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Author Topic: AF Specialists in the UK  (Read 15957 times)

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Offline Rennschnecke

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AF Specialists in the UK
« on: July 09, 2011, 10:43:37 AM »
Again, apologies for not trying to search for a related posting on this topic (short of time) ...

Found this surgeon during a search for info.
http://www.spirehealthcare.com/Wirral/Our-Facilities-Treatments-and-Consultants/Our-Consultants/Mr-Robert-Harvey/

Also found a Dr who identifies arthrofibrosis as a speciality.  I suspect he is a medical Dr not an OS, but I'm pretty sure he will be able to recommend OSs that can help with a particular problem.  Look up Dr Stratton at the Wellington.
http://www.thewellingtonkneeunit.com/team.asp#n8

Hope this helps!
(Now off to a birthday party! ;D)
1/05 Ski accident: 5/05 ACLr LK; 10/06 Scope – debridement, trochlear cartilage lesion (Gr4); 12/08 Scope – chondroplasty, hematoma; 5 & 6/09 MACI patella & trochlea 'kissing lesions', ROM 0 to 80; 9/09 Scope – LOA, IPCS & patella infera; 9/10 Scope – AIR & LR.

Offline missmyknee

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Re: AF Specialists in the UK
« Reply #1 on: July 09, 2011, 07:32:06 PM »
Hi Renn

 Since 2003, I've been on the forum and during all that time, the forum has needed names of AF docs in the UK. It would be nice if I could add UK names to the AF list.

Pam
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline Rennschnecke

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Re: AF Specialists in the UK
« Reply #2 on: July 09, 2011, 10:47:47 PM »
Pam

I don't think there is any problem with adding them to the list as they have self-professed to specialising in AF in their own profiles.

I cannot endorse them in any way but perhaps people who see them can do that in time.

ATB

Renn  ;)
1/05 Ski accident: 5/05 ACLr LK; 10/06 Scope – debridement, trochlear cartilage lesion (Gr4); 12/08 Scope – chondroplasty, hematoma; 5 & 6/09 MACI patella & trochlea 'kissing lesions', ROM 0 to 80; 9/09 Scope – LOA, IPCS & patella infera; 9/10 Scope – AIR & LR.

Offline Decruz

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Re: AF Specialists in the UK
« Reply #3 on: July 21, 2011, 12:51:54 PM »
Renn,
a doctor that appears skilled in dealing with AF in London city came up in this recente thread http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=56726.0, his name is Dr.Glyn Evans.
As you're based in UK and I'm considering visiting him (living in EU is closer than going in USA where the most AF experts are based) do you have any feedback about him?
Thank you
Decruz

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Offline Rennschnecke

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Re: AF Specialists in the UK
« Reply #4 on: July 21, 2011, 01:26:26 PM »
Can't add anything beyond what other posters have said.

FYI  I am not responsible for compiling a list of experts in AF.  I came across two people in the course of my research who state that AF is part of their specialities.  I do believe that there are many excellent OSs who can help with AF, primarily with TKRs.

My personal recommendation is to seek an OS who is involved with leading edge research, eg cartilage repair, or who has advanced surgical skills (ie does work beyond standard ACLr etc) as they are the ones most likely to have experience with AF as a common complication even when things go well (i.e. not thro bad surgical management) and have the advanced surgical skills to treat this.

1/05 Ski accident: 5/05 ACLr LK; 10/06 Scope – debridement, trochlear cartilage lesion (Gr4); 12/08 Scope – chondroplasty, hematoma; 5 & 6/09 MACI patella & trochlea 'kissing lesions', ROM 0 to 80; 9/09 Scope – LOA, IPCS & patella infera; 9/10 Scope – AIR & LR.

Offline missmyknee

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Re: AF Specialists in the UK
« Reply #5 on: July 21, 2011, 04:55:47 PM »
I have the ability to add/edit names to the AF list. Until I gave Stasha the name of the former poster ,who used Dr Evans, I forgot about him. It was a couple yrs ago. The poster named Dynamite posted about her experience with him for a while, then dropped of the site.

