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Author Topic: An athletes mpfl reconstruction diary  (Read 86172 times)

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Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #60 on: June 23, 2014, 07:13:14 PM »
Day 40- physio - improved by 3 degree - bad news - time to travel
So today had my physio appointment and I improved by only three degrees so by this point I was frustrated and the physio asked what was wrong and I said no one is giving me a straight answer.... I want answers to why it's so slow I have 2 physios one pt you should be at over 90 degrees by now and my knee feels tight still so she told me in terms what my 2nd physio told me about two condition possibilities which they both agreed on...... So then I ask her can I wrestle start of next year she said no when the surgeon said I could I am still in shock as it was a charity match  and now I have to change my plans who do you believe the physio or surgeon?????
as an athlete you need clarity as otherwise our promotors and physios will get annoyed and we will become frustrated with the timeline as athletes..... the physio should agree with the doctor the best scale of timeline i think
I'm frustrated with my knee because it keeps over reacting....... I can do straight raises with my quads lying down and standing no lag but my rom is terrible... So my promotor has asked me to go to meet him overseas, to meet the physio and independent doctor as part of the insurance  sign off, contract rules  etc and I also have business appointment to attend there at the end of this week so hopefully will get a little clarification........
« Last Edit: August 16, 2014, 10:22:04 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #61 on: June 23, 2014, 10:09:53 PM »
One of the area of stitches broken  in the MUA taking awhile to heal

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #62 on: June 25, 2014, 07:04:42 PM »
Day 41 - strange sensations - not allowed to walk without crutch - playing with a ball
So my knee today has had pain in my knee cap, it's the type of pain that you can control yourself but it's very uncomfortable pain... So I decided to see if playing with a ball and flexing my knee under my desk would work and it made it throb more.... So I decided to do some excercises but again wasn't taking away the pain I felt as if my ligament was too tight in my knee as if it's pushing on the joint....... So I have been walking without crutches near my house and in my house but my physio said no walking without a crutch till I reach 90 degree flex and because I have a little limp as right now I am at 70 degree rom .... So to be honest I'm carrying on with what I'm doing as I feel comfortable doing it  if I feel I am strong enough to do it I will do it......only I know what i can and can't do ....

Day 42- walking to work / head over heels - hydrotherapy - spasms- preparing to fly physio not happy.....
So I was walking to work today and I had been walking with a mate then all of a sudden my knee just went it was like my quad abducter and other muscles around the knee  over reacted went into a spasm and contracted and went into a spasm with the new ligament I felt a big pull and my knee over flexed and I fell down ...... So I don't know what happened there luckily my friend got me up again.... So I went into hydrotherapy which was great helped to relax my muscles after the fall........but I have to fly for a evaluation of my knee for my sports contract and the hospital physio wasn't happy with me flying away for the weekend as it's a long haul flight  so the surgeon said I could fly post 6 weeks after surgery and the physio is saying I can't?????  Who is right and who is wrong ????

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #63 on: June 29, 2014, 05:01:39 PM »
Day 43 - flying abroad with mpfl is interesting- questions answered- stubborn moments - pain in kneecap
So I flew out to Latin America to speak with a top doctor as an independent doctor as my promotor needed me to do it for my insurance i was forced to do it or my insurance wouldn't pay out - if you have ligament surgery make sure you go business class my flight was 11 hours direct and even for me I felt it was getting very stiff quite often luckily enough I kept moving when I saw it was getting swollen the flight attendants were helpful with some ice for me.... And make sure you wear flight socks...... Luckily enought I was just past the 6 week point to fly and I had a business class flat bed...
So spoke with the doctor who agreed to what I thought and my sports physio thought I had got my insurance side of my Job... So now I have to go back to my surgeon to discuss it with him as the independent doctor has two reasons for lack of flex and he us concerned if I don't get my flex back soon we might have a problem...... So I decided to drop the final crutch I only use a stick to get up off a low chair or for hills it's a foldable one.... So I'm walking 80 percent of the time without a stick which is good I got fed up seeing the crutch all the time call me stubborn but sometimes as an athlete I have always believed that only you can say what you can do or can't no one else your body will always tell you....... especially when your stubborn or frustrated it gives you more determination to get to that goal... I have been noticing my knee cap pain is not nice pain massaging it makes it worse.... But I can control it without painkillers... It's a sharp, sticky pain  when I pivot in certain points it's worse..... But everything is trail and error............. You never know till you try

