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Author Topic: Am I being told the truth...  (Read 1017 times)

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Offline climber85

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Am I being told the truth...
« on: October 21, 2008, 06:25:40 PM »
or just being fobbed off by the NHS who don't want to spend the time or money fixing my knee?

I have had pain in my knees since I was 17 and was told it was anterior knee pain syndrone and would go away by it self.  Now I am 23, my career is in outdoor adventure activities which I can't do as my knee is so sore - mountain biking is absolutely out the question, climbing I can bear with pain killers and grit determination to get through the pain.  Even straightening my leg from a bent position hurts.  I have had numerous x-rays, been to physio for 6 months and now had an MRI.  The results of the MRI showed I had serious deterioration of the meniscus and also deterioration the ACL which wasn't a problem. yet.   There was nothing that could be done to fix it because the ACL and cartlige was not torn, I would just have to live with it, use pain killers and ice.

He said, and I quote "How much is it really going to bother you?", "this is my career," I replied "so quite a lot." " Well I think you should maybe consider a change of career."

I have now been told by a physiotherpist friend of mine that this is not in fact the case and it can be fixed by using cartlige from elsewhere.

Has anyone had any experience of this similar type of knee problem or situation of feeling ignored by the NHS or equivilant?

Offline celinenj03

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Re: Am I being told the truth...
« Reply #1 on: October 21, 2008, 06:41:52 PM »
Can't help with NHS as I'm in the U.S. and so far, we are still private healthcare. Anyhow, hang in there and keep fighting until you get somebody to listen to you and fix your knee. There is no reason you should suffer like this. did they say it was your mensicus that was torn? Or your articular cartilage? Both are really not good news but fixable. Is private out of the question for you? Otherwise keep going back and crying as hard as you can til they do something.
Terrible Triad - 1/16/06 - Basketball
3/15/06 - Scope/Cleanout of to achieve full ROM
5/3/06 - Surgery-ACL Reconstruction-Allograft
9/12/07 - Large Loose body removed;Grade 4 Lesion on LFC
9/17/08-Microfracture, Lateral Release (all right knee)

Offline clarky_vl

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Re: Am I being told the truth...
« Reply #2 on: October 21, 2008, 06:58:08 PM »
Hi,
sorry about your knee problems, that sounds really horible, especially as it affects your job so much too. do they know how badly the meniscus was deteriorated? i would have thought they could have at least tried SOMETHING as it sounds so bad. i think that is really awful that they are suggesting you change your life when they cant even be bothered to TRY with anything  :-\

i am an NHS patient too, but i have found that although they are sometimes slow and bad at getting around to things (!), they have always been willing to help and try things as much as possible, they sound really bad where you are!! i have heard other stories about people being as unimpressed by the NHS on here too though, so perhaps i am just a lucky one!

do you have another appointment with whoever it is you are seeing, or is that it?

Vicky  :)
11/10/07 ACLr-hamstring, lat meniscectomy, microfracture
29/7/08 ACL revision-hamstring/LARS
7/7/09 ACL revision-quad/LARS
20/2/10 Screws out, bone grafts, arthroscopy.
6/7/10 ACL revision-BPTB allograft
14/3/11 Screws out, bone grafts, arthroscopy.
Then: ACL revision + extra-articular repair

Offline climber85

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Re: Am I being told the truth...
« Reply #3 on: October 21, 2008, 07:49:17 PM »
Meniscus is deteriorated not actually torn.  I have to say the consultant was actually quite sympathetic about it but still suggested there was nothing they could do.  Didn't mention how deteriorated it was just that it was 'significant for someone my age (23)'

Have no more appointment to see the consultant, that last one was just the end of it.  If I was to go back I would have to go to my GP and get refered which would usually take about 3 months.  So I'm at my wits end and am now determined to do absolutely everything in my power to completely wreck it so they will take me seriously.  You can judge me all you want for wanting to destroy one of my joints - all my mates give me the "but you might not be able to walk in 10 years!"- FYI I'm probably not going to be able to walk in 10 years if I just leave it as it is.


Cheers for your thoughts!!!

Offline jathib

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Re: Am I being told the truth...
« Reply #4 on: October 21, 2008, 07:53:34 PM »
Gotta love a medical system that makes you trash your own knee just so you can get an appointment. Pitiful.

Offline Nettan

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Re: Am I being told the truth...
« Reply #5 on: October 21, 2008, 08:09:28 PM »
Thinking if you have the possibilities go for a private appointment. Maybe that could help you start moving around in NHS.
I know that your system sucks over there. In Sweden we have some of the same system, but I would think that things are easier here.
A sportsmed would be preferable for you.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline climber85

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Re: Am I being told the truth...
« Reply #6 on: October 21, 2008, 08:52:23 PM »
Already tried private.  Don't have health insurance so paying up front we're talking 250 for consultant appointment and xray, 500 for MRI, at least 5000 for knee reconstruction op and anything else on top of that, and me being a little outdoor instructor at a meagre 12,000 a year but currently earning earning 5.85 per hour in a shop because I can't do my job, private isn't an option.  A girl can dream tho...

Offline dodgyoldkneezer

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Re: Am I being told the truth...
« Reply #7 on: October 22, 2008, 12:32:49 PM »
I've had problems with NHS in the past with my left knee (tore my ACL took 9 years and only when I had private cover through my company), now having them with my right knee. I have at least a torn meniscus in my right knee and possible torn ligaments.
I'm waiting for an op but they've told me they won't reconstruct my ACL even if it has gone but just give me physio. I want to return to playing football and hockey and as I had the same problem with my left knee I don't think that sounds like a very good idea to me, I feel they just want me to be able to walk.

I've looked into going abroad as it's cheaper, Norway have a private hospital which will do the ACL reconstruction I'm being quoted about 2000 from them. You are entitled to your medical record scans etc I think you might need to pay 5 or something like that, another alternative is to make a complaint ask for a second opinion at another NHS trust never know might get lucky postcode lottery etc.

Offline sccc

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Re: Am I being told the truth...
« Reply #8 on: October 22, 2008, 10:56:14 PM »
Hi,

Ive just been reading your post and it relates very much to the study i am hoping to carry out for my disseration, looking at the difference in emotional reactions to injury with those who go for NHS treatment and those who go private.

I am in my thrid year at university and have to do a disseration this year. I was really hoping to do it on the psychologically effects of sports injuries, I have had two ACL rupture myself, one on both knees and waited four years on the NHS for an operation and am currently on a waiting list for my second op. I have found it really hard coping with the injuries and not being able to play football. and also not being able to express how i emotionally feel/felt about my injury to others. I think the psychological effects of an injury are often forgotten about by health professionals. I am looking for sports people who have had an injury and:
1, Have recovered and returned to sport
2,Have recovered from physcial injury but not returned to sport
3,Those currently recovering from an injury
4, those with injuries and currently waiting to be seen by specialist/ physio etc

I just wanted to send a post on here to see if anyone would be interested in taking part. It would involve filling out a few questionnaries. I could email them to participants and it would invlove you to post them back. I would be willing to send out a stamped envolpe to individuals addresses but i am aware of all safety issues and so on. It would be preferable if individuals lived in the UK as i am looking at the National Health Service as a factor in the study. I thought it would be good to come on this site for participants as i do not know you and i think individuals will be more truthful. I think injured players often play down how they feel as they think people wont understand especially if they dont play sport themselves.

I cannot go a head with the study unless i have enough participants so if anyone would be willing to take part i would be very grateful if you could leave a post on here just to let me know if you are willing to participate and then i will get back to you from there.

Many Thanks
SCCC















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