There just haven't been any docs in the UK that people posted about and gave a name. Out of the names that are on the list, we try to have feed back from patients who used the AF doc, and were satisfied with the results/treatment. There are some names on the list , that we don't have any patient feed back. They are on there from AF articles written by them.

The name has been added  ;D

Pam
« Last Edit: July 21, 2011, 05:11:37 PM by missmyknee »
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline Decruz

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Re: AF Specialists in the UK
« Reply #6 on: July 21, 2011, 05:10:04 PM »
I have the ability to add/edit names to the AF list. Until I gave Stasha the name of the former poster who used Dr Evans. I forgot about him .it was a couple yrs ago.

There just haven't been any docs in the UK that people posted about and gave a name.

Pam


Pam, I'm not getting what you mean about Dr.Evans and the list...sorry, may you please explain it in other words?
Thank you
Decruz

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Offline Decruz

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Re: AF Specialists in the UK
« Reply #7 on: July 21, 2011, 07:11:15 PM »
Oh, now I got it...thank you Pam
I feel it's very important updating the list if a "proved" name of a new OS expert in dealing with AF came up, especially outside US (but also new OS in the US soil..) as a lot of patient through the world could then consider travelling to see a much more closer OS expert in AF
Bye
Decruz

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Offline missmyknee

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Re: AF Specialists in the UK
« Reply #8 on: July 21, 2011, 10:28:49 PM »
I would be very happy to add new names....they need to be revealed by their patients. AF is so rare that there aren't many doctors who have seen many patients or have successfully treated them. I've said all along that EU and UK don't have any AF docs. There have been several posters over years, going to docs in the UK , but did not experience successful results. This goes for Canada too. There were some former posters, such as cudos, who had no luck with Drs there. I've even brought this up to Sheila , the KNEEguru.
 
Decruz, you mentioned Dr Cross in Austrailia to one of the posters. He did his fellowship under AF Dr Flandry in the U.S.

Pam
« Last Edit: July 22, 2011, 02:02:29 AM by missmyknee »
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline Rennschnecke

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Re: AF Specialists in the UK
« Reply #9 on: July 21, 2011, 11:21:43 PM »
All OSs in the UK will have basic training incorporating the management of AF.  However, as has been said, people need to find those who have a lot of experience with AF and who have fine surgical skills.  Normally this means approaching the leading OSs, generally those who get tertiary referrals within the NHS system.  They are also those who specialise in research in cutting edge stuff, e.g. cartilage repair, multiligament repairs etc.

The main limitation remains the PT system.  As has been highlighted, surgery is only part of the story and great PT is essential for success.  I believe that in the UK the main limitation is ensuring that the PT is appropriate and to a large extent success relies on being pro-active in the way that Laurie and JakeM were.  To do this also requires a good knowledge of exercise etc.  I had a good PT, but I did work my way through many PTs at the hospital and finally got to the last 2 or 3 physios at the top of the therapy tree.  Sadly, they'll all be on maternity leave in the next three weeks.  One of them will return for two days a week only and the other will return a bit later.  The third will be absent until next year.  I think I managed to get appropriate treatment because my OS phoned the PT and stressed the therapy he wanted to be administered and he made repeated calls to the hospital.  This was necessary mainly because my OS works for one hospital and the PT was at a different hospital.  Ideally, the PT and OS would be at the same hospital for optimal treatment.

I don't know how it would work at a private hospital, but at an NHS hospital it is unlikely that anyone would get PT everyday.  I got it only twice a week when my OS was trying to negotiate three times a week.  Even this was hard won and NHS patients may only get once a week if they're lucky.  Hence, it's crucial that NHS patients educate themselves thoroughly so that they can do the home therapy to best effect.

It is quite likely that lack of success in the UK is due to the problems surrounding appropriate PT rather than having good surgeons. :(

What I've done is listed two specialists who have won grants and published on AF in the belief that they will know more about this condition than the 'average bear'.  Otherwise, I can only suggest approaching leading OSs who performed exotic procedures, e.g. cartilage repair, novel knee replacement surgery and osteotomies (particularly femoral as this is rare).  Also the OSs listed herein are likely to refer on to the most appropriate OSs for AF.

