Advertisement - Hide this advert





Author Topic: Annie's TTO Surgery is Tomorrow! (November 15, 2010)  (Read 48332 times)

0 Members and 1 Guest are viewing this topic.

Offline Rknees4

  • SuperKNEEgeek
  • *****
  • Posts: 1978
  • Liked: 3
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #315 on: March 17, 2011, 12:51:20 AM »
Hi Annie,
Sorry I didn't update you sooner but I was bagged and in pain. The TTT site is healing fine, just a little longer, the cartilage was bad behind the kneecap and on the MFC so he thinks the added pain is a flare up of this from the adjustment of the knee from surgery and cleanup.  He said if the pain doesn't settledown over the next couple weeks he wants to shoot in some cortisone. I also got a script of better pain releif. So can't wait to drug up tonight so I can sleep finally. HE commented on the black suitcases under my eyes and figured I was in pain. ::) Other than that nothing I didn't already know. The condition of my knee when he went in and now.  All in all just a minor inconvenience, another one of those time will tell things.

Hope you had a somewhat quiet knee day.  :-\  Keep icing that baby.
Take Care Annie
Knee pain since teens
06/09 Patella mal-alignment grade 3/4 chondromalasia both knees, PFS
09/11/09 patella realignment,Trillat/LR/scope cleanupRK
10/02/11 patella realignment,Trillat/LR/scope cleanupLK
Cortisone LK 04/06/11
Scope LK,/RK HW removed 28/06/12
Chin up keep hobbling!

Offline annie5970

  • Forum Faithful
  • ****
  • Posts: 174
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #316 on: March 17, 2011, 01:05:04 PM »
Hi Rk4,

Thank you so much for the update; I have been worried about you. Sounds like your appt went very well, and your mind was eased about the non-union. I am also glad that you were given a script for better pain control, that should help you through this cascade of pain much better, and allow you to get some sleep. Did you talk to your OS about the course of your PT so far, and the things your PT was asking of you so early out? I hope you were able to get some decent rest last night.

I am doing the same. I went to the pool on the medical membership my OS gave me, and tried to do some light exercises in the therapy pool. I also floated around a bit. I noticed that every time I bent my knee while swimming, the darn thing was sticking and catching. After about 20 minutes, my knee began to hurt so bad, I got out of the pool. Seems like I have appointments everyday this week. Between PT a couple of days, a dental appt yesterday, a hair appt today, and swimming, I have been up and around quite a bit more than normal. I am trying to do something every day, getting my stamina built up before returning to part-time work on Monday. I am getting nervous about work, since every thing I do causes so much pain and swelling, but we will see how it goes.

Please keep me posted on your progress.

All my best,
Annie
Jan 09-Surgery for torn mensicus/synovitis
Nov 09-Scope-Extensive Synovitis/Plica Removal
Apr 10-LR-Scar Tissue Removal
Apr 10-Hematoma Evacuated
July 10-MUA
Oct 10-Scope/Synovitis/Extensive Scar Tissue/Chondromalacia/Maltracking
Nov 10-TTO/Scar Tissue Removal
Knee Aspirated 20 Times
July 11-LK TKR

Offline mermaids

  • Forum Faithful
  • ****
  • Posts: 425
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #317 on: March 17, 2011, 06:53:08 PM »
Good idea to build your stamina up before going back to work.  However, once you start work, remember to pace yourself.  Don't think you can work, even a half day, then still do lots of other things.  Work is going to take lots of energy.  You will need to rest that knee.  My husband didn't (and still doesn't) understand this pacing thing.  If I worked 3 days in a row, the next two days needed to be easy days.  It isn't like icing my knee for 20 minutes would make it all better.  It is not just your knee, but your whole body that is recovering.  This recovery takes so much energy.  Dealing with chronic pain takes loads and loads of energy. 
12/90 - scope
12/08 - lateral release
6/10 - scope (aborted attempt at TTT)
9/10 - Fulkerson TTT
12/10 - torn cartilage & possibly PCL

