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Author Topic: An athletes mpfl reconstruction diary  (Read 95058 times)

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Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #555 on: February 16, 2016, 03:46:40 PM »
Hi Lucha,

Sorry about the misunderstanding on my last post, English grammar can be confusing at times using the same grammar writing off as writing on paper and not righting off! I hope I was not too negative towards your previous OS that I am sure in a superb OS in his specialist chosen area of knee problems. I agree if they are stumbled as what to do next then they should not allow pride take over by referring you to another OS for a 2nd opinion.

Hope everything goes smoothly for you over the next couple of months.

[email protected]
« Last Edit: February 16, 2016, 03:48:22 PM by Clarkey »
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #556 on: February 17, 2016, 04:46:23 PM »
nick you didnt offend me what so ever lol   :) :D ;) i agreed with what you said about writing me off but what i was trying to put across was like you said pride or not knowing an answers and they dont want to transfer the patient because of fear of damage to them is not valid, i agreed with you that each and every knee surgeon has their own speciality and they have their own talents
...... and if they dont know then there should be no fear in asking a questions or transferring the patient to the right surgeon who can resolve the issue.............a patient would respect a doctor for that is the correct approach.
Im not saying all doctors are like this there are some great doctors but there are some who are cautious in case of reprisals to transfer people..........
like i said before we are all students in life and we do not have the answer to everything =)

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #557 on: February 17, 2016, 05:08:21 PM »
Hi Lucha,

One has to be highly qualified to become a full time OS with years of Uni and working under an experienced OS. It always best to swallow pride if an OS does not know what to do next, passing it onto another OS specialised in your particular knee problem. 

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RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #558 on: February 19, 2016, 12:18:24 PM »
So it gets more amusing a guy shoved past me in the gym which forced my knee to pivot...  Knee collapsed had 15kg dumbells in each hand let go of them to try to break my fall but one of them landed on my foot a day later massive foot. Bruised now got a gp appointment to get it checked today it's just mental now.....honestly I just want to cry lol

Yes nick I do agree with you someone's it's best to admitt defeat and say pass the patient onto another doctor who has expertise in the problematic area...  It's vital in getting the correct diagnosis

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #559 on: February 23, 2016, 07:27:49 PM »
So i got my foot checked and i have fully bruised 8 small bones in the foot and have been told no running or heavy impact on the foot because i could risk a fracture, they said if it was fractured my surgeon would not have done my surgery!! phew!!  :o ::) so now im swimming and doing upper body in the gym.....

So now im like just over three weeks away now, nervous as hell, i suppose with my past experience its still a trust issue there, after two surgeries and finding out my knee is just screwed lol i suppose you do find it hard to trust lol. But i keep saying to myself i have one of the top knee surgeons in the county dealing with my knee so everything is going to be ok, i dont expect 100% knee as long as i have stability, that is all i care, i don't mind pain scars etc, its the ability to live a quality of life and be able to cross a road without the fear of a knee collapse.......

Alot of my friends are taking me out the next few weeks dining me out lol i think just to distract me, lol i do have great friends, and they know i have been through alot and have helped me through it one even helped me to get up in a restaurant after my knee collapsed its embarrassing for them just as much as me........

so yes fingers crossed all will be sorted soon..........


Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #560 on: February 24, 2016, 04:20:12 PM »
Hi Lucha,

Just over 3 weeks away until you have you much needed surgery by one of the UK's top knee surgeons. I am sure you ae now at the point of no return and just want to have it over and done with after so many knee collapses! Sorry that you have injured your foot, you are very lucky that it is not broken or would have had to postpone your surgery that you been preparing yourself for some time.

It is normal to get pre-op nerves after 2 previous failed surgeries that you are worried the knee will get even worse post-op! I have also been through 2 surgeries! I would also be nervous if the next step for my right knee problems is a 3rd diagnostic scope.

Your true and loyal friends are there to support you by taking you out will help to cloud over the surgery that is fast approaching. Seeing my OS in 4 weeks today, looking likely a 3rd surgery on my right knee. It's sore after 6 minutes of ultrasound therapy around the bottom of my kneecap this morning.  My PT did say it risky to remove bone spur that likely to be open rather than keyhole! Will start worrying once surgery confirmed!

