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Author Topic: An athletes mpfl reconstruction diary  (Read 89243 times)

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Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #615 on: June 04, 2016, 07:32:40 PM »
So i have now completed like just under 11 weeks of physio so far........

so what has happened well lots, but nothing has changed, lol  ::) ::)
the knee has collapsed how many time i fail to mention lost count now write them down everyday as a log,
my left knee now suffered in the gym yesterday my right knee collapsed on doing a simple exercise and heard a massive crack and pop and pain in my left so now thats swollen, my eye still has issues with the fall i had due to the right knee instability......... so now im having to brace both legs up now and again.

there is nothing such as smooth mountain there are some sharp ridges you always have to cross over with rehab.... i feel that i'm getting the support i need i have a lot of people writing letters now, as they are growing concerned, from physios to sport massage therapists to personal trainers etc, i can imagine for them even training me is difficult because of the risk of further injury with an ACL deficient knee.......so that gives me hope that people are now showing support against the surgeon so this should help put my view across....

Im sure there are some people who have had an ongoing knee issues for years on here the thing you fear the most or get frustrated about the most is the things you can don't the risks you cant take or the dreams you didnt pursue because of an ongoing issue with a knee where your life is on hold and not the surgeons......

People say dont let it get to you, but when you knee goes in the middle of a office middle or a car coming at you its hard not to let it get to you..... i keep going i dont give up........

so im hoping with everything happening right now due to the unstable right knee when i see my surgeon in the next few weeks, he can relate to what point im trying to make, because when it effects your sight and other limbs surely that means you have to intervene to create safety and quality life for a patient on an ethical scale?

my point is are there things to be learnt from this yes there are, make sure you aware of your surgeons specialities research them ask people,  never to fear to ask for a second opinion, as each and every surgeons experience and expertise is different.....i cannot change past decisions but i can change my future, my point here is be honest, show detail show evidence, because its your quality of life and you have to fight for it... never be afraid to because the surgeon is not living in your shoes..... we are all human and deserve a decent quality of life and we have the right to fight for it.......

but im feeling positive as its soon now till i see the surgeon

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #616 on: June 11, 2016, 10:02:39 PM »
so its still been a rather turbulent two weeks,
my trainer in the gym delighted to inform me today that it is just over two and a half weeks before i see my surgeon he asked "how do i feel?" He looked at me and said "Blinkin leg days dont you love them?"
I just looked to say  :o :o :o  ::)
My legs are generally getting cryocuffed every night i have to stimulate the quadriceps and VMO every time the knee goes to not get inhibition so its rather a constant battle, but two weeks or so i can wait, my belief is if one has proof of everything they have tried it must be accepted and cant be argued against.....

My right knee failed again today, massive sharp pain couldn't move it felt knee track out wrongly and rotate outwards and it was doing a closed kinetic exercise which as we know these exercises are basics levels non weight bearing etc, which rather scared me then every time i walked my knee had the feeling as if you have a stone in your shoe and its uncomfortable and very swollen....
 so i called a physio for advice who said more than likely as its swollen and the sensation sound like loss of cartilage  so told me to rest and use the lovely croyocuff again so no gym for a day so she said i could do swimming so i will do that instead.....

i see a physio my normal nhs physio Monday so he can check it , so not long now i suppose, we all try our best but when is it when someone will stop and say yea somethings not right we need to rectify the situation??


Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #617 on: June 13, 2016, 09:52:20 PM »
Massive swollen knee after both knee collapse in UCL hospital in london, they have all agreed acl is the issue in the right leg and now I have a suspected ligament tear in my left today cannot fault the staff paid for crutches and went home..... Now icing phoned secretary of surgeon to say what had happened and ask for an mri of left knee

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #618 on: June 13, 2016, 10:49:35 PM »
so today has been the worst to date went to london and went to a park where my right knee collapses followed by my left knee then landed in a puddle with a wet backside lol trust my luck,
so i rang my surgeons secretary to ask for an mri of the left knee now as i was stuck in a puddle in a park in london couldn't get up and now had to think of getting home and both knees had gone and i cannot fathom under clinical care how someone could be left like that, luckily enough two guys from Dubai helped me up.... and got me going,

so ended up in a and e in UCL in London, they saw me within two hours and sent out in two hours, i explained to the doctor what i had and explained everything in medical term such as acl mpfl medial plica excision etc he looked at me stunned and just asked me what do you want me to do for you?? you know more than me about the knee, tell me how i can help you keep going.

First doctor that ever asked that..... he believed that its not the bone so no x ray  he believed mri is vital as he believes the ligaments which is the issue its the ACL in the right and he thinks i might have damaged another ligament in my left knee, due to the collapse he said both knees were massive full of fluid and slightly bruised........he asked how i was going to get home, i said crutches he got me a pair had to pay 10 pound for them....... the most embarrassing thing occurred him and the staff nurse were walking behind me and one said "we dont look at backsides but you know yours is wet?" i was like yea thanks to the puddle my knees collapsed in."

so the doctor now believes my left knee has gone because of the right ......

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #619 on: June 17, 2016, 10:53:49 PM »
so last few days have been pretty hard, been still going to gym and doing non weight bearing closed kinetic exercises to stop inhibition of quads and vmo, but this last collapsed my legs have been at their worst.....

walking upstairs even on my left leg which WAS my good leg its unstable cracks crunches and painful my right my dodgey leg is still the same instability,  my left leg is ok going down stairs not up but my right leg doesnt like both.......

im icing and cryocuffing the legs, just keep counting  weeks, i saw my physio too he said he doesnt know what to do with me as we are only ticking boxes waiting for the surgeons decision in two weeks, he said im doing everything right and he cannot fault me but even he said he was majorly concerned with my left leg as it was swollen and the extension wasn't great due to all the double leg collapses i have been having..........he said i have alot of creptius and cracking in the knee and my extension in my left leg isnt great due to the most recent bad collapse due to the right knee and its all swollen ..........

so now its a case of waiting to see what happens i rang the secretary on the day i was in UCL crying in tears, saying i cannot except its right to be left like this on any ethical basis with two collapsed knees.... i said i would like an mri of the left knee surgeon wants to see me first before having an mri to assess where the main issue lies......

so two weeks i will have my answer............



« Last Edit: June 22, 2016, 08:10:30 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #620 on: June 22, 2016, 08:26:09 PM »
so i have about 10 days now till i see my surgeon....
i have sent all my logs of gym, physio personal trainers to prove i have been doing everything beyond the point of exhausting things lol

i now had another major fall and have had more issues with the knees, now every time i go up stairs my knees crack so much that everyone hears them and its painful but going down stairs not an issue they keep both swelling up now as both keep collapsing..... just keep saying to myself 9 days to go......

had another fall at work, and basically im just pushing through till 9 days time they i can finally get an answer...
« Last Edit: June 22, 2016, 08:32:06 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #621 on: June 25, 2016, 12:17:29 AM »
SO WITH 7 DAYS TO GO NOW, im beginning to see the light i suppose......

I have so far in a period of 12-16 weeks spent over £1000- 1500 pound to keep my knee going through using rocktape, sports massage, personal trainers and physio appointments...........

is this justified? Should i have to pay that out for someone elses mistake in the past, no i shouldn't, did i need it to prove to my new surgeon i was exhausting every type of treatment and showing that i have tried and exhausted everything? Yes..... because what is black and white can never be argued..... I also had to spend it on that as my knees were still constantly collapsing and needed some help. Braces i cannot wear due to the MPFL RECON and the risk of the braces inhibiting my quadriceps and vmo...... so if i need something the only thing i can wear is a crutch.......