*results may not be typical*

Offline Rknees4

  • SuperKNEEgeek
  • *****
  • Posts: 1978
  • Liked: 3
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #318 on: March 18, 2011, 10:26:01 PM »
Hi Annie,
Just thinking about you so I thought I would check in. Hope your knee is not getting worse, as just being the same is always better than worse.  Mine the pain is flaring big time, but the better pain meds are able to control the pain a lot better so I am only half as miserable. My OS isn't a big talker or question asker, so I do the same.  Short and to the point. Pain where it is located and level. Plus one other question is about all he will do. I had a more important question on the pain so it was the one I asked. ::)
Good luck with work make sure you take some ice with you so you can put it up with ice way better than up alone. Take pain meds as soon as you leave work so you don't suffer to long after work.  Remember the higher the knee the better.
Take care Annie,
Will be thinking of you and hoping all goes OK.
Rk4
Knee pain since teens
06/09 Patella mal-alignment grade 3/4 chondromalasia both knees, PFS
09/11/09 patella realignment,Trillat/LR/scope cleanupRK
10/02/11 patella realignment,Trillat/LR/scope cleanupLK
Cortisone LK 04/06/11
Scope LK,/RK HW removed 28/06/12
Chin up keep hobbling!

Offline annie5970

  • Forum Faithful
  • ****
  • Posts: 174
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #319 on: March 19, 2011, 12:41:30 AM »
Hi Rk4,

I am so sorry your pain is so bad, but I am thankful you have better pain medication to help control the flare. I am in the midst of one hell of a pain and swelling flare-up, to the point of being absolutely miserable. Funny, my PT said today "I think you have scar tissue building up all over in your knee again." To which I replied "really!, you think so huh?" I believe I have been saying that for weeks now. My joint is so painful, and my patella feels bruised; I just do not know what to do now?

Annie
Jan 09-Surgery for torn mensicus/synovitis
Nov 09-Scope-Extensive Synovitis/Plica Removal
Apr 10-LR-Scar Tissue Removal
Apr 10-Hematoma Evacuated
July 10-MUA
Oct 10-Scope/Synovitis/Extensive Scar Tissue/Chondromalacia/Maltracking
Nov 10-TTO/Scar Tissue Removal
Knee Aspirated 20 Times
July 11-LK TKR

Offline Rknees4

  • SuperKNEEgeek
  • *****
  • Posts: 1978
  • Liked: 3
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #320 on: March 19, 2011, 02:15:21 AM »
Time to find the AF specialist ,so he/she can help you get on with your life. You may have to look hard for one but the effort I am sure will be rewarded with improvement. Time to Ask your OS for a referral to one. He knows he is in over his head, just to much ego to admit it.
I wish there was something I could say to help but alas there isn't.
Take care Annie, Big hug
Rk4
Knee pain since teens
06/09 Patella mal-alignment grade 3/4 chondromalasia both knees, PFS
09/11/09 patella realignment,Trillat/LR/scope cleanupRK
10/02/11 patella realignment,Trillat/LR/scope cleanupLK
Cortisone LK 04/06/11
Scope LK,/RK HW removed 28/06/12
Chin up keep hobbling!

Offline Lottiefox

  • SuperKNEEgeek
  • *****
  • *
  • *
  • *
  • *
  • Posts: 2393
  • Liked: 16
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #321 on: March 19, 2011, 07:00:55 PM »
Hi Annie

Just popping in to wish you luck with work on Monday. Sorry to read that you're having a massive flare up of pain. I agree with Rknees4, it is time for an AF specialist. Your OS isn't giving you the best chance of geting function back - OK, the knee has been through massive surgeries and is traumatised but the right AF specialist needs to look, inspect, plan and timeline what to do next. There ARE success stories on the AF board even after years of pain and problems with people who have found the right person. I know you have the strength to do it. I am so sad you are feeling miserable. I am sending you hugs and hope the weekend brings some improvement.

