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Offline roze87

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2 failed acl operations
« on: June 14, 2010, 11:40:03 AM »
Hi my story is very long so i will try to keep it minimal. I am 23 yr old female. When I was 17 I had an accident and fell off someone's doorstep. The hospital xrayed me and wrongly advised me i had minor sprain and to walk out of the hospital and exercise my leg. I went back 4 days later where my OS told me I had fractured my femur, tibia, fibula, crushed my patella and torn all my ligaments incl my acl. He took me into emergency surgery where he put my knee back together with a metal rod and screws. This time was very difficult for me as I did not fully understand what was going on and was in hospital for a long time out of it on morphine. I was homeless at the time and had lost my job. I had to stay at a freinds to recover for 3 months. I had no support and my physio was a young man who i only ever saw once. When I could walk i just couldn't wait to get back to my sorting my life out I was never really told how serious it had been.

4 years later I went back to my OS with instability problems. I was having episiodes of knee swell, struggling to walk properly at times etc. He advised me this was because I had no acl. He operated on me-reconstructed acl, and also took the metal work out of my knee as it was no longer needed. After a few weeks of physio, my physio told me I should have been doing things i could not do at all. I could not even get my leg round the bike, and was still relying on crutches and had alot of pain. Eventually puss started to leak out of my scar and i became very ill. I went back to my OS who told me I had infection in the joint and took me in for emergency surgery to take out the infection. Apparantly this is very rare and unlikely to happen. But it did.

The infection had caused alot of muscle wastage and caused the acl graft to fail. I was left with an even weaker knee then before. OS advised I would benefit from a revision acl at some point.

A year and a half later, after hobbling around on my knee I could not take it anymore. I was at uni as a student nurse and was struggling to manage on my feet on placement, for my knee giving out and swelling and not being able to walk the next day. I went back to my OS who has now done a revision acl. He took the graft from my good leg hamstring as the bad one was no longer suitable. The first 3 months were hard but I followed everything the physio's said, and could feel my knee getting stronger by the day. However something must have happened because I am now worse then before the op. I have pain in the back of my knee, my thigh is wasting away before my eyes, even though I am doing alot of strengthening exercises, i am unable to walk properly, i have alot of swelling and it it getting worse by the day. I can feel the arthritis is very bad. I rang OS and i am due to see him tomorrow. I know he is going to be the bearer of bad news.

I have run out of physical and mental stamina to deal with this anymore. My original accident was 7 years ago and i am still paying the price of it. I am 23 year old with osteoarthritis of a 70 year old. I am doing 2 or 3 hours a day of exercises and seem to be getting nowhere. I have lost faith in the health professionals. I have had to drop out of uni to have this operation and I as it stands i am left crippled with a knee that is deteriorating rapidly with time. I feel completely alone. I am sure my family and freinds are bored to death of the thought of my knee and is a stress for my boyfriend as he is having to run around after me. I want to be someone who can instill strength in others who are going through similar experience but I am finding it very difficult to hold myself together at the moment. I am looking for support i guess


06/04 Fell - Fractured tiibial plateau, femur, patella, torn acl
ORIF and bone graft of tibial plateau
09/08 failed acl recon due to wound infection
06/10 failed revision acl with pcl/lcl/plc damage
now facing multiligament surgery

Offline tez27

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Re: 2 failed acl operations
« Reply #1 on: June 14, 2010, 12:32:21 PM »
Hi there and welcome you have had a really bad time and sorry I cant give you any advice about your knee or what to do next but just wanted to say how sorry I am that you have had to go through all this it must be so hard to keep positive.
Good luck with your o.s appointment tomorrow I really hope he can help you please let us know how you get on
Take care Tez
L K injured 25th June 2008
scope Jan 5th 10
diagnosis ACL rupture
fiberous band excised from acl
ACLr July 19th 2010  scope on 24th Sept 2011
ACL has failed incorrect tunnel placement
23rd July 2012 1st stage of a 2 stage ACL revision
10th May 2013 2nd stage ACL revision

Offline roze87

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Re: 2 failed acl operations
« Reply #2 on: June 14, 2010, 02:02:30 PM »
thanks so much.I will let you know how I get on. In the meantime i am facing the dilema of more surgery with higher risk of failure or accept my life as it is and try to find some way of dealing with it. I know i sound negative which is a shame coz i am normally very strong person and positive and i know there are many ppl worse off then me but think it is taking its toll on me now and have come to realise that there is no cure for me. I do not share the same frustrations as many ppl with my injury because i am constantly told it is an athletes injury and they want to get back to their sports or hobbies. I feel i cannot even relate to them because accepting the fact i cant even walk properly without having to do hours on end of strenthening exercises every single day is enough for me. I hope that i can come through this somehow and be an inspiration to others i really do.
06/04 Fell - Fractured tiibial plateau, femur, patella, torn acl
ORIF and bone graft of tibial plateau
09/08 failed acl recon due to wound infection
06/10 failed revision acl with pcl/lcl/plc damage
now facing multiligament surgery

