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Author Topic: yc_angel MPFL recontruction Left knee 5 April 2012  (Read 28717 times)

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Offline yc_angel

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yc_angel MPFL recontruction Left knee 5 April 2012
« on: March 26, 2012, 12:22:51 PM »
Hey everyone,

I'm so totaly new here and if i'm posting this in the wrong area please be so kind to show me where it does belong.
I'm a Dutch girl 23 years old and i am so glad i found this forum seeing as in my own country there isen't much of a forum for this.
All your stories have realy been helping get prepared for thats to come.

My surgery is set for 5 April 2012....thats like next week already :o

Anyways... my whole ordeal has been going on now for about 5 years....i had my first Patella dislocation when i was 17 turning 18....spent that birthday in a lovely cast. The dislocation was a severe one because my leg sort of turned outward and stayed that way. So after the paramedics drugged me up they had to manualy put it pack in...wich no amount of drugs could have prepared me for. Seeing as it was my first time they just took some X-rays and told me i had an unfortunate fall and that i was hypermobile...

I always knew i could bend far more that my other friends but it was the first time i heard that term. The docters then did not perform a CT or MRI but they just gave me a cast and sent me home to recuperate and start PT. I did that and finished it but about 3 months later i had my first subluxation....thats where it goes out only half and comes back on its own. This has been happening now for the past 5 years....seeing as i was young i never paid that much attention to it....it hurt like hell and would be swollen for about a week and then it would go back to normal.
It was something that just happend and i thougth i had to live with because i was hypermobile....I did PT in some of those cases and neither the docters or the therapists told me to go see a OC for advise.

Fast foward those 5 years to last december when my knee dislocated fully while i was getting up from the bus....Oh MY GOD that was scary...seriosly..i was glad it went back in on his own but it was a good 20 minutes before i was able to walk again....In my mind it wasent that serious at the time but as the day progressed my knee swelled up to about twice it size and that's when my mom took my to the emergency room. They did some tests, i could barely bend it and told me to go home ice it and hope the swelling goes down a bit and to call my GP on monday because due to the swelling they couldnt do anything. 3 Docters later i requested to be sent to a specialist....and that's how i came to meet my OS.
He took one look at me and gave me a brace to put on then and there....and next thing i knew i was off to have an MRI so he could acces the damage.
I was told to walk on crutches and wait on the results.

Boy was i so not prepared for the results.....it turns out i have a birth defect called a Patella alta and that on top of that my patella is twisted so it does not fit properly into the grooves....wich is where my knee instability stems from. The MRI showed that one one side of my knee I had tendon that was too long and on the other side i had one wich was damaged...He offerd me 2 choices...wel they werent really choices but thats how he saw it....
My course of threatment was 3 months of PT and if in those months i did not get better he would have to perform surgery.

* The thing that i find weird is that noone ever told me i had an patella alta...wich he said was totaly obvios and that it could be seen on the X-rays taken 5 years ago. Meaning they could have helped me along time ago if someone would have just said something to me...it wasent even writtin in my medical file....Thus all my PT sessions where invain because they werent realy adressing my problem... >:(..sometimes i just wish i could go back and smack those people...for causing me more pain that i had to be in these last few years ::)

3 Months have gone by and strengt wise i would say my knee is stable but i had 3 subluxations in those months that kept me from getting optimal results with my PT. Also due to my knee being instable and I not being able to do much my right side has been working twice as hard wich ment my back started flaring up....wich in turn made me have to go to another therapist specifacly to my back.

The both wrote letters stating that my knee would not get better after they tried medical taping, different braces etc...so that it was time my OS considerd other measures.

I had my visit with him last week 19th of march and he decided that the best course of action right now is an MPFL reconstruction. 2 days later i was called by the clinic to book my OR and the date is set for 5th of April 2012.

I'm nervous but also relieved they are going to help me.....I'm to damn young to be walking around with a knee that keeps giving out and hinders me in my everyday life.

I have some questions and i hope someone can answer them.
When i read many of your post op dairies the words : PROM, ROM flying around and i was wondering what those terms are...seeing as they might be different in dutch..

I already know that i must rest for about 4 to 6 weeks and that i will be on crutches that whole time....i also got a wheelchair so that if i go somewhere that i have to walk a long distance my mom of friends can help me if i get tired....I also write down some tips from you guys like freezing bottles in the freezer and stuff.

And now I'm just counting down till next week.. :P

Xx

Angel ;)
« Last Edit: March 26, 2012, 07:59:46 PM by yc_angel »
"Surgery is a trauma in and of itself and once it's over, the real healing begins. It's called recovery. Recovery is not a team sport. It's a solitary distance run. It's long. It's exhausting. And it's lonely as hell."