Day 44- flying back night flight - escalators on undergrounds bad for knee -  no painkillers for nearly two weeks - hot knee -
Flying back with the knee was interesting found sleeping with ice on it stopped the swelling, it kept jolting but I'm use to that... Kept doing my straight leg elevations knee dances and other excercises while on the bed to keep it moving..... So I had to use escalators for the first time back in London, FYI do not do it till your knee is at it's full strength  before the op I i use to run down them, now I was hanging on to them for dear life like a baboon on heat..... I nearly tripped up at the bottom as my knee over flexed as it was moving quickly....... So I am quite happy to say no pain killers in the last two weeks, which is great to say that I feel better without taking them I would rather use anything else like arnica gel or ice to stop the pain........ But I have been noticing my knee has been hit the last two days maybe I might be doing too much on it as the walk I did the other day I wore black trousers my op knee was covered in a huge white blotch on my trousers which was pure sweat but my other knee didn't have it on it which dhows how hard I'm pushing it... I would rather do more than less so the doctors can't say oh you haven't been doing enough.....


..this is my daily diary from Monday to Friday
5am- 7am daily excercises
Then walk to work up hills
8am - 4pm do excercises under desk at work physio for knee twice a week for one hour
4pm-6pm with pt in gym doing more knee rehab excercises and upper body workouts
6:15pm speak with sports physio via Skype for 30 minutes eat at same time do other excercises
7-8pm walk outside up and down hills
8pm- 9pm more excercises
9pm shower, a cup of tea
10pm bed!

I have a busy life lol
« Last Edit: August 20, 2014, 08:43:32 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #64 on: June 30, 2014, 06:22:18 PM »
Day 45 - walking too much day before = pain - fire sensation in knee - legs on wall
So as I had walked around a lot the day before I woke up and I couldn't get up on my feet for an hour my keg just felt so weak! So kept massaging it to get the muscle moving, and doing a few excercises to get it moving it seemed to move after a bit of time then when I finally got up I was so stiff I was worse than here flick from the series allo allo, so my mum later got some ice for me to stop the swelling to make me more mobile......so I decided to rest my leg today... But had really weird fire pain sensations in my knee cap so I ended up putting my legs on the wall and sleeping like that I found it relieved the pain a lot in the knee cap it was more manageable......but my knee is swelling a lot and is still a little hot good I got the physio tomorrow ..

Day 46- physio cancels 30 minutes before session! - knee cap pain still! - fed up!
So I woke up again knee was very stiff.... So I went to work for an hour went to hospital in a taxi only to get to the physio dept for them to say oh we left you a message at your house to say it was cancelled 30 minutes ago why didn't they ring my mobile number? I asked to see another physio none avaliable for advice, nice considering then cancelled so short notice.....

. So today my knee cap still has the same fire pain in it it's a weird sensation must be the healing process I suppose, it is just so hard sometimes to know what is a good feeling and a bad feeling sensation in the knee...... Because some of the sensations I have never felt before, and to be honest there is no point going to a gp because as soon as you say mpfl surgery they look at you dumbfounded and start asking you what us mpfl surgery
Then you feel like your sitting there teaching a doctor about mpfl surgery and your like they probably know less that what I know about this!! What is the point, I think on all notes in the uk doctors who specialise in rare surgeries should put in the notes what exactly it us so then we don't make the doctors look stupid by having to explain what mpfl surgery is to them.....
To be honest I have given up on all help from  doctors because I don't want to explain myself all the time, I just get on and deal with it and ask my physios or surgeon when I actually get to see the surgeon!
If I feel something is dodgey I tell the physio who then writes it up so the surgeon can see it...
I mean let's be honest with so little research on mpfl surgeries compared to other ligament surgeries what can a doctor prove is right or wrong or what is a bad feeling or good feeling??