Take care,

Lottie xxx
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....

Offline annie5970

  • Forum Faithful
  • ****
  • Posts: 174
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #322 on: March 19, 2011, 11:50:29 PM »
Thanks Rk4 and Lottie. I know the time to see an AF specialist has come, but it seems like such a daunting task to begin again with a new OS. I am in Michigan, and a couple of AF specialists have been discussed on the boards, with success in helping AF patients. Honestly, I am going back to part-time work on Monday, and can already see more surgery in my future. I wish someone from my medical team would just have my best interest at heart, and give me some real direction without thinking of themselves. Money, statistical success rates, and pride has caused this to go on for so long. I just got a bill in the mail earlier this week for several hundred dollars for January physical therapy. My insurance changed to a deductible plan, and I am just beginning to get bills for this year. I am expecting another bill for several hundred more dollars for February PT at my OS's office, and I am still going to PT. I also had to pay to get a 30 day medical membership at a local health and fitness center to try to add some water therapy to my physical therapy. It really is upsetting, since I do not see much, if any, improvement in my knee after almost 4 months of PT since the TTO. I want to fully comply with my OS's wishes about PT, and have done everything asked of me, but $1,000 of PT later, and my knee is still a mess. It is all a bit too much to take some times. I do not even know how I am going to face my boss when he finds out I am going to need more surgery to sort this mess out. I am not saying I will need surgery in a week or month, but it is coming. Makes me feel a little sick to my stomach.

Annie
Jan 09-Surgery for torn mensicus/synovitis
Nov 09-Scope-Extensive Synovitis/Plica Removal
Apr 10-LR-Scar Tissue Removal
Apr 10-Hematoma Evacuated
July 10-MUA
Oct 10-Scope/Synovitis/Extensive Scar Tissue/Chondromalacia/Maltracking
Nov 10-TTO/Scar Tissue Removal
Knee Aspirated 20 Times
July 11-LK TKR

Offline Rknees4

  • SuperKNEEgeek
  • *****
  • Posts: 1978
  • Liked: 3
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #323 on: March 20, 2011, 03:23:25 PM »
Hey Annie hang in there.  Try not to think so far into the future just do one day at a time. That is the way I have had to live for years now and it does get easier to do.  For you that is tomorrow. I know you can do it just take what you need to be comfortable. It may not be totally office equipment put necessary for you. As for surgery yes you will probably need that but it won't be nearly as nasty as a TTO. They will just loosen and remove the scar tissue, no bone work.  For you that should be a piece of cake compared to what you have already been through in your life. You are a very STRONG woman never forget that. ;)
As for the bills, just one day at a time, Go to work Monday and see how it goes.  This knee stuff does get expensive Take a week off PT and do the exercises you know will not make it really bad and cut down PT to once a week for a while. She can only do so much with things the way they are and put the money away for later PT when things will be necessary. Even in Canada we have to pay for pt beyond what the reqired 6 weeks if we need more. I know many who have 1000 dollar bills for the stuff. The system only pays for short term stuff.  I only go once a week now to stretch out what I can have. After that if in want more I have to pay. I am sorry you got the S***Y end of the stick but I know you will come out ahead. I know it all gets very heavy. I also have kids to think about with my knees as they totally put a wrench in our family life.  It is like we are on hold when I am not functioning up to par.  We don't go any where don't do anything, just sit around like a bunch of couch potatoes, I have to make them go out and do stuff without me which they seem to have difficulty to do.
As for the medical team.  Maybe your PT can start the ball rolling for you by sending the OS a note that she thinks an AF specialist needs to be called into the mix. Just because you go to an AF specialist doesn't mean the OS you have now isn't necessary in the long run.  It would actually be in his best interest to get one for you, makes him look competant. Well I have rambled on enough.
Know that I care and wish only the best for you and that nasty knee.  I am also very stoned. :P
Take Care Annie,
Many prayers and a big HUG
Rk4
Knee pain since teens
06/09 Patella mal-alignment grade 3/4 chondromalasia both knees, PFS
09/11/09 patella realignment,Trillat/LR/scope cleanupRK
10/02/11 patella realignment,Trillat/LR/scope cleanupLK
Cortisone LK 04/06/11
Scope LK,/RK HW removed 28/06/12
Chin up keep hobbling!