23 years :D
07/06/2007 1st Patella dislocation
5/04/2012 MPFL reconstruction

Offline LoosePatellas

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Re: yc_angel MPFL recontruction 5 April 2012
« Reply #1 on: March 26, 2012, 05:42:24 PM »
I'm sorry about your dislocations - I've been there and know how painful, frustrating, and embarrassing it all is. Just this morning, I had my second MPFL (I had the right knee done last year, and today the left knee). So you're right behind me! Keep us posted on your surgery and read my diary from last year if you're wondering what recovery might look like. Good luck - you'll be fine!!
Unstable kneecaps, dislocations since age 6
1992: Arthroscopic Surgery on right knee to remove loose body
No dislocations from 2005-2010
Three dislocations in 2010
RK MPFL Reconstruction schedule for 1/3/2011!!!

Offline yc_angel

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #2 on: March 26, 2012, 08:05:18 PM »
Wow both knees...thats tough ....I hope you feel better soon..Hows the pain now after the surgery?...
I will defenitly read your dairy from last year....basicly i'm reading everything to inform myself....Today I got my crutches repaired and also rented my wheelchair with a leg extension.....all I'm waiting for this week is my suplies to pimp my crutches....If i'm going to spend the spring in them they might aswell look nice and cheery....lol  ;D
"Surgery is a trauma in and of itself and once it's over, the real healing begins. It's called recovery. Recovery is not a team sport. It's a solitary distance run. It's long. It's exhausting. And it's lonely as hell."

23 years :D
07/06/2007 1st Patella dislocation
5/04/2012 MPFL reconstruction

Offline kellykyestee

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #3 on: March 26, 2012, 11:00:51 PM »
Hi I am gong through the same surgery but mine is booked for this friday the 30th March and then the left knee will be done around september sometime depending on this recovery :( I also have read loads on here today and i feel highly unprepared. I am going to order a tens machine and start freezing fome bottles. Is there any other tips anyone knows of.

Ill tell you a bit about my experience and maybe we could go through it together lol.

Im from England and I am a single parent to my son who is 4 and my daughter who is 7 months. It was due to my daughters pregnancy that this is happening to me.
I have never previously had any problems with my knees. 3 months after giving birth my knee dislocated in as i was walking with my son in a car park. Ambulance came with gas and air and put it back into place and took me to hospital for xrays then sent me home to recover.
3 weeks later i had a friend round for a drink and a chat on the evening now being able to walk unaided again and within 5 mins i went to pick my daughter up out of her moses basket and the other knee went and i fell to the floor with her. Same happend ambulance came went to hospital but this time was told to come back following day to see specialist. He refered me to have an MRI scan to see whats happening for the results to say i have shallow knee grooves which must have been caused due to a disagreement my body had with the female pregnancy hormone. (this was decided because i had other probs to conclude this during prgnancy) that all happend back in december. I am still unable to walk unaided and cant fully straighten either leg. but my OS will straighten it for the surgery while im asleep during the op. on friday.

I am beginning to get very nervous especially as i have 2 children to look after while going through this pain. so any advice anyone can give on how best to handle it. whats the best drugs/techniques. how long is it excruciatingly bad for? etc.

Hope all goes well for you angel

thanks kelly xxx

Offline Amy29

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #4 on: March 26, 2012, 11:46:06 PM »
I have some questions and i hope someone can answer them.
When i read many of your post op dairies the words : PROM, ROM flying around and i was wondering what those terms are...seeing as they might be different in dutch..


ROM means range of movement ie. how far can you bend/straighten your knee etc and PROM I think means progressive range of movement.

Hope that helps  :)
2003 - Arthroscopy/Menisectomy L knee
2004 - ACL Reconstruction L knee
2012 - Arthroscopy/Microfracture L knee

Offline allyd

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #5 on: March 27, 2012, 12:30:01 AM »
ROM = Range of motion/movement
PROM = Passive Range of Motion - some PT's/doctor's will measure both Active and Passive motion. Active is how far you can bend your knee unassisted, Passive is assisted (i.e. use of gravity, towel, another person)
04/09 RK - Dislocated Patella & Grade III MCL Tear
06/10 RK - Re-Dislocation Patella
09/11 RK - MPFLr + Lateral Lengthening

Offline oohheykate

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #6 on: March 27, 2012, 01:57:41 AM »
Are you having anything else done? Like a TTT (also known as a TTO or AMZ)? If you have patella alta, that could be contributing to your frequent dislocations and the stretched out MPFL could be a secondary cause from your hypermobility and from subluxing/dislocating so much.

Good luck with your sugery though! My one year anniversary is coming up for my MPFLr. I had mine done on April 14th, 2011. I don't regret doing it all. My kneecap is more stable than it has ever been.
-18 years old-
Left knee;
11.07.08- Scope
07.02.09- Lateral Release/Meniscus Repair
11.11.09- diagnosis of Patellar Instability/Patellar Tracking Disorder
12.10.09- Medial Reefing/Lateral Release
01.11- Synvisc
04.14.11- MPFL Reconstruction
06.21.11- LOA & MUA

Offline yc_angel

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #7 on: March 27, 2012, 09:29:01 AM »
Wow thank you for the kind words ;D....
I suppose the only thing i'm mainly worried about is the pain.....i have a high pain treshold but the way my OS was talking he made it sound like it would be totaly horrible.... ???

But my defenition of horrible could be different....i suppose i could say i'm no stranger to it....last year september...thats about 6 months ago i had a breast reduction now that was painfulll :o...and everything turned out great....so in my mind I'm kind of relating this experience to that...and hoping it will all be alright in comparison...

@ kellykyestee

I'm so sorry you have it at both knees...that seriosly annoying...and on top of that you have the care of your kids...is anyone helping you with that?
The only tips i have i got from this forum....like a shower stool and icing with the bottles, remember to follow all instructions to the T even if it kills you...lol...things like that....I'm happy to have a recovery buddy so we can relate to things happening during our healing time....wich is nice ;)

@ Allyd & Amy29

Thank you for explaining the terms....i'm sure i left a few out i dint quite get but I'll manage ;D

@ oohheykate

I'm not having anything else done...my main problem right now is that due to my damaged tendon and my enlarged one my knee it totaly unstable....so my surgeon is not rulling out an other surgeries but for the time being he is going to fix the main issue and hoping that it will be enough...I have 2 patella altas you see...the one on the left wich is a pain in my behind and the one on the right wich for some reason it totaly strong and healty....And I'm totaly happy about that...so for me its a kinds of wait and see....
It's my first knee surgery ever so i'm just hoping it will also be my last and everything will go alright...

You are now a year PO...how is everything....were you able to play soccer again and do everything again?....I'm like half way trough your journal :P

Xx

Angel
"Surgery is a trauma in and of itself and once it's over, the real healing begins. It's called recovery. Recovery is not a team sport. It's a solitary distance run. It's long. It's exhausting. And it's lonely as hell."

23 years :D
07/06/2007 1st Patella dislocation
5/04/2012 MPFL reconstruction

Offline kellykyestee

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #8 on: March 27, 2012, 11:23:39 AM »
Hi angel.
Yes I have carers provided by my local council who come round 3 times a day for 30 mins each time, to get my children up and dressed in the morning. give my son lunch at noon and then to do tea and put him to bed at evening. but im with them alone inbetween those times so fingers crossed i recover relatively quickly.

Also had the bad news that because it was pregnancy that done this to me Ive be stronglyadvised by my consultant not to have any more children :( 

I think i have a high pain threshold to but I suppose we will soon find out if this is true lol.

Ive asked my mum to get me a few bags of frozen peas as i thoiught they would mould around it better? I am going to take meds even when theres no pain so it keeps it at bay. I dont know what meds il have though. people who write on here from america seem to have percocets i dont know if that is given here or not?

Tips I have found is that apparently a tens machine works quite well so i think im gonna order one of them, also when it comes to starting to bend it apparently a heat pad relieves it a bit to help bend it.

Kelly
xx

Offline yc_angel

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #9 on: March 28, 2012, 12:20:52 AM »
Yeah totaly....it was the same when i had  PT before...a heatpad would always help..

Also a tip to consider....it putting your alarm for when its the middle of the night to take the pills before the awefull pain hits you when you wake up....i would not like a rude and unpleasent awekening with pain....so i'm gonna do everything to prevent that.. :)

Glad you have help....my family and friends have created a sort of shift system for the next 2 weeks so that i always have someone home to help me if i need to and also help with the food and stuff.

I'm a very hands on person and i love to do everything myself...so it will be dificult letting things go and having others care for me..
When i had my other breast reduction done i was a difficult patient for a while for  the people at home...lol i just had to learn to relax and leave things alone...so i think i'll manage although my mind would be in overdrive sometimes.. ;D

XX

Angel
"Surgery is a trauma in and of itself and once it's over, the real healing begins. It's called recovery. Recovery is not a team sport. It's a solitary distance run. It's long. It's exhausting. And it's lonely as hell."

23 years :D
07/06/2007 1st Patella dislocation
5/04/2012 MPFL reconstruction

Offline oohheykate

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #10 on: March 28, 2012, 02:14:55 AM »
Love your Grey's Anatomy quote in your signature! It's my favorite quote ever.

