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Author Topic: What does my doc mean?!  (Read 1959 times)

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Offline bonalallies

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What does my doc mean?!
« on: October 07, 2003, 06:48:52 PM »
I could really use some advice!
After nearly a year of being faffed around by the NHS I finally got to see an othropaedic consultant and got an outline diagnosis of what is wrong with my knees.
He reckons that for no other reason except I happen to be made that way, the tendon which should run straight down from my kneecap is actually attached on the outer side of my femur. He says this is causing the maltracking, which is causing the chondromalacia and pain and will ultimately lead to arthritis if it doesn't get fixed.
And that was all I was able to get out of him because I was referred on to another doctor that I won't be able to see till Dec.
Could anyone help shed some light on this condition for me. Does it have a name? Can anything surgical be done in order to put the tendon in its correct position?
Many thanks.
Repaired torn medial meniscus Jan 2004
Chondromalacia Grade III both knees

Offline bonalallies

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Re: What does my doc mean?!
« Reply #1 on: October 07, 2003, 06:59:28 PM »
Oooops - that should of course be the tendon attached to TIBIA not femur!
Doh.
Repaired torn medial meniscus Jan 2004
Chondromalacia Grade III both knees

Offline Natalie.D

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Re: What does my doc mean?!
« Reply #2 on: October 07, 2003, 08:00:04 PM »
Hi there,

It sounds like you have the same sort of problem that I had, although mine was displaced and maltracking through injury.    If this is the case, check out some of the posts in the Patello-Femoral Joint section of the board and look up some of the posts on TTTs (tibial tubercle transfer) where you will find a wealth of information as this seems to be an issue that is discussed a lot.  I think this would be a likely surgical option to correct your problem.  Also look up on the main Kneeguru page under Section 5, PATELLAE.  This should give you some more information and hopefully give you a better understanding of what this means.  Obviously I'm not saying that this is what you have or what you will be getting, it is just a suggestion of where you can find some more information.  I'm sure any questions you have can be answered by someone as the information you can get on this board is phenomenal.  Good luck.  ;)

Natalie.


Dislocations since age 12
Trochlear Dysplasia
Maltracking
Hypermobile
LR/MR-failed
TTT, LR, MR L knee 95-Success
TTT, LR, MR R 02-Success
Screws out
Partial tear ACL
Severe end stage OA
4 Debridements
Partial Meniscectomy
Failed Microfracture
11mm Defect LFC
Bone Spurs, Kissing Lesions

Offline ozzybug

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Re: What does my doc mean?!
« Reply #3 on: October 07, 2003, 08:31:52 PM »
Bon-

You have come to a wonderful place for information.  There are a lot of people here who can give you some very good insight & information to help with your situation.  As Natalie says, there are several areas here at these boards that you might be able to gather information from.

Roam around, and always feel free to ask questions!  Even if you don't get all the answers you're looking for, you are sure to get encouragement and support here.

Good luck with your knees!

Lezlee
Rt knee:Meniscal repair 8/03: Repair prev. meniscus repair 10/03;Chondro shave, scar tissue removal 12/03;LR,debridement chondro & scar tissue 04/02/04;TTT done 09/14/04;VMO advancement 04/2005- Does it ever end?

Offline anasta5ia

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Re: What does my doc mean?!
« Reply #4 on: October 08, 2003, 03:01:58 AM »
Hey there-

As Natalie said, the correction for the malalignment would be a TTT.  There are many types of TTT and the Patello-Femoral Section would be where to start to find information.

There are tons of us here who have had TTT's (some of us have had a few.....) and I'm sure we would be able to answer most any questions that you have.

Feel free to IM me or e-mail me with any specific questions that you may have.

-Heather G.
Rt. knee-plica resection, LR, 4 TTTs, MPFL repair & 2 MPFL reconstructions
Lt. knee-2 TTTs, & 2 MPFL reconstructions...
Scheduled for bilateral hardware removal, lt. knee TT revision, MPFL recon and LR recon with new wonderful surgeon.
Plus 9 other orthopedic surgeries

Offline bonalallies

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Re: What does my doc mean?!
« Reply #5 on: October 08, 2003, 07:32:53 PM »
Thank you all for your advice and kind words - very much appreciated.
I'll feel a bit happier about all of this once I get a complete and comprehensive diagnosis.
I'm in a stroppy adolescent mode of just not wanting this "knee thing" to be a major issue in my life. I don't want to be plagued with dodgy knees. I don't want to have to endure surgical procedures which knock me out of action for weeks and which ultimately don't work (I've been reading too much negative stuff on the internet!).
Seeing as my next appt isn't till Dec I just have to bide my time and try to forget about it. Some hope!
Repaired torn medial meniscus Jan 2004
Chondromalacia Grade III both knees

Iona_-Uk

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Re: What does my doc mean?!
« Reply #6 on: October 08, 2003, 09:42:04 PM »
Hi Bon

The NHS isn't too keen on getting things done in a hurry!

My advice would be to get as much info as you can on this condition from here, from other sites, from thr main kneeguru page, anything you can get your hands on.

Present this at the next appointment and don't be afraid to refer to it.

I've often done this and the outcome has always been quite good, most surgeons are interested to read what you have found and make their own comments on it, which usually means in their book, it's all a load of tosh, but stand your ground, you will be glad you did.

Offline bonalallies

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Re: What does my doc mean?!
« Reply #7 on: October 08, 2003, 11:53:16 PM »
Hello Iona - you are so right about the NHS! I am gathering as much info as I can. And I'm trying to be a more "patient" patient!
It seems pretty clear by looking at people's knee histories that trying to sort out knee problems is not a black and white issue. There is clearly no quick one-size-fits-all fix and I'm going to have to come to terms with that.
What a shame there isn't a pill you can pick up at the chemist to put everything back in order!
Repaired torn medial meniscus Jan 2004
Chondromalacia Grade III both knees

Iona_-Uk

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Re: What does my doc mean?!
« Reply #8 on: October 09, 2003, 04:29:35 AM »
How rght yo are.

