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Author Topic: 7 yr old daughter has hms  (Read 955 times)

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Offline un1c0rn1

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7 yr old daughter has hms
« on: August 24, 2003, 02:02:07 AM »
My daughter was diagnosed with hypermobility syndrome 3 years ago and since then I have had problems trying to get help with her.  She saw specialists at the biomechanics dept who made her special insoles for her shoes, but then we moved out of the area and had to go to a new appliances dept at the local hospital. The insoles they gave me for her are adult width and length and dont fit her shoes.

They keep saying that her "problem" is not serious, but they are not the ones up with her during the night when her legs are in agony.  

Am I being over-protective in expecting something to be done??

Any advice would be gladly received.

Offline abaddon_bast

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Re: 7 yr old daughter has hms
« Reply #1 on: August 24, 2003, 02:14:00 AM »
it can be a problem later in life and can lead to disloactions and such but HMS it self don't cause any pain at late at night stuff but she is more prone to injury and such tho. that all i know... best of luck
Dislocated Right knee 2/28/03
Dislocated Right Knee 7/3/03
VMO adv. and LR w/scope on right knee on 7/21/03
Started PT on 7/30/03
Current ROM 130 as of 9/23/03
Curently in PT an doing good

SL99

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Re: 7 yr old daughter has hms
« Reply #2 on: August 24, 2003, 02:44:53 AM »
Hi and welcome, I'm really sorry to hear about your daughters diagnosis. HMS can be very painful as it causes micro trauma to the joints, but with the right care, treatment and Physical therapy it can be managed and can avoid the more serious problems later in life that many hypermobility sufferers here on the forum sadly suffer from.  :-/

Your daughter is fortunate that her age is on her side as with proper therapy and "retraining" of her muscles to protect her joints she can effectively control her HMS. You're not being over protective and I advise you to keep badgering away to get her the help she needs as soon as possible You need to look into getting her into a physical therapy program with experience in Hypermobility and possibly get some back up from a rheumatologist with HMS knowledge too. Don't be afraid to keep pushing for this - as it's very important.

Good luck and please feel free to contact me if you want any advice or need to talk. You might also want to check out the section on here for joint hypermobility problems as there are a few of us here that call ourselves the Odd Bods, who'd be very happy to help you.  :)

Take care.....Jo
xx

Offline tazmanian_devil

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Re: 7 yr old daughter has hms
« Reply #3 on: August 24, 2003, 02:45:36 AM »
Sorry to hear about your daughters problem. You might try posting your question in the hypermobile section. Theresa
L ACL Recon. L lat. meniscus tear 1991, R Dislocated 1996, R ACL partial tear, MCL tear 08/01, R Chondroplasty 2/14/02, R Lateral Release-Medial Reefing-Chondroplasty 12/3/02.















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