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #561 on: February 24, 2016, 09:27:56 PM »
so i think its rather bizarre i think sometimes its rather funny how some doctors say keep healthy play sport etc when it fact you bugger up your joints anyway lol........
so far this is what i have with my knee.... drum roll please

1)mild Retro patellar
2) mild chondromalacia patella
3) oedema of the knee
4) MPFL reconstruction
5) Posterallateral bundle acl injury from years ago and lax and buggered
6) hypermobility
7) mild trochlear groove damage due to history of patellar instability
8) some blood in the knee.........

im sure if i reemed this off to a surgeon they would probably go running lol or say wait 20 years for a knee replacement lol.... So when you look at all this you think is sport and bad genetics a good mix probably not lol
Someone has told me to try to see if i have Ehlos Dhanlos Syndrome... which is a type of hypermobility as i have teeth loss, fatigue etc, and general dislocations of leg........

like my knee went again and i normally see one specific GP and i went to a different one who is lovely when my knee collapses and the dumbell landed on my foot , he said i sounded like a medical person he way i was talking and asked how i knew the words, i said well when you research you find the answers when you dont agree with your surgeons opinion, so the Gp's have been great with me, but the one i normally see was rather shocked the ACL wasnt seen before this point, even though my new surgeon agrees its a very old acl injury...

Which goes to prove a point here generally gut instinct is correct and follow it never fear asking for a second opinion because we are all students of life and not everyone knows the answers and every doctor has their own specialist areas, and maybe some can pick up on rarer problems that other due to different experiences as surgeons.........and i feel sometimes if a surgeon doesn't know what to do then i feel in respect to the patient they should allow the patient if asked to be transferred for a second opinion as its not helping anyone by not being honest with the patient.............there are many great surgeons and you have to find the right one for your specific problem....

i feel bad by saying my gut instinct was right over my surgeon its a relief to know there is something wrong to explain my problem of the collapses and i wasn't going crying with a dislocated knee on the floor for no reason.... but im now on the right track.... my work gave me a meeting and have taken into consideration the issues i have and have said to me its not my fault i need more time off, its and underlying condition that has been misdiagnosed so no disciplinary action would ever be taken against me which is a relief.........

i might be doing a you tube blog but names of doctors and so on wont be mentioned for privacy reasons....

my knee went collapsed when i came out the pool today you begin to feel like eeyore from winnie the pooh you just keep going in slow motion lol but i pray and hope that im on the correct path now i will never get a sorry from my ex surgeon but it give me hope i have the best surgeon now =)

Offline esm87

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Re: An athletes mpfl reconstruction diary
« Reply #562 on: February 29, 2016, 09:43:12 AM »
Hi Lucha!

Do you have a date for your surgery yet?

It sounds like you are having a really rough time due to all these knee collapses. Hopefully you have a surgery date soon to get this finally sorted out!


Emma

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #563 on: February 29, 2016, 09:43:56 PM »
Hey emma
i think i answered all your questions via message =) I have surgery just before Easter, i asked my boss to do anything in his power to keep me distracted and trust me he is lol......

The knee collapses Emma, well is suppose if you don't laugh i will only cry lol so you have to just get on with it i suppose until there is valid confirmation with this dodgy knee....

I have made a good circle of about 40 friends mainly men in the gym lol as i do a lot of weightlifting....so they see when i struggle that help me in the area they don't have to they know i'm stubborn and independent but they say to me we are there to help which is nice of them..... so like generally i do 25kg dumbbells per hand chest press i tried to carry them to the bench but i couldnt my knee was just crazy especially with my foot issue after my knee dislocating last, so the boys helped me and put the weights back for me, i will give them something to thank them soon, ..... if they see me struggle they generally always say for me to sit and they bring me the weights....
Sometimes the guy im dating sees i struggle with shopping too and he takes the shopping off me as i try not to show it but my knee ends up jerking out then he help me to walk and carries the shopping......


but when your such a independent woman like i am sometimes its hard to accept help, but i suppose and some points you must accept it......

im finding sleeping hard right now as my knee and foot are suffering but i keep counting down the days, twice i have cried myself to sleep as my knee has been double the size and my foot throbbing, but i keep pushing through....... My friend who is coming to me to the surgery has said what u plan to say to the surgeon, and i have written every single dislocation and collapse down so he can add it to his notes, because thats the best way to describe my quality of life..... deplorable i think would be the correct adjective........