I confess, I am speaking from having an overall good experience within my network of medics and but I have also had some poor experiences with some Drs so appreciate that not everyone will have this level of service.

TTFN
1/05 Ski accident: 5/05 ACLr LK; 10/06 Scope – debridement, trochlear cartilage lesion (Gr4); 12/08 Scope – chondroplasty, hematoma; 5 & 6/09 MACI patella & trochlea 'kissing lesions', ROM 0 to 80; 9/09 Scope – LOA, IPCS & patella infera; 9/10 Scope – AIR & LR.

Offline missmyknee

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Re: AF Specialists in the UK
« Reply #10 on: July 22, 2011, 12:34:54 AM »
Here is a doctor in Rome

Pier Paulo Mariani

http://www.pierpaolomariani.it/

His AF article

http://www.springerlink.com/content/cg06885171w454x4/

Dr Lobenhoffer in Germany

http://translate.google.com/translate?hl=en&sl=de&u=http://www.sportsclinicgermany.com/index.php%3Fid%3D190&ei=PKEoTt7pK8KEtgeX5fC7Cg&sa=X&oi=translate&ct=result&resnum=8&ved=0CDcQ7gEwBw&prev=/search%3Fq%3Dlobenhoffer%26hl%3Den%26client%3Dfirefox-a%26hs%3DHtM%26rls%3Dorg.mozilla:en-US:official%26prmd%3Divns

His article

http://www.springerlink.com/content/k43l485401674236/

Dr Joerg Jerosch - Germany

http://translate.google.com/translate?hl=en&sl=de&u=http://www.jerosch.de/&ei=0aMoTpLFG4aCtgeJ9P27Cg&sa=X&oi=translate&ct=result&resnum=1&ved=0CCEQ7gEwAA&prev=/search%3Fq%3Djoerg%2Bjerosch%26hl%3Den%26client%3Dfirefox-a%26hs%3Dw3M%26rls%3Dorg.mozilla:en-US:official%26prmd%3Divnso

Article

http://www.springerlink.com/content/g3210j22h76638l0/

Dr Manuel Villanueva - Spain

http://translate.google.com/translate?hl=en&sl=es&u=http://www.miartroscopiadecadera.com/cv-villanueva.htm&ei=u6coTsXcMMTW0QG4xtTeCg&sa=X&oi=translate&ct=result&resnum=2&ved=0CCoQ7gEwAQ&prev=/search%3Fq%3Ddr%2Bmanuel%2Bvillanueva%2Borthopedics%26hl%3Den%26client%3Dfirefox-a%26hs%3D6JN%26rls%3Dorg.mozilla:en-US:official%26prmd%3Divnso

Article

http://www.springerlink.com/content/g3210j22h76638l0/

Dr Hermann Mayr - Germany

http://translate.google.com/translate?hl=en&sl=de&u=http://ocm-muenchen.de/statische/contentframe.php4%3Fcontent%3Dmitarbeiter%252Cid%253D5%252C%252C%252C2&ei=6agoTum5EMyBtgf-uuG7Cg&sa=X&oi=translate&ct=result&resnum=1&ved=0CBwQ7gEwAA&prev=/search%3Fq%3Dhermann%2Bmayr%2Bdoctor%26hl%3Den%26client%3Dfirefox-a%26hs%3DH4h%26rls%3Dorg.mozilla:en-US:official%26prmd%3Divnsob

Article

http://www.springerlink.com/content/gn932vf3ctbe5g8r/

Skutek M, Elsner HA, Slateva K, Mayr HO, Weig TG, van Griensven M, Krettek C, Bosch U (2004): Association of HLA with arthrofibrosis Arthroscopy: The Journal of Arthroscopic and Related Surgery, Vol 20, No. 5 (May -June), 2004: pp 469-473

Dr Ulrich Bosch - Hanover Germany

article page down for english

http://www.springerlink.com/content/tgj9gcbdkky41ph3/
http://www.springerlink.com/content/7v0avedqjq3m7dmm/

