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Author Topic: An athletes mpfl reconstruction diary  (Read 89281 times)

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Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #525 on: September 16, 2015, 07:57:32 AM »
Knee went again luckily I see physio tomorrow hopefully he can geddit checked over :)

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #526 on: September 17, 2015, 05:47:00 PM »
so i saw my physiotherapist today i showed him a video of my knee collapsing start of this week and i showed him the video even he said now that my vmo and quads are stronger my knee is still not right and the movement of the knee in the collapse is not right and worrying......

I explained i had sent this video and a letter begging for a referral to my surgeon as i felt it was unacceptable he asked me did i receive a reply i said no " he said it was good i sent the video as its clear and concise for the surgeon to see what the issue is as describing it is one thing he said seeing it is another because its in black and white and it cant be argued..... he said the video shows that a particular ligament is not holding the knee in place and he feels this is what is causing the collapse, he said it might be an idea for an athroscopy for when im knocked out to have a look at the knee, i said but ive had one like 8 weeks ago! he laughed and said relax but we need to get you sorted.....

i gave him a list of surgeons i had researched that i will not name for a referral to he agreed one looked very good and its in an area out of my normal area which i thought  would get the best unbiased opinion as doctors talk in each area and protect themselves...... sad but true.....

but like my physio said i have videos to prove my knee is collapsing so i need not worry as they cannot argue against me now......

he explained maybe another reason for no reply was maybe the surgeon was talking with his "buddies"
for advice as he said if he saw that video he should be concerned by the way the collapse has went....
he said he has written a letter for the consultant i will see a week today to request it is necessary i see this consultant with both agreed on as my knee needs to be fixed as something isnt right with it. and the knee wont get better untill it gets sorted...

Then he said to me so you had an MUA in june also ? I was like no no no that was after the MPFL surgery last year, and he said no on the ntoes it said you had an MUA too, i was like WTH......??? i said to my physio i keep finding out things and i dont get the truth i get it from other people than the horses mouth he didnt even mention the MUA!! i asked why would he give me an MUA when he was trying to clean out my leg???? ..... i said to him and people wonder now why i dont trust surgeons..

he patted me on the back said he would get all the notes and let me know .... i cant fault my physio but hopefully next week i will gain some hope if not i will just bang my head on a wall haha lol

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #527 on: September 19, 2015, 12:00:15 PM »
so these are the problems so far with my knee after my physio has evaluated them......

sitting down at edge of table strength is there  when flexing leg from 90 degrees to full flexion both in full extension and flexion backwards, but knee joint is physically clunking in movement and isnt holding its place... when knee joint goes back he said its not normal at all and that is not a quad vmo issue....

lying down leg full extension with heel being held up knee again clunks, and doesnt stop going back he said even from the side when you see the joint go back there is abnormall movement in the joint.....

things we know
high TT-TG 20mm
small kneecaps, patella dysplasia,
hypermobility

then my physio said something really interesting he said to me that when i go and ask for a referral the second opinion surgeon would not be happy with the fact i had an MUA done on the second surgery.... i think i will ask my physio why this would be because he seemed insistant on the fact that the surgeon would not like that fact, for me when i think maybe it shows there must be something wrong.... because why would a second surgeon not be happy about an MUA or maybe i might ask the consultant i see next........

but i am alot happier to hink my physio is supporting me against my surgeon as he believes it needs to be sorted in order to get me on the road to recovery.....


Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #528 on: September 19, 2015, 09:43:45 PM »
so today ended with a bang quite literally in the kitchen knee jerked when out of place went laterally gave out and foot went, so was stuck on the kitchen floor for 1 hour till the cramping stopped my sister got me some painkillers she made sure i was dosed up as shes a phd in pharmacy so shes a good pharmacist lol

She said its just not acceptable and she said make sure i get the referral this thursday and request it and to show the videos, because its my quality of life, so she tried to help me up knee gave out again so sat there for another 30 minutes got frustrated then got my sister to give me two crutches to help me up...

I might contact my Gp to see if she can give me a note to say i can use a crutch for the next week or so to help my knee recover because its quite literally screwed....

so currently not amused if i dont laugh i will cry roll on Thursday thats all i say.......

Offline Vickster

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Re: An athletes mpfl reconstruction diary
« Reply #529 on: September 19, 2015, 10:51:04 PM »
Why does your GP need to sign off on using a crutch? Health & safety regs at work?
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline Snowy

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Re: An athletes mpfl reconstruction diary
« Reply #530 on: September 20, 2015, 08:02:39 AM »
This isn't right. Your physio is spot on - you need a doctor who's going to help you - your knee isn't in a stable or acceptable condition, and if your surgeon won't step up and help you deal with the fact that it's in a worse state after surgery than before then he needs to refer you to someone else who can do more.