Offline mermaids

  • Forum Faithful
  • ****
  • Posts: 425
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #324 on: March 20, 2011, 03:53:20 PM »
I am lucky that my OS gets that there is a money side to this.  He understands that there is not an unlimited bucket of money.  He does everything he can, legally, to minimize expenses for me.  Email and phone calls really cuts down on the office visits.  Sometimes, the PT guy asks me to drop by for a quick look.  He does not bill for those "visits," but it gives him a chance to actually see the swelling, movement, etc.  The system has made enough money off my knee that we all feel quite comfortable with this arrangement. 

This stupid knee has caused me to miss out on a few really great job opportunities.  Instead of dwelling on what "could have been," I prefer to think that something better will come along.... one day.  Through all of this, I have met some fabulous people.  While my current job is not everything I want it to be, it allows me to work with a really fantastic teacher that I would have never met otherwise.  It has also given me the opportunity to reach some students that I would have never met.  Just last week, I was talking to a student about her plans after college.  She is very unfocused, grades are a mess, has been written off by just about everyone...  After hearing describe what activities she enjoys, I suggested she look into becoming a PT.  When I described what a PT does, her eyes lit up.  I have never seen her so animated and excited about anything.  I sent my PT an email, asking about schooling, etc.  He responded in minutes with lots of info and an offer to let her shadow him for a day.  This girl is over the moon.  I don't know if she will ever become a PT, but she is starting to think positively about her future.  She is making plans beyond partying this weekend.  She has been doing homework for the first time ever.  Had it not been for my stupid knee, I would have never worked with this student, never thought about suggesting PT school..... 
12/90 - scope
12/08 - lateral release
6/10 - scope (aborted attempt at TTT)
9/10 - Fulkerson TTT
12/10 - torn cartilage & possibly PCL

*results may not be typical*

Offline annie5970

  • Forum Faithful
  • ****
  • Posts: 174
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #325 on: March 21, 2011, 06:56:55 PM »
Hi Everyone,

Thanks for the well-wishes regarding my return-to-work today. I made it in at 9 a.m., and will be working only 4 hour days. I had some things to transport to my office, so my husband loaded them in my car this morning before he left for work, and one of my co-workers met me at the front door, to carry the items upstairs for me (wonderful friend and co-worker).  By 10:30 a.m. my knee looked like what can only be described as a huge purple grapefruit. I had my leg elevated, and had my ice on it, but it still swelled up so bad, I could only hobble to the elevator at the end of my shift. My knee is screaming in pain, and I am feeling pretty down about the level of pain and swelling that happened today. I am alarmed that it was so bad 1 1/2 hours into my shift. I had planned to go to the pool this afternoon, but I just can't; I hurt way too much. My knee is so much more swollen today than it has been in a long time (and that is saying a lot). I need help with this crippling knee. I know it was my first day back, but I kept it up, kept it iced, and allowed my co-workers to help me (they even got my coffee for me, it was really sweet), but I cannot see this working if this is what is going to happen. I parked right in front of the door, and the elevator is right there, so I had very little walking to do. I remember when I went back to work before (half days), and every day of the week, it got worse and worse, until my OS pulled me back off work again (once he saw what was happening). Honestly, I should be able to sit, with my leg up, and ice packs on it for 1 1/2 hours, and not have this happen. I even took my shower last night, so I would have that out of the way this morning, saving me from doing too much before work. I am feeling down, in pain, and lost.

