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Author Topic: Lost, Depressed - need help  (Read 14659 times)

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Offline Lottiefox

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Re: Lost, Depressed - need help
« Reply #30 on: September 23, 2012, 10:40:56 PM »
Tommo

Just a quick comment on the suggestion of oral prednisolone; it can be really useful for auto immune inflammation but does have some pretty nasty side effects. Interestingly I have never had steroid shots into any joint but when my knees were more problematic two years ago I had a systemic injection of a steroid Kenalog for severe hay fever allergies one Spring. I used to get the shot all the time when I was young but they don't like it forever as it can trash your joints (hmmm......). Anyway, my hay fever stopped and hey presto, my arthritis pain in my left knee and in my (then non fused) arthritic big toe reduced REALLY significantly. Enough to probably get me walking about normally. So, perhaps systemic steroid can help.....not sure if they'd consider a shot like that rather than oral pills (it goes in your butt cheek ouch) but just commenting.  :)

Glad you had a good day with the visit to the new house and I hope you get to make it over the sand and have a swim. England is cold, rainy and bleak. I am quite a winter type of girl so am not overly fussed, weather is weather but I hope we don't have 6 months of rain all winter.....we had that most of the summer apart from when the Olympics were on thank goodness!

Keep checking in. And you're not going nuts. Knee pain SUCKs and when you've been so active it feels like your life has been stolen. We all get it here.

Lottie
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #31 on: September 24, 2012, 08:29:04 AM »
Well just got a phone call with a little bit of good news.  My appointment that was to be on 2nd Nov has been moved forward to 25th Oct.  So that is something.

Had a really hard day at work today.  Work was fine but I just felt really down.

Offline Brambledog

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Re: Lost, Depressed - need help
« Reply #32 on: September 24, 2012, 12:14:22 PM »
Hi Thommo,

Great news that your appointment has been brought forward. And the feeling so down thing is probably because you have so many questions and not enough answers. Getting answers or at least understanding and a plan is the best wellness tonic there is!!! :) Hopefully you're on your way to that.

Hope you manage to have a good evening and feel a bit more like yourself....hang in there.

Brams  ;)
2009 - diagnosed coeliac
Aug 2011 - L knee arthroscopy
Aug 2011 - diagnosed PF arthritis L knee
Nov 2011 - diagnosed CRPS L knee
Dec 2011 - MRI R knee, PFOA is worse than L!
June 2012 - no surgery 'til TKR's
Nov 2012 - CRPS spread to L foot/thigh, increasing pain
- Worsening pain/symptoms R knee
;-)

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #33 on: September 24, 2012, 12:30:03 PM »
Being a triathlete I also get on a triathlon site.  I happened to start talking to a OS on there and gave him the whole story.  He immediately replied and said that the MPFL is too tight and he is almost 100% sure that is what is causing the pain.  He also said that with my TT - TG being 18.2 that it may also have something to do with it and may need looking at.


Does anyone knoe much about the TT - TG?


thommo

Offline Lottiefox

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Re: Lost, Depressed - need help
« Reply #34 on: September 24, 2012, 12:36:39 PM »
Thommo

Good news on the appt being brought forwards. the TT-TG measurement is probably best answered down on the Patella Femoral section - off the top of my head Crankerchick is well read on measurements and their implications and I know she checks in down on that section a fair bit.

Hope the day improves, hang on to the good bits of news and take one day at a time. Its the only way sometimes unless you have a firm plan.

Take care

Lottie  :)
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #35 on: September 24, 2012, 12:39:48 PM »
Thanks Lottie.

I will have a look.

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #36 on: October 09, 2012, 05:46:45 AM »
They are now thinking the MPFL that I had in June last year may be too tight.  Has anyone else had this and had it corrected.  Is it a matter of just going in and stretching the MPFL repair or does it need to be done again?

Offline Brambledog

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Re: Lost, Depressed - need help
« Reply #37 on: October 09, 2012, 09:36:14 AM »
Hi Thommo,

Well my web-searching skills are obviously sadly lacking  ;D because I've struggled to understand it all! I found this article though that is at least about MPFL revision following continued pain and problems.... I don't know if it's of any use, but might give you some info. Hope so anyway.

http://grupodojoelho.com.br/upload/reuniaoeventos/PIIS0749806311001629.pdf

How's everything going aside from the knee stuff? Hope life has been a bit kinder to you lately anyway...

Brams  ;)
2009 - diagnosed coeliac
Aug 2011 - L knee arthroscopy
Aug 2011 - diagnosed PF arthritis L knee
Nov 2011 - diagnosed CRPS L knee
Dec 2011 - MRI R knee, PFOA is worse than L!
June 2012 - no surgery 'til TKR's
Nov 2012 - CRPS spread to L foot/thigh, increasing pain
- Worsening pain/symptoms R knee
;-)

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #38 on: October 09, 2012, 11:18:49 AM »
Thanks I will have a look at it.

Yeah things have been not too bad.  Got the independent this coming Friday so will see what he has to say.  But still have another 2 weeks before I get the second opinion.

