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Author Topic: So upset  (Read 1337 times)

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Offline k66yla

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So upset
« on: May 28, 2012, 05:02:51 PM »
I've just been up the hospital to get the results of my MRI. Did'nt even get to see the Consultant who promised me he would sort my leg out instead I saw one of his registrars. Got told that nothing showed up on the MRI except a bit of wear and tear and scar tissue. He said nothing could be done, so I said basically you are saying I've now got to take Ill Health Retirement from my job and he said 'yes'.  :'(
I said to him about the problem I've mentioned to everyone over the process of the past 3 and half years about something in my leg going 'ping' when I fell over and no one ever taking any notice of that. So he had a look and said that is a muscle that stretches from your thigh to the top of you shin and you've a build up of scar tissue there and we can't fix that. So basically I'm stuffed, can't walk far without pain/catching and sometimes locking up and driving a manual I can manage about 2 miles before it gets uncomfortable. Don't think I can go through the rest of my life with this. He did'nt even mention the hip problem the consultant promised to xray if there was nothing found on the MRI. Sorry to go on but I'm just so upset with all this.
and to top it all my solicitors have failed to put my name on the court list for my injury claim and the 3 years is up.
Don't think things can get much worse at the moment.
April 83 - Right Knee Trauma
             2 Broken Wrists
1999    - Lateral Release Left Knee
Nov 10 - Anterior HornTear & Parameniscal Cyst Athroscopy Left Knee

Offline Maverick

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Re: So upset
« Reply #1 on: May 28, 2012, 06:05:19 PM »
What kind of Dr. have you been seeing?  If you have not been seeing a knee specialist, I recommend seeing one.  GP's are very good but sometimes you need a knee specialist to diagnosethe real issue.  You can have your current x-rays and MRI's sent to he/she for analysis and not incur additional cost.

Best of luck!
1976 Arthoscopy, damaged cartilage
2007 Lateral release of the patella
2011 Meniscectomy and microfracture (grade 4)
2012 Debridement / Chondroplasty
2013 CRPS left knee

Thank you, Maverick

Offline tez27

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Re: So upset
« Reply #2 on: May 29, 2012, 05:49:22 PM »
Hi k66yla
sorry your not getting any help from your doctor but I can understand exactly how you feel, when I had my first MRI it came back with a bit of wear and tear  and nothing else, and it was only when my OS decided to do a scope that it was discovered that my ACL was ruptured, since then I have had my ACL reconstructed, unfortunately I was still having trouble with the knee so I had another MRI which again showed up  wear and tear and some grade 3 arthritis,  my OS decided to go give me another scope to clean up some of the damage only to discover that the ACL graft had failed and I am now waiting a date for a revision, I really don't think MRI's are very good at finding a problem, if I were you I would go back and keep going back until your Doctor takes another look, most folk dont want any kind of surgery, but in my case it was the only way to find out what was going on.
Be a pest and keep going back until someone does something to help you.
Let me know how you get on
Take care Tez
L K injured 25th June 2008
scope Jan 5th 10
diagnosis ACL rupture
fiberous band excised from acl
ACLr July 19th 2010  scope on 24th Sept 2011
ACL has failed incorrect tunnel placement
23rd July 2012 1st stage of a 2 stage ACL revision
10th May 2013 2nd stage ACL revision

Offline dm

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Re: So upset
« Reply #3 on: May 30, 2012, 04:04:26 AM »
Hey, chin up! Just because one doc blows you off, don't take no for an answer! They may just be a general ortho, and may not know enough about knees to be able to help, so they're telling you to live with it to get you to go away. That's not the answer. 

Take a day or two, catch your breath, do something for you - see a movie, have lunch with a friend, buy a new book to read or something, don't think about it for a day, and regroup.

Then, when you've had a sanity break - do some homework. Find out who the docs are within 200 miles of you who are knee specialists. See if there's a teaching hospital near that you can ring up and ask for a recommendation - they often know "who's who" in the area for certain issues. Then find out what it'll take to go and see one of the top 3 or 4 people you find that are suggested for what you've got going on, given that the guy you've been seeing is at a loss for what to do.

Seems to me that you should at least be able to get an opinion from someone who's never seen you and get a fresh take on the subject. That's what I did... and decided against another surgery that, in the big picture, wasn't going to do much for me anyway. If i have another surgery - it'll be the "big one" - a new knee.
multiple arthroscopies 2/00,3/01,6/01,1/03, 12/07,10/10. chondromalacia, severe medial joint space narrowing following 3 partial menisectomies, chronic pain problems, kneecap problems, OCD lesion, failed mfx.