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #65 on: July 01, 2014, 10:36:02 PM »
End of week 6 what have I learnt
-don't bother going to a gp because they will have no idea what mpfl reconstruction is and they freak out saying they don't specialise  in that and they don't know what to do and just offer you painkillers! I'm fed up with painkillers no thanks!! Lol
- ice when flying is best and fly business to keep your leg elevated
- fire sensation in kneecap must be normal but I'm no doctor.....
- tight calf , and shin and quad try to kneed it out with special sticks by reebok makes it feel better.... But be careful doing it... Do it with a physio or pt....
- mpfl is a long recovery not quick
- I've seen enough doctors to last me the next 5 years.....
- swelling ice ice and more ice after long hill walks or excercises........
« Last Edit: August 17, 2014, 08:37:09 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #66 on: July 02, 2014, 10:08:58 PM »
day 47 - shin and calf hard as rock - fires sensation in knee cap- physios research
so today my calf and shin have been feeling tight and my knee cap is still on fire sensation and i feel its being pulled down too much when i exercise so I'm trying to thinks of ways to exercise it out.....
so i left a message for a physio to ring me back for advice.......as my leg is shiny on my calf and tight she thinks i may Have DVT! s now im having to wear this tubigrip on my leg till i see her and the surgeon in the next couple of days.... Im walking up hills without crutches, swimming in the pool doing hydrotherapy everyday as well as going to the gym even with a 69-70 degree ROM.......

so she thinks i might be doing too much on it for me personally its frustrating because im a pro athlete and for someone to sit there and say you have to slow down... is irritating when you need to move and keep yourself moving because if you dont you risk losing ROM gain and getting things like DVT! ESPECIALLY when you have matches at the end of the year...

So i decided to speak with my independent physio and doctor again and they think there is two possible reason for my slow progress of ROM one is anthrofibrosis/ compartment syndrome or complex regional pain syndrome,,,,,which can cause lack of ROM and the second is graft failure/  tightness.....so i will hope to speak with the surgeon in the next couple of days as to be honest im frustrated annoyed irritated, I'm doing everything and my ROM isnt budging

day 48- knee cap sensation of fire still there - stiff calf and shin still - hyper extension of knee
so im finding when today still got same problems but still doing my exercises and having to ice my knee and im not taking any painkillers still if it gets bad i just meditate it out or just sleep...... i am finding when i am walking sometimes my knee overextends and then the joint goes forward at the front and loses hold untill i reign it in sometimes it has been shocking when i have fallen down with his and i dont reign it in on time it feels like my muscules are too tight so my joint moves into a direction which is comfortable on the medial side because its so tight that the medial side doesn't want to move.... i do all the exercies so im confused.com which might be due to muscule weakness who knows................
« Last Edit: December 13, 2014, 10:34:19 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #67 on: July 04, 2014, 10:22:23 PM »
End of week 6 knee

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #68 on: July 05, 2014, 06:05:33 PM »
Day 48- still fire in knee cap sensation - pushing myself to limits -
So I'm still getting this fire sensation in my knee cap especially why I am walk in a sarcastic way I'm no doctor but who knows if it's good or bad so I keep plodding along I'm still walking with a limp, but I don't care as long as I am off the crutch as it hurts your hands after a while, I'm not taking any painkillers for this knee cap feeling  just deal with it with listening to music or icing it.....
Today I walk quite a lot I'm becoming more and more active which is good but every time my knee wants to flex it's too tight or it will overextend because it can't flex, my calf and shin are still tight nothing I can do about that just keep going........
So far then fire sensation stiff calf, and shin and wearing a big mummified bandage on my bottom leg as per physio request ... Looking good lol best to stay positive :))
And the rom hasn't changed I now hate the word rom lol

