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Author Topic: An athletes mpfl reconstruction diary  (Read 89207 times)

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Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #465 on: August 09, 2015, 04:02:42 PM »
So knee has fully collapsed can barely walk don't know what to do oh joy !!
« Last Edit: August 11, 2015, 09:03:32 PM by lucha86 »

Offline Alpinist77

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Re: An athletes mpfl reconstruction diary
« Reply #466 on: August 10, 2015, 01:56:07 AM »
Lucha,

How are you doing?  Can you post pictures of your x-rays? or MRI's?

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #467 on: August 10, 2015, 06:40:58 AM »
 Hey I posted some mri picture on page between.15-20 x rays I connotes I rang nhs 111 they told me to contact surgeon and Wear a brace but all my physios are on holiday and they told me not to wear a brace and now I have to go into work with a leg that's barley operating I hot told they wouldn't be able to help my knee as it's so specialised lol seriously! Now all faith has been lost!!  Hoping it doesn't go at work or I am screwed I can't put an x ray up as it's under the nhs

Offline Vickster

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Re: An athletes mpfl reconstruction diary
« Reply #468 on: August 10, 2015, 07:55:45 AM »
It sounds like you should not go to work with your knee in this state. They won't thank you if you have an accident at work. Call your boss or HR manager and discuss the situation :)

Also go to A&E and get checked if you can't contact the surgeon
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #469 on: August 10, 2015, 09:39:30 PM »
so i think its time for a hissy fit now lol then i will feel better apologies it might come across rather sarcastic in a humorous bad sort of way-

1)So lost 10 stone in weight post surgery had Mpfl Reconstruction May 2014 got back to wrestling SEPTEMBER,
2)Knee kinetics were not right , locking, cracking clicking, collapses dislocations et.....
3)another surgery, arthroscope patella chondroplasty and medial excision, june 2015
4) knee collapses twice in front of registrar after second surgery thinks it would best for a second opinion so get a second opinion for MAYBE DYSPLASIA OR NAIL PATELLA SYNDROME.. OH JOY!!!!!
So ask the surgeon for a hip x- ray to make three radiologist question and baffled sounds great news is coming lol..........

so now i still have a dislocating knee being treating like a leopar by nhs 111 because they don't have a clue how to treat my collapsing knee, as i have had a surgery which is too specialised lol!! sorry my leg was up a blinkin wall all night !!!! good i had some linkin park to listen too lol

So luckily enough my boss was kind to let me go back to work but gave me more time to move or get myself going and leg is stiff because of the collapses.........i got a physio out of the nhs to help me and gave me some ultrasound therapy to bring down the massive swelling and to try to help me walk better

My sister is a pharmacist and told me to take pictures of my knee when its buggered up basically everyday as its black and white and cant be argued by a doctor so trust me im on hissy fit level right now loll, i have about so far in the past 5 weeks about 12 pictures of my knee massive, ugly and simply not acceptable condition considering im 29 years old had this surgery to return me to sport!!! and now i can barely get on a cross trainer without flying off of it like superman on heat lol........
Quality of life.......... hmmmmmm.......................... sucks!!! but i still go to the gym try my best, even when i fly off those machines because my knee cant hold in the joint!!!!

pain doesn't bother me at all its the fact that i dont have a clue when my knee will go and now people are beginning to think its my hip as i have hyper mobility and laxity???? yes my hip clicks but i have no pain!!!! Is this a quality of life i expected no!!! im 29 years old no 85 years old, i dont expect a 100% knee but i dont expect my knee to collapse or dislocation worse than before the surgery

so suspected diagnosis so far are drumroll please!!!!!!!!!!!!!!! lol
Due to small patella / kneecap
1)Small patella syndrome
2)Patella Alta
3) Nail patella syndrome

Dysplasia
1) knee dysplasia
2) Hip dysplasia

Laxity/ hypermobility
1)lax ligaments causing instability
2)lax ligament on to of hip dysplasia
3)hypermobility patella

so how do i feel pretty rather annoyed, fed up i just want this knee to work with me and have a clear diagnosis i hope i get the x ray s of the knee i asked my surgeon for as im not letting any doctor touch my knee until i have full facts and abnormalities as stated by my independent doctor in a way he is right have i got clarity or understanding to why i still have instability errr.............. no!!!!!!!!!!!!
i got about 15 different diagnosis or ideas on a diagnosis from the independent doctors and my surgeon and still in the dark .....................
im 29 im not 80 i need to be able to lead a certain quality of life without falling down the stairs because my knee collapses or semi dislocates,
 have i lost faith in the medical profession............ pfff!
hissy fit over lol

thank you for your advice vickster i rang my work to let them know but they did help me and make things easier for me which is great of them they have all seen my leg go so for them its normal its just a good think i work at a desk




