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Author Topic: Chronic Knee Cap Pain  (Read 6820 times)

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Jan40

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Chronic Knee Cap Pain
« on: June 19, 2008, 08:40:00 PM »
Please Help :'(, I have had knee cap pain in both knees for many years (used to be a long distance runner and still play netball), but the pain has become chronic in the last 10 months'

I consulted my doctor, and to date I have had injections, the kneecaps taped and physiotherapy with daily exercises to improve VMO.

The pain did not improve so  I was referred to an orthopaedic surgeon who has given me a diagnosis of chondromalacia patellae,and that the kneecaps are also misaligned ,the consultant told me to get on with my life and put up with the pain and stop playing netball. He is arranging for me to have MRI scans

I am now struggling with everyday activities and unable to go to work as I can not drive or sit at my desk, I am 43 and do not want to put up with this pain for the rest of my life.

Should I get a second opinion, my own doctor is totally behind me and agrees that there must be something that can be done.

Has anyone else got this condition and what did you do if all conservative measures failed. Thanks


 
 

 

 
 

Offline TwoBadKneesUSA

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Re: Chronic Knee Cap Pain
« Reply #1 on: June 19, 2008, 09:19:55 PM »
Hi there,

Definately seek another opinion.  Just live with it is the biggest cop out!  There are some things that may be done depending on the reason for the malignment.  I went to PT for what felt like eons until I finally had surgery for the problem.  I have since done other damage to my knees which I am working on now. 
Good luck.
'83 lt knee scope
'88 lt knee LR
'89 rt knee LR (6 mos. after left)
'05 rt knee scope (clean up)
7/5/07 - scope, LR left, right clean
3/19/08 - LR failed, Supartz failed
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=47974.0
8/21/08 - new OS apt
8/5/09 - TTT, LR, PFJR sched.

Jan40

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Re: Chronic Knee Cap Pain
« Reply #2 on: June 19, 2008, 09:26:37 PM »
Hi There

Thanks for the reply.

I totally agree with you I felt as though it was a total cop out, bet he wouldnt just live with it.

Could you tell me what surgery you had and did it work.

Thanks

Offline TwoBadKneesUSA

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Re: Chronic Knee Cap Pain
« Reply #3 on: June 23, 2008, 01:44:14 PM »
You can see the list in my signature, but I'll give you a run down.  I had my first scope at about 13 or so, the only thing the doc did was bascially manipulate the knee so I could straighten it again.  I'd been holding my foot up and limping so the knee almost froze that way.  The next surgeries I had were at around 19 (I lived with pain for that long, I'm stubborn).  With in 6 months I had two lateral releases, one each knee.  This did seem to help for 8-10 years or so.  Then the knees started acting up again.  I didn't do anything more until about two years ago.  My kids were just too small for me to be on crutches and such before.  Now they are pretty self sufficient, so they can take care of me for a bit of a change.  The last surgery was a bilateral scope (I didn't have enough sick time to take off twice).  He just cleaned up behind the kneecap on the right, but did a lateral release on the left.  It has made things worse this time.  I don't think it was the right thing for it at this point.  I have also been told to wait and see.  So I am waiting to see a new OS.  I do trust the one I have, I just don't think he knows what to do about my knees right now.  So I've looked up one that has specialized in kneecaps and their issues.  Good luck to you.

Milly
'83 lt knee scope
'88 lt knee LR
'89 rt knee LR (6 mos. after left)
'05 rt knee scope (clean up)
7/5/07 - scope, LR left, right clean
3/19/08 - LR failed, Supartz failed
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=47974.0
8/21/08 - new OS apt
8/5/09 - TTT, LR, PFJR sched.

Jan40

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Re: Chronic Knee Cap Pain
« Reply #4 on: June 23, 2008, 01:54:56 PM »
Hi Milly

Thanks for your reply it has really helped, Im going to see new OS in next couple of weeks will let you know what happens.

Jan

Offline TwoBadKneesUSA

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Re: Chronic Knee Cap Pain
« Reply #5 on: June 23, 2008, 05:41:00 PM »
Glad I could help.  I hope the new OS listens and gives you something to go on.  Best wishes.

Milly
'83 lt knee scope
'88 lt knee LR
'89 rt knee LR (6 mos. after left)
'05 rt knee scope (clean up)
7/5/07 - scope, LR left, right clean
3/19/08 - LR failed, Supartz failed
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=47974.0
8/21/08 - new OS apt
8/5/09 - TTT, LR, PFJR sched.

Offline JustMeInNC

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Re: Chronic Knee Cap Pain
« Reply #6 on: June 23, 2008, 06:38:21 PM »
Im just about in the same place that TwoBadKnees is in but so far (knock on wood) my left knee is doing great after having a lateral release done on it about 12 years ago. The right is a different story. Just had my 4th Scop and 2nd Lateral release done on that knee about 4 weeks ago and even the doc admitted that it might not help that much with the amount of damage and wear that he found. BUT at least he is willing to look at another option as soon as my husband is off crutches (so that he can take care of me, he broke his knee and has a plate and 6 screws holding it together). Hopwe that you get some good news from the new doc. Good luck
I'm so busy that I'm not sure if I lost my horse or just found my lead rope.

1989 - Right Knee - don't rember what they did
1997 - Right Knee - Orthoscopic clean up again
2000 - LR on left knee
2001 - LR on right knee
2008 -LR on right knee (again)
9-18-2009 - Maquet osteotomy right knee

Jan40

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Re: Chronic Knee Cap Pain
« Reply #7 on: June 23, 2008, 06:45:57 PM »
Hi, was lateral release done for maltracking problems? do you also have chondromalacia patellae?

