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Author Topic: Growing more & more concerned...  (Read 10320 times)

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Offline Jennie

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Re: Growing more & more concerned...
« Reply #15 on: October 04, 2003, 10:25:24 PM »
I just wanted to add along with everyone elses opinions that a second opinion does sound like a good idea. When I had my first surgery and my knee didn't feel right I was talking to my pt and my pt and os are all in the ame office, so they said to get a second opinion from another os in the same office but not to call it a second opinion b/c everybody in there was partners and they didn't take to kindly to that! But I did go and see my os's partner and he found my problem, which my os couldn't see! So I felt as though they just all worked hand in hand until they found my problem...so I would definitly check into seeing another doc asap!

Take care
Jennie
21 yrs. old..Right knee injury. Ligament Recon 6-21-01, 2 LR's 3/02 & 9/02
TTT 11/08/02, patella and ligament recon 5/03
Recently dx with OA, Having hardware removed and knee scoped on 6/24/04

Offline ozzybug

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Re: Growing more & more concerned...
« Reply #16 on: October 04, 2003, 10:46:13 PM »
Jennie-
Yes, I will be going for a 2nd opinion if I don't get some definate answers this Weds.  I am not saying that i don't trust my OP, but sometimes, two sets of eyes & ears are better than one ya know?

I do know that I can not keep going the way I am know.  I have got to be able to depend on my knees.  I have kids, a business to run & in general- a life to live, so I can not waste any more time.

Thank you so much for your input.  Again, I have to say- the people here at this sight are wonderful. :)

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?

Offline Janet

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Re: Growing more & more concerned...
« Reply #17 on: October 05, 2003, 08:55:27 PM »
Lezlee:

Hope your appointment goes well on the 8th and you get some answers.

In my case, my quad tendon was ruptured (well, almost...it was "hanging on by a thread"). I could not walk on it. I don't think that's the case with you. But just so you know, this is not an injury you want to have. In my case, I was in an immobilizer for 2 months, then a hinged brace for another 3 weeks. I could not drive any of that time, although I was weight-bearing within a week. I started PT 3 weeks post-op and continued for nine months. I was told it would be 12-18 months before I "forgot I had an injury." Unfortunately, it has been four and a half years, I have had 3 more surgeries, and my knee will never be the same. But I had a lot of complications with scar tissue and the biomechanics in my knee have been irreparably damaged.

But don't worry about things that might not be true for you. First of all, the complications I had are rare. Second, you don't even know what your problem is. Please don't waste time and energy worrying about a torn quad!! Just make sure you get good answers from your OS!!

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline sienna

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Re: Growing more & more concerned...
« Reply #18 on: October 06, 2003, 05:55:12 AM »
Ozybug,
Sorry you didn't get the help you needed from the ER.  I 've been to a couple of different ones for unrelated knee stuff and they just seemed like they wanted to get me out as quick as possible.  I went in for a neck complaint - it had gone out of alignment and I couldn't move.  They didn't even take an xray.  They gave me a pain killer and sent me home.  I was in bed for a week in absolute agony.  Whereas my husband went in for what turned out to be food poisoning but as soon as I mentioned that he had heart problems, wow, what service did he get!  Monitors, tests, a call back etc.  Anyway, take it easy, keep icing it and use the brace to limit movement.  And as you said don't leave without satisfactory answers.  Good luck. Take care.
rk posterior meniscus tear. Successfully repaired 10 Sep,03. Now have nerve damage and cps which goes with it.  I want to slap the person who said 'It just takes time....'

Offline ozzybug

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Re: Growing more & more concerned...
« Reply #19 on: October 06, 2003, 08:26:59 PM »
 :-/New developement today guys...
My knee locked up this morning after showering & now my knee is popping every single time I straighten it.  But now, it is popping medially just behind and to the medial side of the knee cap.  I am sooo not happy about this.

I have started writing down each occurance so that when I go to the OS on the 8th, I won't forget or leave anything out.  I want him to get the full picture of what is happening.  Maybe that will convince him that we really do need to go back in and see what happened when I fell.

Talked to my sister and she is begging me to go to VA and see the OS's that she works for.  She has spoken with their knee specialist & he really wants to see me ASAP.  He is concerned that I might be causing further damage by following the "wait & see how it goes for a while" answer I'm getting from my OS.

I am going to take her advice I think.  I really need some answers right now because before all of this, all of my problems were in the lateral/posterior side of my knee.  I can not afford to cause problems with the entire knee if you know what I'm talking about.

I'll let you guys know what happens this Weds.  Thank you all so much for your support.  It is such a pleasure & honor to be associated with such kind people.  All of you, please have a nice day!

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?

Offline sienna

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Re: Growing more & more concerned...
« Reply #20 on: October 07, 2003, 06:46:02 AM »
Good for you.  Go and get that second opinion.  It sounds like this os is really keen to help you out.  That's what you want and need - some answers.  Then you can set about fixing whatever the problem is before it becomes too bad.  Good luck on Wed.  Keep us posted.  ;)
rk posterior meniscus tear. Successfully repaired 10 Sep,03. Now have nerve damage and cps which goes with it.  I want to slap the person who said 'It just takes time....'

