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Author Topic: DENERVATION SURGERY  (Read 2003 times)

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Offline marco4432

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DENERVATION SURGERY
« on: August 19, 2011, 08:07:50 AM »
Will be having surgey in a few hours, with Dr TOLLESTRUP in Vegas who traind with Dr Dellon, I heve had chronic apain for the last two years for torn meniscus Os says its fixed but pain is just getting worse last chance for me if surgery does not work then i give up  cant take it anymore, any one had this surgery PLEASE CONTACT ME i CANT TAKE PAIN ANYMORE READY TO GIVE UP,APPARTENTLY THERE IS ONLY A HANDFUL OF DR IN THE US , who can perfom this procedure, thanks for your help and consideration


Marco
R Knee Arthospic  06/01/2010, partial lateral menisectomy synvisc injections
Start of dibilitating pain after operation
Ri knee Arthosopic Meniscus tear 03/13/11
partial lateral menisectomy synvisc
 Nerve Surgery09/15/2011Right knee
12/23/11 CT scan nerve block
02/29/12 2nd failed nerve surgery

Offline subwayknees

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Re: DENERVATION SURGERY
« Reply #1 on: August 19, 2011, 07:35:45 PM »
Marco,
God Speed, please keep us posted.  I called Dr. Dellon's office last year and spoke with his nurse and exchanged emails with him.  I was willing to spend the somewhere close to 25$K for the surgery since he did not accept insurance, however I was nixed by several other doctors one at Hopkins who in my case felt that while it may relieve my pain, it would do nothing for the stability of my leg.
Like you I can't take much more,  I have even looked into amputation.  I presently take close to 500mg morphine daily and today, after seing my pain doctor yesterday I cannot even get from my bed to my wheelchair without pain going off the chart.  I have tried every possible pain management technique from patches, to the tems unit, methadone, oxycodine etc and although it does not help on the worst day's I get  a small amount of relief some day's with morphine if I take enough, other times like today the pain is off the chart and by noon I have taken 350mg morphine and still horrible pain.  I want to shoot myself some days, so i know where you are coming from.
In my case however after 12 surgeries and a faied replacement the ortho and physical medicine docs are afraid that with the nerves removed if I began to walk again the leg could just suddenly go out on me and I could really hurt myself.  I alread suffered an almost fatal brain hemorrhage in Jamuary 2010 from hitting my head as my knee gave out.  I was forced to cancel a revision and reconstruction while I was in a six week coma.
I am seeing two more specialists, one the team orthopedic doc for an NFL team and one at what is rated the top orthopedic hospital in the U.S., The Hospital for Special Surgery, if they like others feel that even a total reconstruction and revision will not help my pain in my case I may opt for a shot at Deneveration if I did not go for amputation.  If the prosthetic makers fell I could still get about with a prosthetic leg at 66 and learn to walk I would go that route, otherwise I would try what you are doing and just stay in my wheelchair or scooter.  I will do anything to be pain fre.

I pray that you can get relief from this new and promising procedure, but just be very careful as you must realize that while it my God willing relieve the pain it does nothing to stabalize or fix the knee itself.  But when you get to the point where you are and where I am with off the chart pain where some days you cannot even talk to others it does seem to be an option.  Thanks for the name of the doctor and the best to you.  Please keep us posted as this may be a promising tool in the fight against chronic knee pain.

Offline marco4432

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Re: DENERVATION SURGERY
« Reply #2 on: August 21, 2011, 09:06:14 PM »
Hi all,

 Had denervation surgery done on Friday knee feels sore around surgery insisions  still to soon to tell if it will work or not .I'm surprised no one else has had this procedure would love to talk to someone who might of had same surgery, guess i'll find out in the next 3 to 6 weeks, I work on my feet all day, so if I cant work i'll have no income want be able to pay for medical insurance and at 46 am not prepared to be crippled for llife, I'd rather check out, so PLEASE if any one has had this surgery pleas get beck to me

Thanks Marco
R Knee Arthospic  06/01/2010, partial lateral menisectomy synvisc injections
Start of dibilitating pain after operation
Ri knee Arthosopic Meniscus tear 03/13/11
partial lateral menisectomy synvisc
 Nerve Surgery09/15/2011Right knee
12/23/11 CT scan nerve block
02/29/12 2nd failed nerve surgery

Offline mtlady

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Re: DENERVATION SURGERY
« Reply #3 on: March 27, 2012, 11:19:46 PM »
Hi Marco,

I was wondering how you were doing and if you had good results after your surgery with Dr. Tollestrup.  Just wondering if you felt that it was worth the money.