Offline tez27

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Re: 2 failed acl operations
« Reply #3 on: June 14, 2010, 03:16:30 PM »
I have an idea how you feel though I havn't gone through anywhere near the amount of knee damage as you but that whole attitude that a rupture acl is a sports injury whereas I did mine in falling down stairs and I think because of the fact I am 48 and not into a lot of sports it wasn't an automatic thing to have the reconstruction, even to get the diagnosis took a year and a half and it was only after a scope thay they found out what the problem was.
You sound like a strong person, to go through what you have done already is amazing, and it's no wonder you have times when you feel things are getting on top of you, I think we all do but you have more right than most, saying that this is your life and you want the best outcome from this injury so wait and see what your o.s says first before assuming the worst and if its not good news and there is not much they can do to help then its time to start looking for someone who can help,
Here's hopeing tomorrowa appointment goes better than you anticipate
Take care Tez   
L K injured 25th June 2008
scope Jan 5th 10
diagnosis ACL rupture
fiberous band excised from acl
ACLr July 19th 2010  scope on 24th Sept 2011
ACL has failed incorrect tunnel placement
23rd July 2012 1st stage of a 2 stage ACL revision
10th May 2013 2nd stage ACL revision

Offline Lottiefox

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Re: 2 failed acl operations
« Reply #4 on: June 14, 2010, 04:18:08 PM »
Welcome, sorry you have to join under such frustrating circumstances.

You're NOT a moaner. BY goodness, you've had 7 years of knee **** and I'd be frustrated and a bit fed up if it were me. You sound strong to me, and I am sure that you'll push for the best outcome that the OS can offer you. It sounds like something happened at that 3 month stage after your last ACLr. Take strength that the knee was getting better and hopefully it can return to positive progress again. More surgery might be suggested and thats a tough call as you've clearly been through a lot. But, living as you are doesn't sound much fun and you owe it yourself to give things a shot if they could possibly help. KG is a great source of support for knee woes, so feel free to sound off on here. We understand. It seems so unfair when you see people with pain free functioning knees - but there are a lot of us out there and people have fought back from hideous accidents and injuries and surgeries - so you'll get support from people that know how it is.

See what the OS says tomorrow. Go with a clear plan in your head, write things down if you need to, and if he feels he can't help then it is time to seek more opinions as tez says. You're young, OK your knee has taken a beating but you deserve the best chance to get back some proper functioning.

And - you'll be a way better nurse having been through the mill and coped with al of this.  The best people in those roles are the ones with empathy.  :-*

Hang in there

Lottie x :)
Bilateral patella OA since 2009, no surgeries.
Euflexxa working well x3 to current
Right forefoot CRPS post fusion surgery 2011
Refusing to let the ailing parts stop me....

Offline kscope09

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Re: 2 failed acl operations
« Reply #5 on: June 14, 2010, 04:42:53 PM »
Gosh! I'm sorry about what you've had to go through but I can see from your post that  you've done a lot with the bad knee and not let it stop you having a life.  I can't really suggest anything, but I hope you find the right doctor and can get it sorted out.
Feb 08 Inurred right knee
18 months of physio, knee tracking but knee still painful
Aug 09 Scope - Small tear in acl, fragment found in postereo-lateral compartment, suprapatella and lateral plica and small defect in mfc.
May 10 Right knee feeling better but left knee causing trouble as a result o

Offline Snowy

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Re: 2 failed acl operations
« Reply #6 on: June 14, 2010, 05:43:38 PM »
Hi Roze,

So sorry to hear you've had such a hard time with your knee. You've been through so much, it's no wonder you're worn out - I can't even imagine dealing with an injury as serious as your first one without the support of a solid home base and proper medical attention. The infection after your first ACLr was also incredibly bad luck. These are huge traumas, and 7 years is a massive chunk of your life to spend dealing with an unstable knee and all the limitations that go with it.

Whatever your OS says, I think that given your history of complications with this knee you may want to seek a second opinion from another OS specialising in knees before you move forward. (This site has some lists of specialists that you can check out.) It does sound as though something went wrong a ways into your rehab this time, and you want to be absolutely sure you've nailed down what caused the problem before deciding on a course of action. Whatever you do going forward, it sounds as though close medical support and going back to the doctor at the first hint of trouble is going to be really important.

