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Author Topic: An athletes mpfl reconstruction diary  (Read 89248 times)

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Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #495 on: August 24, 2015, 10:17:59 AM »
Hey Emma long time no speak just trying to avoid surgeon untill get ct scan  result tried ringing private physio not back till September and knee gone again might ring nhs physio to see if I can move it forward my surgeon isn't sure what to do with my knee so just confused what to do left knee and right knee now buggered lol

Offline esm87

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Re: An athletes mpfl reconstruction diary
« Reply #496 on: August 25, 2015, 12:49:36 PM »
Oh no! what a time of it you are having. Maybe go to A+E and see what they say? Someone must be able to help!

Emma

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #497 on: August 25, 2015, 02:18:40 PM »
So it's been a rather intriguing day I heard a Japanese physio was coming in with some wrestlers so I paid him to see me he seemed to be very good he said yes your quad is slightly weak but that is to be expected but it shouldn't cause the collapses I'm having .. So I showed him the video of how my knee went he went mental like literally he said what the bleep  does your surgeon thinks he is doing???
Your knee us not holding at all and the collateral ligaments are giving out  aswell as acl and he also agreed with the other physios I have very small kneecaps which is already a clinical indication of an abnormality.     
Then he asked me when I was seeing the surgeon and I explained dunno and he wants me to do physio he went ballistic he went why haven't you done a complaint on him I will come with you if you like or send a letter to him to back you up, you knee is terrible...
 He had a hissy fit lol he said he had another contact for another opinion in Europe he said get out of UK and get an opinion abroad as doctors talk in the same country he said I should sit in a and e and wait till someone sees,me

Offline Vickster

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Re: An athletes mpfl reconstruction diary
« Reply #498 on: August 25, 2015, 03:26:45 PM »
Sounds like you need a multi ligament specialist? I think Andy Williams at Chelsea and Westminster is the go to man in London for such injuries.

http://www.chelwest.nhs.uk/gps/find-a-consultant/mr-andy-williams

He has a private practice of course too, might be worth paying to get the longer consultation.

Although I would think rnoh would be more familiar with rare congenital conditions as they see lots of paediatrics

What hospital are you under?
« Last Edit: August 25, 2015, 03:28:25 PM by Vickster »
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #499 on: August 25, 2015, 04:54:08 PM »
Hi Lucha,

I seem to remember as a big Strictly fan that Russell Grant the Astronomer had to have a cartilage tear in his knee repaired by Andy Williams in 2009, the same time of year I had my 1st every surgery scope#1 done in November. It not the singer that the Andy Williams that I am more familiar with lol.

He was back on the dance floor a week after surgery, he was my all time favourite celeb to appear on Strictly closely followed by Paul Sergeant and Ann Widdecombe lol! Soon will be SCD 2015 to look forward too.

[email protected]

RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #500 on: August 25, 2015, 08:57:43 PM »
he guys ......

Regarding mr andy williams yes i did try to get hold of him but his private office said he was taking on no new cases and i found out he generally deals with footballers or athlete i went to another doctor in the same are who deals with knees and martial arts which was better.... he told me to work on my muscule as its expected to have weakness after surgery, get injections into the knee or take out the mpfl all together if the two dont work....... I explained this to him too that even after the first surgery my knee kept giving out and collapsing after my surgeon had said the vmo was fine and its still doing the same thing it has been doing for thepast 20 years he replied he wasnt sure if the mpfl was the best option for me, as i have childhood issues with it i explained all tall women in my family have had problems with their right knee, including my grandad,
he agreed my kneecap was small and i have hyperextending knees and laxity............then after seeing this dude i went back to the physio who said to me having a small kneecap can cause dislocations collapses etc and the hypermobility wont help so am i just like completley screwed or is there any doctor who can help me lol

Vickster, i have heard of stanmore too but its a case now of waiting for my surgeon to get back to me......
as its the NHS you have to follow the rules lol........ i will send you an email regarding that......

Its just frustrating when everyone is telling you different things theres no clarity, so me and the wrestling teams are the ones that have to find the answer....... knee gave out again today......... just a blinkin joke now but nothing i can do expect keep going,  completely lost faith in doctors.... if my surgeon does not give me a valid answer after the ct scan then i wont be happy, have i really got to a point when i have to fight for my quality of life and im only 29?? with no answers ?? should i be crying down the phone to a surgeon no i shouldntt about my quality jut keep doing the physio as i told, ...... some surgeons dont understand the fact that yes we sign our lives over to them and if something doesnt work its us the patient that suffer from it, and our lives that get effected not their they can walk away everyday with a non collapsing knee...... and not have to put the knee back together... feel like crying but i wont i just keep trying but just so frustrated too......... i just want a knee that is stable i dont expect 100%  but i dotn expect semi dislocations or collapses after a surgery for knee stability.....



