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Author Topic: Frustrated and hurting  (Read 2358 times)

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Offline hurtinbad

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Frustrated and hurting
« on: July 24, 2009, 09:40:40 PM »
I'm new to this so i hope this is right. i have had four knee surgeries in my life but the last year has been hell. My last surgery was in Feb. (partial tear of miniscus) woke up from surgery and still felt immediate pain. I thought this was odd. Waiting a month and was still in pain, had a MRI done and they said it was fine except for area of bone brusing inferior patella, new onset. The doctor said it will be better with time. another month goes by and still in pain and my regular doctor gives me cortisone shots into the knee and says he will have me running in weeks. Some recovery after that, minimal pain, even played golf. then complications started. Pain rose to a ten, couldn't wal very far. chronic pain even when doing nothing. this pain was worse then any of the tears I had done. So new MRI now it says: Severe chrondromalacia involving the medial compartment with a large chondral cartilage defect with subchondral erosion and edema present in the medial femoral condyle, knee joint effusion and popliteal cyst, mild tear in mcl. My doc only says I have arthritis and shot me with synvisc. i picked up a copy of the mri and it stated the above. Who do i believe and where do i go next. The synvisc helped minimally. sorry if this is too long.

Offline MorganaKC

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Re: Frustrated and hurting
« Reply #1 on: July 24, 2009, 11:24:54 PM »
The MRI is clearly showing a fair bit of damage, it could be wrong though. If your OS isn't even taking the scan into consideration, I suggest changing specialists and getting them to have a look at the MRI scans itself and not just the report. 
R KNEE
Partial medial menisectomy Nov 05
Partial lateral menisectomy Aug 06
Partial menisectomy/ACLr Apr 07
Partial medial menisectomy May 08
Synvisc Jan 09

Offline hurtinbad

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Re: Frustrated and hurting
« Reply #2 on: July 25, 2009, 12:23:44 AM »
Thanks, Morgana. i took your advice and I am going to go see a different OS to get another opinion. I meet with him Tuesday morning and then my original OS in the afternoon to see what he want to do now that the synvisc didn't work. I am a little anxious to hear what they are goig to say. i am a very active 49 years young and I do not want to change my lifestyle(Kayaking, Hikiing, steelhead fishing, beachcombing, golf, softball etc...) thanks for responding

Offline eaglemom

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Re: Frustrated and hurting
« Reply #3 on: July 25, 2009, 04:08:03 AM »
I too was in a similar type of deal with my os - he said either "a shot will help" or "pt will help" or "just take these pills."  I'd had it because I too knew something was wrong and went to another os - he said "oh somethings wrong here but you really need to see the os who preformed the surgery."  We had a huge discussion and he dismissed me by saying "there is nothing I'll do to you."  I was devastated.  I've since seen another os who said something similar. 

My point is the other os might agree something "isn't right" but don't be upset if he doesn't want to step on the first os's toes.  I would have handled all of this nonsense better had I known the os "good old boy network" works this way.  I wish you a good outcome.  eagle


Offline hurtinbad

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Re: Frustrated and hurting
« Reply #4 on: July 27, 2009, 09:48:27 PM »
Eagle sorry to hear that. If that happens to me I will blow a gasket. I see the new os tommorrow and will keep you posted.

Offline hurtinbad

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Re: Frustrated and hurting
« Reply #5 on: July 28, 2009, 06:28:04 PM »
So today i saw a knee specialist who is referring me to a doctor who specializes in cartilage replacement. He thinks that is the way to go before considering a partial knee replacement. he says he is not sure if I am a candidate because he doesn't know if there is enough left to work with????? anyway I go see the new guy some time next week. The specialist said if I couldn't do that then maybe he would do a partial knee replacement but he felt that because of my age(49) and how active i still am that the cartilage replacement would be a better first option. Does anyone agree or better yet disagree? Does anyone know what cartilage replacement involves? What and how long is recovery like? etc..... Thanks to anyone who can help.

Offline MorganaKC

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Re: Frustrated and hurting
« Reply #6 on: July 29, 2009, 10:29:59 AM »
I'm not sure on the technical aspects of the surgery, but it's a better option than a partial or total knee replacement. It's less invasive, less recovery time and preserves the structure of your knee for longer. Some people are not good candidates for meniscus replacements if they have almost no meniscus left or there is articular cartilage damage. I think that has to do with the new meniscus taking. Either way, I think the menisucs replacement is a better way to go. Good luck!
R KNEE
Partial medial menisectomy Nov 05
Partial lateral menisectomy Aug 06
Partial menisectomy/ACLr Apr 07
Partial medial menisectomy May 08
Synvisc Jan 09

Offline eaglemom

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Re: Frustrated and hurting
« Reply #7 on: July 29, 2009, 02:28:17 PM »
I'm glad you had a good os visit and at least a direction to head for information.  I'd do anything suggested prior to to pkr personally.  Of course most of us on this board are all heading that direction at some time in the future I'd guess.  Keep us informed. eagle

Offline hurtinbad

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Re: Frustrated and hurting
« Reply #8 on: July 30, 2009, 12:42:11 AM »
Thanks for the advice Morgan, what the heck did you do to your at such a young age to have all those operations.?

