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Author Topic: Right knee maltracking/dislocations, consultants unsure, please advise  (Read 1344 times)

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Offline Sophiejo1990

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Hi,

I was wondering if any of you could help me as I having been suffering with problems with my right knee since November and the doctors seem to be at a loss as to what is the matter.

November: Bent doen to take off shoe and my knee locked at an angle, I had to manipulate it back into place. The next day the fracture clinic said I had a mcl sprain and put me in a leg brace until the January.
January: Started regular physio to strengthen leg muscles and to start to bend the knee again.
March: Knee partially dislocates when walking through the street, A&E put me in another donjoy leg brace for 6 weeks and ordered more physio and an MRI
April: MRI completed and came back all clear so therfore all previous diagnosis's were no longer valid
April - July: Intense physio sessions to lengthen muscles
August: Phyiso discharges me and said I am suffering from pateller maltracking at 70degrees, this therefore is causing all the pain, referred to surgeon. One week later my knee cap partially dislocates (moved to the right by about three inches then jumped back into place), fracture clinic said that looking at my x ray I had a high riding knee cap which they would surgically reallign, placed in a pot for a week. One week later pot taken off, I saw a different consultant in the fracture clinic who said my knee cap is in the right place and doesn't need to be realligned! He said that because my MRI was clear he didn't think anything was the matter with me and that is why I have seen 7 different doctors because non of them no what is the matter. Only due to my persistnce he offered a diagnostic arthroscopy which I am currently waiting for.

Has anyone had any similar experiences, I know that I am not "imagining" the pain, I now have to walk with two crutches and in constant pain. Sometimes it feels like I have air bubbles in my knee.

Any advice/knowledge/tips are welcomed.

Thank you,,
Sophie

Offline allyd

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Re: Right knee maltracking/dislocations, consultants unsure, please advise
« Reply #1 on: September 07, 2011, 05:20:31 PM »
It sounds like you are having a continual problem with your patella tracking incorrectly and subluxing/dislocating as well. The cause of this can be a lot of different things and getting to the root of it seems to be the most important thing. Also ask about “patella Alta” as this could be what they are referring to in re: “high riding knee cap”

Overall, just make sure whoever you see has an understanding of Patella issues and various ways to correct. That’s the most important thing I’ve taken away from these boards. A lot of people have posted here with similar stories, and the solutions vary for each individual depending on the cause.
04/09 RK - Dislocated Patella & Grade III MCL Tear
06/10 RK - Re-Dislocation Patella
09/11 RK - MPFLr + Lateral Lengthening

Offline WonkeyDonkey

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Re: Right knee maltracking/dislocations, consultants unsure, please advise
« Reply #2 on: September 07, 2011, 10:54:58 PM »
Hi Sophie

With any luck you will find out the cause with the arthroscopy, at least they will have a good look inside your knee.

I had problems for 18months with lots of different physio's and each one seemed to diagnose something different, give me different exercises etc. I was told my patella was maltracking, had it taped up four times, which gave some relief but only short term. Even my mri scan was inconclusive. I chose a very good OS and, with my arthroscopy I found out most of the problem was grade 4 OA, for which I am waiting for an op, hopefully in November.

What I am trying to say is don't give up hope, just because nothing shows on the mri scan, doesn't mean anything. Make sure you keep up with your pain relief, as this is important. Do you use heat and ice packs as well? Find a doctor/OS that you trust and feel comfortable with. I searched for mine on the internet, but was lucky to have 4-5 hospitals within 15 miles of where I live to start my choice from.

Let us know how you get on.

Offline Sophiejo1990

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Re: Right knee maltracking/dislocations, consultants unsure, please advise
« Reply #3 on: September 08, 2011, 01:18:43 PM »
Hi Allyd and Wonkeydonky

Thank you to you both for responding to my post.

Your information is very helpful and has cheered me up no end, sometimes I feel like I'm the only one but your posts have helped me realise that I'm not which makes me feel better.

I also tried the patella taping with no luck, I think my physio said "we have tried every conservative treatment imaginable".

The hospital made two referrals for me by accident, one of which is to see a private surgeon at a private hospital tonight. I have letters confirming that any treatment I require will be funded for. I am hoping that this surgeon offers a arthroscopy also as I have been told it will be middle of December bfore I can have it looked at on the NHS.

I have had some bad experiences with all the different doctors and consultants, I am hoping that the surgeon I see tonight is a bit more understanding and willing to help, if so I will request treatment with him. I think when you have any kind of injury that may need surgical help it is really important for some sort of relationship to be built up between the surgeon and patient.

I will post again tomorrw and let people know what gets said tonight

Thanks
Sophie

Online Vickster

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Re: Right knee maltracking/dislocations, consultants unsure, please advise
« Reply #4 on: September 08, 2011, 08:45:15 PM »
Where in the UK are you?  Is the specialist a knee doc rather than a general ortho?  If you want more info, see if he is in the OS list in the info hub :)

Hope it went well this evening, good luck :)
Came off bike onto concrete 9/9/09
LK arthroscopy 8/2/10
2nd scope on 16/12/10
RK arthroscopy on 5/2/15
Lateral meniscus trim, excision of hoffa's fat pad, chondral stabilisation
LK scope 10.1.19 medial menisectomy, trochlea microfracture, general tidy up

Offline Sophiejo1990

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Re: Right knee maltracking/dislocations, consultants unsure, please advise
« Reply #5 on: September 14, 2011, 10:04:59 PM »
My appointment to talk with the surgeon was cancelled but booked back in for the 27th September. I managed to go down to one crutch at the beginning of the week but then pain level increased so back on two :(

Paracetamol and ibroprofen no longer working so I've got an appt for gp for pain relief.

Kinda feeling alone now with this problem, I''m not aloud to do physio at the minute but at least when I went I felt that someone was trying to sort me out. Hopefully my GP might have some suggestions for me x

Offline WonkeyDonkey

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Re: Right knee maltracking/dislocations, consultants unsure, please advise
« Reply #6 on: September 14, 2011, 10:47:37 PM »
Hi Sophie

Don't feel alone in your knee problems, we all have stories to tell. Turn to knnegeeks and a new world of friends who understand what you are going through are here online. There is also a wealth of information on this site, use it, and try investigate your options as well.

One of the important things to get sorted is the pain relief, your GP will help with this. My GP doesn't bother to see me anymore, just writes the prescriptions.

Keep insisting that you see a new OS, one that specialises in knees or someone to help you. Nowdays you can choose to a point who you see, I searched all the hospitals in about 20 mile radius, and chose my OS rather than the NHS chosing for me. I am pleased with my OS, and you should have confidence in them, as they are in control of what happens to your knee! If you have an arthroscopy privately, it would set you back about £3.5k, plus any extras but you can choose when you have it done.

Keep positive and have a good knee day (they do happen).

WD