« Last Edit: August 25, 2015, 09:17:57 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #501 on: August 26, 2015, 08:35:32 PM »
so i see my physio tomorrow which is great timing as my knee is massive so im hoping he can deep tissue massage it for me......... got no news from the scan as of yet....... but i know in my area you can wait up to 12 weeks for a scan......
i have changed my insurance today and went with a different provider explained all the issues im having and they said once the knee is sorted they will cover it after i havent been to see a doctor about it after a two year period and they would write it in to the agreement...... which is some positive news =) it will cover nationwide hospitals, compared to my other provider ........
today fell up the stairs at work today hurt my knee as it collapsed, i managed to get up, its swollen but hey ho........ so hoping he can sort it out
i have had now over 50 collapses in the past 3 weeks i will mention this to my physio, im still doing all my exercises i also did a test to test my quadriceps with a professor at a uni who said he would have expected my quads to be weaker after knee surgery and he said as its only a small percentage there must be another cause for the knee issue.......
so i have a set plan to get myself to a point where no one can argue with me including surgeons
so as you all know i lost alot of weight i want to lose another 2 stone so that they doctors cant argue bmi even though other doctors tell me bmi is a bad measurement as it does not take into account body build, activity of person etc..........
so ...
1) do everything the physio says and ask nto to sign me off untill he is happy that there is nothing a surgeon can complain about etc........
2) get the quad testing done every month for 3 months, the professor is going to write a letter to the surgeon to confirm once test are complete etc......
3)lose the two stone, i have already lost 10 pounds of this.......

Then for me nothing can be argued medically i have everything in black and white and science cannot argue against science, i had this since i was a child and I WILL FIGHT for my own dignity and quality of life after two surgeries i still have the same problem so i know that there is something underlying which hasnt been resolved , so I WILL FIND OUT what it is.... so fingers crossed this ct will help.....
the theory a wrestling doctor and sports scientist gave me was if i have HIGH TT-TG (YES) SMALL KNEECAP (YES) AND HIGH Q ANGLE (AWAITING RESULT) and hypermobility ( YES) this will show there is something not right even without the q angle but the q angle could show the bigger picture.....
Sometimes i think with doctors you have to have things in black and white before they even will believe you, and a man of science ( doctor) cannot argue against science such as the quad testing by a sports scientist etc........
I AM DETERMINED TO FIND OUT WHAT IS THE PROBLEM BECAUSE I HAVE TOO MANY MEDICAL PEOPLE TELLING ME SOMETHING ISNT RIGHT...............ITS MY QUALITY OF LIFE WHICH IS TERRIBLE AND I WANT CLARITY... AND I AM JUST TIRED OF THE SEMI DISLOCATIONS AND COLLAPSES... i am also planning a trip in January to see someone but i dont want to name names as i believe every case is different and unique and

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #502 on: August 28, 2015, 06:59:16 PM »
So I saw my physio .... Some interesting things came out......
So both in agreement what  the professor said at the uni everything single muscule us strong in my leg I have a slight weakness of the vmo which he said should be up an running by December....

I then said to him.... Can you write me a letter to confirm when my vmo is fine you confirm it in the letter you have tested every muscule and that it's ok ... He asked me what are you planning??? He laughed
I said to him a man of science cannot argue against another man of science and specialist I said I am going for a second opinion once the vmo is running but I refuse to say where as doctors and physios talk and I want an unbiased opinion I said we both know doctors talk to one another.......

But he did a really interesting test which I need your help on guys please let me know the name of it he did a test where he held my leg in his hand felt my knee go back into itself I was with legs straight on bed my left knee was fine he said but he said when he lifted my foot he felt a massive clunk of the joint as if the ligaments were not holding  and the patella not fitting into the groove correctly.......... He looked abot worried or confused by this I said to him  the inside of my joint didn't like it right in the middle of it as if I felt whatever holds the inside of the joint was unstable which led me to think could it be the acl as I felt as if when the joint hyperextended back the ligament that holds the joints together was a massive pain........and it felt like so ething was going over stretched .....
So what is the name of this when you legs flat on the bed heel is lifted by the physio and your knees clunk back into themselves and they feel the knee or what it by doing this.....