Day 49 let's try some hill walking- getting nervous of seeing surgeon- boxing
So I thought I would try some hill walking- and my knee didn't really like it I pushed it and the fire sensation in my knee cap was worse and it overextended again my knee....
I'm getting nervous of seeing the surgeon and I tell you what if he says I have been overdoing it I will throw my toys put the pram....... I am so annoyed and frustrated with my knee I can do everything else except get the flex ion I can extend me knee and can lift it right in the  air my quad is firing I have 2 physios and a pt helping me so I have tried my best it's down to him now!.......,,..,..
So as my pt saw I have been getting increased frustration she decided to stop me  getting into a ting to release my frustration she got me a boxing kit and showed me things I can do and can't do and I feel a lot better for it I feel like I'm working out raising my heart rate and releasing my frustration......
Honestly half the doctors don't realise how frustrating this surgery is.........,!!!
My knee is slowly getting there it's good to be out and about but it's just so frustrating the rom I'm doing everything I can  the next time I hear oh your not at 90 I'm going to scream!! Lol

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #69 on: July 08, 2014, 08:48:02 PM »
Day 50 - saw doctor - confused -letter to main surgeon - wrestling promoter not happy

so i saw one of my right hand surgeons other doctors, who just contradicted my physio, which just confused me any more so i kept saying to him who do you believe a doctor or a physio who sees me more than a doctor does and sees my trial and error process.. so i came out more frustrated as the answers i seeked i didnt get expect for contradictions between both, i just wanted clarity, so i decided to write a letter to the main consultant/ surgeon who did my surgery asking for clarity on the questions i had as my promoter wasn't happy and wanted me to seek answers from him or he would have sent me to and independent doctor as he has his concerns, so i  have sent the letter and i will ring his secretary tomorrow to confirm he has received the letter..

Day 51- friendly secretary- the surgeon replies - now have clarity - new research techniques in mpfl rehab from mexico city from leading doctors now i am following..

so i spoke to the secretary of the doctor who was lovely and said she would crack her whip on him to answer me as soon as possible, as  my promoter was getting restless and wanted answers, and said she wanted to help me as i have always been nice.. so thank goodness the surgeon replied to me and given me clarity on the questions i needed answered now i feel i am more aware of what has happened rather than being kept in a bubble.......

so i also have been working my wrestling physiotherapist from mexico city who has given me a new task to work with my PT in the gym... he has conducted research with a fellow doctor on knee ligament surgeries including mpfl and it has been seen that many athletes body goes into shock with this type of surgery due to being so immobile post surgery, and they have found the best way to get a athlete back on track is through shocking the body again.. through intensive, cardio and endurance training.. and also at the end of each class, doing kneading exercises which is basically using the reebok rollers to roll out the muscle groups to stop swelling and release any scar tissue, for those who have suffered from over scarring or bleeding in joint post surgery
i have been doing this for 5 days now i had improved by 14 degree, which show it does work, and the best part i have currently lost 15 kilos on the knee surgery diet lol things are now positive and have more clarity and now i can go on the stepper machine and cross trainer through this new technique in rehab
« Last Edit: August 17, 2014, 08:39:59 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #70 on: July 09, 2014, 09:03:52 PM »
day 52- wonders will never cease! - the new rehab is working ! - got pt and wrestling physio!
so today i found that the hospital could only give me one appointment to see my hospital physio after 4 weeks. So  i thought stuff it time for the Pt in the gym and wrestling physio to concentrate on so today my wrestling physio sent me an email and told me to get my pt to train me as a athlete in a rehab form, to keep stretching out the muscle when they get tight and to keep me going after the end do the kneading of the leg to stop swelling and control muscle weakness and massage,

my word im amazed by doing this technique i managed to go on the cross trainer fine, rower, fine and stepper, fine, by the end they measure my flexion it had jumped to 8o degrees!!! yey!!  so my pt and my physio are beginning to think that its the swelling that is the issue and the over scarring so by using massage techniques and kneading techniques it is helping my muscles by reducing the swelling

i have noticed the nerves are still healing as you get the jumping sensations running through the knee and leg and the doctor said this can take up to four months to heal, so things are looking great =)

THEN MY WRESTLING TRAINER SAID HE HAD TRIED TO INVESTIGATE HOW LONG DOES A MPFL RECONSTRUCTION LAST?

