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Author Topic: Kathy's Pre-op Diary  (Read 31427 times)

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Offline Beda

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Re: Kathy's Pre-op Diary
« Reply #15 on: May 14, 2008, 10:34:10 AM »
Girls - DEFINITLY your MAIN concern should be putting off a PKR or TKR for as long as possible!! If they had done a cartilage transplant instead of a PKR way back when I was 29 I probably wouldnt be in this mess I'm in now. When they scoped me to see how advanced the OA was, they said then that either they could do a cartilage transplant OR a PKR. The surgeon wasnt sure about the cartilage transplant as he said they didnt have much success with it, so he opted for the PKR. This was the easiest for HIM not the best for ME. I would have been bettter served at that point if they had attempted the cartilage transplant. IF it had worked I wouldnt have had an implant go loose on me. But thats in the past, and its no  use speculating would could have happened, I just know that one OS did what HE did best and not was what the best for me in the long run would have been. I feel very bitter about this, thinking in retrospect. So always try to save the joint first.
Beda xx
'79 trauma v.knee
'81surgery patella lux.
'84 osteochondritis dissecans
'86 osteotomy
until now 16 knee surgerys ink. 6 failed tkr. pretty much exhausted all areas and types of surgical proceedures for knees
all TKR's loosened & failed
2008 wait for Final arthrodesis
constant pain

Offline tanyap

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Re: Kathy's Pre-op Diary
« Reply #16 on: May 14, 2008, 11:21:50 AM »
Beda - this is why we need your Pre Op Diary so much - because you have knowledge that will help the rest of us out!!!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline kathat

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Re: Kathy's Pre-op Diary
« Reply #17 on: May 14, 2008, 11:42:01 AM »
Far out, what a day!! I got a phone call after lunch to say that my father-in-law had been rushed to hospital due to a heart attack, so it was all systems go to organise someone to pick up the kids and to get to the hospital. Thankfully he's okay but he's obviously got medical issues that need dealing with, and will need bypass surgery in the future.

Beda - My OS knows what he is doing, which is why he couldn't give me any promises of success. I have no doubt about his abilities or about his knowledge, I am just disappointed there wasn't more hope, but he told me very early on that patellofemoral arthritis was not easy to deal with and there were limited surgical options to help treat it, and this has been backed up by what I have researched. It's not just alignment issues I am dealing with, it is also the fact that I have bare patches (down to bone) on a third of each patella and I now no longer have the thick ridge of cartilage that runs straight down the centre of each patella. So this will affect the alignment of the patellar, as will my lack of good quads, so I can see why the lack of optimism exists. Things are getting too far gone damage-wise to enable better results. BUT, if anyone can get me through this surgery successfully it'll be my OS and PT. I plan to put off any replacement surgery for as long as possible. I am young and can cope with some level of disability if need be. I'd rather do that now and then look forward to a new lease on life when I retire and can have TKRs done, instead of running the gamut of TKRs and revisions and ending up spending my retirement in pain and in search of a radical solution because all else has failed. If I have to use a crutch for support and pain relief here and there in the meantime - well, I am young enough to cope. It won't be so easy when I am older. So I can understand avoiding TKRs or PKRs for as long as possible.

Karen and Tanya - I have been there, done that, with the tape for sensitive skin. I have tried everything possible in the past. It's mostly because of the time span that you have to tape for. I can tolerate most tapes for a short period of time, but the longer I have them on for, the more I have problems with them. I even react to rubber elastic in bras/knickers and tubigrip, given long enough, though anything with adhesive is the worst. After my LRs I got to the stage where I was scratching my knees all the time due to the tubigrip I was wearing, though it was a week or more down the track before I really had problems. I do plan to try the taping, up to the point where I cannot tolerate it. I don't want to have blisters/rashes on my knees when it comes time for surgery though, so I have to be careful. When I do tape my knees I can feel an immediate improvement in the way my knee moves, and it certainly doesn't make things worse, just different. It worked very well when I was younger, before I had all the cartilage damage.