I read a post on the evening standard about how now doctors must apologise to patients if things go wrong to alleviate a patients stress, for me i think it is a good idea because it can only create more respect between a patient and a doctor, because in life we all make choices all actions have consequences and sometimes the choices we make are not correct we are all human we all make errors in life that is a part of learning.......

if the ex surgeon has learnt a lesson then that gives me closure, but i hope and pray that the future of medicine that honesty is the best approach rather than not looking outside the box, and being of closed mind. Nothing will help by it that way,......

i pray and hope that there is something there to give me a solution, i have one of the best surgeons now i hope  that i will get the closure that i need which is........get back my quality of life.......

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #564 on: March 06, 2016, 08:10:57 PM »
so i close to around 600 collapses, with the knee and its getting difficult to sleep i find i have to lye on my side for my knee to be comfortable if i lye down on my back or stomach the quadriceps and inside the knee seem to get really stiff, then i wake up mid night trying to stretch out the leg to gain comfort back............

2 weeks now till the surgery currently bricking it, i feel my sense of ability to lead a normal life sucks right now lol but im trying to remain positive to think that i have a good surgeon, i just have fear with my previous experience and not having the honesty in the past i find it hard to trust........

my surgeon said he will tell me in the consult what he finds and if it needs further surgery, but i think after 2 years of problems i will ask him yes or no to further surgery after the surgery and ask him to give me the full explanation why in the consultation as at least i can go home with an answer so i can prepare myself for the future in a sense, rather than twiddle my fingers and wait 4 weeks post surgery and start thinking is it a yes or no.... i can appreciate that he wants to have a good look check the hypermobility, because its a complex case,

but i think there is also a sense when a patient has been waiting so long for answers they need an answer for them to accept things too... when you have been fighting for two years to get your knee to a sense or state of stability, you do feel mentally tired but also frustrated because you want the answers you have been desperately seeking....

im trying to build everything up and make my legs as strong as possible but with these collapses my quads keep going and it just gets upsetting when you put so much effort in to find when your knee collapses on pivoting then your buggered for a few days so everything you gained you have lost and have to do it again.....

fingers crossed there is light and the end of the tunnel with this surgeon =)

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #565 on: March 08, 2016, 04:54:03 PM »
Hi Lucha,

It is normal to get pre-op nerves, hopefully it is worth the anxiety and stress if it puts an end to your knee collapses. I presuming that your scheduled surgery in on Monday 21st March, I am glad you are seeing one of the top UK knee surgeons. It is what you fully deserve after your long standing knee problems and disappointments with the previous OS's lack of expert knowledge with your particular knee problem.

Good luck if I do not get the chance to post again before your surgery.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #566 on: March 08, 2016, 10:51:13 PM »
thank you nick for kind reply,
i think my theory behind the logic when it comes to a surgeon is the following if you dont know the answer then transfer it to someone who does know, because im sure a patient can appreciate everyone has their field of expertise and i cannot fathom why unless there is a fear to being judged by their peers or a fear of looking, bad im sure a patient would respect a doctor for being honest than a doctor who isnt.

when it comes to my fear, my fear i suppose is not an anxiety its a fear that will i ever have honesty? the only place i found honesty was my notes, which is bad to say, every case is different and there are some damm great surgeons out there, who are great in their field but you just have to make sure you find the right one....

when its your body and someone is sticking their hand inside you , i suppose you want to know what there doing lol but im sure i wont get all the truth as doctors do look out for one another, but as long as it gets fixed then i dont have a problem, but i still hold resentment that my ex surgeon didnt transfer me to a person who speciality  in ligaments because my life got put hold for more time........

