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Author Topic: I'm in desperate need of medical help.  (Read 634 times)

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Offline darsemnos

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I'm in desperate need of medical help.
« on: December 07, 2015, 03:38:16 AM »
Leg problems. Going on 11 years. I'm a mess. How do I get ACTUAL help? No one seems to give a shi*. Doctors, pt's, no one cares if I get better or worse. No one seems to have any commitment to seeing anything through.

 I've been diagnosed with tibial varus (or was it valgus) of 4 degrees in both legs and a rotational deformity of 8 degrees in my right tibia, but the surgeon was utterly unwilling to try to explain how that related to my symptoms. He just recommended surgery. Sawing through my legs with out explaining hoe it would address how my legs feel.

 I have no idea how to get actual competent, and attentive treatment.

 I have no idea how to even begin addressing my problems after 10 years.

 How do I find ACTUAL committed help? 20 doctors and pt's and literally all of them have been an utter disappointment. None of them were committed to getting me better.

 I'm losing my mind because no one seems to know how to help or actually care.

Offline WonkeyDonkey

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Re: I'm in desperate need of medical help.
« Reply #1 on: December 08, 2015, 06:53:48 PM »
It can be infuriating not to be listened to. Sometimes you have to push your case really hard to be heard. Start with your GP if in the UK,(not sure where you are based) and get them to refer you to another orthopedic surgeon. I always write a list of symptoms, treatments I have tried, and any questions I have, and take them with me so I don't forget any important detail or questions. I have always found that I am taken seriously when I get out my list!

If you read the link below, this should help you understand more about what the surgeon was talking about.

Check out the surgeon list on this website and see if you can find someone near you who specialises in de-rotational osteotomy, as this is possibly what your surgeon should have explained to you.

If you search this board, there are other members who have had this surgery and could answer questions for you.

I have had a high tibial osteotomy and although the recovery is long and hard, it has relieved some of the pain.

Let us know how you get on.

Offline MyKnee2010

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Re: I'm in desperate need of medical help.
« Reply #2 on: December 08, 2015, 08:50:23 PM »
I sympathize with you. I've been doing the same thing for the last 7 years. 12 surgeries, 13 OS, multitudes of other medical type people & attempted treatments. I currently have 2 crappy knees that both need to be replaced... again.

I've found that you really have to just keep pushing & learning. The more informed you are, the better chance to get at least some little bit of help. I've also found it's better to just get up & leave an appointment rather than starting to yell. They don't take yelling seriously. I walked out on my last appointment which I am glad I did as now I still have a working relationship with the OS instead of just blowing him off like the many before him.

I've also found it's very helpful to have a punching/kicking bag. Seriously! I can hit & kick that & pretend it's the latest medical moron who hasn't helped. The other thing is don't give up hope! I'm still in pain every day but I'm trying to find little adjustments, treatments, etc that may help even a tiny bit. Every tiny bit does help!