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Author Topic: My Stem Cell Journey - A beginning  (Read 19102 times)

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Offline wturri78

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Re: My Stem Cell Journey - A beginning
« Reply #15 on: October 19, 2015, 10:06:51 PM »
I have started a new blog to document my experience with Regenexx stem cell treatment that I received about two weeks ago, in both knees, to hopefully treat chronic chondromalacia patella.

The blog is at beeskneessite.wordpress.com.  I will continue to document my experience as time progresses, and will happily interact with anyone who wishes to comment on the blog. It's a work in progress :)

This was done by Dr. Mitchell Sheinkop in Chicago as part of a Regenexx clinical trial. It consisted of a dextrose "pre-injection," followed by the marrow draw and stem cell injection the following day, concluded with PRP two days after that. I've now received the whole course of treatment and will continue to post blog updates as time progresses. I hope my experience, good or bad, will ultimately  help you and others to make informed decisions.

Offline xianzai

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Re: My Stem Cell Journey - A beginning
« Reply #16 on: December 15, 2015, 09:37:09 PM »
Has anybody heard from    ChrondoCanuck? My knee is in similar situation and I live close to Toronto. 

Offline ArmstrongK

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Re: My Stem Cell Journey - A beginning
« Reply #17 on: December 20, 2015, 12:35:07 AM »
Wturri78-  Thus far, would you recommend Regenexx stem cell treatment to others with chondromalacia patella?
Thanks!

Offline ChrondoCanuck

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Re: My Stem Cell Journey - A beginning
« Reply #18 on: February 18, 2016, 07:37:46 PM »
Sorry I have been remiss in my posting an update.

I had a follow up PRP shot in late June with Stoddard, as the swelling continued to persist. It continued into late July where at wits end, I took some anti inflammatories. Like a miracle, the swelling disappeared. I tried to get Stoddard to give me a discount on the follow up PRP shot because of the discomfort I was under but he only gave me 10%. I was very frustrated. Here's a guy who draws my stem cells and my blood, puts it in a $500 centrifuge, re-injects it, and then charges me $2500 for stem cells and another $500+ for PRP, both procedures taking like 1.5 hours combined. To him, its easy money, and he has no underlying independent research, and no follow long term follow ups with his patients. I will not go back.

In terms of my current condition, I can`t say the stem cells really made much of a difference. The initial PRP shot did, but not the stem cells. I still struggle with weight bearing using the joint. I can go down stairs but with by gait has changed - some days are better than others. I can positively say that while I am still prone to acute incidents, I recover more quickly and don`t spend days afterwards in pain. I think I have the PRP to thank for that.

Next steps for me would be (i) repeating PRP here in Montreal; (ii) pursuing a stem cell treatment with Purita in Boca Raton; or (iii) pursuing a stem cell treatment with Regenexx at their affiliate in Burlington, Vermont. Wturri78 seems to have some success with Regenexx, in reading his blog, so I will keenly follow his progress. I will also follow the progress of others with go with Purita. Given the U.S. exchange rate, unless my condition worsens, I will probably stick to plan (i) for now, though I continue to wish that one day I could say I was "healed" and not have to worry about acute incidents, in twisting the joint playing a sport, or squatting or walking down the stairs.

Ne

Offline Aly0108

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Re: My Stem Cell Journey - A beginning
« Reply #19 on: February 18, 2016, 08:31:53 PM »
Sorry I have been remiss in my posting an update.

I had a follow up PRP shot in late June with Stoddard, as the swelling continued to persist. It continued into late July where at wits end, I took some anti inflammatories. Like a miracle, the swelling disappeared. I tried to get Stoddard to give me a discount on the follow up PRP shot because of the discomfort I was under but he only gave me 10%. I was very frustrated. Here's a guy who draws my stem cells and my blood, puts it in a $500 centrifuge, re-injects it, and then charges me $2500 for stem cells and another $500+ for PRP, both procedures taking like 1.5 hours combined. To him, its easy money, and he has no underlying independent research, and no follow long term follow ups with his patients. I will not go back.

In terms of my current condition, I can`t say the stem cells really made much of a difference. The initial PRP shot did, but not the stem cells. I still struggle with weight bearing using the joint. I can go down stairs but with by gait has changed - some days are better than others. I can positively say that while I am still prone to acute incidents, I recover more quickly and don`t spend days afterwards in pain. I think I have the PRP to thank for that.

Next steps for me would be (i) repeating PRP here in Montreal; (ii) pursuing a stem cell treatment with Purita in Boca Raton; or (iii) pursuing a stem cell treatment with Regenexx at their affiliate in Burlington, Vermont. Wturri78 seems to have some success with Regenexx, in reading his blog, so I will keenly follow his progress. I will also follow the progress of others with go with Purita. Given the U.S. exchange rate, unless my condition worsens, I will probably stick to plan (i) for now, though I continue to wish that one day I could say I was "healed" and not have to worry about acute incidents, in twisting the joint playing a sport, or squatting or walking down the stairs.

Ne

Hi,

I have also Chondromalacia stage 1-2. Do you live in Toronto or Montreal? In Canada is difficult to find Stem Cell. I know Dr.Grant Pagdin, in Vancouver does Bone Marrow Stem Cell, the cost is 4400$. 