He asked me what's my secret as I have improved so much I said just doing it in the gym determination he agrees with what I'm doing tucking off all the boxes so doctors can't argue .... And doing the test at the uni etc

He asked me had my surgeon any news I went quiet and I looked at him and asked has my surgeon spoken to you? I tried to gage his reaction but then I told him what happened I said I feel like my surgeon is not listening to what I'm trying to say and I do t feel clarity my quality of life isn't great and I feel I shouldn't have to cry down the phone to a surgeon because I nearly get hit by car because my knee collapsed or fall on top of my nephew nearly that's not a quality of life it's a shambles and explained everything else the surgeon said  by this point we both went quiet he smiled and said well your stubborn as hell and you have proved a lot with your weightloss and recovery so I will help you with what you want to do.........

I replied watch this then you will understand my problem he watched my knee go and was shocked and he said it's clunking the kneecap us moving in and out if it weren't for all these collapses you would have more muscule strength but the inhibition is stopping it every time you have a collapse he wasn't happy with how my knee was acting in the video he thinks I should get this knee test done where they attach lights to you to watch your joint move ......

He told me to keep doing what I'm doing and I was right to go by his opinion of the brace etc........
So if any of you guys know what that test is please message me ..... Holding of heel legs straight knees clunking back

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #503 on: August 30, 2015, 12:15:01 AM »
so the knee is still playing up collapsing and all the only positive i will say is removing the medial plica has taken away alot of the pain on the medial side, but im still left with a collapsing semi dislocating knee which is worse than i first started out with...... but im still working on my goals.... my friends decided to take me out today one is a first aider and the other works in the hospital so i thought it would be fine in case anything happened

 got to the station and waited on platform and bumped into my surgeons registrar   saw him straight away he kept away from me but smiled which was good as i was with my friends, and to be honest i didnt want to talk to him either, i wanted to enjoy my night rather than him ask questions about my knee one of my friends noticed who he was as he walked away which gave me a confirmation it was him...

I thought about this the other day how doctors could make patients feel more comfortable and i came up with a few situations....... in a rather funny sarcastic witty humour its an opinion and not seen to offend  :D

 "How can i help you." or "What can i do for you?"
what i mean by this is surely a patient with an ongoing condition you want to make as comfortable as possible so why not ask them what would make them comfortable or more happier?? I just think when your knee is constantly dislocating or collapsing and your not giving a patient advice or helping them to be comfortable, then i question is that patient, or has that patient got the best care they have to at least have a certain quality of life ? or are you hindering them by not asking that question? Surley the most important thing is to make the patient comfortable while a diagnosis is trying to be found?

The silent hmmm........... or smiling to avoid an answer...... 
Ok I don't think doctor realize how many times they use hmmmmmm..... or the smile to avoid a subject, or when they don't have an answer, or you are right..... I actually recalled in one meeting with one doctor this happened over 20 times.......Reverse the position and put yourself in the form of a patient, learn to keep the conversation going.................because after a while hearing hmmmm,....... is just ....hmmmm.....boring..........

-Honesty can only create more respect between a doctor and his patients.
So if one is honest with a patient, then this can only create more trust, we as humans are all learning, even as a teacher myself I'm still learning, we are all not perfect, if your not honest, and then it is found out through other means, many levels of trust towards that doctor can happen, then it can be hard to regain it. For me as a patient honesty is key to helping a patient and gaining the correct diagnosis....

- The surrounded by "I don't know these people." Guniea pig feeling.......
So after you have had a surgery, a patient is rather drugged up to their faces on morphine or whatever pink, white pills they have scoffed down, but the  suddenly your surround by 6 people around your bed. You don't have a clue who they are, but you think "Who are these people, medical students PA'S??"
If ones is in ones own space, there is a natural principle to introduce ones self or to explain why they are there, even if the consultant takes over after the introductions, at least the patients knows who they are and what they are doing staring at the as a test subject...lol ...
 
- Doctors getting the nurses to bring in the patient to their consultation room
Ok so, all doctor say we must keep fit, keep active blah blah blah..... Its rather contradictory if you sit in a chair, donít come to the door, shake a patients hand and invite them in to the consult. For me as a patient and a teacher, I believe in order to gain trust of a patient, there is a certain level of trust, or  understanding that can be quickly earned by doing this...lol
 

Offline Snowy

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Re: An athletes mpfl reconstruction diary
« Reply #504 on: August 31, 2015, 04:43:24 AM »
The test you're describing sounds like the Lachman test, which is done to assess the stability of the ACL.

