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Author Topic: Nick's 3in1 Diary FatPadTrim, Medial plica/Distal patella excision, AIR x2, LMR  (Read 273793 times)

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Offline Clarkey

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  • Neil TheElephant knee packed up carrying his trunk
Re: Nick's 3in1 Diary FatPadTrim, Medial plica/Distal patella excision, AIR x2, LMR
« Reply #1605 on: September 16, 2018, 08:50:41 PM »
16/09/18 Day 243 Eight Months Post Op

Eight months post-op and knee remaining the same not getting worse or improving. Still walking at a slower pace with knee giving out at times. Would be nice to have a PT appointment come through soon that taking longer than expected. Saw my hip OS on Friday 27th July and the referral letter was sent a week later on Friday 3rd August. Should hopefully get a date for first PT session in a weeks time after 6 weeks. My last appointment took 6 weeks at the smaller minor injury hospital in north Worcestershire for my right hip. Had to cancel it as it was fresh after my surgery in January to focus on my right knee. My right hip not included in the PT session at hospital I where I had my surgery done.

Back helping out at the autism charity shop once again weekly that involves some lifting that is fine if it a short distances, as long as I avoid the stairs. Right hip seems to be a niggling pain that manageable if I am doing some gardening or moderate lifting. Can always ask to see my hip OS again if it worsens over the winter months. Hopefully it will remain being ok. Been told if it becomes more persist and regular it better to have the cam smoothed over to prolong the need for a new hip! Not unusual nowadays for someone in their 50s or 60s to have a new hip. Strictly Judge Craig Revel Horwood has had both hips replaced but he has used his hips a lot more dancing most of his life. A lady at my local garden centre is in her late 50s and need a new hip that has done similar work to my previous job, labour intensive work out in all weathers.

Having said that might have been another heavy fall when I slipped hard on my side and right hip at a Indian restaurant that had slippery tiles outside the entrance. No one seemed to be concerned not even a glass of water free cup of tea from the waiters that saw me fall. Saw a elderly lady slip on black ice by carpark at the disability adult coffee morning I attend on a Thursday morning. I asked straight away if she ok and if she like a hot drink for free at the coffee morning and said thanks for the kind offer I am fine. Maybe that caused the right hip labral tear.

Accident prone with slips and falls that led me to KG after slipping on my untied shoelace while running with 2 big heavy falls afterwards a few years later is not going to be great for the joints!

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline Clarkey

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16/10/18 Day 273 Nine Months Post Op

Final had my long winded 2in1 PT appointment for right knee and hip assessment at a more local hospital to my location. Smaller hospital with easier parking ticket system taking in your number plate as you drive in as barrier lifts up. Pay at the end that less hassle if you running slightly late for appointment. I arrived 10:55am instead of 10:45am, Was ten minutes late as I did not realise how the parking system worked. Searching in the carpark for ticket machine that they have at Birmingham ROH.

The physio was fine about it, must happen a lot to new patients as paying machine is not very clear paying on one machine in front of hospital main entrance. Went well giving a pain scale of 5 to 6 on a bad day with more pain in my right hip. Said can only do so much with the hip to ease the impingement with strengthening of the muscles and stretching. Same with the knee building up the quads that have wasted! No firmness or muscle tone in comparison to my left quads.

Was given a booklet for to stretch the muscles, top of my thigh was very sore after assessment that is mega tight! Been given an exercise booklet from Arthritis Research UK for osteoarthritis of the knee even if I do not have the condition good booklet for diagrams of exercises. Hip pain booklet also has good diagrams and information. 

lifting, squatting and gardening aggravates the back of the knee behind the hamstring with some anterior pain. Pinching on the side of the hip that happens when sitting up and down. Told will not go away and wait till it worsens! The OS in his youtube video for young adult hip treatment said he wish patients came in earlier for treatment before the hip gets to the replacement stages. He said can always ask to see him again in January when I see Prof Snow. See how PT goes and the colder weather. Maybe could ask for another MRI scan that Prof Snow can do on behalf of my hip OS. See if the hip deteriorated since the last MRI that must be at least 2 years ago.

Hard to say with the knee until I have got stronger quads seeing if I can attempt a brisk walk that I cannot do right now! Still on the slow side and get overtaken by pedestrians in their 60s and 70s. Running is a long way of, if I can run again in the future. Cycling and swimming is ok to do when asking if I can start doing it.

Next appointment is on Halloween in 2 weeks time today. Adding more strain in the exercises.

[email protected]
« Last Edit: November 17, 2018, 11:21:46 AM by Clarkey »
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline Clarkey

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  • Neil TheElephant knee packed up carrying his trunk
16/11/18 Day 304 Ten Months Post Op

Physiotherapy is going ok so far at a slow pace. Still finding the hamstring behind the knee is mega tight when doing stretching exercises. Doing calf stretching and wall squats with the same anterior knee pain around the same spot as it was pre-op around the patella tendon! Hoping it will improve as my quads become stronger to help reduce the pain that still needs some work with more strenuous PT sessions. Going to the gym using the bike at low resistance will have to be done at another gym. My local gym has the physio that ruined my 2nd surgery who made me overdo it during my PT session early post-op! Do not want to catch sight of him.

