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Author Topic: A lifetime of knee pain  (Read 973 times)

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Offline kneepain4life

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A lifetime of knee pain
« on: June 23, 2009, 10:34:24 PM »
I'm hoping that someone can give me some help (I am new to the group).  I have had a lifetime of knee pain.  Most recently (2 and 3 years ago respectively) I have had two osteotomies.  I still have horrid tendonitis and now the doc says I have Iliotibial Band Syndrome.  I am tired of hurting!! I walk on a daily basis and I have gone through more PT than most people.  Shots in the knee hurt and they don't work for very long.  I don't know what to do anymore.  Nothing seems to work.  The tendonitis is probably the worst of the problems right now and the doc said that I would have it for my whole life.  That just depresses me.  Any guidance would be appreciated!
Thanks!
Taaron

Offline smartdriver

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Re: A lifetime of knee pain
« Reply #1 on: June 26, 2009, 02:13:31 AM »
I would definitely find another OS to see what they say.  My first OS said that it was IT band syndrome, but nothing helped - including PT and a knee brace.  I'm now on OS #4 and still searching for someone that will actually listen to me.  The last OS pretty much gave up on me.  I know there has to be a reason for the knee pain, as well as a patellofemoral specialist. 

Is there any activity that you can do where it doesn't make the pain in your knee any worse?

Just hang in there and keep searching for a better (and the right) answer!


Offline kneepain4life

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Re: A lifetime of knee pain
« Reply #2 on: June 27, 2009, 01:24:25 AM »
Thanks for the response!  Walking doesn't hurt - most of the time.  Today it hurt to walk - go figure.  My GP was wonderful - she said that no one should have a life time of pain...and that she would write a note to my insurance company if I found a doc outside of network that could help me (thank goodness).  There have got to be OS's out there that specialize in chronic knee issues and I am in the process of searching.  Since my main problem involves my tendons, I would like to find treatments for that.  PT usually ends up hurting more than helping...I've been going to PT off and on since I was in elementary school (sigh).  I totally get what you mean about the docs giving up on you - I have had the same situation.  The one I have been seeing tries to be sympathetic but he gets frustrated because he does not know how to make it better.

You hang in there too - there is life out there without pain and with answers..we just have to find the right doc. :)