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Author Topic: Anyone with AF started with a lateral release? Do I need a specific Doctor?  (Read 4343 times)

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Offline Decruz

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Sorry to open a new topic, but it's a different one, so...
I was trying to step back with my mind and think - my AF started because of a not necessary lateral release (I discovered later), all the docs I saw later told me my knee absolutely didn't need any surgery at all, the lateral release was a foolish idea of my previous doc.
Anyway, anyone has this story?
Do I need a specific Dr to repair first of all that release, thin again all the lateral very thickened area (soft tissue, lat.retinaculum, joint capsule..) that deform so bad my knee profile, create terrible pain at ITband+vastus lat. insertion and reduce a lot my patellar mobility (patella's clearly tracked laterally, the mobility towards the medial side is dramatically reduced)?
I searched and I found Dr.Shneider (http://www.patellamd.com/1.html) and an old video (22 yrs ago..) of his procedure to repair scarred/failed lateral release (http://www.youtube.com/watch?v=V0Upkswyv74 - in the middle of the video there's the real procedure) - any general feedback about him, any experience with this doctor related to AF started with a lat.release?
Seems that failed lat.release bring to pat.instability, but I'm the opposite: too tight, so compression, scratching of the patella on the femur border, clicking on the top...a mix between thickened lateral area and consequent AF (due maybe to the bad and uncontrolled hemarthrosis after the first op.)...
Thank you
Decruz

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Offline Decruz

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Turns out that Heather M. (hmaxwell) had a very similar story than me, that's AF started with a lateral release. Anyone knows how to contact her (last active one yr ago...http://www.kneeguru.co.uk/KNEEtalk/index.php?action=profile;u=65), if you know please ask her to contact me or send me a private message with the indication to reach her, could be very helpful!!!
THANK YOU
Decruz

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Offline Janet

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Heather hasn't posted on here in years. She was our first "master"....researching like crazy and educating the rest of us when there wasn't anything else on this site about arthrofibrosis or patella infera. As far as I know, she never found an answer for her problems. I've often wondered how she's doing.

Janet
Torn quad tendon repair & VMO advancement 4/99, MUA with LOA 10/99, Patella baja and arthrofibrosis, LR & medial release & LOA 5/01, LOA & chondroplasty 6/03,TKR on 11/06, MUA 12/06. From perfect knees to a TKR in 7 years, all from a fall on a wet floor...and early undiagnosed scar tissue.

Offline Decruz

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Heather's last post is of 1 years ago...here.
Anyway, I'll keep fighting..
Decruz

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Offline missmyknee

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You might try sending a PM to her , once you have reached 20 posts. She hasn't posted any messages since August 2006. She last logged in, in Dec 08, but did not post. You have nothing to lose. She saw Dr Steadman for her AF.

I hope she answers you. Otherwise, read thru all her old posts to see if you find the info you're looking for.

Pam
« Last Edit: December 30, 2009, 11:57:23 PM by missmyknee »
4Fx Clsd red
IMrod fib plate
derotate osteotmy tibfib
AF
IPCS patbaja
DeLeeOsteotmy,LOA,LR Zplasty,bongrf,chondrplty
chondrplty,LOA,fatpad remvd
TKR
openLOA,neurectmy,ITB Zplasty,fabela
PLC recon,revison,LOA,synovec
MCL,revison LOA
openLOA,prox Zplasty
openLOA, 6 neuromas excised,synov
3 Fusions

Offline Decruz

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I've already read all her story, I just wondered if talk with her could help...thank you, I'll try
Decruz

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Offline bajalady

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Hello,

To answer your question, no you should not need a specific doctor to deal with a scarred down lateral release. Your description of you knee and the thick areas and the IT band symptoms are classic for a stuck down lateral release. That complication is not as common as it used to be but it still happens.

Lateral releases are not done as much these days, I've been told. OS's used to do them all the time and many people had them done who didn't really need them in the first place.

Scarred lateral releases started all my knee problems years ago.

All of the orthopedic specialists you have seen are familiar with releases that have sealed up. You have seen 3 of the best....

The scopes (AIR LOA's) you have had done (3 in 7 months you said) have evidently not worked that well and then you've got an infection which generates even more scar tissue. At this point I'd guess (from my experience) no OS is going to want to operate on you for some months to come, not until you knee settles down. That may be the reason the "locked post" AF specialist suggested long term therapy and no more surgeries....for now.

In the future, you may have to look at larger more invasive procedures, maybe an open procedure. Scopes sometimes are not enough and the OS cannot get at the deep scarring or scarring that it outside the joint capsule. You would need an OS who deals with post-op fibrosis and patella tracking issues. I hope you find one near your home. 

Like the others have said, Heather M is not on board anymore. She did have 2 procedures with Dr Steadman in Vail after having about 5 in her hometown. The first procedure in Vail was the same one as you have listed (LOA AIR) and the second was an open procedure. an IT band z-plasty I think. She got somewhat better and was so glad she got in to see Dr S. But she did not get her 'old" knee back.

Callie

« Last Edit: January 03, 2010, 05:16:07 PM by bajalady »
Lft-- 1 open, mutiple scopes, combo Fulkerson- TTT and modified Maquet, more scopes.
RT--multiple scopes, one open
Baja, patella infra/contracture, DJD--Fibrosis

Offline Decruz

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Hi Callie,
actually as I wrote the other AF's specialists didn't see me after last surgery+infection but before, so their opinions weren't affected from these events in any way (and just of them said me PT was the only thing to do, the other one, told me a complete different thing..)
Anyway I'll see when I'll come back to my Doctor...   
Decruz

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Offline bajalady

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Sorry. I must have misread or misinterpreted something in one of your posts. It sounded like you had actually been a patient of one of the AF doctors and had procedures done by one of them already. You said you've seen 3 of the best in the US and one you mentioned by name (the locked post) and he suggested physical therapy only. That left the 2 senior surgeons everybody on site sees if they are lucky, but I guess you've only consulted with the other two?

Who did the 3 LOA's, AIR's in 7 months? Europe? Was that after you had the lateral release that scarred down?

Callie
« Last Edit: January 03, 2010, 12:05:43 AM by bajalady »
Lft-- 1 open, mutiple scopes, combo Fulkerson- TTT and modified Maquet, more scopes.
RT--multiple scopes, one open
Baja, patella infra/contracture, DJD--Fibrosis

Offline Decruz

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To clear: 3 surgeries described with one of them and double consultation with the others two before the 3rd surgery (LR that started the problem made in Europe..)
Decruz

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Offline ruilx

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I started my AF with a lateral release (both knees). I have full ROM but i am not able to sit more than 20 minutes :(















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