I've just caught up with your diary, and this is really insane - at this point you should be under the care of a specialist having proper assessments to determine why the knee keeps collapsing. Every single time this happens you're at the risk of causing more damage to the joint. You need a surgeon who's prepared to manage your situation far more proactively than has been the case so far.
Mar 11: R Biceps femoris tear (skiing)
Jul 10: ACLr (hamstring autograft)
Mar 10: L ACL rupture (skiing)
Feb 06: L partial ACL tear (kickboxing)
Dec 03: R bone edema (motorbike)
Jan 01: R patellar chip (motorbike)
May 93: R ACL sprain (hockey)
Ongoing: bilateral PFS and OA

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #505 on: August 31, 2015, 05:33:13 PM »
so i have paid to see a professor in Germany and as you can see i generally don t like to mention doctors names that i have seen or have been treated under as every case is different.... for a second opinon as he deals with the latest techniques of instability and hypermobility this gentleman has published too on it which is a good sign.....i have set it up for start of November as thats only when my work will allow me to get time off, and i suppose it will give me extra time to work on the legs so far this week have had 12 collapses give ways and a mix of semi dislocations ......

i have been looking at standing 3D CT scanners too in London where it can capture the leg standing up and movement in order to capture the issue or collapse its the only machine in the country it would mean paying for it but dont care if it give me an answer, i have heard athletes have done this where doctors are baffled with certain cases and this ct scan creates a 3d motion of the joint so im also looking into that.....

soo fingers cross this dude can help me =)

no word from my surgeom

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #506 on: September 01, 2015, 06:28:44 AM »
Thanks for your kind words snowy I'm going to try to speak to my surgeon soon but I would prefer him get back to me that I'm not happy as my knee has gone again going to ring physio at hospital and ask for an emergency appointment .... Because to be honest the physio knows more about mpfl  etc that a doctor last tine I went to an a and e they said they had never heard of it sent me home on crutches and said for me to contact my surgeon .... It's said really that a doctor won't even look at a leg or help a patient be more comfortable if so e part of knowledge they don't know.......
But the benefit here is I have got an appointment to see the doctor because all I want is clarity and answers which I. Not getting currently ......

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #507 on: September 01, 2015, 10:50:30 PM »
so i get a call to say that i have been booked a MRI i was like wth??? its a CT scan right???
the lady said no an MRI has been ordered  >:( >:( >:( >:(
so the surgeons tells me im getting a CT scan and now im getting an MRI??? im sorry but there is a rather big difference between the two lol........no one has rang me to explain why an mri it must have been the pictures i sent to his secretary with my leg swollen
so knee given out again and going to gp to get it checked tired to get physio he can only see me in a weeks time as he is fully booked so tonight im sleeping with a brace around my leg to keep it in place because its so lax......

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #508 on: September 06, 2015, 11:24:01 AM »
so  i have been doing all the exercises and these exercises http://www.kneeguru.co.uk/KNEEtalk/index.php?action=post;topic=64078.15;last_msg=630715

so knee has collapsed worst part went out on a date with a guy lol known him for years and knee collapsed wasnt amused, lol my mri is on the system just waiting for a date from the NHS i have decided in the next week im looking into the standing knee tests mri and flexed knee test mri as this is the issues and need so far this week and many people who have had knee issues where doctors dont know what to do have found the issues in these scans the machine only exist in london and they gave me a quote of £700 per scan ......................
 i have had 15 collapses but i suppose its sad to say its become normality once the mri is done i hope to get answers if not things will be said because its my quality of life not the surgeons and if my knee is collapsing on a date i shouldnt be forced to wear a knee brace.......

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #509 on: September 07, 2015, 12:14:00 AM »
so after a major fall due to the collapse ended up in lovley a and E just got home after 5 hours of waiting..... but i suppose i finally found a doctor who listened........  :D

so he agreed with me that a main ligament / with a mix of laxity is causing my knee to roll, such as the PCL or ACL, he was shocked to see my knee collapse the way it did and he said the need to get you sorted and stop putting your round in circles because its not good for you or the knee an x ray was taken which showed swelling around the joint the bones were fine, but he said with ligaments they cause this type of swelling if it was bone it would be more inside the joint.....

so now he has put me back into the fracture clinic in just in under 2 weeks, to get it sorted because he said the collapses need to be sorted,he said how do i cope with those collapses?? he said they look uncomfortable and painful?? he told me to keep  wearing the brace he felt it was a case of to keep it stable right now rather than the issue of the quad because the knee is just randomly collapsing.......... he said the collapse he saw that he couldnt understand why someone hasnt sorted me sooner......

so i feel better now that someone is listening........... i even said to him its finally nice to hear someone say there is a problem because they are in agreement something is not right with my knee........
i feel more happier now.....















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