 
« Last Edit: August 11, 2015, 09:04:55 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #470 on: August 11, 2015, 09:10:28 PM »
so knee has decided to lock 4 times collapse 4 time and semi dislocate once, today seriously!!!
i just find it laughable now lol a good cry might make me feel better, but it wont do anything for me except frustrate me further just try to keep my leg going when it does this but its a frickin evil double edged sword collapse quad buggered build quad collapse quad buggered  but i kept going!!

had this for decades how about i just say my knee is just screwed lol for the swelling just taking the cryocuff or icing it or physiocreme which is an alternative remedy as i dont want to take any painkillers, its easing the swelling which is good........
but honestly, its  just frustrating not knowing when your knees gonna go ....

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #471 on: August 12, 2015, 09:27:01 PM »
So... feeling better after my previous hissy fit lol

but STILL NOT got any answer about the hip x ray, which i suppose is the thing that is bothering me as, so many radiologist came to look at it, i know its a teaching hospital but i dont expect people to debate over my x ray and leave me lying on the x ray slab lol on the x- ray form there was history Hypermobility syndrome..... +/- nail patella syndrome then.... this.... hip Dysplasia ???? WITH SEVERAL QUESTION marks rather large..... so now i just want to see the results,

So no word about the knee x-ray maybe the surgeon is holding fire on that till the hip x-ray comes back i dont know.........

So my physio told me to try and get on the cross trainer again, and i flew off of it like superman lol, i just feel down and laughed the personal trainers in the gym are used to it now and the regular gym people so they let me deal with it, im in the gym trying to build up my legs but with these collapses its proving difficult, the physio said to me last time im doing a great job and he wanted to know the secret of how i managed to improve that much........ and he told me not to wear a brace,..........
then today got up from my chair at work, and walked 4 steps knee collapsed, boss basically told me not to move and brought me tea and everything after that...... he knows i want to work and have a sense of normality...............so its like im not sure right now its a case of damage control by wearing the brace and inhibiting the quads   or keep going put up with the collapses and hope lol

So heard nothing from the surgeon so just got to wait and the way these collapses are going i would'nt be surprised if my joint is beyond repair by the time im 40 ...........

Alpinist77 and vickster thank you for your comments apologies if i havent said alot guys just been in a hissy fit mood for the past several days with the knee lol

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #472 on: August 12, 2015, 09:56:31 PM »
Hi Lucha,

Thank you for posting on my diary, I was feeling lonely and left out on my own in the post op 300 section. It is nice to have another active member posting on this section.

Although your knee problems are different to mine we both have ongoing problems post op that are not a straight forward text book fix. I hope you can get to see your OS again soon and do not have to wait too long for your x-ray results.

I have to laugh after a stressful day with my OS's registrar about having others debating your knee problems at the teaching hospital. I am in a simialar scenario as my registrar has to start his medical career at some point even though he looked like he just left medical school, he looked around early to mid 20s.

I try and just take things as it comes, it is good to have a good sense of humour about it all rather then dwell on what might happen next.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #473 on: August 13, 2015, 06:30:38 AM »
Hey
Yes I know what you mean like the registrar said to me after having My surgery two weeks later that my surgeon didn't know what he wanted to do with my knee and he was going to get a second opinion I thought in my head shouldnt my surgeon be telling me this and not him lol then he tried to say my knee was fine even though my knee collapsed twice and the nurse had to help me up lol  he just sat and watched lol by this pointing freaked and asked for a second opinion   
My surgeon n rang me to ask me why I went for a second opinion I explained to him what the registrar said and did and  he went very quiet and said I was right to go for a second opinion at that point I thought the registrar as soon as he gets off the phone is going to have an argument

Then with the radiologists saying ooohhh look at,her hip who's her surgeon  leaving me there I just began to lose hope in the medical profession so fare this week had 17 collapses starting to feel like Johnny Depp out of pirates of the carribean walk lol
« Last Edit: August 13, 2015, 09:39:07 PM by lucha86 »

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #474 on: August 13, 2015, 10:32:46 AM »
Hi Lucha,

I have also had my fair share of misunderstandings and communication problems pre-op to scope #2 when the registrar came to see me before going into theatre. He was going to mark my left knee, my healthy knee he was meant to be marking right knee so had to correct him! I think made him feel embarrassed and stand out. It not something you want to hear before going into theatre that they could have operated on the wrong knee!

