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Author Topic: 10 months on crutches - Please help me!  (Read 4017 times)

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Offline arkitect06

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Re: 10 months on crutches - Please help me!
« Reply #15 on: September 16, 2008, 03:08:09 AM »
Allie, thanks so much for your posts on my diary today!!  It's just now approaching the end of our day.  I don't know what your time difference is, but I am thinking it's the beginning of your day right now??  Or mid-morning maybe?  No idea.  I know in China they are 12hrs ahead wherever my dad travels always.  Korea I know wouldn't be the same, but maybe close??? 

I can't believe the reactions you have had with your meds. Now I understand why you don't take them!!  I just thought you were one of those people who would rather suffer than take meds.  I used to be like that until it got so bad like it is now.  I wish you could find some meds that wouldn't give you problems though.  Even though my meds don't make a lot of the pain go away, I can't imagine the pain without meds right now!  Today I was suffering all day and took all the meds that I was allowed to take and was still suffering!  Without the meds, I know it's worse.  I haven't been taking the morphine and the roxicodone for too long, so I know it's not b/c I am used to it.  The meds just don't do anything for me.  You'll have to see on my diary, but I spoke with my OS and PS today and both want me off PT for 3 weeks and my PS may want me to get my meds adjusted if they aren't doing much for me over the next couple of days.  To help with the Roxicodone itching, they have me trying Benadryl for the next few days.  So far, not working, but it has only been a few hours.  I am definitely getting sleepy as I type this post though!  Well I hope you had a good night and have a great Tuesday!!!  I am so happy to have you on KG here with us!!!  I hate that we have a lot of similarities, but at the same time it's very nice to have someone going through the same things.  Good night (for me anyway)!!!!

Farrah
11/16/10 Fulkerson TTT, chondroplasty, LR (Left Knee)
11/17/09 SCS re-implant
7/29/09 I&D
5/7/09 SCS removal b/c of MRSA
12/15/08 & 2/6/09 SCS Revision
10/30/08 Spinal Cord Stimulator Implantation
6/27/08 diagnosed with RSD
1/8/08 Fulkerson TTT, chondroplasty, LR (Right Knee)

Offline Silkncardcrafts

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Re: 10 months on crutches - Please help me!
« Reply #16 on: September 16, 2008, 10:12:46 AM »
Hi Allie,

Just checking in to see how you got on at PT today.

I had physio tonight on my back and has made a big difference.
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #17 on: September 16, 2008, 11:24:17 AM »
Hi everybody Thanks for the posts KJ  and Farrah,

i have had a mixed day today really.  I have just got back from physical therapy which went ok today. Amongst other things we were trying ( and it is a two person effort!)  to get my leg straight in prone position with the aim of being able to touch the mat I was working on with my toes.  Well I must have tried about 8 times and couldn't get past a certain point quite a way off straight- the pressure of the bed against my knee was too much.  I tried using my left leg to "help' which sometimes works but not today-  I just couldn't do it and ended up collapsing into giggles about how ridiculous it must have seemed. I then managed to take a few steps with a single cane which was the best I've done yet ( ok it was with the PT almost holding me up!)  had chance to talk to PT about my appointment with the rehab doc, his main concern is the sudden pain and possible subluxation which takes me by surprise when walking as that makes me unsafe and is preventing further progress really, well that and the problems with extension, weakness and pain.   I think the sudden pain shows that my knee is still very unstable.

I have started taking NSAID's again, just some I got myself from a pharmacy so will see if they make a difference to physio on Thursday! hope to be able to get more extension in prone position by then- will practice tonight!

Glad to hear your physio went well KJ and that it has helped your back.

Farrah I will check out your thread later, I think we are about 9 hours ahead of you, yesterday when you posted it was 3am here!! I was awake VERY early ( jus another one of those knee things ::) )
 

My good news from today- I have found a hydrotherapy pool close to where I live.  It is at another hospital and I can be referred to use it by the doctor and hospital I am currently registered with- I dont want to change doctors or hospitals as am quite happy but maybe could be referred to hydro once a week as an extra treatment.  I am so pleased to have found one!
 I have also contacted a sports medicine doctor and I am waiting to hear back from him- thanks to KJ for that info
I can't believe I have so many new things to try since posting on here- at the end of last week I had no idea what to do next!!!

Hope you all have a good day- off to start a hot pack- will check in again later!
Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)

Offline Silkncardcrafts

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Re: 10 months on crutches - Please help me!
« Reply #18 on: September 16, 2008, 11:36:35 AM »
Hi Allie,

Sorry to hear you had to go through so much at PT. Did you PT say anything about clinical pilates when you asked them ?