Dr Ejnar Eriksson - Stockholm Sweden

http://docs.google.com/viewer?a=v&q=cache:WyYzX1xwSuYJ:www.artroskoopia.ee/CVEjnarErikssn.pdf+ejnar+eriksson&hl=en&gl=us&pid=bl&srcid=ADGEEShfXfe24sXuCYBH9Xw7hPWVMU0qssWwgGshrGsxJ4zXTD0LaXUDe-B8RFiNIiFMUsAltaujk4x85P7bcRKDVvD1Yp8XFOlqnPdaTQ3qDpjgqK7gzqOpEXUmz9RnRvU1w805PBKJ&sig=AHIEtbQr9LYrsOI72IY9YX2EnDcr2zi6rw

article

http://www.springerlink.com/content/j6766g72n52327nl/

Here is a doctor I came across. Page down his bio to current research. It says arthrofibrosis of the knee

Dr Tom Loughran - Virginia Commonwealth University

http://www.orthopaedics.vcu.edu/specialties/loughran.html

Pam





« Last Edit: July 23, 2011, 05:22:33 AM by missmyknee »
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline Kaputt_Knee

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Re: AF Specialists in the UK
« Reply #11 on: July 22, 2011, 06:39:24 AM »
Dr Hermann Mayr is based in Munich at the OCM (Orthopädische Chirurgie München = Orthopaedic Surgery Centre in Munich) in the Obersendling part of town. The hospital is a part of the Sana Clinic in Plingauerstrasse, the OCM being in a spearate building in Steinerstrasse (just around the block).

He operated on my right knee in 2004 and was excellent. Whatever he did in there ended nearly 10 years of repeated cycles of operating and cleaning up. As my German was not up to understanding all the ins and outs in medical terms at that time I cannot say exactly what he did. but I had no pain or problems, my extension and flexion returned fully, including getting my heel to my butt for the first time in over 15 years. The physiotherapy was long intensive and superb.

I now have a small meniscus tear in the medial anterior horn and we are working on it with the PTs to avoid an operation. My current surgeon was one of Mayr's students. And he really emphasizes the importance of good focussed and frequent PT.

Sue  ;)
1989 big trauma R. knee - sorted
1990-2004 3ACL recons and 20+ arthroscopies -RK
3/06 LK ACL torn!
4/06 ACL recon, kneecap broken
09 &10/06- 2x meniscus trims
3/07 - Notch Plastic & Lateral Release
14/8/08 complete revision ACL plus LCL/PLC recon
6/2/09 returned to skiing! Whoopee

Offline Stasha83

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Re: AF Specialists in the UK
« Reply #12 on: July 22, 2011, 09:26:29 AM »
Hi all

I just wanted to add that I have emailed Dr Stratton (from The Wellington) to ask if he can recommend any OS's that have proven experience of AF. Will update this post if he comes back to me with any names.
June 2010 - R knee TPF & Hoffa removal
Dec 2010 - R knee- Arthrofibrosis
Dec 2010 - L knee Myxoid degeneration of meniscus
Jan 2011 - R Knee 11 steroid injections & Synvisc1
Feb 11 - MUA & LOA
June 11- Steroid inj, EMG & nerve tests
Aug 11 - MUA & LOA
Feb 12 - R Knee denervation

Offline Decruz

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Re: AF Specialists in the UK
« Reply #13 on: July 22, 2011, 12:09:27 PM »
Pam,
for the record (as part of the articles you listed talked about posterior capsular relases in AF cases) I was told by multiples doctors that this is a procedure just for severe lack of extension (like over 10°/20°), not for minimal lack like mine (missing all the hyperextension plus maybe 1°/2°).
Bye
Decruz

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Offline Stasha83

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Re: AF Specialists in the UK
« Reply #14 on: July 22, 2011, 02:25:04 PM »
Hi Decruz

I am missing about 20 degrees of extension. At this this time, I am being advised that there are other options than a posterior capsular release. Different things for different knees I guess.
June 2010 - R knee TPF & Hoffa removal
Dec 2010 - R knee- Arthrofibrosis
Dec 2010 - L knee Myxoid degeneration of meniscus
Jan 2011 - R Knee 11 steroid injections & Synvisc1
Feb 11 - MUA & LOA
June 11- Steroid inj, EMG & nerve tests
Aug 11 - MUA & LOA
Feb 12 - R Knee denervation















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