I would ask the same question as Vickster - is it not possible just to go to the hospital and ask for crutches?
Mar 11: R Biceps femoris tear (skiing)
Jul 10: ACLr (hamstring autograft)
Mar 10: L ACL rupture (skiing)
Feb 06: L partial ACL tear (kickboxing)
Dec 03: R bone edema (motorbike)
Jan 01: R patellar chip (motorbike)
May 93: R ACL sprain (hockey)
Ongoing: bilateral PFS and OA

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #531 on: September 20, 2015, 08:08:03 AM »
As I want to continue to work everytime knee has gone and l ended back up on a crutch They know it's an ongoing issue but they always now ask me to go to gp to get it checked because ofcthe saftey issue and to have a note to explain restrictions at work etc. .. This is what occupational health ask for to cover themselves.. . But my gp is cool she knows the whole process when I ask her she knows what to do and she gets it sorted for me  luckily enough my physio told me to keep some crutches at home for emergency.......
Snowy fingers crossed this Thursday I will get a referral as my physio has requested a referral for me by letter and by phone to the different consultant I will see Thursday as he is deeming it also to be unacceptable

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #532 on: September 20, 2015, 09:13:31 PM »
So knee went again spot the bulge lol  :P that my physio is worried about below the kneecap he said it's the patella tendon swollen because of collapse

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #533 on: September 21, 2015, 07:08:26 AM »
So I spoke with a doctor I know and taught English who is an orthopaedic doctor he said I could have the following to do with posterolateral corner  corner instability or injury and a laxity issue of the acl or pcl
With this and it seems to match what I have been describing to my surgeon for nearly two years!!

 Knee rotary instability with posterolateral instability

Patients with knee rotatory instability will often present with joint line tenderness accompanied by swelling in the posterolateral corner of the knee. Due to the anatomical path of the common fibular nerve, injuries in this area up to 30% of the time present with neurological symptoms such as numbness, weakness, and paresthesias. Many patients with knee rotary instability report episodes of giving way or knee buckling during the stance phase of gate and pivoting or twisting movements. Some patients present with unpredictable giving way of the knee without provocation or simply when just standing.(Ferarri) Standing posture can present with genu varum while the stance phase of gait can present with hyperextension varus thrust. If patient experiences this they may try to walk keeping the knee slightly flexed when walking to avoid

It can also caus damage to the acl or pcl so I will share this with the consultant on Thursday fingers crossed

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #534 on: September 21, 2015, 04:14:29 PM »
Hi Lucha,

I am glad that someone is finally seeing that you knee desperately requires attention and expert advice and guidance from a new OS that should have other idea what needs to be done next. I would have thought you would have seen an OS sooner rather than later. At least now you have the added reassurance after your consultation on Thursday. Good luck and hope he/she can sort out why your knee keeps on collapsing on a daily basis!

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RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #535 on: September 21, 2015, 06:03:46 PM »
hey nick thanks for your advice, i suppose i have reached a point of desperation as when a knee is fully unstable you begin to try anything ti get a sense of normality, im still doing what teh physio is telling me to do and my knee is still collapsing doing it and i try to change it up and to get the knee comfortable....

i think i am just shocked my surgeon considering the fact my knee went and i nearly got hit by a car in the middle of a road a few weeks back and also yesterday when i went out with some personal trainers to the gym, its the health and safety issue of it and the fact there was no follow up or no phone call to say hey hows the knee doing, i find rather frustrating when i have made it clear im not happy and my knee is in a deplorable state.... a patient shouldn't  be left if there are complications like collapses as its quality of life which is effected.....and to be honest its dangerous when you dont know when your knee will go.

not even to call me and say hey you know what i dont know what to do i want to transfer you to this because of abc and d......i would have respected him more for that to transfer me himself.....its called quality of care......... i even said this in the email i sent to him and his secretary

I have had no word from the email i sent to his secretary that was over 9 days ago, i cant fault her his secretary has been great,  and i know my physio is writing a letter to the consultant i will ring the physio tomorrow to confirm this has been done... ready for Thursday........

now up to around 185 collapses lol if i dont laugh it the only way i get stress out lol.........

I feel sorry for the poor sod who has to see me on Thursday lol but all doctors talk so it wouldn't surprise me if my surgeon has talked to him.....................

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #536 on: September 22, 2015, 10:04:56 PM »
well i thought i would ring the secretary to ask if she had received my email to be referred to a london hospital and they have moved me to another hospital in the same area, as we know all surgeons do talk especially in the same area, and i feel i may get a biased opinion... but i still will speak with the consultant on Thursday to express my opinion.......  but a positive thing is i suppose it is someone else...

I said thank you to my secretary for all her help, and said i was grateful to her for helping me she told me to keep in contact, shes a lovely person but i said unfortunately  that would be a bad idea and you can understand why =)  i wished her all the best and she said i would need to speak to the consultant on Thursday who i will get,

So my surgeon finally agreed to pass me on but to another person in the same area, its sad to see that a surgeon cant just admit defeat and ring you and say hey i don't know what to do but i will put you under the care of MR...... i feel better that i have well something that is better than nothing....

I cant see my ex surgeon giving me a surgeon ill equipped or ill experienced to understand sports or the knee, i have seen their is one particular surgeon in this hospital that deals with sports medicine, knee and medio-legal, so maybe it could be him............

