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Author Topic: At what point do you give up?  (Read 1445 times)

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Offline nzchik

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At what point do you give up?
« on: May 13, 2008, 10:58:21 PM »
Hi, I've had problems with my knees for the last 5 years, have had four surgeries, including an ACL recon and lots of scar tissue and cyclops lesion removal. I have yet again had more scans and xrays which show more scar tissue build up and damage to my lateral meniscus, but have been advised that surgery is not really an option because of my "incredible ability to form scar tissue". I am on a gym programme for strengthening, and have been for 5 years. Cortisol injections are not an option because of the amount of metal artifact in the knee and taking a lot of painkillers is not really that great for my mental health (or stomach ulcer!). I'm only 20, still at university and just don't know what to do next... any ideas?
May 02: ACL rupture
Nov 02: ACL recon
Oct 04: Reinicular Release
June 06: Meniscal debribement
June 07: Arthroscopy
Feb 08: rerupture ACL, tear MCL, cartilage x2
Aug 08: tidy up
Nov 09: ACLr redo with allograft
Aug 11: ACL rupture #3
Mar 12: ACL recon stage 1 bone grafts. Knee pretty much shagged

Offline derek english

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Re: At what point do you give up?
« Reply #1 on: May 13, 2008, 11:26:58 PM »
hello mate,so sorry to hear about your probelms!! i to went through different ops on my right knee(first one 91 and five more in the next five years) went through all the physio,and was told at 29 that they couldnt do anything more for me apart from a knee replacement!! i am now 37 and am in pain most of the hours of the day,i am trying to hold out until my 40"s for that op!! i know how you are feeling!! as i have said 2 my friends i wish i hadnt played american football!! i wish i had taken up knitting..i hope something can be done for you,do you get a lot of pain?? keep in touch let me know if life gets better for you..

Offline nzchik

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Re: At what point do you give up?
« Reply #2 on: May 13, 2008, 11:41:43 PM »
knitting sounds like a good plan! I can handle not being able to play sport or run any longer and realise that it is something I have to live with (though it is a bit gutting to go from racing motorbikes to not even bein able to ride), though i'm just struggling with how it limits my everyday life, i struggle walking up stairs at uni, some days it swells for no obvious reason and i can hardly walk, if i chose to go out partying with my mates i regret it for the rest of the week. The pain makes it hard to sleep (and sleeping through the night is almost impossible) and makes it hard to focus on my school. My degree requires on farm practical work experience which is also a challenge.
May 02: ACL rupture
Nov 02: ACL recon
Oct 04: Reinicular Release
June 06: Meniscal debribement
June 07: Arthroscopy
Feb 08: rerupture ACL, tear MCL, cartilage x2
Aug 08: tidy up
Nov 09: ACLr redo with allograft
Aug 11: ACL rupture #3
Mar 12: ACL recon stage 1 bone grafts. Knee pretty much shagged

Offline KW

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Re: At what point do you give up?
« Reply #3 on: May 14, 2008, 12:25:52 AM »
Hi nzchik...

Your "incredible ability to form scar tissue" is called Arthrofibrosis.  Look down alittle further http://www.kneeguru.co.uk/KNEEtalk/index.php?board=9.0...you will find many great members that are a wealth of information (and more then willing to help guide you).  I know I have read posts that have links to information in the community hub but i'm not sure exactly where they are...I'll have to look around and see if I can find them for you.

Hope this helps a little!
Karen
Right Knee
2000 - 2002 - Scope,LR,TTT,Unscrewed
01-10-12 - PFJR

Left Knee
04/07 TTT/LR
08/07 Bone Grth Stim
10/07 Loose/Bent Screw
1/08 Unscrewed/MRI~NON-UNION
02/19/08 Lt  TTT Revision W/Graft
12/09/08 Scope
05/15/09 Scope
09/04/09 PFJR/Unscrewed

Offline KW

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Re: At what point do you give up?
« Reply #4 on: May 14, 2008, 12:33:18 AM »
http://www.kneeguru.co.uk/KNEEtalk/index.php?topic=42143.0

Here is a post with the link to the community hub Arthrofibrosis information (the post from Jaci)

