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Author Topic: cannot find the right doc  (Read 1305 times)

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Offline welshbabe

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cannot find the right doc
« on: January 24, 2010, 10:04:22 AM »
hi all im 24 nd i have suffered with patella dislocations 4 many years (both knees & at the moment they dislocate on average 1 a month) i also have benign joint hypermobility syndrome which obviously makes the sutiation more complicated! ive had many major surgeries on the left leg which have failed. the problem i have is trying 2 find a sugeon who not only specialises in knee surgery/patella instability but sum1 who also has a keen interest in hypermobility .. help!!! i am currently emailing a few surgeon to see if they do but no luck yet. my local GP and the docs in hospital r hopeless ... im having 2 do all the research myself as they dont know of any1 & 1 consultant mentioned they would have 2 do internet research like myself (but they cannot b bothered 2 help) we have come up against so many people due to frequent painfull dislocations & condition. any info would b appreciated? if you need more info about me eg what ive had done or who ive seen .. please ask .. thankyou all
2004 - athroscopy (3)
2005 - roux goldthwait procedure
2007 - left patella stabilization & advancement
2008 - tubercule osteotomy & advancement
2008 & onward - still have dislocations on both knees

Offline UK Girl !

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Re: cannot find the right doc
« Reply #1 on: January 24, 2010, 08:19:27 PM »
sorry you are having trouble finding someone.  It may be best to write to the big teaching hospitals where they will have the 'big men' who would be able to reccommend colleagues in your area.
1978 - ruptured acl and all cartalidge removed.
several debridements over years
TKR 10TH JULY 2006 http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=28257.0  Aug 07 patellar maltracking - more physio! Still pain - but so much better !
BIOMET AGC  TKR  (with 10 yr warranty !)

Offline Kates327

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Re: cannot find the right doc
« Reply #2 on: January 25, 2010, 05:28:11 PM »
Hi -
I have also been dealing with knee dislocations (both knees) since I was 11... I am now 26.  I am now stable in my right knee as of June!  So excited.  I met a doctor last spring who specializes in kneecap instability.   Her name is Dr. Elizabeth Arendt, she is the Minneapolis/ St. Paul area so I don't know if you are near here or not.  I can get you her contact information if you would like it (I would prefer not to post it). Anyhow, she has tons of connections to other doctors who also specialize in this problem.  Anyhow, I highly recommend her.  She knows her stuff and will not cut you open unless she knows exactly how to fix you.  She will do leg work for you as well if she does not think she is the doc. that you need to be with.





Offline welshbabe

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Re: cannot find the right doc
« Reply #3 on: January 26, 2010, 09:38:36 AM »
really appreciate your reply thanxs .. but unfortionatley im in the uk so it would mean a 9 hour flight!!! not fair!! out of curiosity does this dr who fixed your knee specialise in hypermobility as well as patella instability?? i have seen many surgeons who deal with patella instability but no-one who has also had a lot of experience with hypermobility .. thankyou

:)
2004 - athroscopy (3)
2005 - roux goldthwait procedure
2007 - left patella stabilization & advancement
2008 - tubercule osteotomy & advancement
2008 & onward - still have dislocations on both knees

Offline Dad3

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Re: cannot find the right doc
« Reply #4 on: January 26, 2010, 12:14:52 PM »
Have you tried looking at some of the private hospital websites, such as Spires?
You can search, by region/hospital etc and there is a brief biography of each surgeon on there - you'll probably find that the surgeons on the private hospital websites are the head honchos at your local NHS. The great thing is, is there are contact numbers/emails for these head honchos, so you can ask them direct if they deal with your condition/problem. If they do, then you can arrnage either a NHS or private consult with them  ;D

Mr Angus Robertson looks well versed in your kind of issue, IMHO.

Hope it helps.
RT Knee collapsed 08/2009
MRI 10/2009 - torn ACL
Arthroscopy and MFX - 10/2009
ACL and OATS 11/2009
RT knee lateral release, mosaicplasty and medial reefing - 22nd September 2010.
Still not 100% OK :(

Offline Kates327

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Re: cannot find the right doc
« Reply #5 on: January 26, 2010, 05:26:39 PM »
I'm not sure if she does.... but she does have contacts all over the world...

Offline welshbabe

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Re: cannot find the right doc
« Reply #6 on: January 26, 2010, 09:05:33 PM »
will deffo be having a look on the spires website .. thanxs for suggesting this & if i have any luck with this i will deffo let you know .. fingers crossed :)
2004 - athroscopy (3)
2005 - roux goldthwait procedure
2007 - left patella stabilization & advancement
2008 - tubercule osteotomy & advancement
2008 & onward - still have dislocations on both knees















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