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Author Topic: Infrapatellar Nerve Pain - Help!!!  (Read 6540 times)

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Offline AnonNYC

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Infrapatellar Nerve Pain - Help!!!
« on: August 01, 2010, 07:29:57 AM »
Hi,

Has anyone had or been diagnosed with infrapatellar nerve damage?

I have been through a slew of procedures over the last 16 months since my ACL surgery and the latest is that I must apparently have infrapatellar nerve damage.  My drs. basically decided this on process of elimination.  Here are my symptoms: general achiness on and off (most often when standing, sitting or walking for a prolonged time); inability to kick my legs out in front of me; severe pain during straight leg raise or quad sets; inability to walk up or down stairs; inability to squat, jump or run.  The pain ranges from dull and very achy to level 9/10 burning and intense.

When I say I am "unable" to perform these things, there is no issue with ROM, I am pretty sure it's just level 9/10 pain that prevents the movements. 

Anyway, on Friday I had cryoablation done on the nerve to try and freeze it hoping this would relieve the pain.  The procedure itself was MISERABLE and very traumatic -  I would go so far as to say this was the worst experience of my life!!!  I cried for hours afterward and will start to cry again if I think about it for too long... 

I don't feel any relief, and in fact the knee feels much worse than before because of the trauma of the procedure.  I am told it could take a few days before the ablation takes effect, but I just have a very bad feeling about the whole thing.  I don't think it's going to work and now I'm not even sure whether this diagnosis of infrapatellar nerve damage is even legit...

Please help - I am completely freaked out and now truly believe I will never get better!  I am a 30-yr-old woman, newly married, and feel like I have been robbed of my limb!  Google searches produce almost no information on this so I am thinking it may be very rare... I feel extremely helpless and have had 4 drs. since my ACL surgery - there is no one out there who is committed to getting me better, but unfortunately, I never opted for medical school, so I am not equipped to take matters into my own hands...

Anyone ever had this?  I need input fast!  Please please please - I am begging if there is anyone out there with this or who knows anything about this - please respond!! :(

Thanks,

Julia

Offline fire535

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #1 on: August 02, 2010, 12:09:02 PM »
Saphenous Neuritis: A Poorly Understood
Cause of Medial Knee Pain
Christina M. Morganti, MD, Edward G. McFarland, MD, and Andrew J. Cosgarea, MD

Try reading this article you can find it on the web.  Good Luck

Offline AnonNYC

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #2 on: August 02, 2010, 03:47:50 PM »
Thanks, but I can only find the abstract of the article online.  Do you have a pdf full copy that you would be willing to send me?  My email is [email protected]

Thanks again!

Offline missmyknee

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #3 on: August 02, 2010, 11:40:13 PM »
Hi Julia

I'm so sorry to hear the cryoablation did not appear to work and the horrible experience it was. You didn't go into it expecting this outcome. As you know I have been dealing with the same problem for 2 yrs. Are you in pain management? If you are not, you need to be managed by one of these specialist rather than OS. OS's are limited on how to treat nerve pain. A PM doc knows which medications it takes and combination of different meds. These meds react to different receptor sites of pain signal. Like I told you before, I take 7 meds. Has CRPS been ruled out ?

I also have been seen and treated by Dr Lee Dellon in Baltimore. He is a world renown peripheral nerve surgeon. He will be able to diagnose you and treat it. It wouldn't be too far to travel to see him. I would email him and tell him your history. He responds very well to emails. He was recommended by my OS, Dr Frank Noyes, to treat my nerve pain.  

http://www.dellon.com/

Here's a link to some info

http://books.google.com/books?hl=en&lr=&id=MxMfcAvPitQC&oi=fnd&pg=RA2-PA363&dq=neuroma+excision+of+the+infrapatellar+nerve&ots=lSTtP0166M&sig=CO0uO6zzIySUCt_mcW3sOgw_tWs#v=onepage&q=neuroma%20excision%20of%20the%20infrapatellar%20nerve&f=false

and

http://www.jstage.jst.go.jp/article/nmc/46/2/62/_pdf

http://www.scielo.br/pdf/anp/v67n3b/22.pdf

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1296949/pdf/jrsocmed00019%2D0017.pdf

http://journals.lww.com/annalsplasticsurgery/Fulltext/2001/01000/Operative_Management_of_Neuromatous_Knee_Pain_.4.aspx   be sure to page all the way down on this article

http://www.springerlink.com/content/t0g406883v777736/fulltext.pdf?page=1

http://www.rosenbergplastics.com/pdfs/pn_knee.pdf

The next link is on cryoablation:

http://www.painphysicianjournal.com/2003/july/2003;6;345-360.pdf

I know how bad nerve pain gets....many times I said if I was a wild animal, I would have chewed my leg off.