Offline LAS

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Re: So upset
« Reply #4 on: May 31, 2012, 02:45:58 AM »
Dear So Upset: Get at least 3 consultations and make sure you have a good Orthopedic Surgeon.   It sounds like the Dr. you have seen is not.  If you having that much trouble something needs to be fixed.     Good luck and let us know what the end result is.   LAS

Offline k66yla

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Re: So upset
« Reply #5 on: June 02, 2012, 06:44:18 AM »
Hi all,  I've calmed down a bit now. Still not happy with the situation, thanks for all your kind words.  I sat down the day after and wrote to the Consultant. I had a bit of a moan about his Registrars attitude then about not being given any information. I have asked for a 2nd opinion and also a  copy of the appointment notes and MRI scan. I need to get some sort of prognosis otherwise my employer will want to Ill Health Retire me. Hopefully the Consultant will respond soon.
April 83 - Right Knee Trauma
             2 Broken Wrists
1999    - Lateral Release Left Knee
Nov 10 - Anterior HornTear & Parameniscal Cyst Athroscopy Left Knee

Offline k66yla

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Re: So upset
« Reply #6 on: June 04, 2012, 06:23:49 PM »
Just wondering..........my injury is more symptomatic whilst weight bearing, ie the sharp pinching pain and constant clicking with every step. Would this type of problem be picked up on an MRI? as obviously I'm not weight bearing.

I've been through issues like this before, it took 23 years for them to believe I had a problem with my knee in the past, nothing was picked up on xray. It was only when the OS done a scope that he realised my knee was'nt tracking properly and I had a lateral release done.

I've now downloaded an app so I can log when I have a problem, like my knee locking up or catching. Also if I'm having a dodgy hip day. Wish I had done a diary before.
April 83 - Right Knee Trauma
             2 Broken Wrists
1999    - Lateral Release Left Knee
Nov 10 - Anterior HornTear & Parameniscal Cyst Athroscopy Left Knee

Offline captainruss

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Re: So upset
« Reply #7 on: June 04, 2012, 06:57:15 PM »
K,

What was the diagnosis that lead the the LR?  When was the LR?  What was the outcome of the LR?

OS's are available.  You need to take the bull by the horns and start seeing specialist until you find one that can make sense of what is going on.  The time you have waited is very long.  If you do not get the information you need, see another one.

Whatever you do, do not see a General Practitioner.  You need to look at Orthopedic Surgeons and those with Patella Femoral Experience.

I am not sure where you are, but the moderator is from the UK and would have a list of good surgeons.  Send her a message and ask for help.

Whatever you do, do not give up.  Remember, they work for you and if you do not take an active role in your health care, no one else will.

Russ
80 Shattered patella 5 surg
09  TKR 
09  MUA
09  MUA
09  Knee infected??
10  TKR  Scar Tissue
10  2nd OS  Diagnosis Infection
10  TKR with antibiotic spacer, no joint
4/11  TKR
11  TKR PT
11  TKR
11  TKR  AF diagosis
12/11  HO diagnosed
2012  Intractable Pain
2012  OS split
amputation possible?

Offline k66yla

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Re: So upset
« Reply #8 on: June 04, 2012, 09:41:47 PM »
Hi CaptainRuss
I'm in the UK and was referred to an Orthopaedic Consultant but last week got to see his registrar because he was away. It was the registrar who told me nothing more could be done, scar tissue blah blah blah.

The LR was done back in 1999 and had no more trouble with my knee until I fell over in Jan 2009, got sent to Physio etc on and off for 2 years until they decided to do an MRI then realised I had a tear to the Anterior Horn of my Lateral Meniscus and a cyst. Had operation in Nov 11 to remove the tear and cyst. To be honest I've had nothing but problems since then. When I got re-refered a couple of months back to the OS he said 'why did'nt I come back before', told him I did but got sent packing by one of his colleagues.

Wonder if all this has knocked my knee out of line again  ???
April 83 - Right Knee Trauma
             2 Broken Wrists
1999    - Lateral Release Left Knee
Nov 10 - Anterior HornTear & Parameniscal Cyst Athroscopy Left Knee

Offline dm

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Re: So upset
« Reply #9 on: June 04, 2012, 11:46:59 PM »
have they done the xrays where they take the image with your knee bent about 90 degrees and they put the camera below the knee and have you hold the film plate over your thigh, and see where your kneecap is tracking? If not - ask for it. they sometimes call it a "skyline" view. that can show if your kneecap is way out of whack and sitting weird.

If you've got pinching/clicking, I'd see about getting a physio to document that you've got problems and back up the need for an ortho to look at things. Nothing like having someone else say they too think you have a problem. If nothing else, they might be able to suggest some things you can do to help keep your muscle strength up and help with the pain etc while you fight the system for another opinion.

Then you can say you're doing all you can, and are following orders, and aren't just whining....especially if you get another person like a physio to agree and them to refer you back too. Can't hurt to ask your gp for a physio referral for an eval and get their opinion... it's ammo in your corner especially if they see it your way!
multiple arthroscopies 2/00,3/01,6/01,1/03, 12/07,10/10. chondromalacia, severe medial joint space narrowing following 3 partial menisectomies, chronic pain problems, kneecap problems, OCD lesion, failed mfx.