My knees have collapsed together over 100's of times in the past few months, it gets quite frustrating when you sit in a puddle in the middle of a London park and you putting or trying to put your knees back together......just getting tired of it..... i also lost a toe nail a couple of days back due to another collapse, sometimes i have less collapses on some days than others but the pattern of them has got worse since my left knee is going now.......

So now that my left knee is going because it cant cope anyone my left sight has been effected im hoping my new surgeon will just get it sorted now as its now safety for me as i dont want anything else to get effected due to the instability caused by the right knee.........

I think one thing this journey has taught me is learn and understand what each surgeon tells you so then you understand what they are talking about and can ask them questions about it, never to fear against asking for a second opinion as each doctor has different speciality in the knee..........

im just hoping that my faith will be restored soon...... but in a week i will know the answer





Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #622 on: June 25, 2016, 07:26:41 PM »
Just for those joining this thread a roundup so far lol
So a round up of what has happened so far
from 16 i had been having knee problems and mid 2013 got hit in back of knee while wrestling in a match,
so.........
February 2014- 1st Surgeon says "one must do an MPFL reconstruction to resolve issue."

May 2014 - MPFL reconstruction

June 2014- MUA due to knee stiffness, and leg swelling to treble size suspected DVT

October 2014- returned to wrestling even in first match knee was collapsing

February 2015- Explain to surgeon something isnt right surgeon send me back to physio
                       blames my vmo

May 2015- See surgeon again expressing knee is collapsing, suggests arthroscope

June/july 2015- arthroscope, chondroplasty medial plica excision, surgeon said nothing is wrong

july 2015- 1st surgeons regristrar said the surgeon didnt know what to do with my knee....
                burst into tears,  knee collapse in front of him, went out in tears............

July 2015- got second opinion private, only to find out it was biased.............the ears have walls
                as they say lol

July to September 2015 - knee collapses over 100's of times, capture on video collapse  send to surgeon
                                  and begged for a referral to a different consultant lost wrestling career and retired.

September 2015- knee completely collapses in front of physio takes him 1 hour in his lunch to put it back in
                        he writes to another consultant in hospital asking for me to be referred ASAP..... not a happy
                        physio and furious                   

September 2015 - end up in a and e and another consultant in orthopaedics with the help of my physio letter
                           gets me a transfer to outside the area to a specialist hospital......

November 2015- go to new hospital new consultant, near enough at break down point, to find i may have an
                        old acl injury after 100's of collapses

April 2016 - had arthroscope to find an acl injury, intact, but lax and oedematous now awaiting full results.

April 2016- grade 2 ACL injury surgeon wanted to try Physio first to see if it would get better

April-2016- June 2016 - still 100's of collapses now effected sight as fell down stairs hit face head on now                     having double knee collapses ended up in hospital noe holding knees together with rocktape and crutches
and massages  see  surgeon in early July

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #623 on: June 29, 2016, 10:59:47 PM »
so back on the lovely crutches lol so not long to go i suppose 4 days i can wait ....

so knees just keep buckling but i suppose i will get my answer soon =)  :) :)

hoping the surgeon will help me to get it resolved because now both my knees are going

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #624 on: July 04, 2016, 03:42:18 PM »
Hi Lucha,

Have you already had your consultation, hope it went smoothly and that you’re OS can finally put an end to the endless knee collapses you have had to endure for far too long.

I have learnt to accept that it takes time until you can finally get the treatment that is right for you. The same applies to you, the long history of knee problems that are hard to get right again. At least you have found the right OS for your specific knee problems.

Good Luck. hope it goes well, coming out feeling more relaxed and positive.

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RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline Sporty_lass

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Re: An athletes mpfl reconstruction diary
« Reply #625 on: July 05, 2016, 10:13:56 PM »
Hi Lucha,
I'm sorry you're having such a hard time of it at the moment hope your knees get sorted soon  :)
I have a question for you re: your mpfl reconstruction, I've just had my reconstruction redone 18months after I ruptured it  :-[ however this time both of my feet seem to be colder than my legs :/. Did this happen to you? It didn't happen last time I had it done although that time it was just the one leg?