Have to be honest and should have stuck to Birmingham ROH as the new PT has good intentions but is not really giving me PT I should be getting after ten months post-op. At least the previous PT I saw got me on the exercise bike and doing steps ups that I was able to do without any problems. The smaller hospital that I am currently receiving PT does have a gym within the PT department. It is a waste of time going over the PT exercises I been given that are written down with diagrams, so do not need to check. Be good during the half hour session to do some gym work that would be more beneficial. Should be ok to say to my PT that I rather be doing gym work during my appointment. Patient's have a say what exercises they want be doing during the appointment if they are not entirely satisfied.

Being told should find some part time work that is a challenging right now! Happy to work at a garden centre but because my right knee and hip flares up when I lifting bags of soil, gravel etc for customers with physical challenges. Even at the charity shop I volunteer at once a week bringing donations up the stairs, helping customers with their purchases to their car if they are elderly and frail! Hard to say cannot help due to joint problems as I look young for my age coming up to 40 next month. So now not going to the charity shop as I feel I am a burden as I not able to help out as I would like to.

Supporting vulnerable adults and young people also challenging due to having a unjust conviction, making it virtually impossible to find paid employment. Have completed my chapter on autism and criminal responsibility for an academic book for university students and professionals last month in Dublin. Was a Storyteller with two academic respondents.
Links below explains the whole nightmare scenario my family and I found myself in that is still haunting me to this day, not being able to quash my criminal record!

http://autisminjustice.org/Stories/nick's%20story.html
 
https://www.routledge.com/Global-Perspectives-on-Legal-Capacity-Reform-Our-Voices-Our-Stories/Flynn-Arstein-Kerslake-Bhailis-Serra/p/book/9781138298910

https://twitter.com/SuffolkPunchASC

I am now on enhanced PIP due to my autism and joint issues until 2020 after a successful I appeal won my case for benefits I entitled to. Hope one day can say the same quashing my criminal record that comes up on my enhanced DBS check!

[email protected]
« Last Edit: November 17, 2018, 02:03:06 PM by Clarkey »
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline Clarkey

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  • Neil TheElephant knee packed up carrying his trunk
16/12/18 Day 334 Eleven Months Post Op

Progressing well with my physiotherapy sessions, going to the gym during my session on the exercise bike, balance board and other machines available for half an hour. Muscles are less tight and can do full calf stretches and walking better without a limp as I got into the habit of keeping my right leg stiff. With a prolonged injury right leg got used to remain stiff. Speed is still not there and think it will not improve and rarely feel knee pain. If I try to do any physical activities then feel some pain and discomfort lifting and digging is still a struggle and can kneel down but straight away feel anterior pain and pressure building up that must be scar tissue that I realise will never be totally eradicated and had some bone trimmed around the tibia where bone spurs caused friction and pain.

Seeing Prof Snow in the 1st week of January, not sure what else he can do for me and will probably discharge me? Ideally would be nice to have an annual consultation once a year with three surgeries already be nice to keep an eye on the knee. Not sure if the NHS would be able to do this or not? Would be a pain if my right knee did suddenly get worse going back to my GP and start the lengthy process of a referral. Hopefully, the knee will not worsen but if it did could call Prof Snow secretary for an earlier consultation.

Not sure what to do about my right hip? It becomes a problem when I start to do gardening work with sudden sharp pinching pain and sore and tender in the joint to touch. Had a chat with my physio and she said with cam impingement can only strengthen the muscles and will not really improve that much just can control the pain with stretching and building up the muscles. Have the option to have another MRI scan that Prof Snow can do if he feels it is required on behalf of my hip OS that he did for my cortisone injection back in April 2016. Last MRI scan on my right hip is coming up to 3 years next year and think it good to compare images new and old. I am not able to apply for work I have the qualification in horticulture like working in a garden centre. The only problem is cannot do jobs involving lifting, squatting and kneeling. Cannot really do self-employed gardening work as I would need to do it daily and would be too much strain for knee and hip to make it a regular proper income that's seasonal.

All know by now of my unjust criminal record with a passion to support young people with additional needs on a part-time basis. Lots of media reports of young people and adults with autism and other disabilities being restained incorrectly or homes where staff lack autism awareness and abuse and neglect service users die! I went through this at all three hostels of verbal, physical and emotional abuse from staff that should have cared for me. Lash being pinned down causing minor bruising and scratches and become the culprit when I was a victim of a disability hate crime while on wrong meds that messed up my head. 

Already doing advisory work for universities on autism policing that have paid me for my services that some money coming in on top of my PIP's benefit. Would like to get into public professional speaking on autism and the criminal justice system and part-time work helping and supporting young people with physical and mental disabilities. In contact with a police sergeant that will try and do what he can to get my conviction quashed. Hopefully, 2019 will be a breakthrough year for me to start earning a living once again and get my life back to normality.