Offline sienna

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Re: Growing more & more concerned...
« Reply #21 on: October 08, 2003, 06:21:51 AM »
Hi Lezlee,
How did your appt go today?  Are your happy with the info you got?  Just remeber that you can go and see the os your sister has lined up for you.  Maybe you should go anyway, to compare notes.  Better have two opinions that one if you're not sure.  I hope you get some answers soon.  Let us know.
Thinking of you.  8)
« Last Edit: October 08, 2003, 06:22:28 AM by sienna »
rk posterior meniscus tear. Successfully repaired 10 Sep,03. Now have nerve damage and cps which goes with it.  I want to slap the person who said 'It just takes time....'

Offline ozzybug

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Re: Growing more & more concerned...
« Reply #22 on: October 08, 2003, 11:23:14 PM »
 :-/ :( >:( :'(
New developement.  Not a good one.  Went to the OS today-  went through the list of things that are happening and again- expressed my concerns about the problems I'm having since I fell.

Needless to say, when he did the physical exam- that dern knee didn't lock up or even crackle & pop one single time.  My OS did say that there might be a small chance that one of the anchors may be displaced or even just partially dis-lodged from its position, but went on to say, and I do quote, "Even if one of them is loose ore even dislodged & floating around in the joint, they do absorb, and will eventually go away."  

Give me a break!  If it is loose, or floating around in the joint, it is probably causing more damage.  Am I right, or am I wrong?  I'm right because, I called my sister & she told the OS's she works for and he said- "bad idea to leave something floating around in the joint."  Guys, I know that these absorbable anchors do NOT absorb within just a couple of weeks or months because they have to last long enough for the repair to take hold.

Well, my sister got me an appt. with the knee specialist in her group.  He wants me to see him at 9:30 a.m. tomorrow morning.  My sis told me to bring my pics from during the surgery, and try and get all my post op notes & the notes from my OS.  Well, all I can get is what I came out of surgery with-- the pics from the arthroscopy.  The medical center would not release my notes.  What is up with that?

I guess the OS I see in VA tomorrow will have to get them.  I was able to get a glimpse of my OS's notes this morning- and I saw some notes that say/talk about what he did to the left knee.  Nothing was done to the left knee.  It's my right knee!  I am very disappointed with myself because I did not bring this to his attention.  Don't ask me why- I was just so upset/angry that he still says hold off on another surgery.

When I got home today, I took the pics from surgery out and they are also labled left knee??!!! :o

Guys- I am soooo very upset right now.  My OS even suggested that I start PT.  I can not agree to PT when I feel there is a possibility something is floating around in my knee.

At this point- all I know is my knee was ok post-op until I fell- since then down hill every day.  I hope that this new OS I see tomorrow can get a copy of my records.

HELPPPPPPP!!  I could just burst into tears right now.

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?

Offline Heather M.

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Re: Growing more & more concerned...
« Reply #23 on: October 08, 2003, 11:32:24 PM »
Lezlee,

You have the right to any and all of your medical records.  Often, you must request them in writing or fill out a form in person.  But you have a right to everything anyone has ever written about you.  Check out your rights under the HIPPA act--Health Insurance Portability and Protection Act or something similar.  Call the office again and demand your records==understanding that you may have to do the request in writing and/or in person with an ID.  They can't refuse to release them to you, though there may be a reasonable delay for copying time and admin stuff.  Call them again.

As for the left/right thing--don't get too upset about that.  Unfortunately, it happens all the time!  I even had the word 'shoulder' appear several times in the notes on my knee surgery.  Don't get to caught up in a simple typo like that...why do you think they are so careful before surgery, writing YES and NO on the various legs with permanent marker....

It sounds like your current doctor is ultra conservative and doesn't want to go in again...or he's hoping you get so frustrated you go elsewhere and leave him alone.  It's been known to happen, unfortunately.  Or he could just have really bad people skills.  It's up to you to decide what to do, and you are taking the right steps by getting a second opinion.

Go after your medical records, and get a copy of the HIPPA bill of rights if they give you problems.  It's online, and everyone has to sign a paper saying they got a copy of the guidelines and understand them--it's part of the new patient paperwork these days.

Take care and try not to be too upset--you're doing everything right.

Heather
« Last Edit: October 08, 2003, 11:32:49 PM by hmaxwell »
Scope #1: LR, part. menisectomy w/cyst, chondroplasty
#2-#5: Lysis of adhesions/scar tissue, AIR, patellar tendon debridement, infections, MUA, insufflation
#6: IT band release / Z-Plasty, synovectomy, LOA/AIR, chondroplasty
2006 Arthrofibrosis, patella baja
http://www.flickr.com/photos/hmaxwell

Offline ozzybug

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Re: Growing more & more concerned...
« Reply #24 on: October 09, 2003, 12:36:29 AM »
Thank you Heather.  I will continue to pursue those medical records.  I certainly don't have a problem filing the proper paperwork if it means I can get those papers in my hand for another OS to look at.

