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Author Topic: Swollen Knee Problem`  (Read 1890 times)

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Offline mustafa80

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Swollen Knee Problem`
« on: July 23, 2014, 02:34:34 PM »
Hello,

Hopefully someone can help meot know what is wrong

When I was about 18 my left knee started swelling up quite badly - I had trouble walking and bending the knee. at this time i was referred and had a few arthroscopy! The doctors had no idea what was wrong and diagnoised it as Rhumotoid arthiritsis. 
The knee would swll up and stiffen for about 4/5 days then the swelling would go down. after another 4/5 days the knee would swell up again...the cycle would continue ! I even had fluid taken out a number times. I was then also prescribed sulfasalazine and after about 1 year of taking this mediciant my knee problem stopped  when I was around 22  :)

When I was around 24 theleft  knee swelling problem started again and last for another 2 years and disappeared again.

The problem then started agains when I was about 30 but in the right knee this time. I started seeing a private orthapedic/ rhuematogly specialist. I was then Injected with steriod and the problem calmed down and I stopped seeing the doctors!

3 years on the problem has started again in the right knee and I visited myrhumatology specialist again..had loads of blood test, xrays ! The only think will came up a severe vitamin D deficiency. He prescirbed me a high dose and injected the knee with steriod. Its been 10 days and now the right knee is swollen again very badly.

I have had every single blood/stool/xray/mri scan possible.

any ideas what the problem could be ?


Offline LAS

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Re: Swollen Knee Problem`
« Reply #1 on: July 24, 2014, 01:28:55 AM »
Hi there:  If the steroid worked and it didn't come back  for a few years, I would say that you most definitely have an arthritic problem.  Rheumatoid, or osteoarthritis.   There is not a blood test for osteoarthritis.  They diagnose it by your symptoms and looking inside your knee.  If you were taking a steroid medication and I do think that medication you mentioned  is for Rheumatoid Arthritis and it helped,  its another sign that this is what you have.   You can have flare-ups with arthritis,  settles down and then comes back.  There are lots of medications you can try   to help with Rheumatoid Arth.   I'm a little confused.   Did they rule that out?

Offline mustafa80

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Re: Swollen Knee Problem`
« Reply #2 on: July 24, 2014, 10:13:35 AM »
Every time I had a blood test they checked for Rheumatoid Arthritis and it came back negative. Originally when I was prescribed the sulaphasalizine they were not 100% confident it would work but it did.

The steroid injection I had 3 years did work but did not work when I had it 11 days ago.

The blood tests I had done 2 weeks back were quite advance looked at a lot of different things! I am  glad I have private medical as these blood test cost 1,300 !

Offline LAS

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Re: Swollen Knee Problem`
« Reply #3 on: July 24, 2014, 12:15:25 PM »
Steroids can help with a lot of different medical problems and at the same time mask the the real problem.   They have a lot of side effects as well.  Rheumatoid can  go into remission for periods of time.  I am assuming that the blood work was performed at a time when you had symptoms and that you were not on medication at that time.   I would suggest that you get followed up on every 3 months or so not years so that it's under control.   If you have a vitamin D deficiency, it can affect your bones, you may want to change your diet or lifestyle.   Usually Rheumatoid Arthritis will affect both sides for example both knees,  or both hands.   I dont' know if you play sports or what you do for work but that could certainly affect flare ups.  Hope this helps.   LAS

Offline mustafa80

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Re: Swollen Knee Problem`
« Reply #4 on: July 24, 2014, 02:20:58 PM »
When I had the recent blood it was inflammed but I was only really taking Ibuprofen and not any steriods.

I have started on the Vit D sinec last week on 50,000 unit dose for the next 3 months.

unfortunatley my consultant is now away for another few weeks as I could have really done with him taking some fluid out as I am limping quite badly and cant even bend my knee. I used to play sports but cut back when I had problems.

I did actually start cyclying just before the recent flare up. Could that have caused the re-occurence?

Offline LAS

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Re: Swollen Knee Problem`
« Reply #5 on: July 25, 2014, 06:41:10 PM »
cycling bothers my knees especially overdoing it.  I don't have Rheumatoid but do have osteoarthritis and it will aggravate it badly.   Most Ortho people suggest it but not overdoing it.   I can't use the stationery bike anymore than 35-40 minutes  at a low tension or I'm in PAIN.   I only stay on it 15-20 minutes just to get some cardio.   I would not  do the cycling until the fluid is removed.  I believe that yes most certainly it can cause a flare-up.   It's hard to keep active when you knees get in the way!
Hope this helps.   LAS 

Offline mustafa80

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Re: Swollen Knee Problem`
« Reply #6 on: August 02, 2014, 11:48:39 PM »
I wasnt riding for long! just for 10-15 mins max!

Knee was swollen and finally went down after 6/7 days. after just 3 days of it being normal has started swelling up again  :(   have rested it all day

Got my next specialist appointment in 18 days! doesnt help he is away on holiday

Offline LAS

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Re: Swollen Knee Problem`
« Reply #7 on: August 03, 2014, 12:08:57 AM »
It's probably because you still have the fluid in there.   Glad you are seeing you Dr. I  know what you mean about them being out of the office all the time.  They're out more than they are in!  LAS

Offline mustafa80

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Re: Swollen Knee Problem`
« Reply #8 on: August 03, 2014, 12:38:29 AM »
have been reading online a lot... could it be Pigmented villonodular synovitis (PVN) ?

Offline LAS

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Re: Swollen Knee Problem`
« Reply #9 on: August 08, 2014, 02:46:15 AM »
From what I understand this is a very serious, rare  condition.  Do you have it in any other joint and did you have a biopsy of that knee.  I would bring this to your  Dr. attention.   LAS