I also had a Botox injection into the top of my leg muscles before scope #2 at the same hospital and was like a comedy sketch. 1st I was sent to the wrong department on the other side of the hospital, I had to be wheeled in the trolley when I could have walked over. The staff knew they made a mistake as I overhead a nurse on the telephone saying why was I sent to the wrong department.

After the injection I was sent twice to the wrong ward!   

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #475 on: August 13, 2015, 12:52:06 PM »
My surgeon and his secretary have been very helpful it's just my knee problem is still not fixed and it's frustrating there is only so much a knee can collapse give out before its buggered lol......
The problem I have is my wrestling insurance keeps challenging me for an actual diagnosis and I have been given  a few if im to be honest I think with these Xrays everything is in black and white and can't be argued and by having them it would make things clear.......
My surgeon said about medial reefing but didn't explain what it is but I'm 29 and my quality of life with a collapsing knee sucks lol so that's why I want to know all angles q angle etc before I have any surgery as I dont have a defined diagnosis lol surely all any patient wants is clarity I don't expect a 100% knee but my fear is the amount of collapses and semi dislocations I'm having it will go in such a way that im.actually screwed last time I spoke to my surgeon cried down the phone....  just waiting now pffff lol

Offline Vickster

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Re: An athletes mpfl reconstruction diary
« Reply #476 on: August 13, 2015, 02:14:53 PM »
You should try to see a patella specialist like Prof Donnell in Norwich and not do anything else surgical until you are under the care of an expert and have a proper diagnosis. As helpful as your surgeon seems to be, he now seems a little out of his depth or short of ideas, and unwilling to admit this.

There is lots of info here around patella issues, and links to an explanation of medial reefing etc if you work your way through the sections

http://www.kneeguru.co.uk/KNEEnotes/primers/patella-primer

Good luck :)
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #477 on: August 13, 2015, 08:34:55 PM »
Thank you for your advice all.......... =))))
so i asked for the following knee x-rays to be done to check the following
1) Q angle
2) Knee dysplasia/ any type within the knee
3) Patella Alta/Attenuated Patella alta
4)Patella dysplasia

I know my TT-TG is 20mm

I might ask for my surgeon to also for a private MRI to check on the knee....... I STILL HAVE HAD NO REPLY ABOUT THESE X RAYS,i dunno if my surgeon is holding off until the hip x ray comes through, or if his secretary is away if i don't hear anything by start of next week i will ring and see my sister thinks i might have hip dysplasia due to the laxity issue but have to wait and see........,

Because its like the independent doctor said to me, you need clarity and everything in black and white and all angles, and all those things checked and cleared then you can look at the picture better and then you can go back to the companies and give them a clear explanation and he said its unfair that i dont have an explanation........and i still have collapses which he classed as unacceptable........

I just want a knee that works and not collapses like i said several times i dont expect a 100% knee but just stability or at least a sense of it........

My knee gave way 4 times today i still keep up with the physio programme everyday to keep building on it but im just playing a waiting game now, i could just cry but that wont do any good its just nearly two years of frustration and trying my best i feel i have hit a fall and im now just trying to win a losing battle with a collapsing leg.........

so plan of action is no one is coming near my leg or toughing it till i have these x rays done and have clear angles etc, because i dont want them to keep going in and trying when there is no clarity there..

Seriously lost faith now in medical profession but im persitant in my physio

thank you vickster and clarkey for your comments i agree with you both and vickster i thought about that after the second surgery until someone gives me a clear diagnosis no one is touching my knee im not a guinea pig ..... im a human being..... =)

Offline Vickster

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Re: An athletes mpfl reconstruction diary
« Reply #478 on: August 13, 2015, 08:42:04 PM »
August, lots of surgeons on holiday...secretary probably too :)
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #479 on: August 13, 2015, 09:44:48 PM »
yep vickster holiday time lol i wanted to go to canun mexico to catch up with wrestlers and some companies to sign off paperwork  but my insurance said it would cost me 800 pounds in insurance for a week as had my surgery 7 weeks ago and as my surgeon was still doing xrays etc it could be higher....... so im stuck here lol.
i will give them a bit more time to reply like u have said before my surgeon and his secretary have helped me alot in the past so fingers crossed i will get something.......















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