I hope my diary isn't scaring you too much! That was my fourth surgery so complications and set-backs were expected. My knee is feeling great for the most part. I still have pain but it's so so much better than it was before. I don't have any regrets about doing this surgery. My kneecap is very stable. Unfortunately, I have not be able to start playing soccer again because I hurt my hip while in PT last summer and I need surgery to repair a tear in my labrum. My other knee has also been unstable since December 2009 so I'm trying to figure out what to do for that. My OS did tell me if it wasn't for my other knee and hip, I would be able to play and I do feel like I could play on my knee.
-18 years old-
Left knee;
11.07.08- Scope
07.02.09- Lateral Release/Meniscus Repair
11.11.09- diagnosis of Patellar Instability/Patellar Tracking Disorder
12.10.09- Medial Reefing/Lateral Release
01.11- Synvisc
04.14.11- MPFL Reconstruction
06.21.11- LOA & MUA

Offline yc_angel

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #11 on: March 28, 2012, 09:56:06 AM »
Well I'm no stranger to surgery trough out the years...I've had about 3 done in the last 5 years....and I'm only 23...so thats allot.
All of them were necesary.....lets see....my 1st one ever was the removal of 2 benign tumors in my breast that kept growing at an alarming rate and my second was the removal of some nose cartilage that was getting in the way of me breathing normaly...because of the narrow pasage i kept getting sick all the time because of the fluid build up in my face.....lol thats when i got my first CT ever and they found out i only had one sinus hole in my forehead...so a birth defect....and my third was my breast reduction...wich is where they took about 1,6 kilos of exes breast tissue off.....it was a total relief...

And trough all that grey's anatomy has been like my go to show for everything.....all the medical stuff made me laught and the drama made my cry....and i love their quotes...

So since this my 4th surgery ....i not scared of anesthetics or anything but i sort of want the relate the kid of pain i'm going to have and i cant....and thats making me nervous...

No your dairy is very informative kate and it's made me decide to push myself no matter what for PT...so i dont ever have to get a MUA...lol that was the only scary bit i found in your journal...haha....
Did your OS inform you of the posibilities for your other knee and hip?...When are you getting surgery done on your hip

Xx

Angel
"Surgery is a trauma in and of itself and once it's over, the real healing begins. It's called recovery. Recovery is not a team sport. It's a solitary distance run. It's long. It's exhausting. And it's lonely as hell."

23 years :D
07/06/2007 1st Patella dislocation
5/04/2012 MPFL reconstruction

Offline kellykyestee

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #12 on: March 28, 2012, 09:20:11 PM »
Good tip thanks, i will do that as i wouldnt like a painful awakening euther.

Im the same, very independant and dont like having to rely on others to the pointthat i do do alot of the stuff myself with great difficulty but there are things that i cannot do like carry my 7 month old as im using 2 crutches so we are both stuck to the sofa pretty much all day till the carers pop in for 30 mins. but we will soon be up and about, and you will to. cant believe mine is only a day away. this week has flown i havent even packed my bag yet :Z.

are you getting nervous now. do you know what pain relief you will be given.,

My tens machine arrived today too so yey! :D
xx

Offline yc_angel

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #13 on: March 28, 2012, 09:43:11 PM »
@ kelly

No i dont have any idea of the pain killers...i just hope they are strong and work for a long time and dont give me side affects...lol..cuz thats a posibility 2....

Did you get your shower stool?

Whats a tensmachine?....is that like a cpm machine?
"Surgery is a trauma in and of itself and once it's over, the real healing begins. It's called recovery. Recovery is not a team sport. It's a solitary distance run. It's long. It's exhausting. And it's lonely as hell."

23 years :D
07/06/2007 1st Patella dislocation
5/04/2012 MPFL reconstruction

Offline oohheykate

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Re: yc_angel MPFL recontruction Left knee 5 April 2012
« Reply #14 on: March 29, 2012, 12:56:18 AM »
I guess we both had a lot of surgeries. All of my five surgeries were on my left knee within three years.

The pain afterwards was always what made me nervous, also. Just because you never know what to expect. Take your pain meds on a schedule for the first few days even if you don't feel like you need to then wean off of them if you feel like you can. I was on Vicodin and Tramadol for a few months because I had my MPFLr while I was in school.

I'm glad my diary didn't scare you that much! And surprising, the MUA was one of the easiest parts of that recovery. It helped me gain so much ROM and made PT way easier than it was.

I find out on Tuesday (April 2nd) what's going on with my knee. My knee OS wanted me to get my hip fixed before we even thought about surgery for that knee so I know surgery is off the table for now. And my hip OS is planning my surgery for late June because of school.
-18 years old-
Left knee;
11.07.08- Scope
07.02.09- Lateral Release/Meniscus Repair
11.11.09- diagnosis of Patellar Instability/Patellar Tracking Disorder
12.10.09- Medial Reefing/Lateral Release
01.11- Synvisc
04.14.11- MPFL Reconstruction
06.21.11- LOA & MUA















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