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Author Topic: too young for TKR  (Read 968 times)

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Offline dawnie19

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too young for TKR
« on: March 19, 2010, 08:15:41 PM »
Hi all, im new to this site as a registered user, but have found loads of advice from all of you...thank you.x
My OS has stated I am too young for TKR and I have had lateral release on both knees and 2 other surgeries on my left knee, shaving the bone and menicuis repair????not spelt that right have I??/
Anyway I have OA in both knees and I am in constant pain, how do I get a second opinion on the NHS????
All I want is my life back.....
Please help!!!!

Offline Redwing

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Re: too young for TKR
« Reply #1 on: March 20, 2010, 07:37:43 PM »
Hi Dawnie

How old are you?  The reason that OS's like to delay TKR as long as possible is because they don't want to do it again which from what I understand is worse the second time round.  They want to be REALLY sure you need it now and that it can't wait a few years.  Knee replacements last about 15-20 years depending partly on how old/active the person is.  It is not usually the replacement knee that fails but the bones that it's adhered to that deteriorates so the revision has to go deeper into the bones.  I hope that makes sense.

You will probably get more response to your question if you post in the TKR forum in the osteoarthritis section.

Seven weeks ago I had TKR and believe me it's no picnic but I'm doing the exercises and each day gets a little easier and I'm very hopeful that I will have a good outcome.  Nine years ago, age 49, I was told I was too young.  Last summer I had bilateral arthroscopies (which I got no benefit from) and in Jan had the big one.  OS is talking of doing TKR my other knee in the autumn.
2001: first referral to OS for osteoarthritis in knees after about 5 years of OA pain.  Told I was too young for knee replacement.
July 2009 Bilateral arthroscopy
Jan 2010 TKR-right knee

Offline midge1uk

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Re: too young for TKR
« Reply #2 on: March 20, 2010, 07:46:01 PM »
Hi dawnie19......I fully understand how your feelng. Feb 2009 i had an athroscopy with a meniscus tear trimmed and was told that I had severe wear and tear all round the knee and would soon be back to the see the OS i na short while. I thought he had me confused with another patient as I recovered very well from the athroscopy...returning to work that i stand up and walk about within two weeks. I had no problems at all until this year and my now my knee seems to be deteriorating fast and furious. Ive been back to my GP and he wanted to refer me but I've asked for more time as I'm off on holiday early July and insurance won't pay out for knee issues. Anyway enough of me, can you go back to your GP and express your worries and ask to referred through the othorpedic choice (if your in the UK which I'm assuming you are) you can then choose were to go to be treated or just ask your GP to refer you to another OS maybe one that specialises in knees. They are out there, at the end of the day your GP has a duty of care to you as the patient and your needs are or should be off the upmost importance to him. Hope this helps you to seek furhter advice. Midge1uk

Offline dawnie19

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Re: too young for TKR
« Reply #3 on: March 21, 2010, 10:51:19 AM »
Hi thanks for your responses, im 39 at the moment but have just had to have a stair lift and bath board as these 2 things are my nemisis....I understand that there is an age issue when it comes to TKR but surely my quality of life at 39 is much more important than when im 60!!
I just feel that i would benefit more now than in later life. I go for lateral release on my right knee on the 29th march but i know it wont do any good as i have already had this on my left.
I will go back to my GP after my surgery and express my concerns and ask if i can be referred to another hospital,
Thanks again guys....hopefully I can get more help from a different OS.

Offline TwoBadKneesUSA

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Re: too young for TKR
« Reply #4 on: March 21, 2010, 11:30:43 PM »

At 39 I have my PFJR, which is a partial knee replacement.  My last OS thought I was too young for a TKR and told me to wait 10 years and he would do one.  I knew that was no answer.  The pain was insane.  It is a good idea to wait as long as possible yes, but quality of life is important too.  I would see if you can see if you can get a referral to another OS.  I agree with you and don't think another lateral release is going to help much.  My second one on the left knee was a disaster.  Good luck to you.

'83 lt knee scope
'88 lt knee LR
'89 rt knee LR (6 mos. after left)
'05 rt knee scope (clean up)
7/5/07 - scope, LR left, right clean
3/19/08 - LR failed, Supartz failed
8/21/08 - new OS apt
8/5/09 - TTT, LR, PFJR sched.

Offline KartBoy

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Re: too young for TKR
« Reply #5 on: March 22, 2010, 08:31:34 PM »
Have you discussed Autologous Cartilage Implantation (ACI) with anyone, I'm a bit older at 47 and my cartilage was wrecked by TPF but like you I was/ am too young for knee replacement partial or otherwise. My understanding is that ACI is more commonly used to treat arthritic cartilage degradation. I can't recommend the Royal National Ortopaedic hospital at Stnmore in Middlesex any higher. I'm now on a six week countdown having had cartilage harvested on Friday.

7th Mar 08 - Pedestrian hit by car
10th Mar 08 - TPF (Plate + 6 screws)
12th Mar 08 - TPF Revision
Feb 09: Hardware removed + scope
Jun 10: ACI Stage I
Aug 10: ACI II (Stanmore)
Oct  11 - MRI + Scope (In pain)
Aug 12 - MRI + Scope (In more pain)
Sep 12 - TKR ruled out :(