Hope it helps!
Karen
Right Knee
2000 - 2002 - Scope,LR,TTT,Unscrewed
01-10-12 - PFJR

Left Knee
04/07 TTT/LR
08/07 Bone Grth Stim
10/07 Loose/Bent Screw
1/08 Unscrewed/MRI~NON-UNION
02/19/08 Lt  TTT Revision W/Graft
12/09/08 Scope
05/15/09 Scope
09/04/09 PFJR/Unscrewed

Offline Plumb

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Re: At what point do you give up?
« Reply #5 on: May 14, 2008, 02:06:42 AM »
I think it really is .. when do you give in ?  to all that you can't do and just try to make the best of what is on your plate.   Being unable to do the things you love to do .. is a hard one to take.

Frankly there is not much difference btw 37 and 40 and holding out for a knee replacement.  But you have to know about all the risks and the acceptance that your implant may not last you but that can be true for a 50 year old .. If your knee implant is not done right you will be miserable for years. 

There are doctors who look at your quality of life.  Getting the implant centered and not vargus or valgus is important factor in having the implant last.. Computerized surgery.. is a new technology that  helps the os make his woodworking project a success. .

I had my knee replaced mid 30's .. .. now the other one is going.   I think of all the things that I can do now that I was unable to do.. Now having the left one go .. is about cutting back and not doing stupid things that will get me in pain fast.   Its all about pain factor..   sometimes you can push yourself to go beyond what you can normally want to take on..  Other times you take that step back and control yourself knowing the only one who feels the pain is you.. and only you..


So part of me fellas is like ..  Do not sit and wallow in pain if you do not have too. but also do not give up..  Every day is a gift.. everyone has challenges in their life.. some people have much worse health problems that knee stuff.


crap knees happen.

Offline Nettan

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Re: At what point do you give up?
« Reply #6 on: May 14, 2008, 06:18:50 AM »
Nzchik, take help from the people in the AF section, like Karen told you.
Maybe you can see someone who is an expert on AF that can help you.
The world is full of great docs so don't loose hope. You are young and have many years in front of you.
Wish you all the best.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline derek english

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Re: At what point do you give up?
« Reply #7 on: May 14, 2008, 09:40:21 AM »
Hi again mate,some good advice here.like people have said there may be someone out there that can help..the pain gets me down but life goes on,after what has happened to my family lately(cancer,heart attacks) i am just happy to be alive..hope you have a lot of positives in your life to keep you going!! good luck mate..

Offline Silkncardcrafts

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Re: At what point do you give up?
« Reply #8 on: May 14, 2008, 10:21:01 AM »
Hi Nzchik,

Where are you based ?

If you're in New Zealand you may want to consider seeing a very experienced and renowed surgeon in Melbourne, Australia. My OS gets referred a lot of the difficult cases, mine which is one of them.

Let me know if you want his details.

There will be someone out there that can help you.  :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline nzchik

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Re: At what point do you give up?
« Reply #9 on: May 16, 2008, 01:05:04 PM »
Thanks for all of the advice guys! Just find it a little bit frustrating going round in ever decreasing circles, especially when the knee packs a sad (like last night when it blew out)! And yeah, I am in New Zealand.
May 02: ACL rupture
Nov 02: ACL recon
Oct 04: Reinicular Release
June 06: Meniscal debribement
June 07: Arthroscopy
Feb 08: rerupture ACL, tear MCL, cartilage x2
Aug 08: tidy up
Nov 09: ACLr redo with allograft
Aug 11: ACL rupture #3
Mar 12: ACL recon stage 1 bone grafts. Knee pretty much shagged

Offline Silkncardcrafts

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Re: At what point do you give up?
« Reply #10 on: May 17, 2008, 10:28:23 AM »
Hi there,

I reckon it would be worth coming to see my OS in Melbourne. He only specialises in knees and am sure he would be able to help you. My OS specialises in ACL recos, patella instability and arthritis.

Do you want me to send you his details ? I reckon it would be worth getting an opinion from him. He treats a lot of elite athletes and has some great results.

Let me know what you think.  :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty