Medial or lateral side?

Stemcells are expensive, there seem to be some clinics in Eastern Europe that are cheaper than the US. Personally Iím unconvinced by their healing properties in advanced arthritis but you can do your research and decide if itís worth a go. Without meniscus though, any healing could be short lived if you continue being active. Get lots of opinions on the alternatives

Good luck :)
« Last Edit: April 04, 2018, 12:14:23 PM by Vickster »
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline HobbledGirl

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Re: My experience with Professor Shetty
« Reply #7 on: April 04, 2018, 01:44:57 PM »
Michalis, this article about implants caught my eye the other day. It might be something for you to consider. http://www.kneeguru.co.uk/KNEEnotes/articles/journal-interpretations/2017/2017-comparison-outcomes-cartilage-defects-knee

Another thought, if you are up to it, is to look at clinicaltrials.gov to see if there are any new repair techniques that you would want to try. These are usually free, but can be difficult to get into if you have a complicated injury. I didnít see anything in the UK for you, but you might look at other countries and try various search terms.

Try to keep your hip and ankle in good shape so that, even if there is nothing you can do immediately, you will be a candidate for new techniques and procedures. Angering as your situation is (and I too would be furious), it is also now a fact. There are people in much worse shape than you are, and you need to keep the best attitude that you can muster to go forward. Keep seeing a PT, and take care of yourself. There are huge populations that are getting older, and people are chasing after new solutions to problems such as yours and mine. I hope for the best for you!
1-4-17 accident on Segway in Madrid.
3-4-17 flight to US w/ full-length plaster splint & crutches I can't use. 😂
6-4-17 surgery for highly comminuted, 1.5 cm depressed Schatzker II TPF.  ORIF: plate, 7 screws, allograft.
29-6-17 WBAT, almost full ROM, -2 mm lateral plateau
16-7-17 Heel met behind

Offline Chiaretta

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Re: My experience with Professor Shetty
« Reply #8 on: April 05, 2018, 08:05:45 PM »
Personally, I'd be very hesistant to undergo an operation, for which there's not much scientific evidence (yet), or for which there are no reports on results in larger patients groups and/or on long-term outcomes. But, of course, everyone has to decide for oneself.

About your bad experience with your previous surgeon.. I completely understand your frustration. Something similar happened to me with my previous OS. Beforehand, I was told he would perform a tenodesis (which is quite an old and well-studied technique). Afterwards, I found out he ended up doing some experimental procedure. I was put in a full leg cast instead of a brace (as we had discussed before), he had no clue about my rehab and neither had my PT (since it was something that hadn't really been done before) and the surgery failed in the end. Of course, I was really upset about this, but eventually, you have to accept the situation as it is. Not letting go of your anger will only prevent you from moving forward.

Good luck. :)