L + R dislocation and subluxation
Reconstruction L MPFL with L hamstring graft 8/7/14
L TTT 8/7/14
L trochlea plasty 8/7/14
Re-reconstruction L MPFL with R hamstring graft 27/6/16

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #626 on: July 05, 2016, 10:35:27 PM »
well what a few couple of days lol
so i needed up talking to the surgeon for over half an hour the surgeon was slightly hesitant to do it as there was no research to say if it would work or not as in MPFL, ACL and the new ALL ligament to be found which is like a ligament that control lateral rotation instability of the knee which is rather new apparently ...

I made it clear to the surgeon i have exhausted everything went to the gym done physio you have the physio letter you can see the doctors notes and a and e notes regarding left knee collapsing then got told i had a sprained MCL on my left knee which is my good knee which i wasn't impressed with lol and i said now for me to have an mcl sprain on my good knee i couldn't fathom clinically or ethically why anyone would sit and not do anything and leave a patient like that...... so after that point the surgeon agreed to it,

noting several times he wasn't too sure if it would work but we could try it as there is little research on it........ said well its better than having two double knee collapses and ending up with a double knee replacement i would give it the chance because i cant fathom how any doctor ethically would leave me like this and at least give me a chance of an option.......

so i had my pre op done on the same day and no joke heard back next day your surgery will be in mid august i was like thats quick for the NHS........... BUT im grateful for that too as they are trying to help me but last march when i has the scope to look in done they didn't ring me for post two weeks after the post op with a date
now they ring me within under 24 hours i was like sooo quick why?? but im so happy its getting done soon so i can get on with my life........and prove to the doctors every case is different and that sometimes some things can work.......

so now im happy hopefully a sense of stability will suffice not expecting 100%  :D :D :D :D
i have a surgeon thats now listening to me and taking on my opinion which is good to have

hey sporty_lass sent you a message
« Last Edit: July 05, 2016, 10:49:30 PM by lucha86 »

Offline Sporty_lass

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Re: An athletes mpfl reconstruction diary
« Reply #627 on: July 06, 2016, 09:51:10 PM »
Glad it's getting sorted best of luck for August I hope it goes well. Thanks for the advice too I'll contact them :)
L + R dislocation and subluxation
Reconstruction L MPFL with L hamstring graft 8/7/14
L TTT 8/7/14
L trochlea plasty 8/7/14
Re-reconstruction L MPFL with R hamstring graft 27/6/16

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #628 on: July 09, 2016, 05:13:47 PM »
so after investigating about these ligaments it gets really interesting so the ALL ( Anterolateral ligament) is a new concept ligament its apparently been around since around 2009-2012 in theory that works in stopping the rotation and it has been found if you rupture or tear your ACL there is a chance that the ALL ligament can be damaged torn etc also, so which in theory would effect your pivot shift or rotation... which is my issue............

which explains why my knee is constantly going on rotation and not straight etc and if you have hyperlaxity and a high pivot shift grade then the ALL is seen to be well......injured lol

so out of any ligament i damage its the rare ones lol, it doesn't seem to fall simple for me lol

hey sportylass send me a message and let me know how you got on>>??


Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #629 on: July 10, 2016, 11:02:30 PM »
so now i have had a double knee collapse again  >:( so im in a tricky situation as now its like gone quite literally so i have two strikes at work right now as in sickness, and they count my knee as individual sickness if i get a third strike i get a disciplinary this ends 4th of august, surgery isnt till end of August so i might see if i can get put onto the cancellation list from the 3rd of August which is like just around 3 weeks away...... so give me a chance of an earlier op date

but on a positive note my physio is really supportive and i have found more information about this ligament the ALL http://www.bbc.co.uk/news/health-24826323

i think crutches are my new best friend lol  ::) ::) ::)















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