Thanks,

Andrea

Offline marco4432

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Re: DENERVATION SURGERY
« Reply #4 on: March 29, 2012, 07:16:51 AM »
 :'( :'(

Hi Andrea,

Had 2nd Operation great for the first week then all pain came back on the second week, I think these Surgerys are a scam, started by Dr Dellon then passed down thru inexperienced surgeons, so my advice dont do it they inject you and in 5 minutes all your pain goes, surgeon says its not majic so I believed he could cure the pain, scam scam scam. I most probably end my life but before I do I will get a lawyer and do my best to reveal this bogus surgery that hospitals allow.


Marco
R Knee Arthospic  06/01/2010, partial lateral menisectomy synvisc injections
Start of dibilitating pain after operation
Ri knee Arthosopic Meniscus tear 03/13/11
partial lateral menisectomy synvisc
 Nerve Surgery09/15/2011Right knee
12/23/11 CT scan nerve block
02/29/12 2nd failed nerve surgery

Offline mtlady

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Re: DENERVATION SURGERY
« Reply #5 on: April 02, 2012, 07:05:38 AM »
Marco,

I was so sad to read your post!  I am so sorry you haven't had success yet.  But please do not give up!  Yes, maybe you should find a lawyer and explain your situation and see what can be done.  I'm sure you are sick and tired of trying to get rid of your pain and putting trust in doc after doc...I can't even remember how many docs i have seen in the past year since my knee pain started.  You've been through a lot and must feel angry and hopeless...do you have a pain management doc that you see regularly?  Have you considered a spinal cord stimulator?  I am considering that and I am currently looking for a surgeon that may be able to help me with my nerve pain in both legs (saphenous neuropathy) - but now I'm not so sure about surgery after reading about your experiences.  I hope you have a primary care doc you feel comfortable with, and hope that you (will) have a pain management doc that is meeting your needs.
There are people on this forum that care about you.

Andrea 

Offline marco4432

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Re: DENERVATION SURGERY
« Reply #6 on: May 01, 2012, 08:59:22 AM »
Hi Andrea,

sorry for the late reply have not been on the site for a month, Dr Tollestrup refered me to a pain management doc, I explained to him that my Gp Doc handles all my pain meds and that I was there to see about injections to the kee with marcaine, he was not happy that I see my GP for pain meds , but I explained to him that I trust her and do not need to prove my pain to a new Doctor, who knows nothing about me and my situation, anyway he gave me a urine test and I had to sign a contract even though I would not be recieving medications from him, any way he injected my knee not sure what with but it worked like a dream, now its starting to where off, I saw him again on the 26th April ,I was ready to have a nice discussion with him however he entered the room and said my urine tested positive for Cocaine, I told him I do NOT TAKE ANY STREET DRUGS,  he left and told me to see him in two months , wow thats it no discussion no proof I was shocked, I went to a private testing Lab and had the urine test no Cocaine found, I will send him a letter and copy of the results not sure whar good it will do.

I'm at a loss, Did Tollestrup intercede incase I sue him he billed my Insurance for 1900 bucks for pharmsuticals testing, I paid $ 39.00

I'm changing Insurance May the 1st to Cigna hope it makes a different, in the mean time ill have to find another PM doc for injections, very frustrating or very illegal ,don't now which one

Sincerely Marco
R Knee Arthospic  06/01/2010, partial lateral menisectomy synvisc injections
Start of dibilitating pain after operation
Ri knee Arthosopic Meniscus tear 03/13/11
partial lateral menisectomy synvisc
 Nerve Surgery09/15/2011Right knee
12/23/11 CT scan nerve block
02/29/12 2nd failed nerve surgery

Offline Sandy_F

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Re: DENERVATION SURGERY
« Reply #7 on: May 02, 2012, 07:12:15 PM »
I have had the denervation surgery a few years ago in Baltimore.  I actually saw Dr. Dellon but the surgery was done by one of his trained surgeons.  I had a TKR that had problems.  I had a lateral release then a partial revision but no pain release.  When they did the test the see if the surgery would help I was amazed.  It took a couple of weeks after the surgery but my main pain was relieved.  It was not a scam for me.  It worked.  I can actually feel around and find where they turned the nerve around.  My knee is still not painfree but its liveable.  I never expected a total miracle but I was hoping for a situation where I could function and thats what I got. 

I never replied earlier because I don't come to this board much.
Right knee - 14 surgeries including a fulkerson, patellectomy and finally a TKR.  Left knee - Lateral release, microfracture, TKR, then another LR, spacer replacement.















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