As the others have mentioned, you're absolutely in the right place for support. Everyone on this board is on their own knee journey, and understands the stress, frustration and pain that goes along with that. It's great to have a place to vent where you don't need to explain or justify the way you're feeling - where people just get what you're going through.

Good luck, and I really hope that you get some answers and a solution that works for you this time. You've been through so much - hang in there. One day you will be on the other side of this, even if that feels a long way away right now.
Mar 11: R Biceps femoris tear (skiing)
Jul 10: ACLr (hamstring autograft)
Mar 10: L ACL rupture (skiing)
Feb 06: L partial ACL tear (kickboxing)
Dec 03: R bone edema (motorbike)
Jan 01: R patellar chip (motorbike)
May 93: R ACL sprain (hockey)
Ongoing: bilateral PFS and OA

Offline roze87

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Re: 2 failed acl operations
« Reply #7 on: June 14, 2010, 10:56:20 PM »
Oh my gosh i would like to say a massive thank you to the responses i have had already and a massive thank you to whoever set up this website. Very easy to use and honestly i feel better already just for having some(thing?)/people to vent to. I am grateful for your understanding and empathy and I am sorry for your own experiences. The support on here is really something and although their is no physical help the emotional help is half the battle. Once again thanks for your advice x
06/04 Fell - Fractured tiibial plateau, femur, patella, torn acl
ORIF and bone graft of tibial plateau
09/08 failed acl recon due to wound infection
06/10 failed revision acl with pcl/lcl/plc damage
now facing multiligament surgery

Offline Cosmicsnuffle

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Re: 2 failed acl operations
« Reply #8 on: June 14, 2010, 11:06:34 PM »
Rose -

So sorry to read your knee tribulations... that's a lot to deal with. Friends and family can be great but KG is like friends and family all rolled into one .. plus a little more - and because we are all around the world you get people posting at all times of day and night - it feels like there is always someone there for you.

I hope the appointment with your OS gives you some way of moving forwards - sometimes bad news is better than no news at all - at least then you can get an action plan in place.

Let us know  how you get on.

xx
Oct 04 - torn meniscus
Dec 05 meniscal trim and debridement
Sep 09 torn ACL, kissing contusions, knee locked 30-60o
Jan 10 ACL stump debrided, lateral parrot beak meniscal tear trimmed
May 10 ACLr (Hamstring)
Aug 11 mfx (focal lesion lateral femoral condyle)
Jun 14 100k walk London-Brighton 28hrs

Offline Cosmicsnuffle

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Re: 2 failed acl operations
« Reply #9 on: June 14, 2010, 11:07:55 PM »
Sorry - realised your username is Roze not Rose!! Doh me!

Oct 04 - torn meniscus
Dec 05 meniscal trim and debridement
Sep 09 torn ACL, kissing contusions, knee locked 30-60o
Jan 10 ACL stump debrided, lateral parrot beak meniscal tear trimmed
May 10 ACLr (Hamstring)
Aug 11 mfx (focal lesion lateral femoral condyle)
Jun 14 100k walk London-Brighton 28hrs

Offline kcknee

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Re: 2 failed acl operations
« Reply #10 on: June 15, 2010, 02:19:52 AM »
Good luck at your OS appointment tomorrow. Hopefully the OS can figure out what needs to be done so you can get your life back.

I've only been going through this for 1.5 years after I tore my ACL skiing, but I know the frustration of trying your hardest and doing what you are told you need to do to get better and still having things you can't control keep going wrong. My surgeries themselves did not fail, but I had a lot of complications following my ACLr surgery and needed another surgery which brought on even more complications. I am still in PT with an inflamed leg/knee that won't straighten. I'm really sorry that you've had to go through this for 7 years at such a young age. If this doctor is not able to help, I hope you will take everyone's advice and get a second opinion.

Kristin
12/31/08 - Skiing injury L knee
6/1/09 - ACL stump removed from joint
8/31/09 - ACLr - Hamstring Graft
12/21/09 - Ant Fasciotomy 
8/26/10 - Anterior Interval Release
12/6/10, 5/5/11, 12/22/11 - Fasciotomy
12/7/12 - Nerve Decompression
6/3/13(m), 7/29/13(l), 12/13/13(m & foot) 2/3/14(l) Fasciotomy

Offline tez27

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Re: 2 failed acl operations
« Reply #11 on: June 15, 2010, 07:57:33 AM »
Roze good luck with your o.s appoitment please let us all know how it goes..
L K injured 25th June 2008
scope Jan 5th 10
diagnosis ACL rupture
fiberous band excised from acl
ACLr July 19th 2010  scope on 24th Sept 2011
ACL has failed incorrect tunnel placement
23rd July 2012 1st stage of a 2 stage ACL revision
10th May 2013 2nd stage ACL revision

