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Author Topic: Best Arthrofibrosis Specialist in the US?  (Read 1061 times)

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Offline Danabc

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Best Arthrofibrosis Specialist in the US?
« on: May 15, 2015, 09:20:07 PM »
Hello! So grateful to have found this site. After a skiing accident Jan 2015, I ended up blowing out my ACL, both meniscus and fracturing my fibula. I had initial surgery with and ACL graph, one meniscus was stitched and the other trimmed. I developed arthrofibrosis although I didn't know what that meant and trusted the guidance of my doctors. After two PTs and a second surgery to release adhesions and MUA, things got really bad. My second PT went VERY aggressive in cranking my knee multiple times a day for the first 2 weeks after surgery until he 'dumped me'. He said this wasn't working and my doctor kept telling me the famous 'push through the pain' but things got progressively way worse and the constant daily pain increased tremendously. I have taken things into my own hands now and have done tons of research on the condition, learning that what I was doing was probably the worst thing. I am looking for a specialist as I have even inquire with 5 South FL top orthos (including the Miami Heat and FL Marlins) who all turned away my case. I live in NYC, but am in Florida recovering from this at my parents.

The two orthos I have found through here and other sites are Dr. Noyes in Cincinnati and Dr. Millett in Vail. Both seem to know what they are doing and I refuse to see anyone other than a specialist now. I am only 26 and having major issues and sick of being turned away. I will travel anywhere and do whatever it takes. I have a great PT now, but of course he isn't a surgeon and I will need that.

All-in-all, I would love to hear any personal stories about dealing with either doctor. Any other guidance would be greatly appreciated as well as this has been a debilitating, awful experience to say the least and I have yet to talk directly to anyone that can relate.

Thanks so much! Dana

Offline Scubagrl4

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Re: Best Arthrofibrosis Specialist in the US?
« Reply #1 on: May 16, 2015, 07:18:02 PM »
Hi Dana,
I am so sorry to hear about your troubles. Unfortunately, I know exactly what you are going through. My story is too long to post, but I have been dealing with AF for over a year now. I have a thread going in the AF section if you want to check it out. Dr. Millet is the doctor who is treating me now. I just can't say enough about how great he and his staff are. I am afraid to think of where I would be if I hadn't gone up to vail to see them. I am still having some issues as this is a very long road we are on. But, I am so much better than I was. I went from 95 degrees of flexion to 145, and +1 of extension to -3. The only reason I am having trouble right now is because I did too much walking at a conference last week. I would be more than happy to speak with you and to answer any questions you may have. I know how lonely you feel, and how scary this all can be. I will try to send you a private message with my info.
Or, if you have any questions you want answered on here, I can try to do that too. Hang in there!
4/14/14 L ACL rupture, grade 2+ MCL tear
6/6/14 ACLr allograft
9/4/14 MUA
10/6/14 LOA/AIR, synovectomy, lateral/medial retinacular release, partial lateral menisectomy, chondroplasty, deep tissue
biopsies.
11/20/14 insufflation, MUA
10/19/15: LOA/air, PLM, chondro, synovectomy, med/lat releases

Offline Danabc

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Re: Best Arthrofibrosis Specialist in the US?
« Reply #2 on: May 17, 2015, 01:23:12 AM »
Thank you so much! I got your message and will call you soon. Really appreciate you reaching out to me.

Dana