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Author Topic: An athletes mpfl reconstruction diary  (Read 89241 times)

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Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #660 on: October 18, 2016, 11:21:27 PM »
so i haven't had the best day my left knee collapsed feel down and my right hurts but its not collapsing... which i suppose is a good thing i did tell my surgeon about x5 times about the left knee being an issue pre surgery i might have to ask for an MRI......
so i went to my GP, they said to see how it is in a couple of days as an x ray wont say anything or wait to see my surgeon in 5 weeks time and cant do an mri as recently had surgery........
so now i have invested in a good quality brace for my left as i dont want it to be detrimental to my right leg i have gained so much from that.....just dont want to lose the stability AT ALL COST!
trying to avoid my surgeon at all cost as i cant be bothered with conflict the secretary is a great person  ::), need a positive emphatic approach right now might see if i can get a physio to have a look at it  ;).........been getting acl recon pain i think the bone callus in my tibia  and repairing.....
« Last Edit: October 18, 2016, 11:23:26 PM by lucha86 »

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #661 on: October 25, 2016, 05:08:52 PM »
Hi Lucha,

I have not posted for a while on your post-op dairy, I have been busy with others things spending less time on KG Bulletin Board. It looks like the surgery on your right knee has been largely successful only for the left knee to start collapsing. Hopefully it can be left without any surgical intervention. Once you start to have problems with your knees it's hard to get them right again.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #662 on: October 30, 2016, 02:19:20 AM »
Hey CLarkey thanks for your reply and thanks for your replies earlier snowy and vickster.
Im now like 7 weeks post surgery, my right knee had been sturdy no rotation etc, the left knee is not great

well i think clarkey it has just given up lol i think being hypermobile, which lax ligaments after several years the knee has just said enough, so im trying to do as much as i can in rehabto help with the joints, however i reluctantly went back to my surgeon to ask for an MRI of my left knee to make sure no damage has occurred as i did hear a snap and couldn't bear weight on it after the last collapse

so i wrote to his Secretary who is lovley and requested an MRI of the Medial area and lateral anteoral area of the knee with checks on the MPFL,MCL,ACL and meniscus, due to the pain im getting i had this before the surgery on my right i said in the email, i mentioned this to the surgeon before the surgery my concern about the left as i ended up in hospital with two collapsed knees before the surgery,  now the medial inner side is completely swollen up......
 and said i dont want my surgeons work destroyed and what stability i have gained from the right knee because of the left knee, i don't see any harm in doing an mri to rule out any major causes......because im trying to protect my surgeons work as i have gained so much from it... :) if the mri rules out things then it would be seen to be due to stress on the knee, but as i heard a snap pop and felt my left knee buckles thats why im wanting it checked

 i think some doctors get intimidated by this but when you have lived with a dodgey knee for years and been in sport you will learn alot when it comes to biomechanics of joints......... So when i mentioned the medical terminology i got an email back to say as my surgeon is away his registrar didn't want to make the decision and will leave it to my surgeon.....  ::) ::)

But i feel sometimes some doctors, dont allow you to make or be a part of the decision as they believe they are right in what they say and as you know in my case, hindsights of previous surgeons etc.....

But my right knee no twisting no collapses 7 weeks post op, left is beginning to deteriorate, but im just so glad my right knee is not going because up to 8 times a day was ridiculous .....

Im starting to sense some light  :) ;D ;D see the physio on Tuesday to check my knee and will hear back from the surgeon Monday/Tuesday to see if the mri will be yes or no.....