I'm very lucky that my sister works for a great OS group in VA and was able to get me an appt. for tomorrow a.m.  Maybe they can get the copies a little faster?  Not sure what the protocol is for surgeons exchanging notes.

I will not give up, it's not in my chemical make-up.  hehe

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?

Offline ~*Heather*~

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Re: Growing more & more concerned...
« Reply #25 on: October 09, 2003, 12:46:49 AM »
Ozzybug,

I totally agree with Heather M.  My old OS office gave me a VERY VERY hard time about getting my records and even sending them to the insurance company so I could obtain a new policy to GET THEM paid.  You just have to be persistent and be aware of your rights.

Where is your OS located in VA?  The reason I ask is I'm visiting in VA right now and my old OS is there.  I moved to NC so changed offices of course.  

I'm very sorry to hear about the problems you are having.  I really hope your sister's office can give you some answers.  Hang in there.  Like Heather M. said you are doing everything right.  Good luck.

Heather B.
R knee-2 LR's, 1 ITB Release. L knee-LR/medial plication (2/02).Fell postop 3/02 & ruptured quad tendon.Quad tendon repair (8/02).Led to Patella Baja.TTT w/ Quad tendon reefing 9/03.Screw removal 8/04

Offline ozzybug

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Re: Growing more & more concerned...
« Reply #26 on: October 09, 2003, 12:52:41 AM »
Heather B.-
The OS in VA that I'm going to see tomorrow is in Newport News- Hampton Roads Ortho.  There are several OS's in the group.  What part of VA are you from?

I used to live in Newport News myself & am now also in NC.  What part of NC are you in now?

Thank you for your post.  You guys are all so nice.   :)

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?

Offline sienna

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Re: Growing more & more concerned...
« Reply #27 on: October 09, 2003, 05:13:56 AM »
Dear Lezlee,
Oh I'm sorry yo didn'tget the answers you were looking for from your current os.  Now that you've had your suspicions confirmed, you can pester them for your notes and take your knee to someone who cares!  this new os sounds like he has his head screwed on correctly and he seems genuinely concerned for you and he hasn't even met you.  And the bonus of travelling to see him is that you get to see your sister as well.  ;D  I hope you had a great big bubble bath to wash away your frustrations.  Good luck with your appt tomorrow.  8)
rk posterior meniscus tear. Successfully repaired 10 Sep,03. Now have nerve damage and cps which goes with it.  I want to slap the person who said 'It just takes time....'

Offline Janet

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Re: Growing more & more concerned...
« Reply #28 on: October 09, 2003, 05:28:12 AM »
Lezlee:

So sorry your appointment didn't go better. But it sounds to me like your OS just doesn't know how to deal with your problem or doesn't want to. You are SO smart to go get another opinion right away. I sure wish I had changed doctors sooner. I kept hearing that it takes a long time and I should be patient. By the time I changed doctors, bad things had already happened and become permanent. I am really, really glad you are seeing someone else....and so soon! Please let us know how it goes.

Keep fighting for a copy of yoru notes. You may find they are more willing to fax a copy to the other doctor. Again, you may have to go in and sign a permission of some kind. One place I went required that, and it took several weeks to get copies (and several dollars). My current OS will fax me anything I request, as long as I fax my permission to them first. Just don't back down and you'll find a way to get those records! Good luck with everything!

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline ozzybug

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Re: Growing more & more concerned...
« Reply #29 on: October 09, 2003, 10:06:21 PM »
 :DHello ladies!

I just got home from my appt. in VA.  The new OS saw me today, and after 10 minutes of exam, interview & manipulation, he said, "Something is not right in the knee.  We need to correct it before you cause further damage."  I was filled with so many emotions.  First I was elated that this OS was really hearing what I was saying, and secondly- concern and nervousness because although I felt deep inside that there was something wrong, I really do need a 2nd arthroscopy.

I am going back to VA tomorrow and am scheduled to be at the hospital at 1:00 p.m.  He has a full surgery schedule, but because my sister works for him, he has added me to follow his other cases.  I feel very fortunate & thankful but, at the very same time, I also feel so guilty because there are so many people trying to even just get an appt. to be seen by thier OS. :-[

My nerves are a wreck right now.  This OS told me that I made the right choice by not starting PT and getting the 2nd opinion because when the knee is locking up- there is deffinately something mechanically wrong.

He was very informative about what to expect when I come out of surgery.  He is going to have my knee in an imobilizer for a minimum of 2 weeks, and possibly three, depending on how I am coming along.

Guys- I really do think that recovery is going to be much different this time around, and you had bet your bottom dollar that I am going to be ULTRA careful with my crutches this time too.  I can be such a clutz!

I have got so many things to do before I leave tomorrow, but I had to share the new with you because you guys have become a VERY important life-line for me, and although I don't know you, I feel a very strong connection with you all because of your kindness.

Thank you guys a million times over! ;)

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?