It's wonderful you have found a hydro pool. I find just walking up and down helps free my leg up and am gradually getting stronger.

Glad to hear that you have contacted a sports medicine doctor. Am sure they will have some good ideas and would probably have a better idea to manage your conditions than perhaps your rehab doctor.

My sports physician has been my godsend and has often come up with different ideas. He's happy to try new things too.

Look forward to hearing the next update.
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #19 on: September 18, 2008, 01:17:23 PM »
Hi just to update everyone :(

I fell down a few stairs today at work, someone bumped into me and knocked me- and have just got back from the ER as I dislocated my good knee and it would not go back in to place- had to be manipulated.  I am hoping that it will be ok in a few days as it has been before....at the moment I can barely move  :( :(

Please wish me luck for the next few days- I am hoping to be able to stay at home but don't know how to manage really, my friend is staying tonight so I hope it all seems better and brighter tomorrow

Hope you are all having a better day
Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)

Offline Silkncardcrafts

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Re: 10 months on crutches - Please help me!
« Reply #20 on: September 18, 2008, 01:42:47 PM »
Hi Allie,

So sorry to hear about you fall down the stairs. The exact same thing happened to me when I lived in London, but it was my shoulder. Fortunately it went back in.

I have just been on a date. It was soooo much fun and really like the guy. We have a lot in common.

Hope you start feeling better soon.  :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #21 on: September 18, 2008, 02:05:16 PM »
Hi KJ
that is good news about your date, keep me posted on how it goes with him, I am glad you have met someone that you like and very happy that you have had a good time.
I have been given a wheelchair for the time beginning so have just managed to make a cup of tea whilst I am waiting for my friend to arrive- she always seems to manage to make me laugh and it will be great to have an extra pair of hands tonight!

Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)

Offline arkitect06

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Re: 10 months on crutches - Please help me!
« Reply #22 on: September 19, 2008, 01:17:05 AM »
Allie!!  I'm so sorry to hear about your fall down some stairs!!!!  What did the person that bump you say or do??  Did they take you to the ER themselves??????  I'm sure that it was an accident, but I am sure they felt horrible after all of your pain and difficulties.  I hope you are doing okay considering what happened!!!  I have been lucky to not have any unfortunate accidents during the years of my knee problems. 

I really hope that you will feel better tomorrow and will find a great deal of relief from this situation by the end of the weekend!!!  Well I hope it's earlier of course!!!  Well I'm thinking about you!!

Farrah
11/16/10 Fulkerson TTT, chondroplasty, LR (Left Knee)
11/17/09 SCS re-implant
7/29/09 I&D
5/7/09 SCS removal b/c of MRSA
12/15/08 & 2/6/09 SCS Revision
10/30/08 Spinal Cord Stimulator Implantation
6/27/08 diagnosed with RSD
1/8/08 Fulkerson TTT, chondroplasty, LR (Right Knee)

Offline Silkncardcrafts

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Re: 10 months on crutches - Please help me!
« Reply #23 on: September 19, 2008, 11:58:30 AM »
Hi Allie,

How is your knee today ? I hope it's a bit better.

Am very frustrated as I have left about 5 messages for my knee physio over 3 weeks and still hasn't returned my call. Not happy !!!! Going to ring my sports physician on Monday as I know he'll call me back.

Been really struggling with my pain when walking. Going to ring my OS's rooms on Monday.
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #24 on: September 20, 2008, 10:34:55 AM »
Hi everyone

I managed to see a Sport physician and chiropractor yesterday (my friend drove me- very slowly_ The car trip wasn't much fun :() and I am now really confused.  I thought the treatment I have been having in PT was the best treatment I could get here as the hospital I have been attending (since March) comes highly recommended and is the largest and reputedly the best university hospital in Korea.  However at the Chiropractic clinic the doctor was horrified by the condition of both my knees and ankle- at one point I asked him what he thought I needed to work on most and he said "its all awful isn't it".  He inteviewed me and I filled out a chart when I arrived, they showed me a film about Chiro treatments and then had a look at my legs to assess them. 
The treatment he ordered was some machine with a vibrating plate which I had to stand on (using my crutches) for 10 minutes, he then used a metal tool on the outside of my knee and my heel as he said I have a lot of scar tissue (this part of the treatment made me cry it hurt so much!) during and after this he checked my ROM.   He then attached tape to the areas he had worked on, he took photos of my posture and carried out adjustments on my back and had me do exercises with his PT which were different from any I have done before, the involved lifting against resistance in different positions and using a thera band to stretch my heel cord.  He said I should heat before exercise and then ice after and gave me an exercise sheet and a report on my current condition and treatment program to take home.
All the way through he was asking me "did they try this before"  or 'have you done this before at PT'.  He also asked me why the hospital had not referred me to sports medicine before as there is a sports medicine clinic there!  He also was discussing my case with his PT in korean and was using the name of the hospital I am attending and I am sure his comments were negative.  At one point I asked him a questiobout why he thought I hadnt been told to try one exercise which seemed to really help before and he said that the hospital "don't know what they are doing!"    He then said most hospitals in Korea and the States have difficulty fixing knees and often miss things that could help.