I was shocked i never thought of this question she could not find any information or research on the longevity of mpfl reconstruction but as an athlete does that place me at higher risk of rupture? time to investigate with some professors i know because i cant find any research on it except for acl surgery
« Last Edit: August 16, 2014, 10:31:44 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #71 on: July 12, 2014, 12:25:33 AM »
Day 53- twice in the gym three hours total - the bike grrrr! - cold weather affecting knee - hot showers great for knee-
So today it has been quite cold here and I have found my knee is reacting to it but I just get on with it with a hot water bottle on it... So went in the morning at 5am to the gym did some cardio then I went after work to train with my trainer at the gym, been doing a lot of weights to strengthen up the muscle groups .. Which I feel happy I'm doing as I need to get ready for a few matches in November ... Squats lunges Swiss ball lunge I could name every single knee bend I have been doing
My extensions no lag at all it's firing like normal again ROM is still 80, I can do the cross trainer and the stepper and the rower but I'm still stuck at 80 I can't do a turn in the bike yet my knee won't allow it I'm. Determined to hit it in 3 weeks......
I have been having a lot of hot showers after work as it makes my leg less stiff and also stops the cold affecting the screws in my knee....not taking any painkillers mind over matter :)

Day 54- gym twice a day- sharp pains in knee cap and anchor point - assessing trail,and error
So went to the gym again had my trainer twice worked on my knee again to be honest I feel my pt in the gym is better than my physio because I'm the type of person through me in the deep end first and I will swim quicker than if you throw me in at the shallow end... I'm finding my body is reacting more to gym workouts than physio, I'm still getting these pains with the cold weather but it comes part of the surgery hey ho!
I feel that no physio or doctor can tell you when your ready to do something as long as you stay determined and you get it done then you know when your body is ready ...

Mpfl surgery is a hard surgery but through determination and raising our frustrations and seeking the answers to our questions can only give us more clarity in our rehab because if we have so many questions with so little information it can be frustrating..... SO DOCTORS GIVE CLARITY AND ADVISE,CLEARLY :))

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #72 on: July 12, 2014, 11:35:03 PM »
What things could be changed? What needs to be learnt? What doctors can improve on?
With mpfl surgery reconstruction

In the nhs in the uk there is not a lot of information on mpfl reconstruction
What could be changed?
1) more information from the surgeon and what to expect, I think most surgeons will not tell us everything
    Because of how complicated the procedure is...

2) gp's need to be positive rather than treat us like leopars because they don't
   Understand what a mpfl surgery is?

3)rare surgeries or uncommon ones should have more notes written on your notes
   About the procedure so then any complications you have a doctor or nurse will understand
   The procedure in the notes rather than the patient having to explain to a doctor of 20 years exp

4) mpfl surgery is complicated for me if a person who has complications
   It should be followed up by the main surgeon till these problems gave been solved

5) due to the lack of information clarity is needed with the patient at all times
    How are we suppose to know as a patient what's good or bad?
    When there is little research on this surgery

6)physio have to understand everyone is different I have made more progress
   With my gym trainer than my physio because my gym trainer is testing
    My body and pushing it while my physio was doing more manipulation than stressing it

7) stop being so negative on rom if I can't do it and have several people training me there is a reason why

8) considering mpfl surgery is new it's amazing to see how high
   Complication rates are from stiffness ,dvt,anthrofibrosis, compact syndrome, technical failure of graft,     rupture, bleeding in joint,  and that is by looking at medical research, if I was aware of anthrofibrosis or compact syndrome I might have been able to help my leg quicker,

9) physio needs to be earlier on nhs I know the nhs is stretched but if your young and fit and you hAve to wait
  5 weeks to see a physio post op after knee reconstruction it's a long time
  Luckily I had a physio and pt at the time

The nhs I know is stretched the nurses do a great job on the ward everyone does but all
That is needed is better communication in notes and the surgeon with the patient because
With clarity it will only just benefit everyone involved especially in a very new
Area of surgery who knows what is right or wrong it will only be through
Research or trail and error where we will know what works in mpfl
Reconstruction asking question and having clear answers
 