i think my knee surgeon is great, i think he is trying to break down my walls but they are staying firmly up, after my trust issues, i just want it sorted that it and less time wasted....... when i last spoke to him he kept saying everything was going to be ok i kept folding my arms, and i said to him thats what my previous surgeon said and im now with you...I think he is used to cases like this when the patients who are in my situation turn quite stubborn in a disbelief manner because they dont know what to believe any more.........
i think the only way the second opinion surgeons build the trust up is slowly........because a half broken bridge takes time to build it cant be built in a day.......he does as a surgeon give me as many answers as possible my new surgeon or try to explain them the best he can if he doesn't know the answer then he tells me, but i got a radiologist to check some old mri that was taken under my ex surgeon and the issue was there on the mri that was picked up on the new mri, so i have my answer what is done is done and cannot be changed the positive thing is its now getting sorted

like i said previous not every surgeon is bad they are have their speciality and its about just making sure that particular surgeon is experienced in that area.......

when you live with a leg with over 600 collapses of course you get tired but it annoys you to the extent you force it to keep going because you dont want to lose your independence pride, or even ability to have normality
you dont want to lose, not long now,  trying to keep positive even after two knee collapses today :-[
 
« Last Edit: March 10, 2016, 04:48:03 PM by lucha86 »

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #567 on: March 12, 2016, 07:54:39 PM »
so im just over a week away now, my knee still seems to be giving out several times......
im getting just more and more stressed lol but i suppose its rather to be accepted i have been told im not allowed to do any workout on the leg 2-3 days before surgery as swollen knees they will not operate on due to risk of infection etc.........
trying to keep my knee as strong as possible from the collapses, but im feeling so many things, but its great as i have a great support network and many people wanting to help me , who arent judging my situation and are aware. and they are all wanting to see me after the surgery, and before the surgery.......
I think mu boyfriend is trying to keep my mind occupied i think he understands this as he works in medicine, but i suppose what i seek from this first surgery is resolution, understanding and honesty, i want to know the condition of my knee, and honesty of the intentions moving forwards with the knee.....i seek closure in a sense from the ex surgeon as i want the truth about my knee, rather than the way it sought it from my notes......

im hoping or praying that this surgeon is going to sort it out because for me to live a life with a collapsing knee is abhorrent, or unjustifiable..... every needs a certain quality of life, and you shouldnt have to fight for it ......

Offline lucha86

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Re: An athletes mpfl reconstruction diary
« Reply #568 on: March 17, 2016, 08:22:40 PM »
so my surgery is under 5 days now im scared quite literally but positive as well to soon know the answers to the extent of my knee issues......
so the hospital rang me up to check i was ok i had a slight tickle at the back of my throat which i told them about as everyone has cold and flu where i live so keeping away from all and secluding myself, so they told me if it gets any worse to contact them.......
i have had to stop the gym even my physio rang me to say "oy no gym!" lol and as i had the throat issue the hospital told me no wet clothes no gym too......
im feeling cautious nervous and so many emotions its crazy, im trying to keep telling myself i have a great surgeon all will be well, but i still feel cautious..........
but i have the shard to look forward to .... but im hoping and praying now there is light at the end of the tunnel.....
fingers crossed
« Last Edit: March 17, 2016, 08:24:49 PM by lucha86 »

Offline Clarkey

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Re: An athletes mpfl reconstruction diary
« Reply #569 on: March 18, 2016, 03:32:58 PM »
Hi Lucha,

Pre-op nerves a few days before surgery is never a nice feeling to be going through. It is always a good idea to remain positive despite having a tickle at the back of the throat. After all the waiting and suspense knowing your surgery date it is frustrating if you are worried that your surgery could be delayed if you get a cold or cough!

I will be thinking about you on Monday morning hoping that this time round your new OS can finally sort out your knee problem. Hopefully the regular collapsing will be a distant memory for you post-op.

[email protected] 
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming















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