I'm so sorry, I was hoping the cryo would give you relief.

Pam
« Last Edit: August 03, 2010, 03:53:32 AM by missmyknee »
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline AnonNYC

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #4 on: August 03, 2010, 05:32:22 AM »
Thanks, Pam.  It was so nice of you to send me all of those links.  I will definitely take a look - I am sure there is some good information here. I meant to respond to you on my last thread but was waiting and waiting hoping i could respond and say everything worked!!!  Unfortunately, this is not the case...

I am seeing a pain medicine dr., 2 in fact.  They have collaborated with my OS and determined that cryoablation was the solution.  Only, now it's day 4 and still no relief. The more time that goes by with no relief, the more I start to believe that the procedure was a failure. :(  Not to mention, if you ever do this and they are trying to get at your infrapatellar nerve, it can be pure torture!!!  I guess this nerve is impossible to find, so they just keep poking you with needles and then shocking you with an electric stimulator all along your saphenous nerve until they find it.  I can now count several dozen needle holes in my leg amongst all of the bruising and the internal pain from the aggravation of all of my nerves since the procedure is just unbearable - I have pain from my thigh down to my foot, whereas before the knee was my only problem!  I guess if it worked, it would have been a small price to pay, but the dr. described the procedure as minimally invasive and basically just an injection...this is not the case - I was literally a human pin cushion for over 2 hours in a freezing cold operating room on an operating table, wide awake, with tears rolling down my face.  I almost gave up half way through - no fun!

Anyway, I am a little lost now...I called the pain doctor today and am awaiting his return call.  I want to talk to him about whether there is still a chance the cryoablation could work or if it was basically a waste...and I also want to see if he has anything more he can offer me.  I think I will also try to meet with my two prior OS's and also find a new one for a 3rd OS opinion.  In the meantime, I am trying to educate myself as much as possible.  I guess 1 problem is that I am still not 100% convinced that I have a nerve issue, and esp now that the cryo didn't work...

I'm incredibly frustrated, as I am sure you can understand...and I would feel a lot better if I just had a dr. that I knew was committed to solving this problem.  Instead, I just get the feeling that I am being passed around...

Oh, and by the way, did I mention now that as a result of the cryo the entire middle to outside portion of my leg from my knee to my ankle is COMPLETELY numb?  Yes, I guess this is a possible side effect of the cryo and my dr says that he "expects it will resolve itself."  Great...as if I don't have enough problems already!  LOL

Fingers crossed that there is still a chance the cryo will kick in... Thanks again! 


Best,

Julia



Offline AnonNYC

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #5 on: August 03, 2010, 05:54:32 AM »
Oh, and by the way, I just looked up CRPS. Pretty scary stuff.  But other than a burning pain, I really don't have any of those other symptoms, hair, nails, skin color all fine.  No electrical sensations other than those resulting from the latest cryo procedure and no sweating or anything like that!  Phew...

Offline fire535

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #6 on: August 03, 2010, 06:29:54 AM »
Sent you articles requested all, of them have very specific ways to find Saphernous nerve around Hunter canal,  I can not get WC to approve this will be switching to my own ins shortly.  I am having a flare right now,  have not been pain free for years, definitely not RSD or CRPS on pins and needle watching your treatment. 

Offline jane77

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #7 on: August 03, 2010, 11:57:06 AM »
Silica G5...  my pain went in 5 days....   

Offline missmyknee

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Re: Infrapatellar Nerve Pain - Help!!!
« Reply #8 on: August 03, 2010, 04:59:49 PM »
Hi Julia

What a brutal procedure you described. I think I will pass on this procedure. It sounds like your saphenous nerve took a hit. It runs down to the medial ankle and top of foot to the navicular bone.

I still strongly suggest emailing Dr Dellon , you have nothing to loose. Before I started to see him, I consulted thru emails.

Jane

I'm glad you have found great pain relief with the silica gel. I hope it continues.  After looking it up , I don't think it would help with nerve pain from nerves that are compressed, neuroma, or cut.

Pam
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions















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