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #73 on: July 13, 2014, 10:10:45 AM »
Day 55 booming out the weights- shunting of knee - overextension
So the past two weeks now I have been booming out the weights.... My legs are now limiting well over 120 kg on my quads and hamstrings so I should be lifting 170kg by October.... So I know my hAmstrings and quads are working..... My abductor  are lifting around 80 kg but I have to be careful with the mpfl muscle and my vastus ( side of thigh) is lifting around 120 kg also... Great as I have matches in November

but my flexion is only allowing me 81 degrees I feel like my knee cap is being shunted and forcing my knee at the back to overextend because of the new ligament
I know I can still improve my quad but it's frustrating and when my pt or physios try to move it back they can feel either a cramp or too tight sensation you can actually see it!

Day 56- in love with roping- still got fire sensation-
So my pt is making me throw battle ropes around in the gym as you gave to do lunges with it it works your knees and upper body deltoids triceps, chest and Bicep, so we hope this will also help the flexion and everyday on cross trainer and stepper and tower twice a day..... I still have instability ad the fire sensation in my knee but I'm hoping by about week 15 this will go....

« Last Edit: December 13, 2014, 10:36:18 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #74 on: July 15, 2014, 10:04:31 PM »
day 57- gym twice a day - knee weak - amazing pain meditate
so i have been going to the gym twice a week now, for the past 10 days,ive been building all of my muscles in my legs, the quad and hamstrings is doing very well.... my knee is feeling weak but i have to expect that after the surgery i have had but i feel the hamstring is so strong in my weak knee which im building up..

So im just pushing it but i feel the new tendon is a bit under pressure and im getting sharp pains and the fire sensation, i don't take any painkiller i just meditate through it.... if i can control it that its better to be in control than take painkillers and you dont feel if something has been pushed too far and you do more damage than good.


day 58- knee shunting - pressing on - still problems with flex and rom
so today i have continued to go to the gym, but my knee has been shunting recently- i feel the knee cap forcing my knee and pcl ligament back and i have to keep catching myself, it's frustrating me but i just keep going otherwise, i just get more frustrated with my progress, i think as i had bleeding into the muscles post surgery into my thigh calf and shin maybe this might be why my progress is slow, i still have stopped at 82 degree rom and i just keep pushing myself to keep going, im still getting over flexion so going down hills is getting my leg over flexing so again my kneecap shunts and i have to control it myself, so i am hoping in the next 6 weeks i will build up a lot more muscle by that point, and in hope that will speed my rom up

day 59- pain in new ligament - positive vibes in the gym - knee over flexed on stairs and fell down
so went to the gym the support has been amazing from the pt's in the gym giving me advice on how to get my leg better given me extra things to do, but i have been noticing that the new ligament graft the pain is very uncomfortable maybe that is because i'm working so hard on it, so today i was walking down the stairs my knee shunted again and i fell down the stairs, the pain was crazy but there is no point in getting it checked by my gp because your treated like a leopar because none of them know what is mpfl surgery...

i havent lost any flexion which is a good sign and i can still raise my leg i will see my physio in a weeks time i will get her to check it,

Day 60- Swollen knee- keep pushing - anything you want is on the other side of fear.....
so after the fall my knee is swollen... so i have been icing it to stop the swelling.... i still went to the gym on it call me crazy, or determined but my frustration i put into my sport or into the gym to get me going and i keep going because for me failure is not an option i want to keep going and stride to get where i want to be in november... fear will ever stop me one thing i have learned is with mpfl surgery you dont know till you try and with the lack of research on mpfl surgery... is very hard to know what works......

day 61- hope -faith - feeling stronger
so i feel a lot stronger - but  hope and determination has get me going the fire sensation, the sharp pains the swelling,
the stiffness,
the frustration,
the hyper extension,
the sharp extreme pains  .......only me as a person can deal with it,

 a doctor can never understand the full context of an mpfl surgery, you have to strive and have the determination to overcome the barriers which you reach with mpfl surgery turn the negatives into a positive and just reach for it everything is trail and error in life, the same with this surgery, everything you want is on the other side of fear and you will never get to it unless you don't try..........