Kirsty - Thanks for the details. I will keep them on hand if things don't work out. My OS does specialise in arthritis surgery, replacement surgery, and cartilage grafting (which has been put on the table as a possible option to consider - because a TTT has to be done before or during patellar cartilage grafting I am okay with trying the TTT first and seeing how it goes before bringing grafting into the discussion). My OS also gets all the difficult cases, and I have been impressed with some of his success stories (I asked around before selecting a surgeon), so I don't think I'll need to go for another opinion, but I won't hesitate if I get told "that's it, there's nothing else we can do", unless I get very good reasoning for it.

I wrote a request out for three weeks of long service leave to use in addition to sick leave when I have the surgery. My PT told me to expect about six weeks off work. I didn't bother asking my OS, as they tend to look at the surgical healing time only and forget about gaining muscle control in order to function at work. Thankfully I don't have to spend too much time on my feet at work because I work night shift and it's fairly quiet. I moved wards last year. I was on a ward where I had to do a lot more walking overnight, but I was lucky a vacancy came up on a quieter ward. I worry about my ability to continue working, but we have some shares put aside to help cover us in an emergency. They will help cover the mortgage payments while we work out what to do. If I have to leave work then I will enjoy my time at home with the kids and take the opportunity to train for something else I might wish to do. If we have to move house then so be it. I am not going to stress too much about things that haven't happened yet and that can't be changed if they do.

Anyway, I am off to soak in a hot bath. It's been a stressful day and I need to chill for a bit. At least I don't have to work - I rang in sick as soon as I got the phone call about my father-in-law. We will give the kids a day off school tomorrow and take them in to see "Pops". My husband lost a best mate to a heart attack at age 35, and my son adored him and was devestated when he died, so he freaked when he heard the words "heart attack". When we picked him up he looked pale and stressed, so I think he'll benefit from seeing his Pops alive and talking.

Bye for now. My bath is calling!

Kathy

Offline Beda

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Re: Kathy's Pre-op Diary
« Reply #18 on: May 14, 2008, 11:50:47 AM »
Kathy - you are just SO IN TUNE with what is going to happen to you, you'll be just fine I'm sure. Sorry to hear about your father-in-law, thats never good, but at least you can take your children to see him so that they can get some comfort and peace of mind. I think you were wise taking time off work.
I find a good soak in the tub threrapeutical as well, well done - enjoy it!!
Catch ya later
Love Beda xx
'79 trauma v.knee
'81surgery patella lux.
'84 osteochondritis dissecans
'86 osteotomy
until now 16 knee surgerys ink. 6 failed tkr. pretty much exhausted all areas and types of surgical proceedures for knees
all TKR's loosened & failed
2008 wait for Final arthrodesis
constant pain

Offline Silkncardcrafts

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Re: Kathy's Pre-op Diary
« Reply #19 on: May 14, 2008, 12:52:09 PM »
Hi Kathy,

Sorry to hear about your father-in-law. It is good that they got onto it quickly. That is absolutely crucial. I have worked as a volunteer in cardiac rehab for a couple of years. So, know how important it is to get help straight away. My Dad also suffered a heart attack a couple of years ago.

Great you are able to take 6 weeks off. I wish I had that luxury.

I do hope your father-in-law will be ok.  :D
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline kathat

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Re: Kathy's Pre-op Diary
« Reply #20 on: May 14, 2008, 03:15:18 PM »
I am so glad my father-in-law didn't ignore the pain the way some people do. He did finish the golf hole he was on though!! He was on the last hole when he started feeling really bad and he thought that holing the ball would be the quickest way to get it all over with so he could get home. He drove home and then called an ambulance because he was feeling worse by then. He is a very lucky man! He looked so pale when we saw him, and he had apparently been even paler before I got there (I was the last to arrive, as my hubby works near the hospital and my mother-in law was with her husband in the ambulance). I am just hoping that nothing further occurs and he makes a good recovery.

Kirsty - I am very glad that I have enough paid leave to cover my rehab. And being able to arrange surgery so that I get school holidays off is great. I plan to enjoy every minute of my enforced time off work, even though it is for surgery! I am unable to return to work until I have full medical clearance - no cane or brace is allowed and I can't get light duties as it's not worker's comp (I am already on restrictions, but thay don't really affect my job enough for work to worry about them). How long do you have to take off for your surgery?

