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Author Topic: Tibiofibular subluxation "horrible way to live"  (Read 789 times)

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Offline jackedupknee

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Tibiofibular subluxation "horrible way to live"
« on: October 02, 2014, 04:37:50 PM »
"My right knee has been locking up for 10 years. Been to four specialists, 2 MRI's, one scope, zero results. The doctors are baffled. If I straddle my right leg so that the knee is hanging rightwardly loose, or simply allow the R knee to exist without support in a rightward manner - or pulled rightward by gravity, or even if I let the right leg lean rightward too much while I'm sitting at a desk - it can go into lock condition and is VERY painful. Can't move until it unlocks, which can sometimes take up to an hour or more, though I've learned some tricks that can usually unlock it sooner.

It's a PHYSICAL LOCK UP and it's a BIG BONE that's locking up ("THUNK") and/or coming "out of joint." That's the only way I know how to explain it, but when I tell the doctors this they tell me it's impossible. When it unlocks, it gives another "THUNK" and I can feel it sliding back into its proper place. It's a horrible sensation. One doc surgically took out a small piece of Meniscus, but that wasn't the problem. It solved nothing. I've checked all the medical websites and none of the listed "knee lock" symptoms correspond to mine.

I've been experimenting (painfully) during lock-ups, trying to isolate the problem area. The issue seems NOT to be in the central knee, but on the right side of the leg below the knee about 2" - apparently where the Fibula connects with the Tibia, best I can gather from anatomy diagrams. My only conclusion is that the Head of the Fibula is sliding out of its normal joint - as if certain ligaments (Collateral, Posterior, etc.) have been damaged (or degenerated) and cannot hold the Fibula in place when the knee/leg is bent or pressured outward-rightward. Based on my lay efforts to localize the source of locking, that's the only conclusion I can draw.

Ortho doctors may scoff at this. But until they can properly diagnose it and fix it, they have "no leg to stand on." I would enjoy talking with others who share this issue: JL (at sign) JPS (dot) NET. Maybe if enough of us got together, we could petition some medical college to do a small study on us all. I would travel anywhere in the world if I thought someone could truly fix this condition. It is misery to live with." 

This is actually a post from Driz in 2009 that I copied and pasted because it home.  I've got an injury the same and feel exactly the same way and would travel anywhere to get it fixed.  Driz please come back and respond.  Someone PLEASE HELP. 

Mine is the exact same and I work for orthopedics in surgery with them and they can't diagnose me to fix me.  I know it upsets them but I can't stop looking for help.  Injured mine 8 months ago with a collision with a twisting squatted bent knee position haven't really been able to consistently extend it fully to me or bare full weight ever since.  I am tired of trying to convince them.  They won't do any surgery on my knee for my fibula without a definite identification of dislocating fibula which I can't give on cue and wouldn't want to because it is so horrible.  But they sure as heck can do two knee scopes even though two MRI's said nothing was wrong inside my joint.  Makes no sense and I love working for these guys.  I don't know what to do and don't want to offend but the pain is unbearable almost all the time now and no one will listen.  They just say that it makes no sense and conservative treatments and time as I become lifeless.  I took ibuprofen so much initially that I got an ulcer.  I refuse to take anything anymore except after both surgeries I took the Percocet up to about half the bottles before stopping because if I were to get used to taking it for pain then I would be taking it every single day for the past 8 months every 4 hours.  Just want fixed.  That's it.  I want to hike, bike, actually carry a kayak down to the water.  I want to run again so bad, but I would let that go for the rest of my life if someone would just fix my leg.

Offline kcknee

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Re: Tibiofibular subluxation "horrible way to live"
« Reply #1 on: October 02, 2014, 05:08:36 PM »
Check out this previous discussion. It sounds similar to what you are experiencing.

I also found this online

I hope you can find answers.

12/31/08 - Skiing injury L knee
6/1/09 - ACL stump removed from joint
8/31/09 - ACLr - Hamstring Graft
12/21/09 - Ant Fasciotomy 
8/26/10 - Anterior Interval Release
12/6/10, 5/5/11, 12/22/11 - Fasciotomy
12/7/12 - Nerve Decompression
6/3/13(m), 7/29/13(l), 12/13/13(m & foot) 2/3/14(l) Fasciotomy

Offline jackedupknee

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Re: Tibiofibular subluxation "horrible way to live"
« Reply #2 on: October 03, 2014, 04:20:51 PM »
It's unbelievable to me how horrible this is and how difficult it is to get treated.  That was definitely a good post for what I have going on.  Saw my second surgeon for follow-up after second knee scope confirming nothing in the joint is wrong, but he was actually really trying to help me figure out a diagnosis for sure to get it fixed.  Just doesn't have any proof of tibfib joint instability.  Sending me next for EMC for the peroneal nerve symptoms.  Think both surgeons just want me to lock it up while at work so they can have me get an x-Ray and MRI during it like I'll be able to sit through more than 1 minute of that if it ever did do it while at work.  Too excruciating.