[email protected]
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline Clarkey

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  • Neil TheElephant knee packed up carrying his trunk
16/01/19 One Year Post-Op Anniversary

One year today since my 3rd RK arthroscopy of distal patella excision, AIR and LMR. Good news the knee is no worse off in comparison to my 2 previous surgeries largely due to not having any aggressive physiotherapy sessions that caused the excessive scarring to occur with a 2nd AIR surgery. The scar tissue and anterior knee pain are still there but less intense than it was pre-op. Hopefully, it will improve once I have built up my quads strong again that has shrunk considerably in size and mass. Did not see Prof Snow on Wednesday 2nd January for my six months check up, saw his registrar instead who was just as good. He could see straight away my right quad needs building up again. Swimming, gym and cycling will be looking into soon as there is no longer an effusion that was visible before my surgery. Have another 6-month checkup in July booked already.

Was discharged today from the physiotherapy. My physiotherapist is happy for me to manage on my own by doing PT exercises at home and going to the gym and swimming at my local leisure centre would be an added bonus. My muscle is less tight and walking with less of a notable limp got in the habit of keeping my right knee stiff that can be reduced by remembering to walk heel to toe. Do not agree with the physiotherapist that I can start doing brisk walking and light jogging! The registrar told me that I had an invasive major procedure done back in January 2018. Got used to it that most standard physiotherapists have never dealt with a patient that has had AIR surgery done twice with patella tendonitis a weak point in my knee! Was my goal to try long distance running, for now, happy to go to the gym and swim and maybe buy a bike in the spring and go cycling more.

The right hip is starting to play up more with more pinching on the side of the hip with groin pain and discomfort. Asked the registrar to refer me back to my hip OS for some reassurance. Do not expect to have surgery at this stage. Like to have an up to date MRI scan to check if the cam impingement and labral tear is progressing and go from there. Poor Andy Murray got to the stage where it beyond repair with a replacement highly likely with the way has pounded his hip. Thankfully mine is nowhere near as bad, that could suddenly progress if left untreated for a long time period. Basically my cam the large ball hip joint has bone spurs that if smoothed over would reduce wear and tear from progressing with a larger labral tear that might be beyond repair it is left untreated. Did do heavy manual labour at work from the age of 19 to 33. Was taken advantage of by my bully of a boss doing heavy manual labour daily! Shovelling sand, soil and gravel and strimming on steep banks weekly in the growing season and now it caught up with me and can feel the cam hip joint click and clunk at certain angles. Have good days when I hardly notice my hip pain then it suddenly there again.

Would like to work with adults and young people with mild LD, autism and other conditions in horticulture. Want to be as physically fit as I can be before applying for such a job position with qualifications in horticulture, childcare and autism. Makes sense to put my key skills into good use.

Will start to post every 8 weeks in my post-op diary, there is nothing too much to report monthly at this present time missing out February, April, June, August, October, December.

[email protected]
« Last Edit: March 16, 2019, 10:29:20 PM by Clarkey »
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming

Offline Clarkey

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  • Neil TheElephant knee packed up carrying his trunk
16/03/19 One Year_Two Months Post-Op

Two months since the last update. Became a member of my local leisure centre paying 30 a month by direct debit where I can use the gym and swimming facilities as often as I like. Started off going well going three times a week on a Monday, Wednesday and Friday morning. Leg press x12 twice, cycling, cross trainer and treadmill each for 12 minutes ending in the pool for a 20-minute vigorous swim. The pool always seems to be stone cold that was the problem I faced previously and left for over a year because of the cold pool. Thought to accept as I am paying concession price for being autistic. Usually would cost 37 a month membership fee. Swim a quicker pace to keep warm that was a mistake, getting the worst cold I have had for several years. Sore head, throat, chest and ears and constantly running nose! Was in bed for two days, took over 16 days to clear.

I enjoy swimming more than going to the gym and been told other swimming pools around the region are also cold and not heated sufficiently. Will cancel my membership and direct debit at the end of this month and will try out other swimming pools within a 10-mile radius. Think local councils are saving money lowering the pool temperature or cannot be too warm as it might increase bugs and illnesses occurring. Was fine up until 4 years ago at nice warm temperature. Even my friends and support workers at the disability swim say the pool is cold so it's not just me finding it icy cold. 

The knee is behaving ok, cannot increase my walking pace and running is out of the question. At least I am limping less since the surgery which is a good success and happy that something positive came out after going through a 3rd invasive surgery when I saw the registrar in January. Get the odd sharp anterior pain inside the knee that ok to cope with as long as it does not increase. Know the knee will wear down quicker after 3 surgeries arthritis has set in and my age is against me now I am in my 40s joints start to deteriorate, feel pain at times in my left knee and hip. The normal aches and pains as you start ageing.

[email protected]       
« Last Edit: March 16, 2019, 11:17:02 PM by Clarkey »
RK: PFPS, Arthrofibrosis, Tendinopathy, Five cortisone injections
16/01/18 Anterior interval release, distal patella excision, lateral meniscal repair
18/07/14 Anterior interval release  
16/11/09 Medial plica excision, fat pad trimming