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Author Topic: In total despair  (Read 1967 times)

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Offline OA76

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In total despair
« on: February 14, 2009, 06:02:37 PM »
My story is a long and sad one.  :'(
In 1997 I did an ACL surgery (right knee) and in 1999 a partial menisectomy (right knee). In 2007 I was dignosed with chondromalacia patelae at the left knee. In June 2008 I was diagnosed with OA and chondromalacia patelae in the right knee. In December 2008 I did a Gait analysis test indicating the following: Leg length discrepancy (left knee 1,5 shorther than the right one), left knee is both valgus and recurvatum, right knee is valgus, overpronation on left foot, pronation on right foot. I sustained six giving away incidents of the left knee from October to January 2008 and was diagnosed with the hypermobility-hyperlaxity syndrome.
Did physiotherapy for more than two years but no improvement. Taken all sorts of supplements. Pain is all the more frequent. I can hardly walk. Been to the best doctors in Greece and Israel (where I now live) and nobody can do anything. I am not a candidate for any autologous chondrocyte operation or anything of the kind. The best doctor (in terms of credentials and reputations) I've been to told me that "the only thing I could try on your right knee is a Synvisc injection, which might give you a temporary relief. You will be needing a TKR in the future but you are too young now (32 y/o) Other than that, my science cannot help you". I then went to another doctor to start the injections (the top one has a very long waiting list) and he said: I cannot do the injections on that knee, you run a risk of infection.
I am now on constant NSAID medication which provides little practical help and is not well tolerated by the body. Bought a pair of orthotics but it will take time before any improvement (if not deterioration, such as the one caused by some stupid low quality Greek orthotics I used for more than two years). Half the people tell me I should do squats, others tell me to avoid them at all cost. Some say that leg extension is beneficial, others claim the opposite. Valgus knees cannot really be corrected neither can knee hyperextension. I do not know what (if any) exercises can help as they could aggravate OA.
I am spending endless hours on the PC looking for any solution, ranging from biological TKR to Cytotron, osteotomies e.t.c. and the vicious circle is not ending. I do not expect a solution from that forum, just needed desperately to share my pain with people who have been to some of those situations.
 :'( :'( :'(
« Last Edit: February 14, 2009, 07:01:32 PM by OA76 »

Offline TwoBadKneesUSA

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Re: In total despair
« Reply #1 on: February 14, 2009, 11:42:03 PM »
Hey OA,

First of all welcome to the board.  You will find a lot of supportive folks here.  I am terribly sorry you are in so much pain and having difficulty.  My last OS said I needed to wait 10 more years before he could help me with a TKR.  I am 39 and also too young.  I looked all over and found an OS to help me.  I am scheduled for surgery in April.  If kneecaps are you problem, squats are terrible.  You do want to keep the quads stong and not set off the OA.  An extremely delicate think I know.  For myself I have malignment and instability of the kneecap, so anyting in the last 30 deg to full extention really irritates the pain.  I do as much of the PT stuff as I can.  Some days it's only a few SLRs.  At least your OS has let you know that he cannot help you with what knowlege he has, and is not going to try a surgery that may not help or make things worse.

Do you have access to a pool?  Walking in warm water (waist high or so) is supposed to be good for OA.  Make sure the water is quite warm, 80 deg farenheit at least.  Any colder and it tends to stiffen the knees.  The water helps take the weight off the joints.  Check around and see if any water exercise classes.

Keep looking for someone to help you.  Good luck to you.

Milly
'83 lt knee scope
'88 lt knee LR
'89 rt knee LR (6 mos. after left)
'05 rt knee scope (clean up)
7/5/07 - scope, LR left, right clean
3/19/08 - LR failed, Supartz failed
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=47974.0
8/21/08 - new OS apt
8/5/09 - TTT, LR, PFJR sched.

Offline OA76

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Re: In total despair
« Reply #2 on: February 15, 2009, 12:27:40 PM »
Milly, I sincerely thank you for your reply and hope the surgery goes well. Keep me informed if you may.
Having read a lot of stories in the forum, I realise that some of you had so bigger a problem than mine that you are probably laughing at my story. It seems that things can sometimes only get worse. To my mind, a great number of OS should have pursued another career, one that would have caused many fewer people to suffer.
In any case, I guess that a chronic pain management specialist could be a starting point. As for the patellofemolar thing, is there any indication that the MacConnel taping technique provide any substantial help?

Offline TwoBadKneesUSA

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Re: In total despair
« Reply #3 on: February 15, 2009, 11:45:58 PM »
Hey,

I have not tried the McConnel tapping, but many here have.  It quite often works.  Of course it's not a permenant solution.  I think anything that allows you to lessen the pain, it's worth a try.

I will have a post op diary after the surgery, so you can keep an eye out.

Milly
'83 lt knee scope
'88 lt knee LR
'89 rt knee LR (6 mos. after left)
'05 rt knee scope (clean up)
7/5/07 - scope, LR left, right clean
3/19/08 - LR failed, Supartz failed
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=47974.0
8/21/08 - new OS apt
8/5/09 - TTT, LR, PFJR sched.

gigi67

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Re: In total despair
« Reply #4 on: March 03, 2009, 07:57:00 PM »
I too an advocate for swimming...just get in  a pool and walk,,forward, backward, sideways, gentle jumps, jogging in water, step ups, ...flutter kicks, the list goes on but start with basics...wlaking in many directions first and not without approval!  it made a world of improvement in my own case! Two years later I still use the pool in addition to other things but I still go back to the pool regularly. LOVE IT!

Offline subail

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Re: In total despair
« Reply #5 on: March 11, 2009, 12:42:21 AM »
OA, never feel that others have worse problems. Your problem to you is as serious as anyone else's.

 This is the place to find answers and support. At least you won't feel so alone. No one knows knee problems as well as those who have been through the knee wars.

Take heart.....

Sue
Dislocation of left patella and as a result left patellar tendon rupture in the medial section/torn at both ends.
3 Previous surgeries-semitendiosis tenodesis
Reconstruction surgery left knee October 10 '07
TKR right knee May 25 '10.....successful!
Limited ROM/TKR left knee May 25 2015...successful.