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Author Topic: Please help. Should I get an operation  (Read 716 times)

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Offline Jess1234

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Please help. Should I get an operation
« on: June 07, 2013, 11:32:48 AM »
Hi

I was wondering if anyone could give me some advice. I have a badly tilted patella that maltracks. It causes me a lot of pain, I cannot squat down or kneel, I can't sit with my leg bent. It collapses on me, I struggle to walk up and down hills and stairs and I limp when I have walked for a while, can't run at all and had to give up all sport :( It has never dislocated (although the surgeon doesn't know how) and although my cartiladge is very soft it is still intact. It has bothered me since I was 14 but has reached the point where am i am struggling to live with it snd am getting depressed. I have tried every non surgical option. 3 intense rounds of physio, shoe inserts, braces, taping, cortisone and lubricating injections. I had a lateral release a year ago which has made my knee worse as I know have hypersensitivity due to nerve damage and the MRI shows its just as tilted as it was.

My surgeon is now talking of doing another operation, he mentioned a fulkinson?, a ttt? Or a trochleoplasty (I think this is what they were called) but wants to meet with a board of other specialists to review my case and decide on the best thing to do.

I was wondering if anyone has had these operations who's knee doesn't dislocate because from what I have read they are all to prevent dislocations. I don't want to do something that is overkill but I need to do something.

Thanks for the help

Jess

Offline JessJess28

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Re: Please help. Should I get an operation
« Reply #1 on: June 07, 2013, 04:35:50 PM »
Hi Jess! I'm Jess too, lol. Sorry about your knee issues, I feel your pain. Myself and many others on here have had TTTs/TTOs (some Fulkersons, others used a different procedure but similar to a Fulkerson and still called a TTT/TTO).

You can go to the Post-Op Diary section on here and read diaries about TTTs. http://www.kneeguru.co.uk/KNEEtalk/index.php?board=6.0

 I am 10 weeks post op today from mine. I also had a Lateral Release, Medial Reefing, Menisectomy and Chondroplasty as well.

You can also look in the Patello-femoral joint section: http://www.kneeguru.co.uk/KNEEtalk/index.php?board=16.0

Let us know if you have any more questions. I would suggest doing your research before surgery and ask a lot of questions. You might read some negative posts about the surgery too but remember sometimes people report more negative outcomes than positive. Some people with a positive outcome are just busy living life and not posting about it. Good luck!

History of Dislocations
12/08 Scope
3/2013 TTO, Lateral Release, Medial Reefing, Grade III Patella lesion.
11/2013 TTO L knee, LR, Medial Reefing, R knee screw removal

Offline Vero cayman

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Re: Please help. Should I get an operation
« Reply #2 on: June 10, 2013, 07:37:50 PM »
Hi Jess
Not all of us who had TTT had dislocating knee (I didn't). It is a major and life's changing surgery, but it is from what I understood from my highly experienced in TTT surgeon, the only way to correct maltracking. Lateral release is often done at the same time, but only the TTT fixes your mechanical issue. I had mine four months ago, and slowly recovering. I have to do the second knee as well, if I have the strength (I should as same maltracking, though I still have some cartilage left on that second knee). Depending on the damages, you may, like me, have to undergo further treatments to try to gain some cartilage back, but this TTT will be the biggest operation. If you decide to do it (your case seems so bad that I believe you will only gain by doing it), feel free to contact me so I can give you some post op advices (and many of us on this forum will love to support you in every possible way). As I said, it is a pretty harsh surgery (I found giving birth easier and of course quicker than six weeks of really tough time), but bearing in mind how you seem to suffer now, you shall be better once you have recovered. I "plan" on doing my other knee one year after the first one, as this would be a good margin to have recovered and regain muscle and strength (I have none of those for the moment). You will also have to organize your family's life as will not be useful to them for quite some time. As I said, I am here if you wish some advice ! All the best
Ps make absolutely sure your surgeon is highly experienced in TTT surgeries, as this is a very particular operation for which you cannot afford to have someone with little or "standard" experience. It is way too important ! Good luck !!!
Fell right on knee cap in 1991-1992.
2012 diagnosis of patellar mal-tracking in both knees. Partly genetic.
2012 diagnosis of chondromalacia patella grade IV in right leg
6th of February 2013, TTT Fulkerson surgery and LR, right leg

Offline greatfulgann

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Re: Please help. Should I get an operation
« Reply #3 on: June 10, 2013, 08:58:43 PM »
Vero,

How many per year on average would make a surgeon "highly experienced" in this procedure?  I am considering this option myself. 















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