Annie
Jan 09-Surgery for torn mensicus/synovitis
Nov 09-Scope-Extensive Synovitis/Plica Removal
Apr 10-LR-Scar Tissue Removal
Apr 10-Hematoma Evacuated
July 10-MUA
Oct 10-Scope/Synovitis/Extensive Scar Tissue/Chondromalacia/Maltracking
Nov 10-TTO/Scar Tissue Removal
Knee Aspirated 20 Times
July 11-LK TKR

Offline Rknees4

  • SuperKNEEgeek
  • *****
  • Posts: 1978
  • Liked: 3
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #326 on: March 21, 2011, 11:32:42 PM »
Sorry Annie it was such a rough day. :( Just give it a week or two until your body gets used to the new routine. Put it way up tonight and when you get home from work. Hang in there girl, you can do this.
Take care, BIG HUG
Rk4
Knee pain since teens
06/09 Patella mal-alignment grade 3/4 chondromalasia both knees, PFS
09/11/09 patella realignment,Trillat/LR/scope cleanupRK
10/02/11 patella realignment,Trillat/LR/scope cleanupLK
Cortisone LK 04/06/11
Scope LK,/RK HW removed 28/06/12
Chin up keep hobbling!

Offline mermaids

  • Forum Faithful
  • ****
  • Posts: 425
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #327 on: March 22, 2011, 12:14:07 AM »
I agree.  This is a big change.  Your body needs time to adjust.  After work, put that leg up and let everyone wait on you. 
12/90 - scope
12/08 - lateral release
6/10 - scope (aborted attempt at TTT)
9/10 - Fulkerson TTT
12/10 - torn cartilage & possibly PCL

*results may not be typical*

Offline Rknees4

  • SuperKNEEgeek
  • *****
  • Posts: 1978
  • Liked: 3
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #328 on: March 22, 2011, 06:21:40 PM »
Hey Annie,
Just got back from PT knee hurts like mad at the moment, and I am stoned out of my gourd. Hope you are home with your leg up in the air with ice on it.
Take care Annie, My thoughts and prayers are with you. :-\
Rk4
Knee pain since teens
06/09 Patella mal-alignment grade 3/4 chondromalasia both knees, PFS
09/11/09 patella realignment,Trillat/LR/scope cleanupRK
10/02/11 patella realignment,Trillat/LR/scope cleanupLK
Cortisone LK 04/06/11
Scope LK,/RK HW removed 28/06/12
Chin up keep hobbling!

Offline annie5970

  • Forum Faithful
  • ****
  • Posts: 174
  • Liked: 0
Re: Annie's TTO Surgery is Tomorrow! (November 15, 2010)
« Reply #329 on: March 22, 2011, 08:32:38 PM »
Thanks for the support.

Kk4, I am so sorry your hurt is so painful. Please try to take it easy now.

I just returned home from PT myself, and my therapist gasped when she saw my knee (it is really bad). The increase in swelling really began last week, and just keeps increasing. She is a bit worried, since the swelling has spread down my leg, in my ankle, and my foot. I think she is going to call my OS's office for a heads-up on what is happening. I have not been this swollen since I was immediately post-op. I know I am doing a bit more now, but I am also taking it easy. I sit at work, leg elevated, ice packs in place, and accept the help my co-workers offer. I need some help, and I hope between my OS, my PT, and me, we can figure out what to do. Swelling makes more scar tissue, and my ROM is going backwards fast in response to the pain and swelling.

I will keep you all posted.

Annie
Jan 09-Surgery for torn mensicus/synovitis
Nov 09-Scope-Extensive Synovitis/Plica Removal
Apr 10-LR-Scar Tissue Removal
Apr 10-Hematoma Evacuated
July 10-MUA
Oct 10-Scope/Synovitis/Extensive Scar Tissue/Chondromalacia/Maltracking
Nov 10-TTO/Scar Tissue Removal
Knee Aspirated 20 Times
July 11-LK TKR