Have i lost faith in the medical profession yes i have, and any surgeon that i talk to i will make clear i want honest, respect, and truthfulness... i found so much about what my ex surgeon did but didn't tell me through other means, and i still don't have an explanation to this day......
for example
1) extra holes in my femur after my first surgery when i looked in his notes after surgery nothing to say this and got it through a second opinion after he looked at the mri
2) said he wasnt talking to anyone extra about my case, after my second surgery, and said he knew what he was doing, then two weeks later registrar said to me he didnt know what to do and was going to get a second opinion..and my knee collapsed twice
3) why i had an MUA when i didnt sign up for it with my second surgery.....
4)why there was no follow up considering i cried down the phone to him begging for him to help me because my knee was collapsing so much and was told i might have to wear a brace for the rest of my life or weight till my knee stiffens up i was shocked!! i said no you will fix it otherwise the way im going i will do more damage than good,.........i had a reply of go back to physio i dont know what to do the surgeon said..... >:(

one week later i ended up in A and E, the doctor in A and E was furious and my physio was angry too........with how was knee was in a terrible state with the collapses......

People wonder why i have lost hope, but when that is only some of the things then you can understand why............. i suppose its time to see what happens Thursday fingers crossed a bit of hope i need

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #537 on: September 24, 2015, 09:44:04 PM »
Hi Lucha,

I am sorry not to wish you good luck for today consultation and that hope you are satisfied with the outcome from the OS you have seen earlier today. I was so worked up yesterday that I totally forgot about your own appointment.

I have also started to upload some photos of my spindle looking legs and kneecaps on my dairy and can thank you personally for uploading your photos of your poorly knee. Of course yours is a more swollen then mine is that is no surprising with the number of knee collapses you had to endure on a daily basis.

Why do we always have to fight our way to be understood and to get taken seriously! We know our knee better than any experts out there. Patients should be able to have their say during a consultation if they are unhappy with the suggested course of treatment.

Keep strong and remain postive that is easier said then done!

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #538 on: September 26, 2015, 08:38:09 PM »
So this is where i end my diary and will not write any more responses as i feel i want to start a new chapter with this new centre im going to.....and i wish that to remain private =)

All i will say is everything went well in the consultation i had several consultants i started with one lol they looked after me and come into my consult with a nurse was quite tearful explained everything and my quality of life how bad it was didn't said all my pleases and thank you's and respected them explained all i wanted was my knee sorted and they have transferred me to the right orthopaedic centre for help after watching my videos.photos and by what i have described....i have also had some emergency diagnostics sent out so it shows you can get the help.......it gave me hope again and they were soo nice too i couldn't fault them.....even though i looked like joker out of batman with mascara running down my face lol

I think i now have to concentrate on this i remain hopeful and try to continue with as much in the gym as i can....

My experience so far is the following, if you feel a doctor has exhausted everything seek or request other help, and remember that doctors and ourselves we dont know everything and sometime it just takes someone with a speciality to help as they have more experience in that area compared to....

I think as people we are quick enough to get annoyed with doctors, when something doesnt work because its our quality of life, but i suppose in life we are constantly learning and we all dont have the answers..... and doctors are learning all the time too.....my surgeon did try his best but right now he did do alot for me ... but after having the same complications as he finally agreed for me to be seen by someone else..... i think sometimes the only way to help a patient is let them go to be seen by someone who has more specialised experience........because you can only help the patient by doing that

Doctors try to help us as much as they can but every case is different every case has their problems ad each outcome is different dependent on pre existing conditions etc

We all in life fight for our quality of life because its the sense of normality that we all want, but i do feel for these doctors in a way because i thought about it how much emotion they put up with and how they have to create or judgement or a decision through experience sense, or clinic exams to try to give a patient a diagnosis, so there is a lot of pressure on them........

I cannot fault the staff that have helped me on the NHS considering the pressure it is under, but the only thing i think doctors can learn is sometimes we all don't have the answers and sometimes to find the answers we need a fresh pair of eyes to look at a situation.... there is never no harm in trying to help a patient by a different route if it means the correct diagnosis is found.....even if that means seeing a different consultant..... =) they shouldn't be judged for transferring a patient

Thank you for everyone's comments and wishes i now have faith again and will no longer be writing this diary and i will comment on other diaries but not mine =)
 

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #539 on: September 30, 2015, 05:04:35 PM »
Hi Lucha,

I can funny understand why you come to the decision not to post anymore on your diary. Sometimes it better not to over think and analyse too much on how to try and get your knee right again. It is good that your OS was open and honest with you and has now passed you onto another OS.

I agree with your 100% that all the NHS staff I have helped and supported me with my on-going knee problems have been extremely helpful and pleasant. The NHS are under great strain and pressure! I clearly experienced this last week Wednesday when I was not booked in and then double booked at the same time with other patients.

Poor communication with admin staff being told to cut corners double booking. This then looks better on the hospitals stats with the number of patients seen at a set targets from the Government. The patients then suffer as they feel they are not getting any quality one to one with their OS. Quality and not quantity is a better way forward towards improving patients satisfaction.

Good luck in the future to getting your knee right again, I am not expecting a reply back as you clearly said you wanted to end your post op dairy.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming