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Author Topic: At Last...After 8 months, I have a surgeon who knows what he's talking about!  (Read 1376 times)

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nuttydiva

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It has been 9 months since my accident & I am still in knee braces & on crutches. I was referred from a general OS to a specialist (the general OS said my x-rays & scans were clear, so there was no problem!)
After seeing this wonderful knee specialist, I now have a slightly clearer understanding as what is wrong & how they are going to fix it!

My knees dislocate up to 8 times a day & I am in severe pain. I take 24 tablets a day to help with this. The specialist told me that I will need 8 operations over 15 yrs to fully correct my knees due to this accident at work
The first operation is in 10 weeks, he is going to place a sling over the knee cap to try & stop the dislocations. After 12 wks recovery he will do the other leg. The reason my knee keeps dislocating is the athritis to the knee joint means there is no cavity for the knee to sit in, this has worn away due to the recurrent dislocations & now there is nothing holding the knee cap
Operations 3&4 - he has to move the bone below my knee to my ankle (tib& fib) as they are misaligned, this will mean a cage & screws & a long recovery
Operations 5&6 - he will attempt to channel a cavity for the knee to sit in (tho he thinks arthritis may be to advanced for that)
Final ops - total knee replacement

I have started physio to build muscle to help recovery time although finding it hard as nothing was done for 8 months

Dreading the operations, but at least I know I am not mad & imagining it!

Offline Nettan

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Just my opinion. He has planned a lot of surgery for you. And even if you think he is wonderful, you really should go for a second or even third opinion before starting this.
Surgery 6 times left knee torn meniscus, RSDS,chondromalacia, nervdamage cause constant nervpain,chronic inflamm.
Spinaldamage wheeler 100%.
Right knee damaged aug-06, use brace surgery 4/9-07.LCL tear.

Offline My Sister Sam

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Hi nuttydiva,

I echo Nettan’s sentiment. Seems awful pessimistic to assume each surgery, leading to a TKA, is not going to do the “trick”. If your OS is confident that you’ll need each of the procedures you’ve listed, why not do them at the same time? Procedures 1 through 4 are all realignment surgeries. Procedures 5 and 6 are trochleoplasty, which I can say, from experience, isn’t likely to bring you a favorable outcome. If he believes your femoral groove needs to be reconstructed, it makes sense to have it done in conjunction with the realignment procedures.

Additionally (just one opinion you can take or leave),  if my OS told me I’d need all these procedures, and beforehand, already suggested I’d be in need of a TKA in the end, I’d be out that door so fast, even MY head would spin.

Did your OS state that you would need all of these surgeries, or merely rundown the different procedures available if one or another didn’t resolve your problem?

I hope you’ll consider other opinions before signing up for this long journey.

Wishing you the best.


'70 Auto accident - Salter Harris IV fracture distal femoral epiphysis - R knee
'71 R - Bony Bar Resection femoral epiphysis
'78 L - Epiphysiodesis
'79 R - Distal Femoral Osteotomy/LR
'04 R - TTT/Medial Reefing 
'05 R - Trochleoplasty/Medial Reefing/TTT
'05 R - AIR/LOA
'07 R - TKA

Offline tanyap

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Hi NuttyDiva,
I appreciate that you are heartily sick of the problems you have with your knees and want to see an end to all of this.

Can you give a little more info as to the nature of your knee problems (both knees?) - did they ever dislocate before your accident? What exactly was your accident?

It certainly seems like a lot of surgery to sign up for (and over a very long period of time too - do they expect you to continue on crutches, physio and pain meds for 15 years?) - perhaps a second and third opinion may do no harm before making a final decision?
1986 - recurrent dislocations of right patella began
1988 - Modified Hauser Procedure
1991 - dislocations started again
2005 to 2007 - 150 dislocations in 2 years - OUCH!!!
June 2007 - new OS, new physio
Oct 2007 - VMO woke up
Mar 2008 - big quads, still dislocating
Apr 2008 - next OS app

Offline fitnesskitty

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Hi NuttyDiva,

I agree with those that suggest a second or third opinion.  That seems like a lot of surgeries just to end up with TKRs in the end anyway.  I think 15 years is too long to make a person go through to get back to somewhat normal.  I would definitely be questioning this and seeking out other opinions before going forth as the others have said.  I wish you all the best in your journey back to a normal life. 

Sarah
Aug 17 07 Injured
Aug 23 07 Open surgeryOct 18 07 No progress made at PT for awhile - stuck 52/53 degrees
Oct 23 07 Saw OS, wants second opinion from partner-ROM stuck 30-35
Nov 1, LR, LOA, MUA
PT 2X/week now, was 3X
Jan 8: ROM 134
Rest In Peace, Lucky!  I love and miss you so much!!!!!!!!

Offline kimmyxs

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I hate to be agreement with everyone else, but I am.  If the end result is TKR, I would go for that before doing a bunch of other surgery.  I would recommend a second and third opinion also.
6/03/89 - First Knee Cap Disclocation
7/05/89 - Returned to work
6/17/06 - Tramatic Knee Cap Dislocation and Vertical Fractured Patella
6/28/06 - ORIF - Screws - no wires
8/24/06 - Ditched the brace - start PT
9/20/06 - First spinning
1/15/07 - screw removal, LR , VMO Advanc  & patella cleanupl

dileigh

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I agree with asking for more opinions,  as a general rule, if it seems to good to be true, it probably is.

It may seem like a good thing to have someone who says that they know what is wrong and how to fix it, after having a doc tell you there is nothing wrong, but that seems to be a lot of surgery to have all of that basically undone with the tkr.

Are you on worker's comp?  This surgeon just may be seeing dollar signs.

Diana















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