I am so confused now as although this doctor seems highly qualified, supported the olympic team here and comes recommended to me by another patient i have only met him a day ago and have been attending the same hospital for 6 months.  I don't want to think that they have not been treating me correctly and thought I could trust them.  I guess I don't really know who to believe or  trust.
He has said that I should be treated by him 3 times each week using treatments that are quite different from the things I have had done so far.  I can't accept that if he is right then I have been having at best ineffective treatment in PT.  If he is wrong he is obviously just saying these things to give me some hope and ensure that I buy his treatment program which is quite expensive I think 60 dollars for each session, he said that I should be able to walk within 4 weeks of starting his treatment, after 10 months that was like music to my ears.

What would you all do in my position????

Today the pain has been awful and my back hurts too following the treatment yesterday _ I dont usually have back problems.  I have just stayed inside as it has been raining very heavy- has anyone found a way to hold an umbrella on crutches??!  I have been inundated with with  friends visiting- my friend who bumped me on thursday called around too and feels so badly that I wa trying to make her feel better, to be honest it could have happened anytime anyway!

Farrah How are you doing today- any change in pain yet??

I am sorry to hear you are struggling Kj- it sounds like your sports medic is more supportive than your PT.  I hope you get some help with your walking difficulty on monday.

Have a great weekend everybody
Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)

Offline Silkncardcrafts

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Re: 10 months on crutches - Please help me!
« Reply #25 on: September 20, 2008, 01:58:14 PM »
Hi Allie,

Sorry to hear you are struggling and very confused now.

Just sent you a private message. If you reply to my message I'll see what I can find out about the guy you saw.

Glad lots of friends are visiting. Enjoy your weekend.  :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline arkitect06

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Re: 10 months on crutches - Please help me!
« Reply #26 on: September 20, 2008, 05:22:06 PM »
Allie, I am so sorry that you are so confused now.  I guess that I would be too.  I know what you mean about being skeptical at this point since you were under the impression that you were under great care at the hospital you were going to for so long.  It does sound like that new treatment is very different.  This vibrating thing sounds really weird.  What was it and what did it do for you?  What was this metal thing he used for scar tissue?  Was this guy Korean or another nationality?  I guess that doesn't matter, but I am curious. 

My opinion is to do what you feel is best.  Depending on what I thought of the treatment with this new place, I may go ahead and try it for a while since I know that I am not improving at this other hospital.  If your knee is worse for a few days after each treatment, then you know that it's not what is best.  Were you in extra pain after this session?  Or did you notice a difference?  What did they say to you about being in pain after treatment?  Being able to walk in a month would be music to my ears to and that's why I think I would try the new treatment.  If you are not walking in a month and things haven't improved, then obviously go back to your original place.  $60 is a lot of money for 3 days a week though.  I wonder if you could do it in 2 days instead to make it more affordable and not such an expensive risk. 

Let us know what you choose...my opinion doesn't mean much, but just gives you something else to think about.  I really hope that you are not worse today from that treatment!!!  I hope you feel better!

My pain is bad as always.  My diary explains what I have been up to lately...lots of negative things happening in my life right now...just a really tough year.  Have a great weekend!

Farrah
11/16/10 Fulkerson TTT, chondroplasty, LR (Left Knee)
11/17/09 SCS re-implant
7/29/09 I&D
5/7/09 SCS removal b/c of MRSA
12/15/08 & 2/6/09 SCS Revision
10/30/08 Spinal Cord Stimulator Implantation
6/27/08 diagnosed with RSD
1/8/08 Fulkerson TTT, chondroplasty, LR (Right Knee)

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #27 on: September 21, 2008, 01:39:47 AM »
Dear Farrah,

Your opinion means a lot to me. Before I found this website and especially you and Kj I had no one I could talk to who even close to understood what I was going through- one of my friends told me she "knew what it was like as she was in plaster for 6 weeks when she broke her leg which is much more serious than what I have done, at least I haven't broken a bone!"
I read more of your diary every day- it continues to inspire me, you have been, and are so brave. Thank-you so much for taking the time and trouble to respond to my posts, hopefully we can support each other.