Anyway heard back from the doc and he is giving me an option of using my own good cartilage from a non weight bearing area of my knee or to use one from a cadaver. My thoughts are that my knees are bad enough and i need any good stuff i have, why not go with someone else. Does anyone have an opinionon which might be the better way to go?

Offline Lizn8r

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Re: Frustrated and hurting
« Reply #9 on: July 30, 2009, 01:10:59 AM »
I don't know what is involved in allograft cartilage transplantation, but I can tell you that I had an allograft ACL reconstruction ... after doing quite a bit of research I decided that I didn't want to "rob Peter to pay Paul" if you know what I mean.  I figured it had to be easier to recover from if I only had to heal at the reconstruction site and not at a donor site also.

Good luck ... when is your surgery date?

Liz
Sep '99: Tore left ACL (football) - misdiagnosed
Sep '99-Apr '09: Lived with pain and buckling
Apr '09: New PCP (who listened), MRI and OS consult - proper dx
May '09: LK ACL Allograft and 25% medial meniscus removal
Sep '09: Released from PT and OS ... back to things I haven't done in 10 years!

Offline hurtinbad

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Re: Frustrated and hurting
« Reply #10 on: August 01, 2009, 12:29:14 AM »
Thanks Liz, that is exactly what I think, I have a pre op meeting on August 11th to discuss when and recovery times etc... I will keep you posted.

Offline MorganaKC

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Re: Frustrated and hurting
« Reply #11 on: August 01, 2009, 09:30:00 AM »
I was playing rugby when I was 11 and tore my ACL, then landed after a hurdle wrong and tore my meniscus when I was 13, and then it just kept tearing. =)

I'd too be more inclined with the cadaver site. The only issue with that is rejection and the like, but I think it's a better way to go than taking something away from an area that's already damaged.

Good luck!
R KNEE
Partial medial menisectomy Nov 05
Partial lateral menisectomy Aug 06
Partial menisectomy/ACLr Apr 07
Partial medial menisectomy May 08
Synvisc Jan 09

Offline lostandhopeles

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Re: Frustrated and hurting
« Reply #12 on: August 06, 2009, 12:41:25 AM »
hurtinbad, I had oats May 15, 09 Prior to this the OS did a second scope to biopsy cartilidge to use doner. After scope He said it would be better to use my cartilidge. I have been in P/T since surgery 2 to 3 days a week. My pain is minimal and my motion is great. The OS has had me Non weight bearing since surgery. This has been the most diffacult time of my life. At my last appt I was told we need to go 3 months NWB 6 days to go. At start I was told 6 weeks. My OS told me in the beggining that recovery was long and diffacult. Prior to this injury I have had no knee problems. I wish you the best of luck.

Offline hurtinbad

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Re: Frustrated and hurting
« Reply #13 on: August 08, 2009, 08:05:49 PM »
Lost and hopeless,
Thanks for the info, i am glad you are pain free and your motion is great. It has been over a year dealing with pain daily and i am tired of it.  i am concerned about the recovery time but i am willing to do whatever i need to, in order for this knee to work again. so I will be very diligent, like you, and do all the p.t. he tells me to do. I hope you are up and weight bearing soon. that is a long time to go being NWB. I would love to hear your progress and know how you are progressing since we are having the same done and i will try to do the same. I meet with the doc on Tuesday to discuss options and recovery times but last time my only options were oats or use my own cartilage from a non weight bearing ligament. i will let you know when the big day is. thanks again for writing.

Offline hurtinbad

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Re: Frustrated and hurting
« Reply #14 on: August 18, 2009, 07:39:15 PM »
Tommorow is the day, aliitle anxious right now because they won't know for certain how bad or exactly which procedure they will do until they get in there. He said most likely OATS procedure with 6 weeks no weight bearing. This sounds like no fun at all. Thanks for everyone who has written so far and I will update after surgery on Wednesday. Let's hope they get it right this time. i am tired of chronic pain and I want my life BACK!!!!!!















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