I have an appt to see new OS on 17th July he specialises in patella problmes so hoping that he will do something for me so that I can get my life back

Thanks for your reply

Jan

Offline JustMeInNC

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Re: Chronic Knee Cap Pain
« Reply #8 on: June 23, 2008, 07:37:12 PM »
Yes i was diagnosed with chondromalacia in both my knees when i was 15. The Right knee was misaligned pretty good and has issues with tracking properly. My old OS was constintaly telling me that there was nothing esle that he could do. Went to the one that i see now and he did the x-rays and MRI and everything looked good from those (other than my kneecap not sitting correctly) But he went in with the scope to "clean things up' and was surprised at how much wear and tear and damage there was in there. That was why he did the second Lateral Release he was trying to loosen things up. It didnt help but there is more that he wants to do or he is even thinking about just going ahead and replacing the knee completely so that i can have my life back. Just gald that i FINALLY (after living and dealing with it for 20 years) found an OS that listened to me and took the time to find out what was really going on.
I'm so busy that I'm not sure if I lost my horse or just found my lead rope.

1989 - Right Knee - don't rember what they did
1997 - Right Knee - Orthoscopic clean up again
2000 - LR on left knee
2001 - LR on right knee
2008 -LR on right knee (again)
9-18-2009 - Maquet osteotomy right knee

Jan40

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Re: Chronic Knee Cap Pain
« Reply #9 on: June 23, 2008, 08:05:24 PM »
Hi

Thanks for that it was really helpfull. I agree with you why should we just put up with things, im hoping that the new OS that I see is going to take the time to listen, last one I saw I was in in and out in 10 minutes and didnt give me chance to expalin everything to him. Will keep you informed and thanks for your help.

Jan

Offline JustMeInNC

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Re: Chronic Knee Cap Pain
« Reply #10 on: June 24, 2008, 02:19:52 PM »
let me know how what the new doc says. if you want here is my email address and  you can email me. Always nice to find someone that has the same knee problems that i do and understands how it is
[email protected]

Cheryl
I'm so busy that I'm not sure if I lost my horse or just found my lead rope.

1989 - Right Knee - don't rember what they did
1997 - Right Knee - Orthoscopic clean up again
2000 - LR on left knee
2001 - LR on right knee
2008 -LR on right knee (again)
9-18-2009 - Maquet osteotomy right knee

Offline FormerlyActive

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Re: Chronic Knee Cap Pain
« Reply #11 on: June 25, 2008, 05:32:14 AM »
Its good you are getting a better eval. Your initial diagnosis was very general i.e. "chondro", you can look it up but it is often confused with a bunch of other things. There are people on this board who can explain it better than I. However I have been diagnosed with chondro since 1980 and both times I had surgery the good doctors who did it, fixed what was wrong and told me my cartilage was fine so the diagnosis by the other docs was faulty. You are right to get to the bottom of it, let us know what your diagnosis is and then there are lots on this board who know about many conditions. Take good care.
3/82 - Medial Synovial Plica removal both knees
9/89 - Lateral Release both knees
3/08 - Reinjury left knee hiking Asia Pac
5/08 - Miserable Malalignment diagnosis
4/08 - 9/08 Five doctors diff. opinions
7/08 - 02/09 - In PT, no chg.
4/09 - Dr. 6 opinion femur & tibia derotation together

Offline Steakneggz

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Re: Chronic Knee Cap Pain
« Reply #12 on: June 25, 2008, 10:29:59 AM »
I hope you keep us posted, I'm curious to know how it went for you.  I don't have a tracking problem though my CP was caused by knee trama.  So my doctors are lost as to what to do and I have had the best docs in the business look at my knee,  so I hope yours goes better then mine. Good luck.  ;D
Tore ACL march 11-05
Had exploratory surgery Dec 27-05
Had knee scoped but ACL was not repaired Dec 05
Was diagnosed with Chrondomalacia of the patella-
and was scoped for but in stage 3 Dec 05
Been giving OK for another Surgery Jan 06
Had anti inflammatory shots Feb-mar 06
Had synvisc shots Sept06

Jan40

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Re: Chronic Knee Cap Pain
« Reply #13 on: July 17, 2008, 08:57:59 PM »
Hi All

Just to give you an update went to see new OS today, he was shocked at the condition of my knees, having lateral release and shaving next thursday on my right knee and the left done in a couple of months, glad that something being done but really nervous as I have read so many horror stories.

Thanks for all your support, will let you know how it goes next week

Jan

Offline FormerlyActive

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Re: Chronic Knee Cap Pain
« Reply #14 on: July 19, 2008, 10:15:04 PM »
Hi
Just wondering was he shocked by the physical exam or the MRI or Xrays?

Good you are having some resolution. Keep us posted.

Wanted to ask Cheryl (Probull) and Milly - you both mentioned having second lateral releases done on the same knee? (not each's knees but your own ; you know what I mean!)
I keep seeing people on this board mention that but my OS says you can only have a lateral release done once ; did they only do a partial cut of the lateral retinacular the first time? How are you able to have a second one on same knee?
I ask because I feel like I need it again and they tell me its impossible. Appreciate any inf. 
3/82 - Medial Synovial Plica removal both knees
9/89 - Lateral Release both knees
3/08 - Reinjury left knee hiking Asia Pac
5/08 - Miserable Malalignment diagnosis
4/08 - 9/08 Five doctors diff. opinions
7/08 - 02/09 - In PT, no chg.
4/09 - Dr. 6 opinion femur & tibia derotation together