Beda - The soak in the bath was lovely and very therapeutic! I hope I don't have to abstain for too long after surgery!

Well, it's time for bed. Goodnight all.

Kathy

Offline Beda

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Re: Kathy's Pre-op Diary
« Reply #21 on: May 14, 2008, 03:22:28 PM »
GOD NAT!! SOVE GODT OG DRØMME SØDT!! Thats good night, sleep well and have sweet dreams in danish!
Beda xx
'79 trauma v.knee
'81surgery patella lux.
'84 osteochondritis dissecans
'86 osteotomy
until now 16 knee surgerys ink. 6 failed tkr. pretty much exhausted all areas and types of surgical proceedures for knees
all TKR's loosened & failed
2008 wait for Final arthrodesis
constant pain

Offline Sore knee

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Re: Kathy's Pre-op Diary
« Reply #22 on: May 14, 2008, 06:48:38 PM »
Sorry to hear you need surgery Kathy but when I get home I will catch up properly.

Hope your FIL is ok.

Take care and talk when I get home
11/5/07 LR right knee and cartilage tidied up
6/8/07 Knee aspiration, steroid injection- more physio
22/8/07 Knee to be scoped for answers
16/5/08 Patella stabilisation for  subluxations
24/6/08 Infection -hospitalised for a week. Debridement surgery
21/11/08 Repeat patella stabilisation performed

Offline kathat

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Re: Kathy's Pre-op Diary
« Reply #23 on: May 15, 2008, 01:01:39 AM »
Hi All,

Well, the stress has finally gotten to me - I woke up this morning with a croaky throat and stuffy nose! Blah  :P I've got too much to do to be sick!! We have kept the kids home from school today and we are going to see my FIL. I'll have to stay well away so I don't pass my germ on  :(

The good news is that my washing machine is now working!! Just as well, as it's been the week for bed wetting and I have a pile up of sheets to wash. I think it must have been the bucket full of water I slopped everywhere in the laundry (the handle came off) that got into part of the machine and stopped it working. Now it has had time to dry out it's fine. What a relief!!  :D

I hope you all have a good night (it's day here, but I am sure it's night for most of you). Take care.

Kathy

Offline kathat

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Re: Kathy's Pre-op Diary
« Reply #24 on: May 15, 2008, 06:21:10 AM »
Well, I have tried the taping and it HAS helped, so I am a bit more hopeful about the TTT now. I found that the aching improved the second I applied the tape and that I was able to walk more comfortably. The knees still flared with some of my exercises, but at least I stand a chance of building up some muscle before my surgery, as I can do some more walking as well as my SLRs if the taping contiues to work. I may just have to apply the tape before going for a walk and then remove it after, so I don't kill my skin. I will see how it goes.

Kathy

Offline tanyap

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Re: Kathy's Pre-op Diary
« Reply #25 on: May 15, 2008, 09:25:37 AM »
Hi Kathy,
Im so sorry to hear about your FIL, I hope he is ok,thank god he didnt just ignore it!!!

Poor you and your stuffy nose and croaky throat - that is definitely stress!!!! Im terrified of coming down with something minor like that in the next week!!

Wow - taping helps!!!! Thats AMAZING!!!!!!!!!!!! The TTT should bring relief without skin irritation so!!!

I am now on the 1 week countdown!! Yikes!!
xx
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline Silkncardcrafts

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Re: Kathy's Pre-op Diary
« Reply #26 on: May 15, 2008, 10:34:10 AM »
Hi Kathy,

Glad your father-in-law is ok and got onto it straight away. Does he need surgery or stents ?

I am sorry to hear you're not feeling well. Take care of yourself.

Saw my doctor tonight and very relieved. Think I'll get over the line with my surgery next week.

It is one week till Tanya and my surgery today. Hard to believe. I hope my OS is ok by then as he's just had surgery himself. I think he's back at work next week.  8)
11/1996 - RK LR
07/1997 - LK LR
11/1998 - LK MPFL Reco
12/2005 - RK LR Repair
07/2006 - LK MPFL Repair
11/2006 - LK LR Repair
22/05/08 - LK Trochleoplasty
11/02/10 - RK Trochleoplasty
07/03/11 - RK Chrondroplasty

Offline tanyap

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Re: Kathy's Pre-op Diary
« Reply #27 on: May 15, 2008, 10:49:17 AM »
What was your OSs surgery Kirsty? Wonder who performs surgery on the surgeon and also wonder does he go through all the same worries about asking questions that we do!!!
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline arkitect06

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Re: Kathy's Pre-op Diary
« Reply #28 on: May 15, 2008, 11:18:45 AM »
Kathy, I wanted to tell you congrats on finally getting some info on this surgery.  I hope it works out for you!  I really really do.  If it doesn't, I hope it turns out better than me at least.  I also have a lot of cartilage damage.  They think that is why I am having so many problems after the TTT.  I hope you don't get too stressed out over everything.  Despite your OS's negativity, it sounds like you are thinking pretty positively.  I hope you get some relief from this!!  I had a some what aggressive protocol as well, but not as much as yours.  I was 50% weight bearing for 2 weeks, then was supposed to be FWB after that.  Well I have to get ready for work.  Thanks for all of your support and encouragement on my situation!  GOod luck!

Farrah
11/16/10 Fulkerson TTT, chondroplasty, LR (Left Knee)
11/17/09 SCS re-implant
7/29/09 I&D
5/7/09 SCS removal b/c of MRSA
12/15/08 & 2/6/09 SCS Revision
10/30/08 Spinal Cord Stimulator Implantation
6/27/08 diagnosed with RSD
1/8/08 Fulkerson TTT, chondroplasty, LR (Right Knee)

Offline kathat

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Re: Kathy's Pre-op Diary
« Reply #29 on: May 15, 2008, 12:02:46 PM »
Tanya,

I reckon they probably worry as much, if not more, than us. I don't know about the worry about asking questions though. Whoever operates on them is probably so nervous about operating on a fellow surgeon that they would bend over backwards to give them lots of relevant information. I find it hard to have patients who are in the medical profession.

I am thrilled the taping helps. I really hope that it results in being able to get some muscle strength in the next few weeks. If it then results in an improvement in the pain without the tape then I will ring my PT and OS and discuss whether I should cancel the surgery, though my patella still shoots off sideways when I flex, so I guess I need it fixed before it chews up more cartilage. I just hope I get some benefit before I can no longer use the tape - my knees felt like I had stripped a layer of skin off when I removed the tape today  :(

Kirsty - My father-in-law had a stent put in fairly quickly on his arrival to hospital, but he will ultimately need a bypass as other problems showed up when they did the angiogram. He had much more colour in his face today - he looked so pale yesterday! The kids were happy to see him smiling and talking and they are much more relaxed now. So glad to hear your surgery is likely to go ahead. What a relief. I am glad I am sick now and not in four weeks time! I got sick right before my last surgery and I was madly rushing around trying to fill a script for antiboiotics so I could start treatment ASAP. I was better before surgery, though not fully recovered. I was extremely worried about the surgery being cancelled, so I know what you're going through. I hope your surgeon is recovered in time for your op.

Farrah - Thanks for the positive thoughts! I am feeling good about the fact that my OS is convinced that this surgery won't make me worse, short of surgical complications. Before my LR he told me that there was a 5% chance I would end up worse. Things are pretty horrible as they are, so I am not too concerned about the surgery causing me problems. I am not able to do much in the way of activity, and it's hard to get through a day's normal activity without aching. I spend lots of time in bed with my feet up trying to calm my knees down after a busy day, and things seem to be getting worse now that the cooler weather is here. I just want some relief. If I don't get it then at least I have tried. How bad were things for you before your surgery? I have days where I can't bear to walk unless I have to, because my knees ache from deep within when I do. And I get sharp pains when I have overdone it too. I am so regretting leaving things for so long before seeing an OS!!

Cheers,

Kathy















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