I would just try the new place for a month and if it doesn't work go back to the hospital but stopping hospital treatment now would mean that I have to be join a long waiting list to even see a specialist, someone I know pulled some strings to get me seen quickly the first time- they wouldnt be able to do this again, I don't want to be in  a position where I am not having any treatment or help.  Maybe just going for 2 days each week and keeping going with the hospital too would be a compromise although the new doctor put a bit of pressure on me to come 3 times a week and pay for 12 treatments in advance which I haven't done yet but think will have to if I go again.

The pain has improved a little this morning in my good leg, I have been icing it regularly and the swelling has decreased a little, still can't even crutch though....maybe later!!!

   
Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #28 on: September 23, 2008, 11:59:39 AM »
Hi everyone!

I have had a good day today- I have been able to crutch around since yesterday- I never thought I would be so pleased to be able to use crutches!!! The pain in my left knee  has improved and I have taken off the splint, just wearing a support bandage now so have made good progress.

Physical therapy was tricky tonight but not as bad as usual as he was working on both legs so there wasn't quite so much pressure on my bad leg.
I also had to change my crutches as I had worn through the base of one of them so that there was only metal in contact wth the ground!!  The new crutches are great as they have foam attached to the hand grips- I feel like I am just bouncing along although in reality I am far from bouncing- no more blisters !!!!   ;D

Hoep you are all having a good day, off to try to make some dinner!!
Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)

Offline allie

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Re: 10 months on crutches - Please help me!
« Reply #29 on: September 27, 2008, 11:29:05 AM »
Just a quick knee rant!!  I am sorry if it doesnt make much sense!!!   :'( :(

I am waiting for my rehab appt on which is on Monday at 9am.  I really hope that they are willing to try something else at this point.  I think they will have to as my PT (who recommended I should go back to the doctor) said on Thurs that they need to review the therapy treatment I am getting.   I can't seem to take my mind off this appointment this weekend...  If they are not willing to try my suggestions, thanks mainly to posting on here and people helping me out, I think I will have a hard time not giving up

At work on Friday one of my colleagues asked me if I would be coming in to work on Monday with no crutches- I was quite upset to have to say that there wasn't even a slight chance of that happening- I don't usually talk about my leg at work, just try to get on with things, like many of us Knee geeks do so I think they have no idea what it is really like for me.

I was hoping to be so much better by now that at the beginning of July I booked a holiday to malaysia on the 25th of October, to a hotel on the beach.  I think I will have to cancel this as I cannot get in and out of a pool, cannot imagine walking on a beach safely and certainly will not be going on a walk through the rainforest to see Orang Utans and parakeets which was going to be the highlight of the trip for me, especially as I was going on my own just as a target for my recovery and kind of a reward- I know it sounds silly but we all need things to keep us going-    this will be just another disappointment in a long line of them.

Also my boss wants to speak to me on Monday afternoon after the appointment- I have been doing ok at work lately I think and I have managed to work for 2 complete months without a day off ( even though there are days when it really hurts to move) but I am also a little worried about this as the company owner is coming over from England on Tuesday.  I don't think there are any problems and the owner often comes over but I am still a little concerned.  It is not unusual for my boss  to see me as I am vice principal but it seems like just one more thing to deal with. TBH I wouldn't worry much if I did have to leave but I do like my job and don't have anything else to focus on.

I really hate weekends, I feel excluded from most things- the expat life here is great fun and very active and most things are inaccessible to me, a lot of things here are up stairs (overcrowded city life) or involve walking and standing for longer than I can.  Also I dont drink at all at the moment whilst I am on meds and crutches, I try not to put myself at further risk, this means I seem to miss invitations to parties o bar crawl type evenings.  I am not that bothered really but it would be nice to have a choice about things to do.
I have spent almost all the past 3 weekends inside due to the bad condition of both my legs and so far this weekend, it is Sat evening here, I havent seen anyone...

I just want to regain some shred of normality and get my life back-  even just go for a walk on a day like this, without pain, swelling and exhaustion...

Ok rant over, sorry all, I will try to get back to being positive again soon

Hope you all are having a good weekend

Allie

 

 
Pre 1992 Repeated dislocations both knees
1992  bi Lateral Release
2007 dislocation left knee
Dec 07 dislocation right knee
May 08 arthroscopy and MUA
Jun 08  achillies tendon surgery
Jun 09 arthroscopy and MUA
Jul 09 discharged from physio- not working
Jul 09 still on crutches (18/19 months)