« Last Edit: October 30, 2016, 02:21:08 AM by lucha86 »

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #663 on: November 03, 2016, 05:56:09 PM »
Hi Lucha,

I hope that your PT appointment has been helpful and that the MRI scan on your left knee does not show up any major problems. If it does then you know you are in safe hands if surgery was suggested. Your OS has done a fantastic job with your right knee, he was happy to put an end to the regular collapses by going ahead with the surgery. It has so far been beneficial and a success.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #664 on: November 05, 2016, 12:18:46 AM »
Hey nick well, im pretty happy so far my right knee has'nt collapses at all  :) :)
I saw my Physio he was happy with my right leg and my progress the left did concern him as it has collapsed again recently but this time he put it from straight to flexion knee turned outwards and rotated clunked and popped then my hip clunked popped out.... i was like wth!!??
My physio thinks my issues is the MCL area or meniscus, due to the swelling and issue around the area...... then it collapsed again the same night i saw my physio....thn saw a physio next day same things happened knee rotated hip and knee both clunk out pain this time.....i was like im actually a freak lol!!

Luckily enough my surgeons secretary who is lovely got back to me the next day and said she had to wait for the registrar to sign off the MRI as my surgeon said yes to the MRI ...
so she said how am i doing ....  ??? ??? I explained what happened so now will wait for the Mri but like i said on a positive note the right knee hasnt collapsed  ;) :) :)

But i still think maybe the mri should have been done on my left knee before my surgery to rule out any ruptures etc, ...... now awaiting and mri i suppose i will be even be lucky to gt an mri by end of this year

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #665 on: November 08, 2016, 05:34:15 PM »
Hi Lucha,

Great that your right knee surgery has been a success, it always helpful and reassuring to have a group of people you can fully trust. You have found an understanding OS with a caring Secretary and a Physio that knows your past and present knee problems. 

Good luck with the scheduled MRI scan on your left knee.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #666 on: November 10, 2016, 11:20:48 PM »
Hey Nick
Yes i know i don't know yet if we have quite settled our differences from surgeon to patient lol. But i think he listens more, rather than cross his arms or act on the defence,i look at it several ways yes he put his neck on the line and his reputation to get me sorted after my previous surgeons hindsight so i do appreciate him doing that....so that is probably what annoyed him, and probably doesn't expect a patient to answer back wih medical knowledge or research lol
But with my 3 year history, of trust with doctors, i will question everything .........

Im still waiting for the Mri like i say i will be lucky if i get it this year,,,, =))
Me and my Physio get on really well, no problems no issues he respects my medical knowledge listens to me and checks anything i need to get checked he said he generally doesnt have to tell me what to do as i do it ...... an he checks my ACl is ok with the lachmans test to make sure its intact with the issues with the left knee.......He really goes out of his way to help me, but im careful what i say to other physios around him work with my ex surgeon......... I cant fault my physio he says things as they are and thats who i like it...... =)

It is funny i remember my surgeons registrar asking me your an intelligent woman, can anyone actually take control of you? I replied "Would you let anyone take control if you had to jump off a 20 foot cage into a ring, er no!, the only person that i generally listen to is my physio as he is the one that picked up on the misdiagnosis and doesnt cover up things so no only my physio if your recording this conversation " I got a silence.... and a smile says it all when a surgeon or regristrar avoids an answer its a smile silence next subject ...........

However i do appreciate my new surgeon repairing my ACL, as i can finally get back on track....

I think the saddest part about all of this is i still don't have full honesty, and i want to be able to plan my life, i will NEVER get an apology from my ex surgeon which i think is disgraceful because im the one that will end up with more surgery because of his decision for me an apology would bring me closure...........

My plan now is to raise awareness of the different grafts being used in reconstruction so people can make the right choice for themselves through charitable work, so then people wont end up like me.............

My right knee hasn't collapsed, thank goodness =) my left is still so so but just gotta wait for the scan =)

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #667 on: November 17, 2016, 05:47:29 PM »
So i was having a rather bad day i had two relatives in the same hospital rushed to the hospital one in resus and one in a ward after my computer failing at work and then the bank having issues with my card...
So after a day of pure hell walking down the corridor of the hospital i bump into no other than my


.........................ex surgeon........ !!!! ( I thought to myself yup this is the worst day to date lol)