Offline roze87

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Re: 2 failed acl operations
« Reply #12 on: June 16, 2010, 01:15:43 PM »
Thanks again for your advice, especially on getting second opinions. Comicsnuffle - yes its true, sometimes bad news is definitely better then no news. My consultant confirmed the acl graft screws have come loose and it was an epic failure! No suprize. He sent me for MRI scan and now I have to wait 2 weeks to see him for results and further diagnosis etc. I am with NHS in England. I also saw my nhs physio yesterday who (sorry to be rude) blatantly did not give 2 s****. He just told me to keep exercising. Not once has he ever seemed concerned for me and has never even done any kind of physical examination on me. I made a big financial sacrifice and went to a private physio today. Should have done that a long time ago. He was great. He seemed genuinely disgraced at the state of my knee and after a very thorough examination he suspected I had torn all sorts of other ligaments and loose cartilage. He advised me to get a second opinion as he is knows of my OS and said that although he is good, it seems my knee was now way beyond him and he has clearly messed it up. He said I will probably need mutiple ligament repairs in one sitting, which he is not confident my OS can do and he will probably just repair it as best he can. He said I am relying on my calf muscles to control my knee because my upper leg muscles cannot stand the stress. Although this is terrible news, and I know now that this is just the begginning of what i thought was the end, at least I feel i am taking control of my options more now as I had never considered getting a second opinion and my physio has told me he will support me through the preop and postop physio that im going to need. I am glad he gave me some home truths instead of fobbing me off as I feel I have been for so long.

So as it stands now I wait for MRI results and to see what my OS has up his sleeve this time. And wait to see gp for a referral to another OS for second opinion. And in the mean time try to keep my muscles from wasting away before my eyes and just try to remain focussed that there is light at the end of the tunnel i guess. Just a long long waiting game that never ends as I know you can all relate to!

At first the thought of more surgery was devastating but weighing up the pros and cons I have come round to the idea that what needs to be done needs to be done and if surgery can help me i am willing to go it again because it cannot be any worse then the pain and instability i am currently suffering. My life is going to take a complete setback and different direction as a result but I have come this far and if i dont have it done i will never be able to do what i want and will always regret that i guess.

So advice to anyone out there who feels they are not getting the treatment or support they deserve get out there and find someone who is willing to be honest and work with your best interests at heart, not theirs.
06/04 Fell - Fractured tiibial plateau, femur, patella, torn acl
ORIF and bone graft of tibial plateau
09/08 failed acl recon due to wound infection
06/10 failed revision acl with pcl/lcl/plc damage
now facing multiligament surgery

Offline Snowy

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Re: 2 failed acl operations
« Reply #13 on: June 16, 2010, 03:40:34 PM »
Hey Roze,

While it may not have been the news you wanted to hear, it does sound positive in that you're finally getting some solid answers and advice. Having a PT that you trust to guide you through the process is a big deal, too - with the right exercises you can prepare thoroughly for whatever surgery is to come and hopefully stabilize your knee a bit more in the meantime. Has your GP recommended a knee specialist? If not then hopefully the folk on this board can recommend one for your area.

I'm so sorry that your journey isn't over yet, but I hope that this is the start of the final stage. Having the right healthcare professionals to guide and treat you makes a world of difference.

Best of luck and do keep us posted on how things go for you.

Kay
Mar 11: R Biceps femoris tear (skiing)
Jul 10: ACLr (hamstring autograft)
Mar 10: L ACL rupture (skiing)
Feb 06: L partial ACL tear (kickboxing)
Dec 03: R bone edema (motorbike)
Jan 01: R patellar chip (motorbike)
May 93: R ACL sprain (hockey)
Ongoing: bilateral PFS and OA

Offline tez27

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Re: 2 failed acl operations
« Reply #14 on: June 16, 2010, 04:55:10 PM »
Roza from reading through your last post you actually sound so much stronger than you have done, I think now you know there is someone out there who is on your side [new physio] and you have people who understand and you can vent all you want to [all us knee geeks] seemes to have given you a boost, and the fact that you are facing more surgery dosent seem to be getting to you as much as it did before.
Being in controll is an important part of how you feel and you seem to have taken back control of you knee and also your life by seeking a second opinion and hopefully finding someone who will be able to sort out all the damage done to your knee.
All I can say is good luck I hope you find an excellent surgeon who can give you a great result, I look forward to hearing how things go for you Take care
TEZ
L K injured 25th June 2008
scope Jan 5th 10
diagnosis ACL rupture
fiberous band excised from acl
ACLr July 19th 2010  scope on 24th Sept 2011
ACL has failed incorrect tunnel placement
23rd July 2012 1st stage of a 2 stage ACL revision
10th May 2013 2nd stage ACL revision















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