I once said to my GP (about another problem) "Oh I wish there was a cure all pill that would make evrything right for once" and he laughed and said "There is, they call it prozac!" It made me realise that my problems are small in compariosn to others and that there were people worse off than me.

The NHS, for all it's faults, is a wonderful system, you are in pain, if it's severe, you pay, if it can wait, you wait for treatment.

Where I live has the WORST orthopaedic waiting times in the UK. I paid to see some one through BUPA and my mum paid for surgery for me as part of my birthday presnt. I'm not taking out a loan to have more surgery at BUPA next March on the R knee, I was originally booking in to have the L knees plica removed but the gradual failing of my R knee has caused a change of plan.

I'm sure this wasn't what Aneurin Bevan had in mind he he introduced the NHS system!

i am grateful to the NHS, they just need more money which, we as taxpayers don't want to do, yet we want everything on the NHS, right here, right now.

I do resent having to pay but I am lucky it is an option for me, for others it isn't. My mum thinks by paying we are doing something positive for the NHS, one less on the waiting list!

Which part of the country are you being treated in?

Offline bonalallies

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Re: What does my doc mean?!
« Reply #9 on: October 10, 2003, 10:37:19 PM »
I am on the South Coast Iona and the orthopaedic treatment I have received so far is woefully poor. Where are you?

Earlier in the year I had an operation on my foot. The first time I met and spoke to the surgeon was 10 minutes before the op when I was already completely out of it on pre-med. (Prior to that I had only spoken to his assistants.)
The operation itself was a disaster. To this day I still don't know what he actually did to my foot because he couldn't "be bothered to go into details". When I had come round properly from the op I asked a nurse what he'd done and she told me he'd removed a bone. Can you believe that a surgeon has the arrogance to remove a bone from your foot and then not be bothered to tell you about it?!
5 months later while having physio for my knees they found 4 stitches in my foot that he'd failed to remove. Probably couldn't be bothered!

Yesterday I saw my old NHS physio - she is appalled at the fact that I am now on crutches and that I still haven't been formally diagnosed let alone treated. It will be 14 months since my first request for an appointment to the date that I will actually see the knee specialist for the very first time. In that 14 months I have gone from being an active independent woman to someone in constant pain who can no longer drive or walk unaided. Neither I nor my family and friends  recognise me. It's bizarre.

A friend of mine had a fall at work and was prescribed over a year of physio. After 10 months he was virtually in a wheelchair. He begged them to x-ray him. He had broken a huge chunk off his hip and is now waiting for a total hip replacement. It beggars belief that nobody bothered to x-ray someone who'd had a bad fall.

A few years back I went private to have a lump removed from my breast because I was too scared to wait the 6 weeks before my appointment with an NHS  consultant came through. I paid then because it was a potentially life and death issue and an affordable op. I would pay for treatment now but orthopaedic costs are stratospheric and my circumstances are very different.

Everyone's NHS experiences vary - and that's what is innately wrong with the NHS at the moment. The random lottery dependant on where you happen to live. My father had a hip replacement in Surrey - from the first contact with his GP to the moment he was discharged from hospital took 2 months.

I'm afraid I don't agree about people not wanting to pay higher taxes for better healthcare. I think most people would willingly pay more if a consistent standard of care was guaranteed across the country. Instead of unifying standards this Govt wants to two-tier it even more. I'm sure that given a choice the majority of Brits would have preferred the 3billion of Treasury dosh stuffed into the Iraq war chest to have been fed directly into the NHS.

I've worked within the NHS and I've worked in relief aid among some of the poorest communities in Asia - and I know which was the better experience!
Right now I am seriously considering getting on a plane to Mumbai. If I pay for treatment there at least I know that the care will be exceptional and that my money will be fed into the healthcare of some of the poorest people on earth - and not lining the silk pockets of some Harley Street doc.

Nobody ever died of bad knees - but the detrimental impact it has on your quality of life is enormous isn't it?
Repaired torn medial meniscus Jan 2004
Chondromalacia Grade III both knees

Iona_-Uk

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Re: What does my doc mean?!
« Reply #10 on: October 10, 2003, 11:55:48 PM »
Hi

I'm in Wales and we singled handedly have the worst NHS waiting times in the UK for orthopaedic surgery, currently 36-52 months for a first appointment, another 18-36 months for any surgery, 48 months for an MRI which is non urgent, you get the picture.

I have been fortunate enough to go private through BUPA and the Vale Clinics  but I do feel resentful that I had to pay 100 for each appt, 300 for a scan and 2500 for operation and physio, I've now got another loan out to pay for the next op at a cost of 3500.

I also had to pay privately for a gynaecology appt and laparoscopy because there was a 14 month wait for an appointment and then anothe 9 months for surgery.

The people in charge of the NHS don't realsise what an impact of peoples lives the orhtopaedic waits are, we often hear on the news up  here of OAP's having to wait 5 years for an urgent hip replacement. Bone makes up a lot of what we are made of, it's what keeps us upright and they don't realise that painful joints, not just knees, have so much of a detrimental effect of the ordinary lives of people.

I think there needs to be a lot more funding and encouragement for dr's wanting to do in trauma and orthopaedics, my surgeon says it's the task of what has to be done by when that puts off a lot of newly qualified dr's entering T&O.

I've worked in the NHS and it is so grossly underfunded in every area but by far the worst is T&O yet it has the highest demand.