I thought i would have even got an apology he stuttered looked at me in shock, i thought to myself there is no point in living in the past and i was having a near enough terrible day "I said hello good evening." I looked smiled walked away, i felt him look at me while i was walking away i think he was quite shocked, i think he was expecting me to say more in a negative way, and i just had to much to deal with at the time. The moment that i wanted answers was not the correct moment.... why was the acl missed why was the MPFL autograft chosen? which will fail because i had hypermobility...... Still shocked he didn't even apologise

But maybe my ex surgeons speciality is better in other areas rather than ligament, everyone specialises in something

Told my Physio, and my physio said i made the right choice and i do believe i did, we are all human and i suppose his reaction said it all to be honest............
It's rather funny now everyone who is having knee surgery is coming to me for advice as they know i studied the knee and what i have been through for any advice.......

My knee as a whole my right is going really well, no collapses left  about 25 times is buggered physio thinks its the MCL meniscus area, and my hip is popping out, but i see my physio in a week....
i suppose my left knee has taken over three years of collapses from the right so it doesn't surprise me.......

I know doctors protect one another doctor politics whatever you may say but sometimes if the basics were not forgotten and basic checks hyper mobility checks beighton/ brighton score and MRI etc, i would not be here right now....

But after nearly three years im happy with my right no collapses etc, i feel better and more confident with it, so many people are helping me and supporting me, even all the physios in the hospital i cannot fault they know the situation i have and they support me all the way... personal trainers at the gym keep shouting "Keep squatting! show your surgeon your stronger than he thinks you are!" They also correct my posture lol

Trust me i think my surgeon might be rather shocked in the next review in one week! i will prove that a hypothesis will never guarantee a result because its down to the end result each individual patient and their determination to overcome barriers.... im about 4 weeks ahead right now =))
its amazing =))

After this whole experience i personally will questions everything and anything and i don't care if a surgeon likes it or not if they understand i lost three years by leaving it in a surgeons, and the end of the day we are the patient it is our body and they should listen us and do the checks otherise things like my situation will occur, no one is GOD and should act with arrogance over the knowledge they have because sometimes we don't know everything and that can create misdiagnosis.........

Yes i'm happy but now i want to turn this negative experience into a positive by raising awareness for hypermobility and types of grafts used in reconstruction so the best decision can be made and people can make the right choice for themselves......... i hope if i can help one patient by doing this then the three years i lost will be worth it if i gained time back in the peoples lives due to the awareness............

i suppose there if a famous saying by a physician Mr oslen "Listen to your patient they are telling you the diagnosis."

Lets hope they do............ =)






« Last Edit: November 17, 2016, 09:24:14 PM by lucha86 »

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #668 on: November 17, 2016, 06:50:55 PM »
Hi Lucha,

Hope your relatives are recovering ok that are now under professional medical care. It always best to be polite, you did say previously that OSís have expert knowledge and experience with certain knee problems. I am sure your previous OS is excellent with certain types of knee problems and surgical procedures that your current OS might not pick up on so easily and vice versa.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #669 on: November 17, 2016, 09:28:18 PM »
i very much do agreed with you Nick but i do feel some surgeons need to just say
ok i might not specialise in this but this person does so i will pass you case to that surgeon to get the best possible outcome,
but i don't know if there is a taboo amongst doctors in doing this or if it makes they look bad by doing this?
but oh well  ::) onwards and upwards no collapsing right knee which im loving  :D :D ;)

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #670 on: November 27, 2016, 10:42:42 PM »
So tomorrow I see my surgeon tomorrow I hope he treats me the same as the last appointment as I had a fall when coming off a plane today and I just want a smooth day , my physio was greatly impressed with my knee, my right knee that is he's abit concerned the left knee isn't settling down and I have a slight flexion issue and serious if the so doctor moans about a 4 degree loss of flexion there will be words lol ....think I need some luck lol  :P :P

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #671 on: November 30, 2016, 11:01:13 PM »
so i saw my surgeons regristrar who was happy with the way my knee is and how he nearly fell of his chair when i told him i managed to run on it.... however in the run up to this appointment.....

i also got a doctor before this to check all my previous MRI's who proved that the ACL was missed by my previous surgeon. and over three years

Now if you consider i had 3 surgeons with about 75 years experience together, who i had run ins with didn't like my use of medical knowledge however by complete two randoms by two different doctors i had never met during my surgery.... did i find i had a a connective tissue disorder. So i got left a message to see a particular doctor......

currently being annoyed and frustrated with doctors i thought might as well what else do i have to lose.......lost a lot so cant lose anything else right now.

