What do next? Knee pain with no cause?

[happydappy1]

@Uk86, thanks for taking the time to reply. I am seeing my Gp tomorrow, so I will ask. Thanks!

[happydappy1]

I saw my GP. He also says it's not worth treating Osteoarthritis in the hip. Apparently, Osteoarthritis  can't be treated, only managed and he says I need to wait until I am older and it gets worse before they do anything.

Back in 2007 I was identified and treated for a prolactinoma brain tumor. The tumor was fully cured in 2013. In 2014, some of the symptoms came back so I went for a brain scan in March. However, the prolactinoma clinic only runs twice a year, so I have to wait until the end of September for the results.

My GP feels that the pain I get in my knees is caused by the tumor. I also get vibrations in the foot occasionally (you can see the skin ripple when the vibration occurs, though it only happens 1 or so a week), so he says it's all the tumor sending wrong signals. He don't want to proscribe any stronger pain killers as they could conflict with the tumor (even though it hasn't actually been confirmed that I have one....)

To be honest, that sounds a bit screwy to me. I never had muscle pains the first time I had the tumor. Plus, I've been looking on the internet and it says that muscle pains are caused by different tumors (Acromegaly & Cushing's disease) and I don't have any of the symptoms associated with those tumors.

Does anyone have any experience with this? Is my GP right?

[Vickster]

No experience of what you have said, but can your GP refer you to a rheumatologist or endocrinologist or whoever the appropriate specialist may be?

I'd say it's good the GP is thinking outside the box, but should now send you to an expert

[happydappy1]

No experience of what you have said, but can your GP refer you to a rheumatologist or endocrinologist or whoever the appropriate specialist may be?

I'd say it's good the GP is thinking outside the box, but should now send you to an expert

Thanks! The prolactinoma clinic is the endocrinologist. I'm guessing I am probably better seeing them first, that way I can rule out (or confirm) that. It is over a month away, but given how long this has been going on I guess it's not too much of a wait. Thanks for your input, I greatly appreciate it.

[happydappy1]

Quick recap of my situation:
-Stabbing and burning pains in knees, which make walking very painful.
-It has been like this for over a year, so I’ve rarely left the house.
-Been for a knee MRI scan, but couldn’t find any problems
-Previously had a brain tumour which was cured, but my GP suspected it might have come back and was causing the knee pain. He said I would have to wait until I saw the brain consultant, before he could do any more.

I saw the brain consultant, but he said there was no tumour.
My GP is now referring me to a rheumatologist (although it won’t be till Feb), but he feels that the rheumatologist won’t be able to do much, as my blood tests don’t show any signs of arthritis.

I can walk a bit more now. But after 5 minutes-ish, the stabbing pain starts. And then if I walk too long, at night my knees will burn away in pain. (If I don’t walk too much during the day, then the nights are okay).

Does anyone have any ideas as to what this could be.
Thanks!