Offline ChrondoCanuck

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Re: My Stem Cell Journey - A beginning
« Reply #20 on: February 24, 2016, 08:11:24 PM »
I live in Montreal. My chrondomalacia is grade 2-4, and that's as of 2 years ago. When you are talking those kind of dollars I think it wiser to go to the U.S. for treatment. Purita in Florida seems to the best and his prices are relatively affordable. I think I outlined them in my first post.

Offline tulcak

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Re: My Stem Cell Journey - A beginning
« Reply #21 on: January 17, 2017, 09:12:26 PM »
This is my first post.  I understand I have to post 21 times to be able to send a PM.

MDAL, I wanted to ask you about the clinic you visited for SVF treatment in the Czech Republic.  Where you went and when.

Also, is "regenexx" "SVF"?

My niece has had serious problems with her neck over the years and my sister wants to go to a very expensive clinic in the Cayman Islands to get a stem cell treatment done.  They really can't afford it.

I lived and worked in the Czech Republic and now how the health care system works there.  If there is a clinic there, she could purchase the 'foreigners health insurance' and then get treatment at a much reduced cost.

Please contact me back.  my email is [email protected]

and anyone else, if you have some advice, it would be greatly appreciated.  my niece is in such pain.

thanks in advance.
Tom Ulcak

Offline psny

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Re: My Stem Cell Journey - A beginning
« Reply #22 on: January 18, 2017, 07:43:47 AM »
This is my first post.  I understand I have to post 21 times to be able to send a PM.

MDAL, I wanted to ask you about the clinic you visited for SVF treatment in the Czech Republic.  Where you went and when.

Also, is "regenexx" "SVF"?

My niece has had serious problems with her neck over the years and my sister wants to go to a very expensive clinic in the Cayman Islands to get a stem cell treatment done.  They really can't afford it.

I lived and worked in the Czech Republic and now how the health care system works there.  If there is a clinic there, she could purchase the 'foreigners health insurance' and then get treatment at a much reduced cost.

Please contact me back.  my email is [email protected]

and anyone else, if you have some advice, it would be greatly appreciated.  my niece is in such pain.

thanks in advance.

I don't think MDAL is active on these boards anymore. I have his personal email but have not heard back from him. As for Regnexx, no they do not offer SVF. The Cayman clinic is likely Regenexx. I am not a fan of Regenexx. You may search my posts and read more about why. You may also see my thread about my experience with stem cells in Poland.

Travelers insurance, or any insurance, will not cover such treatments or even reduce the cost much by reimbursing for things such as appointments, imaging, and supplies.

Be very aware that cellular therapies, specifically the new wave of "stem cell" treatments are not a panacea. If your niece is in such serious debilitating pain she needs to see a spinal specialist. An injection of stem cells may not make any difference unless the underlying issues such as neuropathy, bulging discs, fractures, and so on are treated or least are identified.

Offline tulcak

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Re: My Stem Cell Journey - A beginning
« Reply #23 on: January 18, 2017, 05:47:45 PM »
Thanks for your reply.  As I had mentioned, my niece has been in and out of hospitals and seen many specialists.  She's had 4 or 5 surgeries.

For the Czech Republic, as I said, I know the health care system there very well.  I had 'foreigners insurance' there and everything was covered after I purchased it ($200 or $300).  I have dear friends throughout Europe who have educated me on their systems.

A few of my friends have flown their family members to the Czech Republic, purchased the 'foreigners insurance' and have had surgeries and recovered in the hospital - almost all the medical costs covered.

Plus, the health care systems in Europe are superior to the U.S. with better doctors, better care, better treatments and cutting edge technologies.

So, really, I am not looking for information on the state of health care in Europe.  I am looking for information on hospitals and clinics where the svf procedure for the spine in the area of  C0-C1-C2 is done.
Tom Ulcak

Offline tulcak

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Re: My Stem Cell Journey - A beginning
« Reply #24 on: January 18, 2017, 06:05:30 PM »
Is it possible for anyone to contact MDAL?  I'd really like to know what clinic in the Czech Republic he/she went to.

Thanks in advance.
Tom Ulcak

Offline tulcak

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Re: My Stem Cell Journey - A beginning
« Reply #25 on: January 18, 2017, 06:06:20 PM »
Is it possible for anyone to contact Fraz?  I'd really like to know what clinics in Europe he/she have knowledge of.

Thanks in advance.
Tom Ulcak

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Re: My Stem Cell Journey - A beginning
« Reply #26 on: January 18, 2017, 06:35:15 PM »
Once you get to 20 posts you can send your own PM, he might have email notifications switched on

You can use the 'games room' getting to know you threads to get your post count up
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline tulcak

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Re: My Stem Cell Journey - A beginning
« Reply #27 on: January 18, 2017, 07:12:12 PM »
Thanks!  This makes 5... only 16 more to go!  :)
Tom Ulcak

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Re: My Stem Cell Journey - A beginning
« Reply #28 on: January 18, 2017, 07:19:27 PM »
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline ankle_boneonbone

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Re: My Stem Cell Journey - A beginning
« Reply #29 on: April 08, 2017, 02:40:45 PM »
Hi ChrondoCanuck, Tulcak,

Any updates guys?
















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