So i walked in to see this doctor in a top private hospital, the doctor shook my friends hand and my hand on my hand the doctor felt my hand, stopped looked at it again smiled and said come into my office......
the doctor was very nice and i was confused as i just argued with doctors generally trying to explain my issues and dislocations and them not comphrending, this doctor said "Are you ok?, talk to me tell me how you feel?" I said well most surgeons i argue with because they cant understand the basic concept of dislocations, up to 8 a day and some surgeons are  slightly. arrogrant and closed."the doctor smile and said thats part of the issue here.... i was confused
i said "why aren't you arguing with me?" this doctor said "Because i need to listen to you to get the correct diagnosis."

I sat down confused by what was wrong with my hand, this doctor then said "have you had dislocations? "YES" does your family have hyper mobile joints stretchy athletic? "yes" has any incisions opened "YES" this doctor then asked me more questions an the said you have this condition. "I burst into tears i took a girl who works in operating theatres in with me, who knows how long this has been going on for.

this doctor said its normal with this condition a lot of patients come to me because they feel failed and that doctors dont listen to them, i said i now hate surgeons can't stand them, i just end up having conflicts with them because they cannot under the concept of hyper mobile joints ..... the doctor checked all my joints

Then i had my heart checked to find out i had a heart issue which i knew nothing about, and i was like oh great so like 4 anaesthetists and 2 surgeons couldn't spot that after 5 surgeries as well!!

I have been told i will need a few tests and diagnostics to check things now and again,  i saw this dr under a self referral and i had to say it to my surgeons surgical team and i said , if i hadn't have met those two drs by random events i would still be arguing with you today, and the fact no one picked up on these things is worrying basics are missed. and three surgeons worth 75 years experience who deal in connective tissue issues in orthopaedics did'nt pick it up......

So i said to myself what do i want to do about it? I want to create a positive out of it, by raising awareness of the difference of hyper mobility and connective tissue issues as the more people i can raise it with the three years i lost i hope a patient can gain back by me creating awareness of it,  then those three years will be gained back for the other patients i help through the awareness....I wont get an apology from them but i can do better than that........

you know what in life we don't know everything but if we can learn things from it can change it into a positive then that gives me some hope all the negativity created can do good in the end.

i do appreciate the new surgeon fixing the knee as now its stable

for me this journey has been emotional but spiritual as well but it gives me hope that my experiences may help those and other doctors to understand the differences and to be aware of them, im not afraid to challenge doctors through presentations because i have lived it and if i can help one patient, then that will give me peace and closure through the awareness programme.
« Last Edit: November 30, 2016, 11:02:54 PM by lucha86 »

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #672 on: December 01, 2016, 05:36:23 PM »
Hi Lucha,

What a relief it must be for you to finally find an OS that know exactly what wrong with your knee and the reasons why you have been suffering for so long with your knee problems. Bet it is a big stress relief for you to have found an OS that sympathetic and understanding with good communication skills and manners who knew exactly what you have had to endure for such a long time period. 

Hope that the heart condition they have picked up on is not too serious! How can 4 anaesthetists and 2 surgeons not spot it after 5 surgeries is shocking as it the most vital organ to be keeping a close eye while under general anaesthetic.