Offline Brambledog

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Re: Lost, Depressed - need help
« Reply #39 on: October 09, 2012, 02:36:31 PM »
Hi Thommo,

Glad you're doing ok. Hope the independent is helpful and not a wally....good luck for Friday. As for the second opinion, I'm sure these professionals have no clue how long two weeks can be...

Take care and have some fun where you can :)

Brams  ;)
2009 - diagnosed coeliac
Aug 2011 - L knee arthroscopy
Aug 2011 - diagnosed PF arthritis L knee
Nov 2011 - diagnosed CRPS L knee
Dec 2011 - MRI R knee, PFOA is worse than L!
June 2012 - no surgery 'til TKR's
Nov 2012 - CRPS spread to L foot/thigh, increasing pain
- Worsening pain/symptoms R knee
;-)

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #40 on: October 14, 2012, 07:51:15 AM »
Well I had the independent on Friday.  He said at the start that it was not a consultation but was for to write a report.

He asked heaps of questions, had a play around with my leg.

At the end I asked what he thought and said I was not to tell anyone that he told me.  But he thinks that I need to have the ligament that goes from the bottom of my patella to the top of my shin moved because he thinks it sits tofar on the outside of my shin.

I spoke to my physio at hydro an hour after that and he was a little suprised and said that surgery is not done much anymore.  I think he called it a tibial transfer?

Does anyone know much about them.  He said about a 9 to 12 month recovery for one of them.  What is the recovery like as far as running etc goes?  Are they successful?

Offline Brambledog

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Re: Lost, Depressed - need help
« Reply #41 on: October 14, 2012, 04:27:18 PM »
Eek. Tibial transfer sounds fun then with a 9-12 month recovery... :-\ It's probably best to google it, and post the question in a new thread on general questions, or have a look through the sections on here in the specialist section. Or...you could search the KGs site - it'll bring up any threads that include your search term, I've found it very useful in the past. Always best to be a bit wary of one guy's suggestion, especially if your physio thinks it's an outdated procedure... I would think your surgeon would only do it if there was a clear benefit to you - ie if the benefits outweighed the risks. This tibial transfer, together with previous thoughts about your MPFL and the rest, is a bag of tricks only your surgeon can sort out!

How is life generally at the mo? Hope you've had a good weekend and managed a bit of  :) at times!

Take care,

Brams  ;)

2009 - diagnosed coeliac
Aug 2011 - L knee arthroscopy
Aug 2011 - diagnosed PF arthritis L knee
Nov 2011 - diagnosed CRPS L knee
Dec 2011 - MRI R knee, PFOA is worse than L!
June 2012 - no surgery 'til TKR's
Nov 2012 - CRPS spread to L foot/thigh, increasing pain
- Worsening pain/symptoms R knee
;-)

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #42 on: October 15, 2012, 04:06:05 AM »
Thanks Brams.

I had a good weekend.  Went back to my mum's place.  She lives in Newcastle which is about 4.5hrs away from us.  My 9yo son spent his 2 weeks school holidays there.  So a nice quiet weekend.  Caught up with some old mates I haven't seen for a while.

I will start a new thread.

Offline Brambledog

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Re: Lost, Depressed - need help
« Reply #43 on: October 15, 2012, 08:54:55 AM »
A new thread for your tibial transfer question will hopefully bring some answers fairly quickly...fingers crossed.

I've never been to Newcastle, it's a long way from us here in the south midlands! Is it nice there? Good to meet up with friends you've known for years, must have been lovely to relax and chat a bit, especially if it was over a pint... ;D

Have a good day. It's blinkin' freezing here brrrr, well it feels freezing but is actually about 6*C, warm as toast compared to some temperatures we've had over the last few years!!!

Brams  ;)
2009 - diagnosed coeliac
Aug 2011 - L knee arthroscopy
Aug 2011 - diagnosed PF arthritis L knee
Nov 2011 - diagnosed CRPS L knee
Dec 2011 - MRI R knee, PFOA is worse than L!
June 2012 - no surgery 'til TKR's
Nov 2012 - CRPS spread to L foot/thigh, increasing pain
- Worsening pain/symptoms R knee
;-)

Offline thommo404

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Re: Lost, Depressed - need help
« Reply #44 on: October 18, 2012, 01:12:27 PM »
Hey Brams I am in Australia so that is Newcastle just north of Sydney.  lol


Well I had to see an Occupational Therapist this afternoon for work and he writes a report that goes along with the independent surgeon I saw last week.  He was ok and said he was to write a report on how long he thinks before I can go back to pre injury duties if at all.  He said not alot he can say at the moment.


Funny thing was I ran into my surgeon in the carpark and said hello.  I mentioned the tibial transfer that the independent mentioned and he said no that won't be needed.  He said that is more for instability and mal alignment which I don't have now cause of the MPFL.  So he said just wait till Thursday next week after the second opinion.

Really over it.  Had a big fight with my wife tonight.  She is really starting to feel it.  Having to do so much.  She does everything as well as working fulltime.  But this was a big fight.  Hope all is better in the morning.  I am sleeping on the lounge.

Good Night,

Thommo















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