Good luck getting things sorted out finally that been long winded for you. Only 6 days till I see the Sports Medicine Doctor for a review, at this stage I feel I need to see Prof Snow once again for a diagnostic arthroscopy as it will soon be 1000 days post-op in early 2017.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #673 on: December 02, 2016, 05:41:51 PM »
Hey nick as i saw the regristrar last time i think he was a bit shocked and concerned no one had picked up on their connective tissue and i was quite frank in saying how come not anyone has picked up on the heart issues or did the basics test they would have found it??
he was concerned about the heart kept asking me about it i said right knee was fine and suddenly my mri has appeared for my knee so quickly too!

apparently due to the connective tissue issue which generally effects the knees the doctor also believes when he listened to my heart it could be effecting my heart valves or aorta due to the tissue disorder laxity issue, so now i have to see a cardiologist and have the electrocardiogram done... will find out about genetic test next week

I wrote a letter to the surgeon expressing my concerns on how it was all missed and the surgeons too previous to him and said i want to create a positive from this conclusions by doing presentations about it but i would like to fully understand / have a conversation with him for him to explain how it got missed, because for me its duty of care and i want to understand why i have tried to explain the letter in the best polite way possible i hope he isnt offended by it i just want answers and simple explanations.... because if simple tests were done it would have been spotted..... by any of the surgeons i saw who deal in connective tissue.................

but im happy right no longer collapsing its just going to be interesting to see how the surgeon can explain this....... lol but im hoping he can lol because i cant fathom how it can be missed lol

my right knee has been great thank goodness so im happy with that

hope you get on well at your next appointment nick
« Last Edit: December 02, 2016, 05:44:45 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #674 on: December 06, 2016, 08:43:13 PM »
So i have decided this is where my diary ends as i want to start next year fresh!  :D :D

So after three years, three top knee surgeons, arguments conflicts with surgeons

An MPFL reconstruction, chondroplasty medical plica excision
a missed ripped ACL which could be seen on an old MRI which the first surgeon took!
Then to find out i have a connective tissue disorder and a heart condition, that three surgeons with a total of 75 years experience missed lol! that a anaesthetist diagnosed me with the disorder and not the consultants lol!

some people have asked me "Have i lost faith in medicine?"
I suppose you can say i have lost faith in the techniques way of diagnosis, and not remembering the basics, attitude in the sense of "God" like "Im always right persona" when in fact i proved them wrong lol.

You know a physican William Olsen once said "Listen to your patient they are telling you the diagnosis."

I hope this teaches patients and doctors alike that doctors need to listen more rather than jump to a conclusion of arrogance fold their arms shrug, tap fingers on a table....be more humble, empathy, listen and they need to do every diagnostics including the basics before a conclusion is reached.........

Not every doctors knows about every condition and should be aware of this and should seek other advice to create the correct diagnosis....
Never fear asking a doctor a question if something is wrong your body is telling you for a reason...........

Some people have said to me my first surgeon owes me an apology i suppose i will never get it from him, as he is too proud, even though now knowing i have this connectivity disorder the ligament reconstruction with an autograft rather an an allograft he did has a high risk of failing and losing my kneecap...... which could have been prevented if things like family history beighton and brighton score, skin elasticity checks were done if i got an apology from him i don't know what i would say!!

Yes i lost 3 years but i hope through awareness by giving presentations as a case study that actually i may save other people from this, and make the differences aware of hypermobility and connective tissue disorder......

in life there is always hope and im glad i got referred to that hospital in london because the knee got fixed and i actually finally got a diagnosis from a random anaesthetist ... sometimes its amazing how destiny can create our future,

I hope patients can learn that you have a right to ask a question and sometimes the doctors are not always right, because of lack of experience etc, just research everything about your condition and research your surgeon to make sure you get the right care and help...

But there is always hope in random events i do believe there are good doctors out there, but within orthopaedics there is a lot to be learned in the area of hyper mobility and if not checked properly can create more problems.....

My right knee is finally fixed i can now at least walk a road without my knee collapsing sometimes as they say
"sometimes you have to learn to just dance in the rain rather than wait for the storm to pass"
Now im living again........   :) :)

Thank you for all your advice and help and support its time for me to live now  ;) ;)